Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Anal Cancer

Has anyone had to have the APR Surgery?
I completed my treatments on 4/9, but a pathology report I had on 6/8 came back as suspicious for possible malignancy... my surgeon said that means it is inconclusive and they have sent the tissue samples to Moffitt Cancer Center Pathology for them to run test on it. I am now waiting for them to contact me to set up an…
Abdominal Lymphedema
I can't be normal and get lymphedema in my ankles legs or feet, I got in my abdomen. What next, or should I even ask?!!!
Chronic Radiation Enteritis
I finished treatment (radiation and chemo) in May 2011 for anal cancer. I had acute radiation enteritis while I was going thru treatment, and now 1&1/2 years later I have been diagnosed with chronic radiation enteritis after having many bouts of bowel obstruction. The last bout landed me in the hospital for three days this…
lichen sclerosus diagnosis 4 years after treatment
Hello to all, I have been having problems and was worried that my anal cancer was back again but instead was diagnosed by my obgyn with this rare incurable autoimmune disease called lichen sclerosus. It is a skin disease that affects the analgenitourinary areas. Basically your immune system attacks your skin in these areas…
Weight Loss After Cancer
Hello! I was diagnosed with stage 3A anal cancer. I have completed treatment and I have been found cancer free. I have lost 17 pounds since Feb. 18th. Has anyone else experienced this? Creative in Denver
Dark spots on skin
Has anyone else developed freckle-like spots on their skin? I just noticed a lot of them in my "bikini" area where I usually shave. I sure hope they go away afterwards--I'll never wear a swimsuit again! Becky
vision
Question for those who've had brain radiation: have you developed failing vision that can't be corrected with eyeglasses? have you suffered painful burning on scalp long after last radiation treatment?
Stage 4
Hello all, I was finally able to find with forum again and log in! My mom was diagnosed in 2015 stage 2 treated with protocol, recurrence March of 2017 treated with apr colosotmy in May of 2017, then April of 2019 another recurrence to the vaginal wall. My mom has been on chemo for a year now, every 3 weeks. scans last…
Foundation One Testing
Has anyone else had this testing done? Was it at all useful to you and did your insurance pay for it? My onc sent off tumor tissue for testing and they solemnly issued a 19-page report that has 18 pages of medical gobbledegook and one of legal gobbledegook. They apparently identified five mutations in my tumor, none of…
Anyone have post treatment ear problems?
I just thought I'd post and see if any of you have had anything like this. I started having really weird feelings in my left ear like I had an earpod in it when nothing and sometimes blocked, sometimes I can hear my breathing and can't sleep on that side because of the clicking and thumping of my heart. I finally got to a…
?4 Survivors
I have not started treatment yet but have read many posts here. From what I have discovered is that that most painful aspect is the radiation burns (correct me if I’m wrong). 1. Does pre-moisturizing of the area help lessen the effects from severity? And if so, what types would you recommend. 2. I understand that the…
Fissure
Hello Everyone. I have a question about fissures. I'm 4 yrs out from having Anal cancer. A week ago, I went for my six month checkup with the colorectal doctor. He did the exam with all the various instruments as usual. The Dr stated he seen some changes, because, I now have a fissure and immediately scheduled a biopsy.…
Incision
I'm 18 months past treatment. incision still sore sometime. Anyone else have this problem? Seem to take forever to heal.
Long term follow up
Hi everyone, I have not posted for awhile but have still been reading posts from time to time. I have a long term follow up question. I just saw my oncologist yesterday and got another all clear, and it is my four year mark. He says CTs are not needed past 3 years and the DREs are not needed past 5 years. He says I can be…
DVT in Picc line vein
Well another unpleasant surprise. I found out yesterday that I have developed a DVT in the vein that my Picc line is in. This has completely unnerved me and I'm now on Lovenox injections twice a day and am scheduled to have the line removed tomorrow. I am uncomfortable with this procedure being done in the outpatient…
