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Approaching 10 years since initial dx...and "hello"
Friends (old and new)... Its been a pretty long time since I've posted here yet still occasionally read through to stay in the know, and I suppose in a way still feel never alone in my boat! Thats such a BIG part of this support forum...to remind us we aren't alone and someone here has on some level shared the same…
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Long term Thriver - question
This is for anyone post treatment for anal cancer, but more toward longer term post treatment. I'm 10 years out still get rust colored mucus after BM especially when a tad constipated. Anyone else have this symptom? Anxiety never goes away! ? Wishing everyone peace and healing this new year!
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Stiff/Tight Muscles
6/23/2020 I am experiencing very stiff/tight muscles for the last several years. No matter what I do nothing helps. Does anyone have the same issues? Thanks Dawn
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Preparing for treatment - a few questions docs can't answer
A bit about me, recently diagnosed with DCIS breast cancer in October 2020 and went through surgery and radiation for it. In the middle of my rad treatments, I decided to have my lovely 50-year old routine colonscopy where they found sessile polyps that they biopsied. The result was a high-grade squamous dysplasia in situ.…
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3 month exam
Hi everyone, I went into my 3 month exam yesterday, the dr tried to look inside my anus but there was stool there and he couldn't really see anything so he had to use some device that cleaned out the bowel so he could see. Everything looked good and all he could see was scar tissue. This morning I used the bathroom felt…
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life insurance ?
Hi all, Just curious...have any of you or someone you know with cancer bought a "term" life insurance policy since being diagnosed? If so, what company and are the rates (as probably should be) sky high? katheryn
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Radiation side effects
I'm new here... Wondering if anyone has experienced side effects from radiation therapy that has caused osteoporosis, fractures and/or mobility issues. I am a little over a year and a half post-treatment and have been diagnosed with severe osteoporosis. Have multiple insufficiency fractures in pelvis and 4 months ago this…
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Radiation Proctitis
I am hoping that someone else here has some suggestions!! I was diagnosed and treated for anal-rectal cancer back in January of 2000. I have my screenings regularly and now have been cancer free for 13 years. I was succesfully treated using chemotherapy and radiation therapy. (35 treatments of radiation therapy) My skin…
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Need some advice about diahhrea
I dont post often but get on here periodically to see whats new. I am 8 years NED next month. The only issue i have had over the years is frequent bowel movements and not much warning that they are coming, but at least the stool was not loose. So it was not that big of an issue. Had between 6-8 BM’s a day. The last few…
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Anyone have trouble with Pudendal nerve?
I'm over two years out from treatment. Wondering if anyone has had trouble with pudendal nerve after treatment/
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Stage 3 & spread to lymph nodes . 5 years later...
i just had my 5 year last appoinment with my radiation oncologist a few days ago. He told me how good i looked , that he would miss me. i hugged & thanked him and that was it. just like that it was all over. it really bought home to me how much i would miss him quietly being by side. and on it. i have been crying off and…
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High Resolution Anoscopy and ongoing anal surveillence for HPV
a few questions for longer term survivors: 1. Any long term survivors screened routinely for latent anal HPV and early cellular changes with HRA? if so, did you have cellular changes and any subsequent treatment like infrared, excision, 5 FU topical, or Immoquid? 2. Anyone have a second anal cancer? Not recurrence of 1st,…
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One year since end of treatment...
Well, it's been exactly one year since my last radiation/chemo treatment as of May 23. It sure has been one hell of a year! Besides dealing with anal cancer, my 100 year old mother-in-law passed away and then Easter Sunday my mother passed. On a happier note, the month after my last radiation treatment my daughter and…
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Sore butt
It's been two years since my last treatment. My butt hole still hurts sometimes after a hard bowel movement. I was doing so well for a few months. Anyone else have this probblem?
