-
pain and exercise
Hi all, I am almost 2 years in to my "after treatment" life. I started on femara and had terrible side effects. I am now on tamoxifen and trying to deal with it. The side effects are still there, but I am trying to "make do. I gained about 20 lbs and for the past 6 months or so , I have been trying to get my strength back.…
-
Funny thing about hair loss.
I always had long, very thick beautiful hair. Until chemo that is. I think losing my hair was the hardest part of my journey. I was very self conscious, never going without at least a scarf. Then one day my 2 grandsons(age 2&3) pulled off my wig and played rockstar with it! I laughed so hard I forgot I was bald. Eventually…
-
OT: Wendy is coming to town!
My "baby" sister, Wendy, is flying here tomorrow from San Diego. We are staying in the French Quarter for a few days. Some of you got to meet her when I was in San Diego. She is a IDC survivor too. I am looking forward to visiting and playing tourist :-)
-
I'm a lucky one -
I do have good news! Well basically good news - there are 3 issues that could have been better yesterday but not really bad as far as I know now. I saw my PA yesterday for semi-annual appt. I have been having more pain problems with my back - have had arthritis for years. She thinks (and so do I) that it's just the…
-
LOOSING ONE BREAST
I'm having a very hard time looking at no breast, I've been through 8 surg in the past 2 yrs. Had a tram flap done, had 4 infections, had a implant put in. After this last infection my doctor put a smaller implant in but the stitches would not hold because my skin is so thin due to all the radiation I had.
-
side effect of chemo
Has anyone ever heard that lymphoma is a possible side effect of chemo? I was told this by a surgeon on Friday (6/24/11) Found the enlarged node (size of a walnut) last Saturday, full body CT on Wednesday, surgeon on Friday. I am scheduled for surgery on Monday (6/27/11). The first doctor I saw last Tuesday that got the…
-
Disgusted
I just have to post this. I saw in the paper today that there is a re-make of the movie Pride and Prejudice. The new movie is...drum roll... Pride and Prejudice and Zombies! I'm not kidding. What's next? Huck Finn and Zombies; The Grapes of Wrath and Frankenstein; The Scarlet Letter and the Blob......
-
Any advice on a mastectomy bra insert?
When I had my mastectomy at Baylor, I was told I could get a protheses in the store in the hospital. It was around $400.00 and they didn't file on insurance. My insurance would pay 80%, but I would have to come up with the money up front and then file myself to get some back from insurance. I didn't have the $400 at that…
-
SHOUT out to Pinkkari...
Morning, sweetie.... Did you feel the prayers that went up for you last night at 8:00 EST? I believe the gates of Heaven were stormed with prayers for you... Please let us know how you're doing...we care.... Hugs, Nancy Oppps...we were posting at the same time!
-
PRAYER REMINDER: TONIGHT AT 8PM EST - We ask Father for Help for Kari (Pinkkari09)
Hi Pink sisters -- I am so happy we are doing this together. Please remember to ask our Father, God, to help Kari make the right decision. And to heal her - spiritually and physically. To give us another miracle. In the name of his son JESUS. The prayer starts tonight, at 8PM EST. You will do it in your own privacy -…
-
Femara
I am taking Femara and I am having a very hard time of it. My arthritis is ten times worse than before I took Femara. I can hardly use my hands anymore. I have many other side effects from this drug but the bone pain is the worst. Has anyone else had this problem? Thank God I don't have osteoporosis at this time, but I…
-
Avastin being pulled
Heard on TV this AM that Avastin is being pulled as a treatment fr BC. It is going to conmtinue to be available for other types of cancer but not BC. The short little thig that was on didn't say why just that it was. Anyone hear anything about this? Susan
-
Permanent makeup - a vanity issue
I'm going to get permanent eyeliner and maybe eyebrows (since I don't have any). A friend wondered if it was ok and thought maybe I should check with my doctor first. I'm tired of checking with my doctor for every little thing. Besides, some of you are getting nipples tatooed. And Heather, weren't you getting a new tat?…
-
if my primary care doesn't react to bloodwork results, should I ?
I have been having UTIs and I am have an appt. with a urologist, but my latest bloodwork had elevated levels-- in two places relating to "Eos"---my little research didn't reveal anything "good" about that, however my doctor didn't mention a thing. So....?????? It looks like my "benign" kidney stones are beginning to cause…
-
Triple negative Stage
SO now that I have read everything on this disease that some of us have......how do we know the chemo is even working? As in my case I have the surgery before the chemo. I also read it can come back while on chemo...... Isn't there any news for us to put this in remission?
