Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Anal Cancer

Treatment Centers/Anal Cancer
Hi, all - admittedly, never did I think I’d be doing a Google search for anal cancer…of course, I don’t think anyone has that as a bucket list item. Since this cancer has nowhere near the the “press” as other cancers, I know it’s important to be treated at places where they see more than one of these cases a year. Can…
Blood in Stool (On/Off) for 6 months, Now Many Swollen Inguinal Lymph Nodes
Hello everyone, I am a 41 year old male. For the last six months or so, I have been seen small amounts of blood in my stool (on and off). In the last few days, my groin area has started feeling dull pain - and when I massage both sides of my groin, it is fairly obvious that I have several swollen inguinal lymph nodes (at…
Treatment Side Affects Question
I was diagnosed with stage 2 rectal cancer on 10/03. I have I spot on my rectum and one node in my pelvis. I begin six weeks of Radiation/Kemo treatment beginning 10/24, followed by a 3 weeks of recovery and then five cycles of kimo. My last kimo should be March 20, 23. I am scheduled to begin a new demanding job on 11/31.…
neuropathy from 5FU
Has anybody developed the side effect of neuropathy from 5FU? From what I know, it usually appears (when it appears at all) in the hands and/or feet but I have it in my knee. I had 3 surgeries on that knee way back in 1990 but I started to feel numbness there last week, my med onc said it could be neuropathy from the 5FU…
Itchy Skin No Rash - Post Treatment
Hello, I am about 18 months out of treatment. About 1 year ago I noticed severe itching on my left forearm yet there was no rash nor visible skin issue. This would only happen every month or so. In the past 2 weeks it is affecting both forearms - still no rash. Prescription cortisone cream doesn't seem to help. Has anyone…
Possible drug-related anxiety during chemotherapy
Hello, I have just finished my first week of FOLFOX chemotherapy and wondered if others have had a similar experience. I was emotionally tired the day chemo started, had quite a bit of energy on day 2 but food aversion/nausea started on day 3. When I had my pump removed from my port, I asked the nurse about feeling…
Post Treatment side effects
As I have mentioned in the past, I was diagnosed with squamous cell anal cancer in December. I started treatment Dec. 27, flourfouracil and mitomycin with 7 weeks radiation. Post-treatment Pet and MRI show NED and two months after treatment I was feeling pretty good. But now I'm getting a whole new set of issues that may…
5 YR ANAL SURVIVOR.. VAG. STENOSIS NIGHTMARE,,CRYING, CAN DIALATORS WORK AFTER ALL THIS TIME?
Hi Everyone, PLEASE I BEG...CAN YOU READ THIS FULL POST....IM IN TEARS I have made a post under PLEASE HELP ME, 5 YEAR ANAL CANCER SURVIVOR, I am just desperate now, for help, I am a 5yr anal cancer survivor, I also had breast cancer 3 yrs prior to anal cancer, neither were related. After, about 1yr and a half i started…
Help with Radiation burn
Hey all. I’m new here. I’ve found a lot of helpful information but I haven’t come across what I’m looking for. Today will be my 1/2 way point (treatment 15 of 30) and the burn I have is almost unbearable at times. And this weekend I began the dreaded diarrhea. So I’m trying to figure out the right diet to help with that,…
Vaginal Scar Tissue
Hi, I hope someone can help with this problem. I have vaginal scar tissue from my radiation treatment. My Doctor wants me to try a Estrogen Cream for a few months but I see that there are so many side effects, that I am afraid to use the cream. Has anyone had this problem and treated in a different manner? Also, my hair…
anxiety about treatment & side effects
I have a history of colon cancer that required surgery and 6 months of chemo 10 years ago. I'm heartsick facing this new diagnosis and treatment. I'm a serious hiker, and kayaker and still sometimes camp at 64 I worked so hard to recover last time. It took me about two years. I still have mild neuropathy in my feet, and…
Would like to chat to others the same.
Hi Nice to meet you all. I am from Australia and would like to share my experience of having an Abdomnoperineal Recection of the Rectum back on the 31 August 2021. It is nearly 12 months now and i still have pain where I was cut open.. Does anwone else have the same?
Cancer Story 7/31/2022
The months before the surgery were extremely tense and stressful for everyone involved. After the cancer was detected through the colonoscopy, some basic tests were done to ensure that the cancer was localized and had not spread to the other organs in the body. It was a massive relief to our family to know that the cancer…
Pulmonary and respiratory problems after treatment?
I completed my radiation/chemo at the end of March, and in mid June started getting more and more out of breath. Three years ago, I was diagnosed with a mild case of pulmonary hypertension. Hypoxia was/is an issue, and I sleep with a CPAP/oxygen concentrator. I use a portable concentrator when I exercise or feel out of…
