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CT vs. PET (Survey)
In the first two year after treatment, were you monitored by CT scan or by PET scan, and at what frequency? All responses appreciated. I am currently be monitored by CT scan 2x per year, but I am part of the observational arm of a clinicial trial.
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Complications Post Cancer Treatment..More Common According To Surgeons..
Am not the only one out there according to colecteral Surgeons that has 'beaten Cancer' for the time being only to be left 'in a mess' from the Radiation Treatments. Like a trade off. 45 days of Chemoradion for misery of anal ulceration and radiation inflammation a year after treatments... Have come to accept my fate now…
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8 year survivor
I haven't been on this board for a long time, but I'm still on the planet. In 2011, I was diagnosed with stage 2 squamous cell. I made it through treatment (rough time) even though I wondered if I would feel fine again and I do. In 2015, I was diagnosed with pre cancer of the breast - DCIS so more radiation after a…
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*New Growth On Anus...No Wonder In So Much Pain!!
Antibiotics after 7 days didn't work. Waiting for CT Scan Results. Terrible pain after every BM. Thought Cancer was 'gone' looks like it returned with 'new Growth' jutting out of bum' Painful to touch.... gross!!! Very Upset and frustrated post 11 months...
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Burning Bum Feeling and Spasms...
No idea what I consumed yesterday to cause my bum bum to feel like it's on fire today. Went shopping with my Golden Goose David but couldn't sit very well in car...**** was on fire. What we eat the night before can sure play havoc the day after. Maybe the humidity plays a role in our bodies as well. Very hot and sticky in…
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Pain with BM, 15mos Post Treatment?
Hi everyone, I am 15 months post treatment, and have been having some pain with BM's. It seems to come and go, but have had it moreso lately. It's a skin-level pain, and feels like a stretching, or cutting, and is in different places at different times when I have a bowel movement. Sometimes it's where the tomour was,…
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Getting Cat Scan results since finishing treatment 4 months ago today....
Nervous....first check up with digital showed no tumor. Now, today, getting results from cat scan taken 4 days ago. Do you ever stop thinking and worrying about this? Also been gettng biopsy of cervix. Last one showed abnormal cells. I asked if that might be because of pelvic radiation but gynocologist said no. Getting…
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PET scan today
So I had my two year PET scan today. Was diagnosed October 13, 2017 and finished treatment with radiation and chemo December 17, 2017. Put all my weight back on and feeling great. Had my pet scan today and everything looks great. You think the waiting for results would get easier and maybe it has some but still makes me…
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Feeling scared CEA levels are up 7.4
Just got a call from my oncologist nurse to come back in for blood work in a month. My CEA level is 7.4. ugh anyone go through this? This is the info I found: Blood Markers for Cancer. ... Elevations in CEA and CA 19-9 levels may occur in patients without cancer. For example, elevated CEA levels may be observed in smokers…
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Topical chemo
I was diagnosed with anal cancer Stage 1 after a colonoscopy. I was initially told that I would need chemo/radiation from my GI and oncologist. My care team also includes a colorectal surgeon. He felt that in office and surgical removal was the answer. Constant monitoring. I had surgery in July and all 4 samples came back…
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anyone else have problems with constipation?
I'm a year out from my last treatment. I still have problems with constipation. I talke stool softners. Anyone else have this problem?
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Treatment for life - immunotherapy and long-term side effects
Hi, everyone. Quick background - diagnosed Dec 2015. Chemo (mytomycin and capecitabine) and 27 radiation treatments Jan 2016. Cancer returned, pierced the rectal wall and attached to my spine. Abdominal perineal resection with permanent colostomy Jan 2017. Biopsy still showed residual cancerous cells. I’ve been on Opdivo…
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Newbie - Lori
Here's my story. I was diagnosed with anal cancer April 2018. Stage 2a. Did the 6 week chemo/radiation treatment. Everything has been going well up until my last appointment when my blood work showed slightly elevated liver function. Dr. ordered an ultrasound which I had 2 days ago. Yesterday I learned that it didn't look…
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Is worry normal after one year post treatment. bowles still a problem
Seems like every little pain or strange body feeling, makes me wonder if something else is wrong. All the Doctors appts. and checks ups. Always scared they will find something else. How do you cope with this?
