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cold cap for chemo
Does anyone have directions for making a cold cap for chemo. I've looked on Amazon but don't think those featured will help me avoid hair loss.
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Radiation Update
I have now undergone 12 treatments my 13th is tomorrow, I find myself counting the treatments till it's over. It's not too bad, the hour drive there sticks to only have treatment for 10 mins. i am going through Jan 2024. As of Thanksgiving I began to have some problems with eating, this morning i ate some scrambled eggs it…
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Tattoo Artist Wanted!
I saw my PS Monday. I was so hopeful he would have great ideas for whipping these disappointing girls into shape. I left very upset. He acted as though, now that its 5 months since my implants were put in, that we're 'done'. I made it clear that I don't think we're 'done' and while he was whipping out his camera for my…
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Just Diagnosed - Scared and Stressed about doctor selection
Hi all, during a routine annual mammogram followed by a biopsy I was diagnosed with breast cancer. My radiologist said I would need a lumpectomy and suggested I go to a doctor named Dr Mcntoch out of Englewood hospital in NJ (very close to where I live) who is highly recommended. I also called a trustworthy organization…
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Update on my journey.
I finished radiation 10 days ago. I had used aquaphor from the start. Had turned a bit pink, then red, then rather purpley, then brownish black. It hurt, only yesterday did I figure out most of the paint and itch was from the aquaphor. Got it washed off and was so much better. Today the skin began coming off. Saw my onc 2…
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Questions to ask before starting radiation about how the radiation machine works
Hi, I have come up with a list of questions I wish I had known needed to be asked about what my eyes would see and what my ears would hear while the radiation machine is moving around me. The only information I was given was that the treatments would be "quick", which I interpreted to mean "the same", and it really scared…
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Prayers please for my firend
I've tried to get her to join us but she wasn't sure she'd fit in since she was diagnosed 4 1/2 years ago and has been doing well. To make a long sotry short, sort of, things have changed. She had a lumpectomy and rads when originally diagnosed. She has now been told that she is one of the "rare birds" whose rads caused…
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Port films
I would be interested in hearing breast cancer radiation experiences with port films, the extra weekly xrays taken during radiation to check the machine alignment with the tumor area. Were you told ahead about these port films, or was this information withheld from you?
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Arms and legs feel like rubber
Hi all I had Chemo 5 days ago (TCH ). My third day was the worst ( weak sick exhausted ) but I am feeling pretty good now except my arms and legs feel like rubber, when I do anything. I was wondering if any of you have had this feeling and how did you get rid of it? I feel OK when I am just sitting but when I get up to do…
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Frozen shoulder.....
Hey rizzo, how long have you had a frozen shoulder? Anybody else have this? hummer
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XELODA
My wife's metastatic breast cancer did not respond to the Faslodex and Kisqali treatments so her doctor is going to put her on the oral chemo XELODA. She says it's her "go to" drug for skin metastasis and tumor reduction. I have read positive clinical studies on it. Just wondering if anyone has any experience with this…
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Thanks for port film response
Thank you nursejulie for responding to my port film post question. It made my day that you understood how I felt about the secret port films. I don't know why more people haven't responded. I think people are intelligent enough to understand a procedure if it is explained to them. I hope the rest of your treatment goes…
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Starting to feel scared
Hi all…I don’t of anyone is in this group. I read Carol’s share of feeling scared and that was in September of 2022…a year ago. I was just officially diagnosed on Fri. The radiologist suspected about a week ago during my mammogram…and the biopsy confirmed it. Interestingly, I was terminated from my job a day before my…
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chest wall resection
facing my third go round with the dreaded C word. Docs recommending chest wall resection...anyone familiar with process or recovery?
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Newly Diagnosed Two Weeks - Post Op Recovery question
Hi, I was just diagnosed two weeks ago with breast cancer, and I am in the process of setting up surgery, genetics, MRI, etc. I am most concerned about the recovery at this point. I will be having a double mastectomy with reconstruction at the same time. I don't know yet if I am a candidate for fat grafting, but if I am, I…
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Lobular type cancer - worried about surgery
So, I received my diagnosis recently (IDC-L, E/P+, HER-), did all the follow up tests (mammograms, US, MRI) and am scheduled for surgery in 3 weeks. I've elected for bilateral mastectomy for a number of reasons and feel confident in my decision. My mind is everywhere all the time about my diagnosis and I can't seem to…
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Has anyone forgone rec'd radiation with one positive lymph node/ bilateral mastectomy?