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Cluster Bowel Movements
Hi I am new to this site i had stage 3 rectal cancer and have compleated radiation treatment and chemo last year . as of now i am cancer free . had to wait to have ilistomy reversed due to a small leaak at incision. Doctor fixed leak , just had iliostomy taken down after 2 years on june 19,2017 my questions are to…
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Fractured Sacrum from Radiation
I endured radiation from October 2013 to December 2013, plus two weeks of chemo, for treatment of anal cancer. And so far, I'm happy to report that I am 7 years NED this month. But I just learned something that has me a bit thrown. I had an MRI a few months ago and learned that I have a fractured sacrum. Now I don't know…
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Enteritis
Hello all, my mom seems to struggling a little with some enteritis from raidiation. has anyone else experienced this?
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Feeling scared and concerened
Hello, I'm a little over two years out from treatment. I still have bowel problems, mostly thin stools and contipation. I have to have my gallbladder removed soon and so afraid of having bowel problems after surgery. I have to take stool softener now everyday. Anyone here have some advice? As of now my stools are thin and…
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Mom update
My mom was diagnosed in 2015 stage 2, treated with standard protocol. Was well until 2017, went for scans and was found to have a recurrence. had an apr colostomy in spring of 2017, doing great until spring of 2019 was having issues with urine and urgency, another recurrnece to the vaginal wall. Her doctors put her on…
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Hello
I am usually on the colon cancer board since my husband was diagnosed with stage 4 CRC 3.5 years ago at 37. Sadly my dear sweet friend was diagnosed with anal cancer a few weeks ago. We live in an area where the health care is not great. So we learned right away to get a second opinion. I was happy when she decided to get…
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12 weeks post treatment, lump in groin
I am really stressed today _ I discovered a lump in my groin last night. I've never actually felt a lump before throughout all my treatment. I did have 2 lymph nodes show on the MRI but there was no lump. Is this a really bad sign? I also seem to have developed vaginal thrush _ could this cause a swollen lymph node? And…
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Stress
It's been almost a year since my last treatment. I'm still getting use to this "new normal" I tried going back to work but the stress was so much, after nearly two weeks I feel I can't take the stress working in a Vets office. My BP is high and I do take meds for it, sometimes they dont' work. UGH I just have a tough time…
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Been too long since I've said "hello"
Oh my goodness...I can't believe its been months since I've posted here. I see so many (too many) new members and just wish this place was not so needed, but thank God it is here as it has been for me and so many others such a life line at times. I pray the New Year brings us all an abundance of health and healing…
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Coping with itching and inflammation: my experience
Hello, everyone, I was treated for stage 1 squamous cell carcinoma almost three years ago. Surgery, radiation, chemo. It has been a long road to recovery but I am most of the way there. I wanted to post about itching and inflammation because I have made some progress on that front. I have experienced gradual physical…
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colon cancer
Can anal cancer turn into colon cancer?
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Can someone help
Two years since last treatment. incision is still sore after hard poop. Anyone else?
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RECAP + new lesion.
Greetings, all. It seems like the only time I come here is when I am having problems. So, why should tonight be any different? .^_^. RECAP: 2014 - Anal cancer diagnosed, stage 3C, local metastasis. Had Mitomycin, 5-FU, and radiation. It took me a long time to get through the treatment, much longer than 6 weeks. I was…
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Rectal Bleeding
6 years out from treatment! As of today my rectum is bleeding bright red blood, no other symtoms of anything. Any ideas? I can't get into the doctor until Monday (11th) unless, for some reason, it turned into an emergency this weekend. Thanks, Kris
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pelvic floor therapy
Anyone have pelvic floor therapy? I'm scheduled next week first appt.
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Has anyone had to have the APR Surgery?
I completed my treatments on 4/9, but a pathology report I had on 6/8 came back as suspicious for possible malignancy... my surgeon said that means it is inconclusive and they have sent the tissue samples to Moffitt Cancer Center Pathology for them to run test on it. I am now waiting for them to contact me to set up an…