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Lonsurf
My husband was diagnosed with stage stage 4 signet ring cell colon cancer January of 2018, he has had chemo folfox along with other chemo meds. His cancer has spread to the lymph nodes around his spine and his neck area. He started lonsurf a few days ago . He has done nothing but sleep and he has no appetite. The Dr said…
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Oasis of Hope in Mexico?
I guess I made the subjet line of my last post too long. I was wondering if anyone has had experiences with Cancer Treatment Centers of America or a coworker just told me today about a place in Mexico called Oasis of Hope? Thank you
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Colon rectal Cancer Stage 4
My husband at 39 years old was diagnosed with stage 4 colon rectal cancer in Oct 2023. He had Mets behind his aorta, left breast, and ilium. He was told these Mets would never go away and they’re just here to help him live a little longer. After colon resection Nov 1st, he then went on to start chemotherapy in Dec. During…
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What to eat to live longer
I have low fat diet food like Nutrisystem, weightwatchers and the list goes on and home made foods Use STEVIA Avoid high fructose corn syrup Keep sugar low Lower salt diet Use mid cough drops Keeps moving Here Seasoning salt sub recipe helps with tast of foods SEASON Salt Ingredients 1/4 teaspoons salt 2 packs Stevia ¾…
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22 years later still Cancer Free!
Good Morning CSN Family, Just wanted to share hope and inspiration to anyone just starting this journey. Brief History: Surgery March 20,2002. Stage3C Rectal Cancer, 10 out 14 positive lymph nodes. Treatment: Chemo & Radiation. At the time my young son was 10 years old, today he is a 32 year old school teacher. I have been…
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Chest Port and Exercise Concerns
has anyone had any concerns about exercising their upper body with the chest port in place? Are there any restrictions to activity?
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Krukenberg tumor
Hi all - Last year, I (57) was dx'd with a Krukenberg tumor in my colon that had metastasized to an ovary, omentum and lymph nodes. Had hysterectomy, appendectomy and removal of 90 lymph nodes (only two were malignant). Three months later had CRS/HIPEC bowel resection. Did three months of natural methods which worked until…
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Colon cancer
Hello my new here and recently diagnosed with colon cancer have surgery on the 3rd of this month any advice on what's to come pretty nervous about everything
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My 65 year old male neighbor has a positive "cologuard"
My 65 year old neighbor said he has had colonscopy every five years since age 50. On a website he read his insurance will pay for a cologuard test, but he doesn't know anyone who has had it done. A cousin who is a physician ordered it for him, and he sent away for a kit with has a tub abd brush and liquid and he sent his…
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Colon Cancer with Lung Mets
I have stage IV with Mets in lungs (7 small nodules in the right lung in Dec 2023). I’m only on 2nd round of FolFox with Avastin and will have CT in April to see what’s going on and will meet with a thoracic surgeon to discuss options. new to all this, I wonder how fast Mets progress in the lungs, symptoms of Mets growing,…
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Hip and Knee pain 2 years after chemo
My dad is almost 2 years out from chemo (he finished on 5/25/2021) and he’s been having horrible hip and knee pain as soon as he puts any pressure on it. He still walks around but he’s in pain all the time. He was due for a follow up and so doc ordered PET and a bone scan, and I’m just a horrible mess of nerves. I know I’m…
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New Member
Hello, 84 yr old Mother diagnosed with Stage IV metastatic colon cancer. Has decided not to receive chemo. She is still active and determined to continue on.
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Colon cancer
Hi, sorry I wrote my story in one of the comments as I just signed up here minutes ago. Don’t know what I’m doing but maybe someone can share there experience! To help me through the process. I’m 41 yrs old Newly diagnosed with colon cancer. Potentially stage IV as there is spots in liver and lungs. Oncologist presumes it…
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Stage IV Cecum Cancer (ileocecal valve) with Mets to Lungs
Reading all these discussions, it shows everyone’s story is so different. For me, I am starting out the door with stage IV. BAM! A mucinous adenocarcinoma, 6.5 cm, 9/19 lymph nodes positive and probable 7 nodes in the right lungs. No symptoms before mid Nov. Still in shock. My oncologist is recommending FOLFIRI, but thinks…
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New to the website
Two weeks ago, I was diagnosed with colon cancer and had a tumor the size of a prune removed and a bag added It hasn't been easy with the pain and watching my bag My daughter-in-law changes it All this is new to me as far as colon cancer I am a stage 3 prostrate cancer survivor (2 years on March 9) and this caught myself…
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Third cancer found during surgery for metastasis of second
I swear, I am starting to wonder if my body is some kind of cancer generating anomaly. I had breast cancer in 2010. Then colorectal cancer in 2021. This year after tracking a growing lung nodule for months, a biopsy confirmed that I had a met of the colorectal cancer in my left lung. So, off to see the surgeon I went to…
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Can someone please
Respond to my earlier posts I’m really worried.