-
Hershey, PA Reunion - Saturday, October 29, 2011
I have finalized the group rate with the Hershey Lodge. The room rate is $189.00 plus tax for a total of $209.79. They will honor this rate a few days before and a few days after our date. If you are interested in staying there, please call them at 1-800-533-3131 and refer to the CSN Sisters in Pink Group. I have 10 rooms…
-
Dental problems after treatments?
I have an absess and will see an endodontist Wednesday. It's a tooth that I had 6 root canals on about 11 years ago - or so the dentist says. Actually he says the infection is the same tooth, yet the xrays look perfectly normal. He says I'll likely lose the tooth and am looking at either a bridge or implant. Swell.…
-
husband signed up to online dating
I am physically sick right now. Yes I don't trust him and have been checking his email.
-
Triple negative Stage 2a
no node involvement grade 3. 2 tumor 2.2 and 2.6 clear margins. just had my second round on AC yesterday. I never had any scans done and i am nervous about that. I've had a colonoscopy....clear ovarian ultrasound......clear chest xray.....clear ecco cardiogram .......fine I want to be positive and yes I am speaking to…
-
side effect of chemo
Has anyone ever heard of lymphoma as a side effect of chemo? I was told today by a surgeon (the same group that did my initial surgery), that it has been shown to be a side effect. When I asked why no one bothered to tell me, the answer was, "If we told you everything (all possible) side effects, it would take years." I am…
-
Casting For Recovery
Has anyone had any experience with them? (www.castingforrecovery.com) I found it this morning and it sounds like something I'd like to try. It's apparently a 2 1/2 day Retreat for women who are BC Survivors where you learn to do fly fishing. Sounds like fun to me - I fish but never tried to fly fish. It's cost free other…
-
For those who HATE vein sticks -
last Wed. I had a blood draw before appt. the next day. Why I thought about it I don't know but I did as I had a flush after appt. so had to use EMLA cream for port the next day but forgot to until a few minutes before flush so it 'kinda smarted'. Well I put EMLA on vein before I left home and though it never bothers me…
-
Some good news
First I would like to say thanks for the prayers for my friend and neighbor. Her surgery went well and the tumor was removed. The good news is that it was not cancer. She is feeling better today and is being released from the hospital tomorrow. Hugs, Georgia
-
Thinking of you MyTurnNow - How are you?
Debbie, I have been praying for you and thinking of you. How are you doing?
-
Brand New & Terrified: HELP!
I just got my results on Tuesday that I have breast cancer. I'm 33 years old. It's in my right breast only, a lump about the size of a piece of corn plus a bunch of tiny deposits. I have no idea what kind and what stage and I'm alone in this. I have no insurance and I have to apply to Medicaid for assistance but I'm told…
-
Mastectomy on friday staying positive..
I know that all of you where praying for me and hoping for the best where I am concerned. My breast cancer came back in the same stop which my surgeon told me is not uncommon after a lumpectomy. there must have been some little nodes of cancer left and it started to grow. So with that note I am having a mastectomy of the…
-
Libby
circle the pink wagons for Libby she is in the hospital with a fever. She is also a grandma again. congrats Libby!
-
Pink Gloves On - Back in the ring for Round 3!!
Hello sweet sisters. I haven't been posting a lot lately but that doesns't mean that I have not been on here checking on all of you. Well, as my subject line says, I am AGAIN going to go head to head with the beast. This is the third time in 3 years. This time, I am going to Mayo Clinic to get a second opinion. Who am I…
-
Results..not so good...sprialing downhill
We just came from my oncologist....biopsy results show a metastasis...stage IV...not in any internal organs but it is present in lymph nodes thus the pain in the breast that I had the lumpectomy...good news..the MRI of my brain is clean....my head wasn't hollow after all...lol. evidently anytime bc comes back it is staged…
-
Lymphedema
Hi all - I have a question to those of you with lymphedema. How did you know you had it? Was it obvious that your arm was completely swollen, or did it develop gradually? My PT that I was seeing post-surgery for arm and shoulder issues said to look for my watch or ring to be tight. I've been having some pain along a nerve…