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Gastric sleeve before tumor removal
my mom is scheduled for gastric sleeve surgery to lose about 50lbs before she can have surgery to remove her metastatic tumor in the vaginal wall recurrence of anal cancer. She is also undergoing chemo every 3 weeks, I’m very nervous for her to undergo this surgery while having chemo being weak
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numb feeling on left side
My left side lower back above hip has felt numb for over a month. I am going to chiroproactor but not helping much. Anyone have this before? I'm a little over a year out since my last treatment.
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Life After cancer
All, I was diagnosed last year with Stage 3 on July 5th, and started treatment on August 20th. Last year at this time, I was a mess. Completely frightened by the diagnosis, worried about my kids, etc. Anyone that is going through this now can understand. I want to let everyone know that it does get better. Treatment was…
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lymph nodes
I have T1 anal canal cancer with two lymph nodes showing up on the MRI i HAVE NO SWELLING OR PAIN IN THE LYMPH NODES. What does it mean if the lymph nodes are not swollen??
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lymphedema
I have been noticing that one of my feet/ankles have slight swelling and a feeling of tightness lately. I was concerned that this may be lymphedema. I am about 10-11 weeks past last radiation treatment. Anyone else have this from radiation? If so, recommendations?
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3 recurrence
My mom started chemo the end of May for recurrent anal cancer to the vagina wall. Lymph node were inflamed but biopsies and came back negative in April, scan may 20 showed more inflamation in another lymph node. Dr is concerned, 3 rd round of chemo to start July 11 first set of scans since starting chemo July 25. I know…
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Crazy weather...
Hi all, Just thinking about everyone and hoping you have been spared from some of this seasons stormy weather. I know we have members from all parts of the country and even some outside that, but it seems there have been some significant widespread storms that can create additional havoc on treatment schedules and recovery…
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Tips to help prepare for Treatment?
I'll be starting the Nigro Protocal soon and trying to think of things I can do now while I still feel good to help be prepared...or am I over thinking it? I do have a supportive partner but one person can only do so much and work full-time too. I've signed up for daily transportantion (if I just can't). Gotten a bunch of…
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Post 66 Days Back Wearing Diapers Again....
All my poos are 'soft and wet' staining my underwear and changing 5 times a day has me back wearing diapers...frustrating after post 2 mths...developed a horrible chest cold...bad first thing in the morning...have to question Docs and Pharmacist now about drug interactions (no Aspirin Products ie including Voltaren and…
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Strange worrisome symptoms
Hi. I hope not to offend anyone by posting here as I do no have a cancer diagnosis. I have anxiety and have had stomach and bowel issues my whole life. I am now 34. I have had hemrriofs since I was a teen and bowel movements have always been inconsistent in Size and frequency.. I recently had an endoscopy ( feb 19)showed…
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Severe Anal Infection. Waiting For New Treatment. Pills Don't Work. Stinging
1 year 8 days Post Treatment. Doctor visit revealed severe anal infection from ulcer. Very painful and stingy hard to walk and sit period also sometimes very brutally itchy. Epsom salt baths leave area dry and stingy. Beat Cancer to leave me in this mess. Complications from Cancer Treatment. Not healing stumped Cancer…
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How long before I can go swimming? problem with anal incision,.
I had a problem with the incision bleeding after a hard bm. I did see my Doctor and by then it looked like a paper cut. Anyway, I'm doing better now. I will be going to Fla. in Sept. I wonder if it is safe to swim in a pool? Not the ocean..
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Percassts Better For Anal Pain Than Hydromorphone...
Percs knock pain down Morph turns you into a sleeping Zombie little effect on Anal Pain.
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Warning: Avoid Flax At All Costs..
Rip you open like a sardine can...the vicious pain. Stupid Doctor "Eat Red River Cereal! ....never again. Pain vicious today from consuming flax seeds not ground...Warning DON'T!!
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hard bowel movement. Bleeding from incision
I'm 11 months out from treatment. I had a hard bowel moment this past Sunday morning, incision bleeding. Scared me. Bleeding stoped, but bum is sore and angry. I talked to my Doctors (surgeon) nurse. I go in on Friday to be checked. I recently started a part time job, already have missed two days. UGH I pray the cancer is…
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Anyone over 65 have good results with treatment?
I am 67 with stage 2 anal cancer. Treatment scheduled to begin next Monday. Having lots of anxiety over this. Had my port put in 4 days ago. Still very sore there. I notice that many on here are much younger than me and makes me think I won't do so well.