Good evening, I don't mean to inundate -- I know everyone is at various stages of involvement enduring and recovering from their own BCs, and I send ALL of you my strongest healing thoughts and appreciation a support board like this exists. I've been hoping to get others' insight as to whether forgoing recommended…
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switching from arimadex to tamoxifen to mitigate bone loss
Good evening all and Happy New Year After being on Arimadex for about a year and a half, I have taken a bit of a hit to my bone density. I am only 48 and will be on some kind of hormone suppressant for atleast another 3.5 years. I am strongly considering switching to tamoxifen since it doesn't seem to be nearly as hard on…
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The War on Women's Breasts
Hello ladies I am from the Head and Neck Section of this site but have recently come across a video covering how breast cancer is screened and treated and discussing it and some alternatives such as Thermography. I think you will find it interesting and please draw your own conclusions. I hope I am not overstepping my…
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PLEASE: Last effort to ask about this - Bilateral Mast/Tissue Expanders/RADIATION
Hi! I cannot imagine NO one has been in my position, but so far, no one has replied on this topic. I'd be SO GRATEFUL if ANYONE can offer some insight: Has ANYONE here had ER/PR+/HER2- Stage 2 Invasive Ductal Cancer who got a BILATERAL MASTECTOMY with immediate 2-phase reconstruction (had tissue expanders placed), had a…
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Pain in inverted nipple. Scary.
I had my core biopsy 6 days ago. My next appointment is to confirm the suspected diagnosis of cancer. That is to be on December 28th. My breast still a bit tender, which I expected, but I’m having this strange feeling that my inverted nipple is being pulled from within causing little shooting pains. It’s not excruciating…
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Brain fog/cognitive difficulty without chemo or radiation
My cancer support counselor is reading a book called, I think, your brain after chemo, and she commented in our last session that a lot of my issues with brain fog, difficulty concentrating, memory problems, etc. are similar to patients that had chemo. I didn’t have radiation or chemo but I have had three surgeries in less…
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MSK - Literally Abandoning a Patient - When Are They Held Accountable?
I have breast cancer, a recurrence. Prior to surgery, my surgeon wanted me to go on medication (Aromatase Inhibitors) that block estrogen so the tumors can be reduced in size before surgery. Fine. WELL, you will need assistance in this as these estrogen blockers cause a host of incredibly unbearable side effects. The first…
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Night Anxiety - A first!
I had such a bout of anxiety last night….it was frightening. I’ve had some fears in the early mornings on and off since my diagnosis journey started three weeks ago. But I couldn’t shake it…my chest was tightened and my body wouldn’t release the fear…I tried deep breathing…a meditation tool, watching a favorite series, and…
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TNBC radiation vs. chemo
Hello Everyone, I was diagnosed with TNBC a few months ago. It was caught early -- stage 1(b). I was told the best treatment would be 4 chemo sessions 3 weeks apart, then a break of a month, then four weeks (5X/week) of radiation. I've had two chemo treatments so far, and I'm having the WORST TIME. Oncology team told me…
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FASLODEX/KISQALI
Any success stories from anyone using Faslodex/Kisqali with Letrozole? My wife just started this combo for metastatic stage 4 breast cancer. Hers is HR+ HER2- variety metastasized to the skin. Need some encouragement.
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Verzenio medium to Long term prospects
Hello Folks, Question from a Caregiver. My wife was diagnosed with Stage IV cancer with mets to bone in Jan 2022 iBrance and Kisqali worked but had side effects. Since Oct 2022, my wife has been on Verzenio(Abemaciclib) and is tolerating it well with clear scans. Is there anyone who has been on Verzenio for many years and…
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Lidocaine cream for port doesn't numb.
Hi everyone. First time port placement last week. Had treatment yesterday and that lidocaine cream they prescribed didn't numb one bit. Site is still sore and bruised so the whole needle placement was not fun. Actually took about 30 minutes for it to stop hurting. My body also has that problem where local anesthetic…
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Surviving, and the long recovery
I'm sitting here tonight, 6 months after finishing my treatment for triple negative breast cancer, feeling gratitude for life and the cancer being gone. I'm looking for wisdom and encouragement about what it looks like to live as a cancer survivor. I need help managing expectations. The treatments saved my life, but they…
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I start chemo Mon.-I'm terrified...
I start my first round of chemo Mon. I'm terrified...4 cycles of AC, then taxotere with Herceptin for 4 more. Then radiation...How do I cope? Anyone else that has gone through this, I'd love to hear from you. I had a 7cm tumor with 23 out of 23 nodes positive. Ct's and bone scan okay. God Bless all of you. Adele