-
Question
so my question is.. there anyone that beat stage 4 colon cancer that went to the abdominal lining?
-
Passing
Have had the hardest couple of months, my father unfortunately lost his battle on September 2024. He was a strong man, who fought till the end. My heart is aching and broken. Currently battling with sadness, grief, anger, and guilt . I miss him everyday! Rip daddy!
-
Father starting chemo soon, any advice?
My father is 67 and recently diagnosed with colon cancer after finding a partial obstruction due to a tumor. He already had the resection but 4 lymph nodes showed some cancer so now he will be getting a port next week and starting folfox soon every other week for 6 months. Any advice on what to do to keep side effects to a…
-
Cea rise and covid just last week
CEA now 5.9 normal has been 3.5 to 4.0. My wife just tested positive for covid 2 days ago and yesterday all ok . Also had some stomach issues . Do we have update that recent covid infection cause a uptick in CEA Levels …Thanks for anyones update knowledge
-
Xifaxan experience
Hello again everyone! Quick background... 10cm stage 3 found two years ago. 8 rounds of chemo, 25 sessions of radiation, surgery (with bag) and then reversal surgery. I'm a year past the last surgery and was NED (yay!) at my last oncology appointment I had been complaining to my oncologist about my bowel functioning for…
-
Life after TME surgery?
Hi, I am 58. I was diagnosed with rectal cancer. A colonoscopy removed a small polyp using electric cauterization, but was not thought to be worrisome until the lab came back. Lab came back as cancerous to the edge. Originally, due to a follow up sigmoidoscopy, where ink was used to identify the spot, but caused swelling…
-
APR and recovery
I am moving into the next phase of treatment for reoccurrence which is APR surgery. I am interested in hearing about recovery times and side effects and the quality of life after recovery. My surgery will be around March 1, 2025. I will have a permanent c-bag afterwards. I am/was a very active and healthy 67 yo (more like…
-
Questions for a friend recently diagnosed
I have been on this site for over three years (Lymphoma Board) and am thankful for the good and caring folks here and all the support we give each other. I am writing here for a friend who was recently diagnosed with stage 2 colon cancer. Evidently the tumor is outside the rectum near the anus and not attached to any…
-
Hello
Hi all. Just popping in to say hello. 12 years NED. I never adapted to the new format so I don't come on much. It used to he user friendly. It's really hard to follow on my phone. I have a lot of post cancer issues, deal with a lot of pain from the botched surgery but I bet a lot of us can sat that. I just keep on trucking…
-
FOLFOX -- Symptoms seem to get worse
Hello! I hope everyone is doing wonderful today. My Dad is having a really difficult time with his chemo treatments. As time goes on, it seems that each treatment effects him worse than the one before. Luckily, he only has four more to go. What has your experience been? Any encouragement is appreciated. Hugs and Prayers to…
-
Caregiver support needed
My name is Christy and my husband is Javier. Javier was diagnosed with adenosquamous carcinoma of the colon . The tumor grew outside his colon and was the size of a melon when it was removed. It was Stage IV. It is rare and aggressive. 3 weeks after surgery,the cancer has returned. We underwent radiation to the tumor on…
-
I'm a "survivor"?
Was diagnosed with rectal cancer in Feb '21. Felt like I died that day and I still haven't recovered. Trying to figure out how to be a survivor after everything that's happened in the last (almost) 3 years. At this point I've lost literally everything but my life, car, and a few possessions. I can't do this alone anymore.…
-
Stage 3 Rectal cancer Recurrence
Hi I am male with 37 years old I was diagnosed with stage 3 rectum cancer Aug 2023 about 6 cm tumor in my rectum and 8 cm distance to anal verge .I did first CT for checking metastas and it was clear. My oncologist decided 6 rounds of chemotherapy with folfox. After it was ended, I did my second CT and shows that tumor…
-
moms diagnosis process and peritoneal mets
hi there, my mom (53) is currently in the process of receiving a stage 4 crc diagnosis. its a little confusing and very scary right now but i want to share the story up until today, looking for advice. she went in for a ct scan about 3 weeks ago for abdominal pain, they located a 4.3cm mass on her colon and "extensive…
-
Metastasis to Peritoneum
Has anyone had colon cancer that has metastasized to the peritoneum that can share some positive recovery experience with me? I started immunotherapy yesterday and know it can be effective but feeling a little down and could use to hear some stories of recovery.
-
Brocolli Sprouts.
