10 years and grateful
I used to be on this board every day. It was a lifeline. I wsa very frightened and hurting. Anal Cancer put me through a lot too. But I am happy to say even though my cancer was late stage, we beat it back with the protocol treatment, chemo and radiation, simultaneously. For me it was brutal. I am alergic to Sulfa and so they could not give me the Sulfadine ointment and I had to make do throughout with just Aquaphor for the radiation burns.
Now, it is such a distant memory. It has been ten years. My last treatment was August 18, 2011. Having anal cancer taught me a lot about myself and all the people who work in cancer treatment and rehabilitation. i am very grateful. Push through it. It is worth it.
i discovered i have Lymphodema and have faced and managed it successfully.Also, If you have lymphadema as a result of the cancer invading your lymph nodes, disabling them, learning to take care of it is not hard. I now feel everyone would benefit from the self care I give myself to assist my lymphatic system. That I had it and it was discovered, was at first depressing and daunting,. But I am pleased to say, so far, it's not bad at all to do what it takes to manage it..The benefits far outweigh theh challenges.
Hang in there and keep supporting each other. The interactions on This board with survivors taught me a lot and gave me a lot of support and hope when I needed it most.
God bless you.Hang in there.
PainInTheBum Member Posts: 96 MemberSo glad to hear you are doing well.
I have read many of your posts from way back (in fact, I think I have read EVERYONE'S posts). I, too was on here every day when I was first diagnosed. Finished my treatment about 2 1/2 years ago. So far no sign of cancer returning. Getting tested regularly. I don't come on here as often as I did in the beginning but this forum gave me so much hope and help during my treatment. It was such a scary time. My body will never be the same as before cancer, but, hey! I'm still here and doing ok! Have to adjust my eating and going out times but it's doable. I have so much to live for so whatever I need to do to stay healthy I will. I'm so glad for everyone that posted their experiences with this. It's terrifying when you first get told you have it and no idea what to expect. Comforting too to hear back from ones who have had the treatment so many years ago and are doing well. It's encouraging. I'm so grateful to have found this page when I needed it most.0
Congrats on your Victory and Positivity!
Thanks for posting this positive message! It's been 8 years since my Stage 2 ordeal. We are so amazingly fortunate to have the treatments and resources available to survive and thrive, if not perfectly, then as best we can. My experience convinced me that hope and gratitude are as powerful as any medication. God bless you and thank you for encouraging others!0
Congratualtions on 10 years!!caholz33 said:
Congrats on your Victory and Positivity!
Thanks for posting this positive message! It's been 8 years since my Stage 2 ordeal. We are so amazingly fortunate to have the treatments and resources available to survive and thrive, if not perfectly, then as best we can. My experience convinced me that hope and gratitude are as powerful as any medication. God bless you and thank you for encouraging others!
Congratualtions on 10 years!!! so happy for you.0
CAMDEN6918 Member Posts: 4 MemberNEARLY 4 YEARS AND COUNTING
I was diagnosed in August, 2017 with Stage 3b anal cancer. I remember my medical oncologist taking both my hands in his, looking me squarely in the eyes and telling me "This is highly curable." I had faith in him and God and never doubted I'd be okay. My husband was with me every step of those brutal months but knew I was cancer free 2 months after treatment. He passed away 6 weeks later. I've recently moved and leaving my cancer team was very emotional. I've moved to a new state and the truly excellent records that were sent ahead to my new oncologist have helped me settle into a new follow up schedule without missing a beat. I'm beyond grateful.1
CharlotteW Member Posts: 15 Memberedited October 2021 #714 Years and Counting
Hi, I haven't been on here for some time either. I am 14 years past my cancer and happy to still be here. So glad to see others that are still here too.
I usually just read the comments and got encouragement from them. I want to let the ones just starting this journey to stay the course and you can beat it!!1
Glad to hear you are doing well. I am 7 years out. I remember you from the first few years that I was in this group. I still check in to blogforacure, several people are on both groups.
I am interested in how you discovered lymphadema and how you are taking care of it. I think I may have a mild case in one or maybe both legs. I ankles are botheringme, but they arenot hot, red or swollen, but they feel very strange. I wonder if I should get support hose, but don't know what and I think they have to be fitted.
I'm no longer under surveillance by my oncology team; perhaps I should try to return to my pelvic physical therapist who helped me a for a few years .
Radiation is the gift that keeps giving !1
PainInTheBum Member Posts: 96 MemberCongratulations on your 10
Congratulations on your 10 years. I have read all your posts in the past. (in fact, I have read ALL of the posts on here when I was first diagnosed). This forum has been so helpful to me during my treatment 2 1/2 years ago. In the beginning I was on here reading. May not have posted much but I really appreciated all who did. Just knowing I was not alone in this battle was so comforting. Just knowing some of strange side effects of treatment were not abnormal was a relief.
Seeing so many doing ok many years after treatment gives hope to those who are just beginning. I hope one day I can post 10 years plus too!1
I just caught up with this. You are on the right track. My pelvic pt was the first to inform me of the lymphadema. Mine is in both legs, stage two. That makes it, I think harder to diagnose unless the person is very educated in what to look for. I have gained twelve pounds since the pandemic but my legs were checked and they improved slightly since my last check up two years ago, in spite of the weight gain, so the program I was given of support hose, (Medpro) a girdle (juzo) and manual lymphatic drainage self administered is really working well. My legs feel so much better from wearing the compression garments that I pull them on all summer long.
it does not improve on its own. So do follow up on the care. My PT was prescribed by the physiatrist at the cancer rehab center associated with the hospital. It pays to take care of ourselves.1
I am 13 years out, I too was on this forum daily and everyone was so helpful and supportive. I honestly don't know what I would have done without everyone that cared. It was so scary and I felt so helpless, the pain, the fear was eating away at me and truly no one in my surrounding life could help me but coming here I was amongst people who either were going through it or had gone through it and looking back I was so lucky to have found this board. Martha if you are still here BIG HUG, you are a wonderful caring person with great info and tips to get through the pain. You were always there when I needed someone, Thankyou. 💗0
Mharrington Member Posts: 18 Member
Since you are both many years out from treatment, do you still have bathroom issues? I am 1 year out and still have to stay close to a bathroom in the morning. I so long to go on my daily hikes, but the frequency and urgency in the morning really makes it difficult. I have been taking Metamucil and that has at least helped with consistency greatly, but I'm am so afraid to be somewhere and have to go with no bathroom around. Does it get any better?0
I still have issues sometimes, in the morning I don't stray too far from the bathroom. I have a fissure and a hemmie so I eat alot of fiber, for me being constipated is a bad bad thing. However all in all its probably better now than it was, keeping yourself on a routine and allowing yourself extra time in the morning will help. I on occasion still have an accident but not as many as I used too. I have noticed through the years I may have developed some IBS maybe from the radiation so I am aware of certain foods to eat and not eat. If it something I shouldn't eat but I really like I just eat a little of it, like salsa or spicy stuff. I also found an ointment for any flareups I may have for my fissure and hemmie that has really helped, its call Dr Butler's I purchased it on Amazon and it really helps to relieve pain and swelling. I hope things will get better for you, hang in there and find routine in your daily life, eating the right foods for you and the timing of your meals.0
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