Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Colorectal Cancer

Update on husband almost 6 years stage 4
It’s been a long time since I’ve posted. My husband was diagnosed in 2017 at 37 with stage 4. Many surgeries, an ostomy, too many chemos to count and radiation he is still here fighting and enjoying life! In between the 8 reoccurrence we’ve lived and enjoyed so much! Most recently he had 12 liver Mets removed, bile duct…
Update and question (BRAF mutation)
Hello! My son (stage 4, liver Mets, BRAF) had a meeting with oncologist today. I mainly wanted to ask about a possible liver resection. He basically said it will never happen because he has many (small) tumors on both lobes of the liver and because his mutation (BRAF) which is very aggressive, makes surgery not only…
Stage iv colorectal cancer
Hi, my husband was diagnosed with stage 4 cancer mets to the lungs and liver. He also has a peretonial carcenoma. He just finished 13 cycle of folfox. Everything has shrunk but they wont operate. They say the cancer will only travel more if we stop the chimio to operate. So continue chimio forever… should we get a second…
Six years
Although the reformat has rendered this forum a bit of a ghost town, I will fall back on an old pattern and note that yesterday was the sixth anniversary of my colectomy. At that time, with a major blockage, I had no idea if I would survive another day, no less another year. I figured if I could survive ten years, I would…
Fart question (sorry)
I hate to even ask this question but this is the only place to get answers...I have what I call chemo farts and they are very bad I do it alot and smell .....OMG the odor does anyone else have this please respond as soon as you stop laughing... Thanks Louann
Help with advice
Hello CSN! I was diagnosed recently with colon cancer. I was wondering if there are any survivors who had successful comfortable colon surgery and if there any surgeons that you worked with that you would recommend. I live in Pennsylvania. Thank you for your help!
Live support group
Does anyone know if there is a live support group in Tampa Fl? or how to find one?
Fast growing colon cancer
I’m new new to this. Diagnosed with tumor 4 days ago. Malignancy 2 days ago and I have question no one will answer. I had colonoscopy less than 2 yrs ago that was clean, no polyps at all. Now I have malignant invasive tumor and polyps. Everything says wait 10 yrs between if colonoscopy is clear., so this to me is some very…
Life updates and wanted to hear how you are doing
Hello guys, This post doesnt mean that I am back. What keeps me away is the design. I hate it. I wanted to tell you how the last months went. It was probably more than a year ago that I posted last. More than 90min ago the day went on to 13th March. Yesterday would have been Papas 59th birthday. Let us start with the good…
Any men develop prostate cancer?
I have a biopsy in a few weeks because it seems I might have prostate cancer now. Wondering if anyone ever had a spread to the prostate. Coach
Update on old member Diane
Just got the news from Diane that 5 years and 3 months since her first dx (Stage III) and 2 years and 3 or 4 days since her hepatic resection, her CT and MRI's were clear. Her doctor was very upbeat and said that at 2 years with no recurrence, she has a really good chance of no other recurrences. CT and MRI every six…
Rolles Surgery
Update: I have 5 lung nodules, very small. They showed up in Sept. One liting up with SUV 1.3. Indeterminate by SOC. Here in the USA it is watch and wait mode but don't want to chance it as I don't want to miss the surgery boat and feel I will miss it here. So, going to Germany for Rolles surgery to get them out of there…
Seeking Advice on Chemotherapy Treatment and Stomach Pain
Hello Everyone, I am writing to seek your valuable advice and insights regarding my brother's current medical situation. We live outside of the United States and have some doubts about the medical staff at the hospital where he is receiving treatment. This is why we are reaching out to you for help. My brother is a…
A Brother's Heartfelt Plea: Seeking Guidance and Support for Metastatic Colon Cancer Journey
Dear CSN Community, I hope this message finds you well. I am reaching out to CSN community on behalf of my brother, who has been diagnosed with metastatic colon cancer. We are seeking advice or insights from those who have experienced a similar journey, either personally or through their loved ones. Patient Background:…
Doc says chemo not needed
I was diagnosed with Level 2 colon cancer. The tumor was large but was contained and had not spread outside my large colon. However, it was blocking more than 2/3 of my colon so I had a partial colectomy within two weeks. It was done via robotic laparoscopic surgery. They removed about a foot of my colon and 22 lymph…
Chemo for stage III colon cancer with BRAFV006 and MSS
