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Marijuana for pain?
Has anyone had success with marijuana, gummies probably, for pain? Luckily I live in a state where it’s legal. I’ve read that if it’s HPV related then a 3:1 ratio THC:CBD.
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Port removal
So I think I’m gonna have to get my port removed but not because the cancer has ended…(it’s just stable for now) I had to have portagram this morning and when they tried to flush with saline, I got hit with a pocket of air in my neck it felt like a horse kicked me! And they were only able to get 1ml in! So I go in for the…
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Did your anal cancer affect vaginal opening
This question is for females I was recently diagnosed with anal cancer when I met with 2nd group Dr for 2nd opinion I mention that the vaginal opening is itching as much as anus, is this common for anal cancer? He referred me to gynecologist to be checked.
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Advice and Help
My mom (75 Years old) went for a colonoscopy in March, 2023. During her colonoscopy, the surgeon indicated that he had a hard time with the colonoscopy because of a blockage. He deemed it suspicious and informed my mom that his first thought was Anal Cancer. He indicated that it was treatable and curable. My mom prior to…
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POST RADIATION PROBLEMS HIP AND PELVIC BONE DAMAGE
Is anyone dealing with this? I was diagnosed in April 2011 and had my treatments (chemo and radiation) through May and June. I was stage III so I had pretty intense radiation, including pinpoint to specific lymph nodes that were affected. I have extreme low back pain, spasms (he says probably related to muscles trying to…
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Leg/Hip weakness/stiffness
I am 15 year post anal cancer. The last few years I have been experiencing leg and hip weakness so bad that I can' get up off the floor when I get down to get something out of the cabinets or cleaning the floors. Has anyone experienced or experiencing this also. I really think it's from treatments, I had both chemo and…
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Anal Cancer & Multiple Sclerosis/Auto-Immune
Hi, I am a 52 year old woman who is in the middle of treatment at MSK. Typical protocol 27 Radiation treatments, 2 Mito and 5 Xeloda M-F. I am wondering if there is anyone else who also has MS? I take a monthly infusion drug Tysabri which is an immunomodulator. My Onc says AC is directly related to me taking this drug. I'm…
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Getting BACK to living!!!!
Hi all, just checking in. I am one year from my diagnosis now. My treatments ended in Sept 2022. I had a few really dark months and was unable to shake the fear of incontinece. My urgency kept me home and afraid to do much. It was creating more anxiety and messing up my household moral. None of us were able to work. Some…
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10 years and grateful
Hi, I used to be on this board every day. It was a lifeline. I wsa very frightened and hurting. Anal Cancer put me through a lot too. But I am happy to say even though my cancer was late stage, we beat it back with the protocol treatment, chemo and radiation, simultaneously. For me it was brutal. I am alergic to Sulfa and…
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Itchy Itchy Itchy ! Skin is itching fiercely after chemo
I just finished my last round of chemo, #6, The next day ( Yesterday) I was over come with severely itchy skin, everywhere but especially my arms and legs. I never had this reaction after any of my previous treatments. The only thing different about this one was that they stopped the Taxol infusion, to ease my newly…
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Wake Forest or Atrium Health Levine in Charlotte
I am exploring my options for a 2nd opinion or treatment outside of my hometown. I know Duke is probably the most well regarded cancer center in NC, but Wake Forest (NCI) and Atrium Health Levine Cancer Center in Charlotte are closer to me. Does anyone know anything about these 2 places in regards to Anal Cancer? Thank you!
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Scans after Radiation and Chemo
Hi everyone I’m new here and I’m just looking for a bit of clarification my current experiences with Anal cancer treatment stage 2. I finished my last radiation treatment 4 months ago, had a scope done by the surgeon and he claimed tumour was gone “just a scar” this was excellent news. And he doesn’t want to see me for a…
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Pros and Cons of traveling far away for treatment
Hi - I don't have an official anal cancer dx yet, my biopsy is Friday, but my Dr. said it is likely cancer from the office exam he did last week. I have been having symptoms for a long time, but they have gotten worse (a lot of pain and bleeding) for about a month which lead me to the CR surgeon. I am trying to do all my…
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Newly diagnosed with anal cancer
I went in for hemorrhoids to be removed and was told I had cancer not hemorrhoids. I have heart condition and vascular issues, I'm not sure if I want chemo and radiation. I need to see cardiac Dr and gynecologist they feel it may be at base vaginal opening too. I'm having pet scan next week. How do you make decisions about…
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Chemo drugs & Mitomycin combined with RA drugs.
