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New here, CEA panic
My dad was diagnosed with stage 2b colorectal cancer in 2022. After chemo pills, radiation and me giving him ivermectin, the tumor disappeared. Before cancer his cea was 2.78. In January it was 1.11. We had a follow up in September of 2023 and his CEA was 2.9. Not great but it didn't concern me too much. Dad is almost 82.…
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metallic taste?
anyone ever have this. I haven't had chemo in almost 2 weeks, but the last few days I have this taste that won't go away, kinda like a metallic taste I think.. Thanks Petrina
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Tumor Board reversed decision on surgical treatment
Greetings to all my fellow CRC challengers out there! I am in an odd predicament with my mother's current treatment plan and would really appreciate any insights and suggestions you may have. All thoughts and comments are welcomed! Quick background- My mother was diagnosed with stage IV colorectal cancer at the then end of…
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Chemo pill vs pump and how to support body for lessening treatment side effects
Aloha! I've been recently diagnosed with stage 3, 2"rectal tumor, 2cm into the wall, 7 lymph nodes inflammed, at the top of the rectum. I'm headed in for my 3rd biopsy tomorrow to get pathology results to give us a proper plan moving forward. I turned 40 in March, First noted symptoms April this year, found tumor early…
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Port removal
the doctor surprised me at my last visit. In April of last year I had a tumor removed from my colon and a met just on the outside of the same area. 12 treatments later including 5fu pump Two positive lymph nodes after surgery of removing both I have not had a positive test. Two CT scans and tumor markers have all been…
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Stage 4 Rectal Cancer w/Liver Metastasize
I've spent 2 months getting colonoscopy and liver biopsy. Next week I get surgery for colostomy and CIC implant. I'm seeking others who have experience similar based on your experience for good and or poor feedback. Thanks!
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Joint pain
I had stage 3 colorectal cancer last year. I had radiation with oral chemo. Chemotherapy. Ileostomy for 11 months and Mass removal surgery. And now I have such SEVERE joint pain. It’s every single joint. I literally hurt 24/7. Has anyone else had this problem?
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Sister just diagnosed with T4b rectal cancer
My 62 yr old sister was just diagnosed with T4b rectal cancer by Mayo Clinic in MN. We will meet with her team next Wed. to discuss treatment plan, etc. It felt like the life was sucked out of us with the MRI report. We don't know what to expect, what questions to ask, or anything else. We are overwhelmed & in shock right…
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CEA Increase
My CEA went from 3.9 to 4.6 in one month. Should I be worried? I don't smoke and I am not around anyone who smokes.
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CT Tomorrow morning & losing insurance!
CT tomorrow morning at 9am. Will I ever not live in fear???? So tired of this, every little pain to me is cancer. I guess I will see. Life is up in the air for me. My husband lost his job Friday, so my insurance will be ending December 31st. I hope he can find another job. We will have to move, house is going up for sale…
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Scar tissue and anal fissure
I'm 2 years remission , does anyone else have issues when passing a hard stool ,there is some blood, my Dr said that is the scar tissue causing that from a harder stool and I have a fissure , I guess I'm looking for reassurance . My last CT scan was normal , and I see my GI doctor today for my 6 month visit .
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Love, Medicine and Miracles
Hey gang... I am reading this incredibly inspiring book by Dr. Bernie Siegel. I know we had mentioned him earlier in a different topic and a lot of you have probably heard of him before. He has written a number of books... but this particular book I'm reading -- Love, Medicine and Miracles (published in 1986) -- is a must…
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any stage 4 signet ring cell survivors out there
Would love to talk to someone who has this type of cancer, I am pretty scared of what I am reading and what my Dr says about this cancer. Feeling pretty lonely right now Pat
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A long wait
I was diagnosed with stage 3 colon cancer in March and was supposed to start chemo a couple of weeks later. Wrong. Covid put me in the hospital for 21 days and then to a rehab center to fight a staff infection until 2 weeks ago Wed I came home. I have been ok to start chemo with a nurse, pt and ot coming to visit and…
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How many of you have colostomy due to cancer?
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Colorectal Cancer
My father was dx with colorectal cancer in 2019. He has gone through chemo, lonsurf in March 2024 which did not work. Was told only had weeks to months to live? Im scared!!