Hi, Like everyone, I sure didn't expect to be here. Had surgery on 22 Dec. 2022, mass removed, 3/22 lymph nodes positive for metastatic. I'm 65, female, in pretty good shape. My fears over FOLFOX are numerous. I'm only just now feeling 'normal' again after having my appendix rupture (blocked by tumor) n the ER, then sent…
Anxiety……
Treatment is over, cancer appears to be gone and I’m back to work. I have less to worry about than I have in a long time. But I find my anxiety getting worse every day, it comes on easier, stays longer. Ativan helps but I try not to take it often, thc helps but it’s not perfect. I can’t watch anything suspenseful or…
Tumor Deposit pn1c and Perineural Invasion - stage IIIA
I post couple weeks ago about my Robotic Assisted Sigmoid Colon Resection surgery. Now the surgery report came back. It brought back more bad news. My primary tumor is PTis-1. Meaning maybe Tis or T1. However they found 1 tumor deposit and Perineural Invasion. I guess no one can explain how it happens. Now based on the…
Chemo induced Laryngitis
I have a doctor appointment with a Throat doctor to evaluate my condition. I have have chronic hoarseness or possibly laryngitis which I attribute to the Chemo drugs. My onocologist and the various nurses I have spoken with have claimed no knowledge of such a side-effect. How about all my fellow cancer fighters? Any…
Hip and Knee pain 2 years after chemo
My dad is almost 2 years out from chemo (he finished on 5/25/2021) and he’s been having horrible hip and knee pain as soon as he puts any pressure on it. He still walks around but he’s in pain all the time. He was due for a follow up and so doc ordered PET and a bone scan, and I’m just a horrible mess of nerves. I know I’m…
Encouragement and checking in
Hi everyone I often read and rarely post, but I wanted to update and hopefully have some words of encouragement. I have stage 4 metastatic cancer KRAS mutated G12C, TMB Low, MSS. My cancer was caught early at stage 2 and two years later returned in my liver, I was NED for a few months and then returned in my right lung.…
Single mom in Dallas with Stage 4 Looking for Support & Friends
Hi All, My name is Shannon. I have stage 4 colon cancer metastasized to my liver. I'm a single mom of an amazing six-year-old boy. I had emergency colon tumor obstruction surgery at the end of December. Just completed chemo #12 with two more to go before I get another CT scan for liver surgery consideration. I look forward…
Runny nose
Does anyone have a constantly running nose all the time? I take clarinex (even though my oncology doctor suggested I don't) because if I don't the stuff runs down my throat and out my nose. I go through a box of Puffs in a week, I have to use the kind with lotion or my nose goes all red. I can't blow my nose because the…
High tumor markers (CA) but clear scans.
Hello everyone, My first post. I have elevated Carcinoembryonic Antigen or CA levels of 150. However the PET and echo are clean. What does this mean? We are at a loss. I am currently doing chemo of Oxaliplatin. Many thanks for reading.
Good scan results followed by pains returning
Hello. Wondering if anyone has any experience of or insights.. My Dad has stage 4 Bowel and liver mets. Received good news last week at his first scan meeting since treatment started, oncologist said there is shrinkage of 30% or more (more so in the liver) however, for the last 3 weeks my Dad has had the usual pains back…
Power port
Had my power port put in about hour ago. Not bad of course still numbed up from local. Said it shouldn't b much discomfort though. Went to radiation and cancer Drs yesterday very helpful and compationate. The nurse practioner that works with oncologist seems awsome really connected think that helps going through this.…
Winter Marie has passed away
Her son posted the following: Taken from Winter's son's wall. All friends and family I appreciate your kind words and support for my mother and her courageous battle against cancer. She passed away peacefully a few moments ago with my sister by her side. I know she had many people who loved and cared dearly for her and she…
Essiac Tea
My husband has stage 4 inoperable colon cancer with mets to the liver. Our oncologist hasn't heard of Essiac Tea. We're trying to find out if it will negatively impact chemo treatments. Anyone have any information they can share?
anyone have a hoarse voice right after chemo
My voice always gets hoarse when I have an infusion for about 2-3 days after chemo. Anyone else experience this afterwards? Thanks, Patti
To work or not to work...any suggestion?
Greetings everyone! Real quick...stage IV and getting chemo for the third time in three years...cut two feet of colon, half my liver and the top of my lung... Several weeks ago the cancer clinic admistrator out of nowhere visits my chemo booth and says he thinks I should stay on some kind of chemo regiment for the rest of…

Colorectal Cancer

Discussion List

Discussion Boards