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Survival of rectal cancer w Perineural invasion
Hello my last post was kind of hard to read I’ll try again I was diagnosed with stage 3 rectal cancer in April of 2023 I started long course radiation at duke in May finished that and started chemo in August I had my low anterior resection surgery on 12-5. I’m currently dealing w an abscess that has been terrible. My…
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Perineural invasion
my be pathology after lar surgery stated perineural invasion positive otherwise no other risk factors nonlymph node involvement I’m 42 w two small kids last yr has been a total nightmare. Looking for anyone in similar situation that survived rectal cancer
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Didn't think it was important..
I still have imposter syndrome, I was diagnosed with colon cancer back in 2021 Dec, had it removed Jan 25th 2022. It was stage three, but I have a 12 percent chance to get it again, so low risk. I didn't go through chemo or anything like that. So for me I figured it wasn't that bad, but when I look back at the photos, I…
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Anemic diabetic female diagnosed with stage two, spread to stage three. What to expect?
hello i am asking this from the perspective of a person who knows somebody who has received this diagnosis. Chemotherapy treatment is also looking like a likely requirement. I just wanted to know honestly if there are any increased risks of complications or survival due to diabetes and anemia. The person in question is a…
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Help with building a watchful waiting gameplan
I am 3 weeks post-op for a right hemi-colectomy, with a Stage II, Grade 2 diagnosis. No spread to nearby organs visualized, and no involvement in 41 LNs resected, but there was LVSI seen in small vessel(s) but no large ones. So, T3N0. There was a single tumor, and it formed MSI-high (dMMR) and BRAF mutations, which,…
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My journey into my worst fears
My journey into the unknown. About 45 days ago during a routine exam it was discovered that I had polyps in my colon, which isn’t abnormal for a person as young as I am. My PCP sent them to a lab for a biopsy. I get regular checkups so I wasn’t too concerned. About a week later I received a call from the doctor saying that…
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Alone
So recently mom went to the ER because she started having panic attacks and of course unknown fears etc. My father is finally set up with hospice care and now I know he will get the assistance he needs when it comes to his health and "quality of life" So tired of hearing that saying. Anyways, I havent updated you guys…
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Hair loss with chemo
It seems like I had been told that hair loss in not usually a side effect of chemotherapy drugs in the treatment of colon cancer. Yet, lately, my hair seems to be getting quite thin. I am on 5FU + Oxaliplatin + Avastin. Has anyone else experienced hair thinning or hair loss from these drugs? I'm wondering if my hair…
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Loved One Fatigue?
Hi everyone. I hope this finds you well. I was diagnosed with Stage 3 rectal cancer in November 2022 at the age of 40. They also found a rather large tumor in my sigmoid that wound up demanding emergency surgery. 6 weeks of radiation/chemo, 3 major surgeries, and 8 rounds of chemo later I'm on the cusp of potentially…
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Oral chemo - xeloda
Anyone had any experience with oral chemo xeloda ?? I welcome any suggestions, ideas, outcome success stories if any, advice, side effects (specifically with regards to psychological). I want to know the good, the bad, and the ugly !
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Has anyone had the campto/5FU regimine?
Supposed to start treatment on Wednesday but haven't gotten call to have port placed yet. I had oxaliplatin/capecitbine in 2021 and had major nerve damage along with a lot of bad g/i issues. I'm pretty worried about starting this new protocal and was wondering who else has had this and how did it go for you?
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Freaking out over here.....CEA/L5 mets
Long story short...Stage IIB colon cancer April 2021. Everything good until METS on liver July 2023. Liver resection. One nodule less than smaller than 1 cm. CEA returned to normal Dec 2023 METS to lung (1 nodule smaller than 1cm) and 1 small tumor (actual size unknown). Surgery with nodule removed and lung resection…
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Mom - Stage 4 Colon Cancer
Hello everyone! I just found this website today, and decided to join for my mom who was diagnosed with stage 4 colon cancer back in December of 2021. I have read a few posts and really appreciate everyone's openness and vulnerability of discussing their diagnoses and their stories. The story itself is quite wild. My mom…