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Some tips from CSN
Welcome to the CSN! Below are some tips to help you get started following and posting on the boards. You can follow your preferred discussion board to get notifications of new topics and comments. To follow a board, navigate to your preferred board and then select the bell at the top, followed by your notification…
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VIN 3 - Partial Vulvectomy
I read these message boards before my surgery and I'm here for a little support. VIN3 doesn't seem to have much resources so like many women I thought this may be a good place for support. I'm early 40s, no HVP, never abnormal PAP, same partner for 20 years. VIN 3 was removed by partial vulvectomy. Home the same day.…
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Positive Margins
Two days after wide local excision to remove vin iii lesions, someone from my doctor's office called to tell me the patholgy report says margins are not clear. But, the girl said, the doctor says don't pay attention to it, because he ablated (?) tissue beyond the area excised. Honestly, I'm a bit ticked off that the doc is…
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Stuck In Limbo-Freaking Out
I had a CT scan 2 weeks ago due to bowel changes and pain in the lower left quadrant, definitely waited longer than I should have to go get it checked out. This scan showed I have a 8.7cm x 8.3 cm solid Adnexal Mass on the left side, and a 5.5cm thick-walled cyst on my right ovary. Went to my Gynecologist and she has me…
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Just Home from VIN II/III Laser Ablation (PlasmaJet) Outpatient Surgery
Greetings to those who have posted in the past and not heard much from others about this condition (Vulvar Intraepithelial Neoplasia / Lichen Sclerosus), the surgery and the aftereffects and next steps. I'll start with, briefly: yesterday (2/8/2024) I had laser ablation outpatient surgery for VIN II/III, diagnosed after my…
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Wide Excision of vulva with CUSA
Hello, I’ve read the posts on this board, and it seems no one is active anymore? I have been diagnosed with VIN2. I have surgery scheduled 7/25/22 which is two days before my 51st bday. I would love to hear from someone who has had a similar experience, guidance, encouragement. Anything. I know I need to ask more questions…
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Cervical cancer
I have just recently been diagnosed with cervical cancer and I am very scared for what is to come.
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VIN 3
Hi, I'm new and from the UK but unfortunately there is not much in the way of support for this specific condition in the UK. I was diagnosed with VIN 3 in December and am currently being treated with Aldara cream. Sometimes it really gets me down and I feel like I'll never be normal again! Just hoped that someone who is…
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Endometrial cancer
I had endometrial cancer that metastasized to my lung. I just started Everolimus and Letrozole. What is the longevity for me?
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Cervical cancer
Hi. I was told 12/1/23 I have cervical cancer and to go to a gynecologist to find out what stage I am. I’ve been extremely terrified given I have a 3 year old. I only went to the hospital due to severe pelvic pain and shortness of breath. I’ve been having these pelvic pains for over 2 weeks along with getting my period a…
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uterine cancer
has anyone ever taken Progestrin for a treament for a grade 1 uterine cancer?
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Vulvar Cancer
I was diagnosed with stage 3 vulvar cancer a few years ago. Wanted to start a discussion with anyone about this, as we are a rare group and Id like to know your story.
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Vulvar cancer
I have just been diagnosed with vulvar cancer. Going for pet scan this week for more info. I am in pain and very difficult to sit. I’m sure surgery will be done & wondering if this pain or the pain after surgery will be worse. Urinating is torture right now. Lidocaine not much help, I use a squirt bottle and that is…
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Anyone have a cervical cancer recurrence 9 years later?
Hello all! I used to be on the older CSC network discussion group when I was diagnosed with Stage 1B Cervical adenocarcinoma in 2014, had a radical hysterectomy and that was all that was needed. Then I got breast cancer (2021), early stage, with bilateral mastectomy and that was all that was needed. THEN I started having…
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Radiation and catheter
Hello I am undergoing radiation and chemotherapy for colorectal cancer that's actually in my vagina which is very rare I have found out but nevertheless I am receiving radiation to my pelvic and abdomen starting my fourth week I begin to get severe burns in the genital area I have tried all kinds of things to stop the pain…
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Ivermectin
Hi I'm in Northern Ireland and trying to find out dosage of Fenbendazole and Ivermectin. Can anyone please point me in the right direction??
