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Free LE ( lymphedema ) Alert Bracelet
I have seen several posts on here about lymphedema and remembered that there was a site that many of us got free le bracelets. They were really bright pink, almost neon, for your wrist, but, you want it to get attention. They also have neon green for your ankle. I ordered one awhile back when I went in for some outpatient…
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Lost of appetite
Hello everyone, I am going on my 3rd treatment of chemo I have no appetite this is the only bad side affect I have is there any medication they can give me to eat I drink lots of water, ensures and Naked juice please can someone answer my question Thank you 🩷
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Cough during/following radiation
Hey, I just wanted to give folks a heads up about the cough, pneumonitis, that can result from radiation for breast cancer treatment. I had a month's worth of radiation, and early on started to develop a mild cough. It got a bit worse as treatment went on, but the doc said it probably wasn't radiation-related. He said that…
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Breast Papilloma
Has anyone had a situation like this; A small cluster of micro-calcifications were found on my annual mammogram that were not seen on my last Mammo or the annual MRI I had six months after mammo. There were two additional areas of micro-calcifications that were too small to biopsy. They biopsied the one cluster and it came…
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How long did chemo curls last?
How long did your chemo curls last? I was done with chemo last Aug and thought they would last about 6 months, but they are still here. Trying to decide if I should keep it short or let it grow. Don't want to suffer through the fro, only to have it start coming in straight again, and have to cut off the curls. My hair…
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Needing to decide on single vs bilateral mastectomy and doing reconstruction.
I was diagnosed with DCIS stage 0 in my left breast in July. I have to get a mastectomy due to how extensive it is. They want to know if I want to do a bilateral mastectomy, reconstruction. The single mastectomy with a lift on the other side. The other side shows no cancer and I have no genetic markers. I really have no…
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Double Mastectomy Pillow
Hello, I will be having a double mastectomy in two weeks and the nurse navigator recommended I get a mastectomy pillow. Can anybody please recommend a pillow? I’ve been looking online but there are so many I really don’t know what to pick. Thank you!
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Letrozole and side effects
Does anyone know if the side effects of Letrozole are permanent? I’d rather take my chances than continue to be in pain for the next five to ten years. I have the joint pain, the chronic cough, the hot flashes and sweats. I already have osteopenia so what damage does this pill actually do besides lower estrogen? Curious
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Arimidex and Insomnia
Has anyone else experienced insomnia while on arimidex? If so, what, if anything, did you do to counteract it? I've only been on it for one week, but within two days of taking my first dose I started not sleeping? I'm just wondering if insomnia is a fast-acting side effect or just coincidental? I normally have no problems…
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xeloda, hand and foot syndrome, tips?
I am taking Xeloda pills (14 days on, 7 days off) as my chemo for recurrent breast cancer. One of the side effects is hand and foot syndrome. My feet become very red and tend to blister by the end of the 14 days. It becomes painful to walk the last day or two. My feet are starting to itch. Yeah, i do put on lotion every…
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When am I considered a survivor?
I think I didn't look into these boards before because my treatment has not officially begun. I was diagnosed with invasive ductal carcinoma March 22nd and plunged into countless appointments/consultations for a few weeks and now I am waiting for my bilateral mastectomy May 11th. I lost my sister to ovarian cancer and my…
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Verzenio/Abemaciclib
Hi everyone- My oncologist wants me to take Verzenio in addition to hormone therapy and ovarian suppression. I’m not convinced I would benefit and have read about the potential adverse side effects. Was wondering who is on it, what your experience has been, and what your cancer staging/lymph node involvement/Oncotype etc…
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Extreme Thirst on Tamoxifen
Hi. I was diagnosed with Stage 1 breast cancer at the end of February. I had genetic testing and I have no mutations for breast cancer. I had a lumpectomy with regular lymph nodes removed due to their thick appearance on a breast MRI, and I had 20 rounds of radiation. I did not not need chemo due to my low oncotype score.…
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Weight loss being Breast cancer survivor
Has anyone taken Modere or NAT Keytones after having breast cancer to help jump start weight loss?
