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Stage 4c colon cancer
I’m new to this forum and looking for information regarding my daughter, now 41, who is 22 months into treatment for colon cancer that had metasticized to her ovaries, 8 of 38 lymph nodes, omentum and peritoneum. She had a successful cytoreductive surgery initially with colostomy, followed by 12 chemo treatments of…
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Stable scans but worrisome labs.
Long story short….originally stage iib colon cancer in May 2021. Resection and 4 rounds of Oxaliplatin and NED for 2 years. Now I have mets to liver and lungs. Liver resection, one lung surgery and then 5 rounds of Irenotecan/5FU but disease progressed. Now I'm 12 weeks into a trial drug. Scan at 8 weeks showed "stable"…
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Blood work
So I recently had 2 iron infusions for iron deficiency anemia. I just had my blood work redone and now my red blood cell count is high and it was normal before? Also my MCV, and MCH are lower than before and my RDW is higher than before? Anyone know anything about blood work?
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A TRUE LOVE STORY
People always talk about true love stories, most of them being fiction, but this is mine and it is true. My name is John and I want to talk about my and my wife's battle with cancer, how it affected both of our lives and how our faith was not broken at all. I met Gail at McDonalds in Winston-Salem, NC where we both lived…
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18 years out after Stage 4 Dx
Hello all, This disease is so unfair and unpredictable but I did want to throw a chance of hope out there. It is now 18 years out from the initial diagnosis. Stage 4, mets to liver and lungs. Took long time but I'm still here and doing fine. I know the long term people who I first followed meant a lot. I have no magic…
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New here
I am 66 year male, diagnosed in April 2024 with Colorectal cancer. After an MRI & CT scan which were done soon after the surgical resection, I was given a Stage 3c and was told by cancer board that no treatment plan was needed for 6 months and a follow up is upcoming in late September. I have changed my diet since April to…
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New Here with severe Iron deficiency
I just found out I am severely iron deficient. I also have anemia. I have had changes in bowel habits, quite a bit of bleeding and bloating and gas. I have a colonoscopy on 9/10 but I’m freaking out in the mean time. My brother has colon cancer. Has anyone else had these symptoms but not had colon cancer?
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It's September again.
I suddenly realized it's that month, in which was my original diagnosis, on my late wife's birthday, [Sep. 25], our Anniversary [Sep. 1], and my last CRC/liver resection [Sep. 5 or 6]. Always a muted observance, but this year is 10 years since the Labor Day Friday, of my last cancer surgery in 2014, and 17 years past the…
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Colonoscopy
Hello all, I had my 1st year post colon cancer. The gastrologist took a biopsy of the surgical site, but said he didn't expect to have any bad results indicating to me it was a routine thing he did. There were no polyps and the resection surgery I had done a year ago healed nicely his words. Is it routine to have a biopsy…
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Anal Cancer
I am currently in recurrence of anal cancer. Originally diagnosed as Stage 2 T3, I underwent chemo and radiation to resolution, with recurrence diagnosed less than 1 year after completion of treatment. Currently, I run a message board for public awareness of HPV and HPV related cancers at www.hpvinfoweb@yahoogroups.com.…
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Enzyme levels are raised
My dad who is in his early 80s recently had his blood tests done and had one abnormal reading - his CA Antigen 19-9 level was just over 50. Normal range is around 27. I've heard that high levels of CA 19-9 tends to be associated with cancer of the pancreas, bowel, gallbladder, bile duct, lung. Is this true? He has had no…
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Has anyone heard from nowhere?
Hi all, probably to more of the oldies on the board, has anyone heard from/spoken to nowhere? I got a message on July 3rd, and see that's when he was last on. He's been a major support for me, so I'm just getting a bit worried, hopefully tho he's just enjoying a beautiful summer ! Thx
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New here, CEA panic
My dad was diagnosed with stage 2b colorectal cancer in 2022. After chemo pills, radiation and me giving him ivermectin, the tumor disappeared. Before cancer his cea was 2.78. In January it was 1.11. We had a follow up in September of 2023 and his CEA was 2.9. Not great but it didn't concern me too much. Dad is almost 82.…
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metallic taste?