Anal cancer again after 10 years
I have received a second anal cancer diagnosis 10 years after the first one. The docs say it’s not a recurrence after such a long period of time. A surgeon where I live in SC wanted to schedule a colostomy as soon as my biopsy came back positive. He didn’t even suggest seeing any oncologists before surgery. I don’t trust…
Recently diagnosed following colonoscopy
A large golf ball sized polyp/ tumor in the lower end of my anus was found during a colonoscopy last week. Yesterday I got results of the biopsy and was told it is squamous cell cancer. Surgery for removal of tumor is scheduled for a week from tomorrow (8 days) and I’m feeling a bit overwhelmed right now. What questions…
Mosquito bite reaction after chemo
Does anyone out there have allergic reactions to mosquito bites after chemo. Mine are horrible. What do you do for relief?
Sorry for My Absence!
Hello Everyone, both newbies and veterans here! I'm sure some of you thought I had disappeared for good, but I am here to let you know that's not the case! I really have no good reasons for my absence, other than to say that I have found the break quite beneficial. I am on a total of 3 support sites and I think getting…
Ten Year Anniversary!
I just wanted to add a short update that I celebrated my 10-year anniversary since completing treatment. I recently developed gluten intolerance which may have nothing to do with my cancer treatment but with urgency issues I have to carefully watch my diet. I find taking Metamucil helps keep me regular and increases my…
Considering Refusing 2nd Round of Chemo
Well, I'm at the end of week 2 of Nigro Protocol, and mucositis has really set in. In the 8 days I've had it, I've lost 6 lbs. It's getting pretty unbearable. Holding a mouthful of lidocaine gel for several minutes and then spitting it out allows me just enough time to choke down some broth, protein shake, creamed potato,…
Spouse of cancer patient
So is there anyone who can chat about this. All new to me and have some unanswered questions.
Radiation Side Effects
I am so relieved to have found this discussion group. So far I am an anal cancer survivor. Was diagnosed in July 2009 - then had surgery, chemo and radiation. I finished radiation in October 2009. I am having a problem with my hips not being limber at all. I have reduced flexibility and range of movement I used to be able…
Urgency and bleeding
Hi I am in remission. I finished my last radiation last November and last chemo last October. I go in every 3 months for the exam where I bend over and they look up my anus. The Dr only sees scar tissue said it looks good in my back passage. I have had 2 CT scans with contrast. Everything came back normal. I have symptoms…
Anyone develop diverticulitis after treatment?
Sorry if off-topic but I'm 2 1/2 years out of treatment for AC doing the Nigro. Doing great, blood counts finally getting in the normal ranges and I've finally notice a huge improvement from the urgent bowel issues following treatment but I've been getting bad flare ups of Diverticulitis in my sigmoid colon. My colorectal…
pain , anxiety, broths, drug trials: surviving anal cancer
hi fellow cancer fighters! a few posts mention anxiety after diagnosis ... I suffered intense anxiety too, worsened by the pandemic for sure. my docs/nurses were ok , not great, with this. if the diagnosis makes you panicky, make sure you bring a companion/advocate to all appointments, in case you have strong emotional…
Greetings from Kenya
Please someone to welcome me here.Am new.
Diagnosed on 12/1/21 and New Here
Hi, thank you for this board! I'm supposed to start Nigro protocol on 1/10/22 for T3N1M0 squamous cell carcinoma. I like and trust my team, but honestly, starting to feel overwhelmed and afraid, of the unknowns, I guess, of side effects and how to treat or lessen them, and care for myself. I'm hoping to read and pick up…
long term side effects/Anyone know if my teeth problems could be related to the chemo treatment?
Hello, new member here. I went through treatment 6 years ago. Had 5-fluorouracil (5-FU) and mitomycin as well as 35 radiation treatments. I'm now experiencing the long term side effects of each. I've had IBS for 4 years and now have a bad ulcer in my sigmoid colon. Also experiencing tooth decay/loss/periodontal problems…
Cancer charities
http://www.tampabay.com/americas-worst-charities/ This is a link of the worst rated charities in the country as reported by the Tampa Bay Times. It is outrageous that so many of them are aimed at cancer. I try to give to charities as much as I can and since being diagnosed, I have given more to cancer charities, even…
Any suggestions for protection from occasional fecal pellet leakage?
I had Anal Cancer in 2008 and was successfully treated with chemo and radiation. It has been 13 years and I am finally searching around for help with a continueing problem due to nerve damage of not realizing I have leaked poop and having it drop out of my panties and into my clog!! Horrible! I take Clear lax and magnesium…

Anal Cancer

Discussion List

Discussion Boards