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Breast Cancer Metastasis with newly developed Cholangiocarcinoma
Hello, My grandma has breast cancer metastasis to the bones and also the doctors have in the past two months discovered cholangiocarcinoma in her bile duct. The doctors have recommended against surgery for the cholangiocarcinoma due to her age and because she also has breast cancer metastasis. Is there anyone in a similar…
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Reconstructive surgery and blood tests
I had reconstructive Delayed DEIP surgery at the end of February(4 months ago) and my recent bloodwork shows anemia and my CEA number went to 4.5. I am still swollen and may have an incisional hernia. Has anyone else had similar problems after this surgery?
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2nd time but different
Invasive Mammary Carsinoma. Any info.please
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mTNBC
Looking for others who have/had been diagnosed with mTNBC.
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DIM and Sulforaphane as an alternative to drugs
I was diagnosed in 2021 with estrogen + breast cancer. Lumpectomy and no nodes involved. I had 16 treatments of radiation and was put on arimidex. The results of the drug I was hospitalized for very high all over the place BP, fast heart beat, chest pain, it throw my thyroid off . I can’t take the other drugs because I may…
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Eight years later...
Hi everyone. I am eight years out of having breast cancer and I had all the things that go with it.. Chemo, radiation, etc.. I am now really suffering with osteoporosis, osteoarthritis and all the symtoms of fibromyalgia.. not to mention I have had insomnia since as well.. Is this common? Has anyone else suffered with…
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Arthritis after Chemo
I finished my chemo treatments in October 2010, A/C and Taxol. In the past two months, I've started to experience a lot of pain and stiffness in the thumb on my right hand as well as in my back. I'm taking therapy on my thumb but so far it hasn't improved. When I started my chemo treatments my oncologist told me that if…
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Pregnancy after breast cancer
Hi all, I was diagnosed with stage II IDC with one lymph node involved in Feb of 2020 at age 28. We have a son that we welcomed via surrogacy in 2021. I’ve always dreamed of having a big family and am finding it difficult to let go of the dream. I’d love to give my son a sibling, but surrogacy is horribly expensive and due…
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First Day with No Hair!
I finally had to shave my head today. I knew this was coming, and I didn't want it to be a big deal, but it is. I really wanted to be one of those people who could just confidently rock the bald head, at least in my own home. My husband is out of town and I thought it would give me a couple days to make this normal for…
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Pain
Has anyone else read about how common it is for bc survivors to continue pain two to three years after initial treatment? This is the article: Breast Cancer Treatment Leaves Patients With Chronic Pain Baltimore Sun, 2009 Nov 11 Persistent pain affects nearly half of breast cancer survivors for 2 to 3 years after completion…
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Peripheral neuropathy from Cytoxan/Taxotere - permanent?
Hi everyone, After my second round of Taxotere/Cytoxan, I am experiencing pain in my fingertips and some tingling in my toes. Is this peripheral neuropathy? If so, what does that mean? Is it permanent? Will it get worse? Does it mean I should stop the chemotherapy? Any thoughts appreciated. Eva
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Sex after Mastectomy
I know the answer is going to be different for each person but I'm curious. If you're willing to share, (1) when were you told it was safe to resume sexual activity and (2) when did you actually resume sex?
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How did you get your energy back?
"I finished my treatment back in December of last year, but I still haven't been able to regain my energy. I have no desire to do anything at all, and my life feels like a never-ending cycle of procrastination. In December of 2021, I found out that I had cancer with five masses in my breast. In the first month, I froze my…
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Double mastectomy How long till I feel better
I know it takes a while but I was wondering when the swelling and discomfort might stop?
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Relentless ANGER!!
Metastatic invasive ductal carcinoma currently stage 3C - so far! Still need bone scan! I read online these "stages" were supposed to go through and eventually we are supposed to arrive at "acceptance" well I'm almost 2 months from diagnosis and I'm not there yet!!! I HATE everything about this!! I hate all the procedures,…
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Emotional
When I was approaching the oncologist's office yesterday 1 month after completing my chemo, a mom (with head cover) and her daughter were just walking out. The daughter gave her mom a big hug and said "Yay, Mom! You're all done! You did it!" Mom was beaming. I began tearing up with emotion, such was my joy for these two. I…