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Elderly on CarboTaxol
Hi, I used to be an RN in an oncology and hospice unit. I know what chemo Can do. I’m scared as I am faced with helping my young 87 year old mother (she’s super active). We are trying to decide if we should not get any chemo at all and just let her live out her life in peace and happy or if we should go with the port and…
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Permanent hair loss due to Taxotere
I’ve just signed up on this sight, so forgive me if I’m not going about this the right way. I’m 73 years, diagnosed with stage 3 endometrial cancer in October of 2022. Had a total hysterectomy in November and began chemo in January of this year. I did half the chemo, paused that and had 32 radiation treatments, then…
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Penguin Cold Caps and Hair Loss
Anyone here about the Penguin Cold Caps? I was diagnosed with Cervical Cancer in April 2012 and had a partial hysterectomy. I underwent 6 weeks of radiation and 6 sessions of chemo. In August 2012 I found a lump on one of my scars and turns out I had to have surgery 2 weeks ago. The cancer was there again. I know have to…
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BARTHOLIN GLAND CANCER / VULVA CANCER
Has anyone out there been diagnosed with Bartholin Gland Cancer / Vulva Cancer?
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Keytruda and Avastin
Hi, I was wondering if anyone has/did lose weakness on one side due to side effects? I was done radiation last September, June of this year I finished with my chemo. I am receiving immunotherapy every 3 weeks to try and kill off the existing tumor on my brain stem. For about a month now I have no grip or strength on my…
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Bio port
do any of you out there that have a bio port get itching around it. it absolutely drives me crazy sometimes.
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Endometroid cancer metastatis in para aortic lymph node
Hi, My mother had endometroid and serous carcinoma about 6 years back. During hysterectomy pelvis lymph node dissection was done and cancer was found in one of the node. Followed with Chemo (3 week cycle) and Radiation (weekly for 26 weeks). No issues for till 2-3 months back when she started getting slight back pain. When…
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Endometrial cancer
Just got biopsy results endometrioid Adenocarcinoma FIGO 11 not sure what it means waiting to get appt with surgeon.
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Nerve damage from radiation
I am losing the use of my legs due to 'scar tissue' nerve/muscle damage from radiation. Doctor suggests high dosage (500 mg/week) methylprednis treatment. Has anyone ever experienced this?
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confused and dazed
I was rushed to the hospital Easter Sunday, and started blood transfusion (my fourth in less than 5 years). I am 44 female. While there, the on call doc decided I needed more tests. Long story short, they found out I had sarcoma of the uterus. I had everything taken out, have nice long incision that I am recovering from.…
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Endometrium 15.90mm!? I’m 34 :/ any advice
Hi everyone I’m new here, I am finding comfort in the warmness of the forum. I wanted to share what I’m going through and see if anyone has any advice for me. I’m 34, was diagnosed with PCOS at 16. Over the years I have had months of missing periods, regular periods that come like clock work, or some that come like every…
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Dilation
I received radiation in 2015 for vaginal cancer and have diligently dilated 2-3x's a week for 8 years. This year the cancer came back as vulvar cancer and I had to have surgery in February 2023. I could not dilated during the 3 month recovery and now I have severe vaginal stenosis. I was wondering if anyone out there had…
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VIN 3 dysplasia recurrence
I had the ultrasound ablation surgery last July to remove some VIN 3 lesions. I healed up nicely, but felt itching in January. A follow up showed I have VIN 1 now, and they say no treatment needed. It has gotten worse in the past 2 months and I had to argue to be seen again before my July follow up. In 2 months, I have…
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aldara cream
Has anyone ever experienced systemic side effects from aldara
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Dr. Question
Has anyone treated with Dr. Im in Whittier, CA? Recently diagnosed with endometrial carcino sarcoma. I am thinking I should consult at City of Hope... at the very beginning of this journey. I am a 13 yerar BC survivir with 10 tears on Tamoxifen. .. have only had the initial biopsy thus far.