Are they really all they're cracked up to be? So as I mentioned I haven't slept in 3 days and so as not to wake up my family, I've been taking random midnight/1 AM walks. Well to my surprise day one, one of my neighbors was out speedwalking at 12:30 in the morning. Who does that? My neighbor apparently. Oh yeah and me. So…
-
Would you?
I am 81 years old. I tested positive for slight blood in my stools. I hate having a colonoscopy because of the prep. I know that the efficiency of screening declines at the age of 75 and is not even recommended at the age of 85. I will not get radiation, nor chemo therapy. Is there even a need to pursue it?
-
Tubulovillous adenoma question
All, in 2019, my gastroenterologist removed a 2cm flat polyp from rectum that was classified as a Tubulovillous adenoma. I know this is a benign polyp but does have a 20% -40% chance of becoming malignant (different % depending on sources). Due to the pandemic and life issues, I did not have another colonoscopy until last…
-
Safe to use same shower with ostomy while on folfox
Was recently diagnosed with stage 3A colon cancer, had surgery and needed an ostomy. About to begin folfox chemo treatments after the new years. We have one bathroom with a single shower-tub unit. Is it safe for my spouse and children to shower after me while I have chemo attached to port and I am using the same shower? Is…
-
Unclear Stage
Good evening, I am glad to have found this forum. My mother was diagnosed with colorectal cancer the summer of 2023. She was 76 when formally diagnosed. My parents has have stated the cancer is " aggressive" but said they were not given a stage. She is not a candidate for surgery , has a colostomy/stoma, and has been…
-
Stage 4 chemo & surgery
Hello everyone. I got diagnosed with stage 4 upper rectal carcinoma with multiple bilobar mets (nearly 15). I had 13 cycles of chemo mainly folfox + cetuximab. My baseline cea was 295. Now it is 1.9 with regression of the tumor into a flat redness in rectoscopy. Liver mets also regressed. Only 4-5 visible scar like lesions…
-
were do i go for finacial help?
I have been waiting for my oral chemo medication (Xeloda)and called the place today and they said that are just waiting for my part of the copay before i can receive the medication but the problem is that they want almost $900 from me which i do not have. I have been trying to find some websites or finacial aid that can…
-
Ketagenic diet
My oncologist was talking to me yesterday about a "ketogenic" diet -- which (as I understand it) is high fat/protein, low carbs. It's a very old idea for fighting cancer -- and similar to Atkins or South Beach for weight loss, I believe. But apparently there is some new research coming out now, especially from some German…
-
Pet scans
I’ve had two primary cancers, breast and now s4 lung cancer requiring quarterly ct or pet scans. After about a year of an area in my colon showing persistent focal uptake, my oncologist insisted I have a colonoscopy. Thankfully it was only an advanced precancer, 1.1 cm tubulovillious, fully resected, clear margins, but the…
-
Recovery from Lower Anterior Resection?
I’m scheduled for a lower anterior resection for my stage 3 rectal cancer. I’ve had 6 rounds of FolFurinox and six weeks of 5fu and radiation. I’m 46 and still working full time. I would like to hear from anyone who has had the LAR and what the surgery recovery is like? When were you able to return to work? Any helpful…
-
9 Years NED Today
Hi all, I've been away and/or occupied most of this summer, so I haven't been by to check on the blog, for what has been the longest period I can recall. Finding out we've lost Abita, and reading some of the new stuff, reacquainting myself with the ongoing heartache and need in this place, is still quite emotional, which…
-
First Post Stage IV
After reading stories for two years and and talking with people who are in the fight, I was encouraged to share my story. I can only hope it helps someone. After 3 months of testing; blood, stool, urine. Dr.'s were convinced I had IBS and stress induced constipation. A colonoscopy was finally ordered. I was diagnosed…
-
Won't schedule surgery because I'm paying cash
Hi All, I was diagnosed with colon cancer in April, It took until June to have the colonoscopy done. The tumor is located in the ascending colon and Dr requested a surgical consult on June 28. Tomorrow is August st and the appointment is still not scheduled. When I asked why they said it was because I was paying cash…
-
Port Removal
Hi, just curious after port removal how long it takes for the spot to heal. I am still have a small lump where the port was 8 weeks out.
-
How worried should I be from latest MRI results?
4 years ago, was diagnosed with colorectal cancer in a polyp. The lab results showed it was invasive to the edge of the polyp. Had just a rectal excision for the area around the polyp and it showed no cancer. Forward 3 years and I was diagnosed with prostate cancer. Prostate was removed in April and again, the cancer was…