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Metastasis to Peritoneum
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I had mets to the peritoneum and a majority of lymph nodes that were removed. That was 10 years ago. I have been in treatment since, various chemos and drug trials. My fourth drug trial - immunotherapy - worked to keep most of the cancer stable or killed. A couple of the tumors in my lungs misbehaved, so had them treated with proton therapy last month. Being tired from treatments is the big issue. Also some damage from radiation to my back caused weakness in my left leg. Do have some pain from back surgery to remove tumors, but it is pretty much controlled at this point.
A few things used on me since I started were not available 10 years ago. Each day brings something new.
I started triathlon training 3 years after I got DX, which has helped keep my going. The leg has held me back, but I started trying to run and bike again the last week or so.
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Microsatellite stable (MSS) was something that precluded immunotherapy treatments when I was first diagnosed. In fact when I went for a second opinion when my cancer spread, they confirmed that immunotherapy was not used/researched for MSS, but that research looked to be starting. 5 years later or so, I wound up in a immunotherapy drug trial (I am MSS). And it worked for me. Always worth looking into drug trials that may work. Also getting a detailed work up of the generic make-up of your cancer may show which treatments may work. Some places do this automatically. There is also Foundation which will do the testing.
And one last thing that I learned relatively recently - MSS can turn MSI over time from various treatments or otherwise.
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