Orange Stool
Hello Everyone! I have completed chemo and radiation 2 weeks ago tomorrow. I have had orange colored poo for over a month. Any ideas what this is and if i shold be concerned? Thank you, Leslie
nodes shrunk but not gone
Question re node involvement after treatment. 15 weeks after treatment MRI showed no tumor but 2 mesorectal nodes had shrunk to half their size but not gone away. Stage 3 . Does that mean an APR is next for me?
low grade fever, loose bowels with no warning
Hello, I was diagnosed with anal cancer Stage 2 T2NO. I have completed the radiation and chemo protocol on 12/10. On 12/13 was told my blood count was 4+ and I could be a poster child for cancer. I went back to work full time on 12/23 and have continued to have bowel episodes that are loose, pain in abdomen at times,…
Strange recurrent fevers
Hello everyone! I am almost two years post treatment, with many of the common issues everyone here is suffering due to radiation and chemo. The challenges never end. I do have something new and wanted to see if anyone else has experienced this, or has any advice or input. Two months ago, I had a fever that seemed to spike…
Rear Cleaner
I was diagnosed it anal cancer in 2008 and wish this would have been available then. I do not know how well it works but thought I would share. It cam across my Facebook page. I have been a member on this site for several years and reading others issues this has been a common problem. I am posting link for anyone…
Which lubricant do you safely use with dilator to avoid UTI
I had been using Astroglide with my dilator but then switched to the Walmart brand equate Personal Lubricant Jelly which was much cheaper and worked just as well. The problem is I had just gotten a UTI and was wondering if this may have been the reason. Doing some research I am finding that many of the lubricants contain…
New MRI Results And Plan....
Cancer still gone but radiation Inflammation and anal ulceration continue 1 year 3 mths post treatment. Terrible teeth pain. Need surgery for removal. Colostomy Surgery February 12 or sooner Possible Hyperbaric Treatments after Colostomy
Worried Son
Dad was told in march that he had stage 3 rectal cancer doctors told him it was curable . He had 8 months of radiation and chemo. They told him after some tests his tumor didn't shrink much . This week finally had his surgery . It took 8 hours and the doctor said it was the worse one she had done . But they got the tumor…
Holiday Wish
Happy Holidays to you all! Wishing you good health. Eve
Mucus During Treatment
Hello, I am into my 4th week of radiation. I have been diagnosed with Stage IIIA anal cancer. I feel as if I have a raging yeast infection because all I want to do is scratch. And...I have mucus when I go to the bathroom and smells awful. Does any of this sound normal? L
Tattooing for Radiation
Hello everyone- Going tomorrow for mapping before beginning radiatio/chemo treatments. Nurse casually mentioned they would be tattooing me. Has anyone else had this done? Thanks so much! Eve
narrow stools
I was diagnosed with anal cancer last Oct. I had Stage 1 possible Stage 2. I went through chemo and radiation. I finished radiation Jan 14. I had a CT scan and no cancer so far. I have to have a sigmoidoscopy done in April just to make sure. Over the last couple of weeks my stools have become very narrow. It feels like I…
My Four Favorite Words...
On Friday I read 2 voice mails from my cancer doctor that for some reason I missed on my flip phone. Last cat scan showed another area in my rectum that looked suspicious and when I was in his office he scoped me and said I was fine but looked at the scan again after I left and realized he scoped a different area than the…
Pending Pain
Hi everyone! I am new. I am trilled to find people to talk with that understand. I am beyond upset and scared regarding pain. Was scheduled to have old implant replaced from mastectomy 14 years ago; and scheduled a colonoscopy just to check it off my list. What was thought as diverticulum came back as pre-cancer; sending…
CT scan
I had my CT scan 15 months post treatment. No Cancer :) . The past few days, I have problems pooping. No pain, I've taken maralax and natueal vegetable laxative after Thanksgiving dinner, but very little stool comes out only after I put a suppository in. I have a call into my surgeon to ask if I should use a fleet emama.…

Anal Cancer

Discussion List

Discussion Boards