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1st FOLFOX treatment & im miserable
I was hoping to be able to handle the treatments and be able work on and off but this first weekend has been unexpectedly bad. I starred throwing up the Saturday I was unhooked after 44 hours of 5-FU. I I’ve been taking Zofran and/or Ativan and just feel nauseated almost all the time, thrown up 3-4 times Sunday and today.…
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Opdivo and Yervoy combo
my wife is currently on this combo and I mentioned in another thread her CEA and CA 19-9 are above the cutoff #'s for elevated risk of recurrence. She's s4 - had liver and lung mets both resected in several surgeries and possible long bone met - was on Keytruda trial for a year before this - had scary recurrence that was…
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Phobia to Vomiting but need Colonoscopy
Hi everyone. I’m new here and found this forum while looking up colorectal cancer symptoms. I’m a triple negative breast cancer survivor. I was diagnosed in 2015 and underwent surgery, chemo and radiation. So I’ve always had issues with constipation my whole life. I was diagnosed with IBS long ago. However, for about a…
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1year since surgery
Hello all. A year ago today I had a tumor removed and started a 12 session chemo trip. That finally ended in December. I had a colonoscopy today and they found no polyps or anything to believe I have lingering issues. They did take a biopsy of the surgical site but it looked good and he said it was standard procedure. To…
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Father starting chemo after resection
Looking for some insight as my Dad recently had a resection for a T2 colorectal tumor. It was removed successfully, however, traces were found in 4 out of 17 lymph nodes following the surgery. He is now going to be starting chemo and nervous for his quality of life. They’re looking to put him on FOLFOX, Oxaliplatin and…
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Can someone help me understand my test results?
As I'm not able to determine what these results mean over the phone today (have to wait until appointment), can someone explain if they've had similar results or what it entails? It mentions the following: FINAL DIAGNOSIS: SIGMOID COLON POLYP, COMBINED LAPAROSCOPIC, ENDOSCOPIC POLYPECTOMY: - INVASIVE, MODERATELY…
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Benefits of infusion
I have to have 4 rounds of Chemo. After my lady oncology appointment I was informed I had to have infusions for a year. Why? What are the
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Metastatic Colon cancer
Hi. I’m wondering if anyone has had a similar experience? My sister was diagnosed at age 45 with colon cancer 5 years ago. She was diagnosed at 3c with 9 lymph nodes involved. NED for 3 years, and then a spot on her liver, which was able to be resected. Now, a year after the liver, it’s in two spots on her lung, which they…
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What should I expect?
December 28th of 2023 I was diagnosed with Rectal Cancer. Just recently they staged it at 3. The tumor is about 4 - 5cm big. Soon I'll be going in for radiation/chemo, then after will be the chemo port, and then surgery. This is all new to me, so let's see how this goes. Tell me what your experience was like and what…
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How many of you with rectal cancer did chemo and radiation together?
I have stage 3 rectal cancer with a 3 CM tumor and its in the nearby nodes. My treatment plan is to do chemo 5-FU and radiation together. I will get the port in a week and start the following Monday. My wife has scoured the internet and seems to think my treatment plan is unusual and that most get one or the other. She is…
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Follow up
I had surgery and lymph nodes removed and was told all was clear. A year later colonoscopy was clear. I have been wondering about cancer showing up in other places and have tried to get some answers about this but can’t seem to find a way to do it. I had a consult at Sarah Cannon right after surgery and have reached out to…
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Radiation or surgery
Hi! My husband has stage 4 colon cancer. Had mets to lung and liver. He now has only 1 met to liver left and has the option of doing radiation or surgery to remove. From your experiences, what is better to do? Surgery or radiation. Radiation worked very well on his lung and his other liver met, but cancer has come back in…
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Lonsurf
My husband was diagnosed with stage stage 4 signet ring cell colon cancer January of 2018, he has had chemo folfox along with other chemo meds. His cancer has spread to the lymph nodes around his spine and his neck area. He started lonsurf a few days ago . He has done nothing but sleep and he has no appetite. The Dr said…
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Oasis of Hope in Mexico?
I guess I made the subjet line of my last post too long. I was wondering if anyone has had experiences with Cancer Treatment Centers of America or a coworker just told me today about a place in Mexico called Oasis of Hope? Thank you