anyone ever have this. I haven't had chemo in almost 2 weeks, but the last few days I have this taste that won't go away, kinda like a metallic taste I think.. Thanks Petrina
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Tumor Board reversed decision on surgical treatment
Greetings to all my fellow CRC challengers out there! I am in an odd predicament with my mother's current treatment plan and would really appreciate any insights and suggestions you may have. All thoughts and comments are welcomed! Quick background- My mother was diagnosed with stage IV colorectal cancer at the then end of…
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Chemo pill vs pump and how to support body for lessening treatment side effects
Aloha! I've been recently diagnosed with stage 3, 2"rectal tumor, 2cm into the wall, 7 lymph nodes inflammed, at the top of the rectum. I'm headed in for my 3rd biopsy tomorrow to get pathology results to give us a proper plan moving forward. I turned 40 in March, First noted symptoms April this year, found tumor early…
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Port removal
the doctor surprised me at my last visit. In April of last year I had a tumor removed from my colon and a met just on the outside of the same area. 12 treatments later including 5fu pump Two positive lymph nodes after surgery of removing both I have not had a positive test. Two CT scans and tumor markers have all been…
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Stage 4 Rectal Cancer w/Liver Metastasize
I've spent 2 months getting colonoscopy and liver biopsy. Next week I get surgery for colostomy and CIC implant. I'm seeking others who have experience similar based on your experience for good and or poor feedback. Thanks!
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Joint pain
I had stage 3 colorectal cancer last year. I had radiation with oral chemo. Chemotherapy. Ileostomy for 11 months and Mass removal surgery. And now I have such SEVERE joint pain. It’s every single joint. I literally hurt 24/7. Has anyone else had this problem?
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Sister just diagnosed with T4b rectal cancer
My 62 yr old sister was just diagnosed with T4b rectal cancer by Mayo Clinic in MN. We will meet with her team next Wed. to discuss treatment plan, etc. It felt like the life was sucked out of us with the MRI report. We don't know what to expect, what questions to ask, or anything else. We are overwhelmed & in shock right…
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CEA Increase
My CEA went from 3.9 to 4.6 in one month. Should I be worried? I don't smoke and I am not around anyone who smokes.
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CT Tomorrow morning & losing insurance!
CT tomorrow morning at 9am. Will I ever not live in fear???? So tired of this, every little pain to me is cancer. I guess I will see. Life is up in the air for me. My husband lost his job Friday, so my insurance will be ending December 31st. I hope he can find another job. We will have to move, house is going up for sale…
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Scar tissue and anal fissure
I'm 2 years remission , does anyone else have issues when passing a hard stool ,there is some blood, my Dr said that is the scar tissue causing that from a harder stool and I have a fissure , I guess I'm looking for reassurance . My last CT scan was normal , and I see my GI doctor today for my 6 month visit .
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Love, Medicine and Miracles
Hey gang... I am reading this incredibly inspiring book by Dr. Bernie Siegel. I know we had mentioned him earlier in a different topic and a lot of you have probably heard of him before. He has written a number of books... but this particular book I'm reading -- Love, Medicine and Miracles (published in 1986) -- is a must…
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any stage 4 signet ring cell survivors out there
Would love to talk to someone who has this type of cancer, I am pretty scared of what I am reading and what my Dr says about this cancer. Feeling pretty lonely right now Pat
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A long wait
I was diagnosed with stage 3 colon cancer in March and was supposed to start chemo a couple of weeks later. Wrong. Covid put me in the hospital for 21 days and then to a rehab center to fight a staff infection until 2 weeks ago Wed I came home. I have been ok to start chemo with a nurse, pt and ot coming to visit and…
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How many of you have colostomy due to cancer?
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Colorectal Cancer
My father was dx with colorectal cancer in 2019. He has gone through chemo, lonsurf in March 2024 which did not work. Was told only had weeks to months to live? Im scared!!
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1st FOLFOX treatment & im miserable
I was hoping to be able to handle the treatments and be able work on and off but this first weekend has been unexpectedly bad. I starred throwing up the Saturday I was unhooked after 44 hours of 5-FU. I I’ve been taking Zofran and/or Ativan and just feel nauseated almost all the time, thrown up 3-4 times Sunday and today.…
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Opdivo and Yervoy combo
my wife is currently on this combo and I mentioned in another thread her CEA and CA 19-9 are above the cutoff #'s for elevated risk of recurrence. She's s4 - had liver and lung mets both resected in several surgeries and possible long bone met - was on Keytruda trial for a year before this - had scary recurrence that was…