I have StageII Anal Cancer & would like to know if anyone also has Rheumatoid Arthritis, in addition to their cancer diagnosis. My treatment starts 1/8/2024 & I would appreciate any comments on what to expect. Thanks for your help.
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Side effects of Mitomycin
On 1/8/24, I start treatment for Stage 2 Anal Cancer, & I will have 1 dose of Mitomycin along with 5FU for 96 hrs. At beginning of treatment & 96 hrs. At the end of treatment. Also, 30 rounds of Radiation. I have RA & concerned about the potential side effects of this drug. I appreciate everything that I’ve learned on this…
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Enlarged Lymph Node Still Present After Treatment
Hi: I was diagnosed with stage 3 anal cancer that had spread to left inguinal lymph node. The enlarged lymph node seemed to go away while I was receiving my treatment but 1 month post treatment I felt what I believe is a lymph node just below. I had 33 radiation treatments with chemo. Obviously I will speak to my doctor…
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Port removal
I go in for my port removal iny dr office , he said its an easy procedure alot easier coming out then going in. Have any of you had it removed in the dr office?
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FISTULA - warning, it's gross
OK, I'm about to try and tackle the fact that the fistula is worsening, and I haven't even started treatment yet. I was only getting gas through the hole from the anus to the vagina, and now I'm getting poo. Really, unbelievably gross. And dangerous for infection both inside the fistula and also migrating into the bladder.…
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New To Anal Cancer Diagnosis
Hello, I know for those who have been here for a while these questions are so repetitive and I apologize. I have read some of the survivor stories and they give me some hope for a future with my family . While some stories are terrifying . So on December 1 (officially diagnosis October 31,2023) it will be officially 30…
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Dumb question but WHY do side effects vary so much person to person?
First post (sorry, might be long): A had to have a hemorrhoid operation about 3 months back. The Colon surgeon found what the thought was a "wart" near the hemorrhoid and removed it during the operation, and sent it in to be biopsied. Came back positive for Cancer, allegedly a stage 1, but did reach the sphincter muscle…
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what to do with the pain after treatment
Hi , on 3rd day since treatment ended. i am looking for any suggestions on what to do with the pain down there. my bum it is red and raw and the vag. feels real sharp pain. i am only taking the drugs at night, still so groggy through the day. sitz or shower lots and ointmennt . how long untill i feel better. i took walk…
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My Anal Cancer Experience
Hello fellow anal cancer patients! When I was first diagnosed I visited this forum many times. Although I never posted anything, I gained much knowledge and felt a great deal of support. Now I want to relate my experience with the hope that someone else who is facing the same thing will benefit as I did. (As a point of…
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External tumor
My tumor is now pretty much outside my butt hole. is this normal? should i be alarmed ? should i push it back in? Suggestions?
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Hello
I'm so new to the diagnosis, I don't even have TNM numbers yet. Should have them on Thursday. Docs are initially saying T2. I thought I was coming into acceptance of this and ok with what was coming but after reading some of your posts, I'm now very scared. The docs are saying this is beatable, treatable, etc but in…
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Hip pain after treatment
Hi guys. 4 yrs clean, stage 2 cancer. 2 weeks chemo pump, 6 weeks radiation. Year 3 after treatment, I started having hip issues. It’s now gotten to the point that I cant walk 50 feet without extreme pain. If I stop, it only takes a few minutes to go away, but starts again when I start. Have had tests done, steroid…
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How does everyone cope with scope appts ?
Hi all, Just had my 4th, 3month follow up anoscope appointment yesterday, good news is all still looks clear. I finished my treatments in Sept 2022. So I am one year out and have at least another year of scopes every 3 months. And then we'll see about adjusting the time line? I am not a wimp, in fact I'm pretty damn tough…
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Oncology appt.
I'm going for my annual oncology this week. I'm over 5 years out now and so far the blood test have been good. I get really bad anxiety every year when I have to go see her and get blood work. I've had oral thrush for over a month now and that gives me high anxiety. I hope and pray this is my last time to see the…
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Med side effects
I am a female about to start chemo + radiation. The chemo meds are Mitomycin and Florouracil (5FU). My treatment plan is 30 rounds of radiation, with the addition of 5 days of 24 hour chemo the first and last weeks. What were your experiences?? Am I likely to have hair loss? My Oncologist has said hair thinning, but I have…
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Mosquito bite reaction after chemo
Does anyone out there have allergic reactions to mosquito bites after chemo. Mine are horrible. What do you do for relief?