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Gynecological Cancers (other than ovarian and uterine)

Keytruda and Avastin
Hi, I was wondering if anyone has/did lose weakness on one side due to side effects? I was done radiation last September, June of this year I finished with my chemo. I am receiving immunotherapy every 3 weeks to try and kill off the existing tumor on my brain stem. For about a month now I have no grip or strength on my…
Bio port
do any of you out there that have a bio port get itching around it. it absolutely drives me crazy sometimes.
Endometroid cancer metastatis in para aortic lymph node
Hi, My mother had endometroid and serous carcinoma about 6 years back. During hysterectomy pelvis lymph node dissection was done and cancer was found in one of the node. Followed with Chemo (3 week cycle) and Radiation (weekly for 26 weeks). No issues for till 2-3 months back when she started getting slight back pain. When…
Nerve damage from radiation
I am losing the use of my legs due to 'scar tissue' nerve/muscle damage from radiation. Doctor suggests high dosage (500 mg/week) methylprednis treatment. Has anyone ever experienced this?
confused and dazed
I was rushed to the hospital Easter Sunday, and started blood transfusion (my fourth in less than 5 years). I am 44 female. While there, the on call doc decided I needed more tests. Long story short, they found out I had sarcoma of the uterus. I had everything taken out, have nice long incision that I am recovering from.…
Endometrium 15.90mm!? I’m 34 :/ any advice
Hi everyone I’m new here, I am finding comfort in the warmness of the forum. I wanted to share what I’m going through and see if anyone has any advice for me. I’m 34, was diagnosed with PCOS at 16. Over the years I have had months of missing periods, regular periods that come like clock work, or some that come like every…
Dilation
I received radiation in 2015 for vaginal cancer and have diligently dilated 2-3x's a week for 8 years. This year the cancer came back as vulvar cancer and I had to have surgery in February 2023. I could not dilated during the 3 month recovery and now I have severe vaginal stenosis. I was wondering if anyone out there had…
VIN 3 dysplasia recurrence
I had the ultrasound ablation surgery last July to remove some VIN 3 lesions. I healed up nicely, but felt itching in January. A follow up showed I have VIN 1 now, and they say no treatment needed. It has gotten worse in the past 2 months and I had to argue to be seen again before my July follow up. In 2 months, I have…
aldara cream
Has anyone ever experienced systemic side effects from aldara
Dr. Question
Has anyone treated with Dr. Im in Whittier, CA? Recently diagnosed with endometrial carcino sarcoma. I am thinking I should consult at City of Hope... at the very beginning of this journey. I am a 13 yerar BC survivir with 10 tears on Tamoxifen. .. have only had the initial biopsy thus far.
Vulvar Cancer
Anyone recently (2005) that has been diagnosed with either vulvar or vaginal cancer, please email me at rnticknor@sbcglobal.net. I don't get much contact from the CSN postings. Both of these cancers are rare. You can check out my postings under the name Nancytahoe, I was diagnosed with vaginal/vulvar cancer in October…
Bartholins Gland Carsinoma
I was diagnosed in June 2006 and had a partial vulvectomy and then recently found out it had returned and did more surgery. I am healing and will have to do radiation for about 5 weeks. I have had fear,anger and now gratitude to be alive. I need to find someone to talk to that has had to deal with this. This is a very rare…
Transglutaminases in Medical Research
Transglutaminase (TGase) is an enzyme that catalyzes the acyl transfer reaction. It uses the C-carboxamide group of the glutamine residue in the peptide bond as the acyl donor, and the E-amino group of the lysyl residue in the polypeptide chain as the acyl acceptor, forming intramolecular and intermolecular…
Cervical cancer
can a tumor grow on the outside of the vagina and what does the lump look like im 33 , and there is no cancer history in my family
Cancer Target: Mesothelin
Mesothelin is a glycosylphosphatidylinositol (GPI)-anchored cell surface glycoprotein. Its biological function has not yet been clarified, but due to its limited distribution in normal tissues and high expression in some tumor tissues, it is expected to be used in tumor-specific treatment. In existing studies of human…
Radiation proctitis
I had a hysterectomy in 2003, a recurrence in 2004 that required chemo and radiation, internal and external. Radiation proctitis is a result of the radiation burning the lining in the rectum since the rectum and vagina are so close. It is extremely painful. I am presently using Canasa suppositories and they only help…
Immunotherapy
I have vaginal cancer - serous adenocarcinoma. I've been through carboplatin and taxol, and external & internal radiation. I'm supposed to start immunotherapy this next week. Keytruda and Lenvima. Was curious as to anyone's experience with these drugs. How were your side effects? How long before side effects appeared.…
Feet Detox after Chemo
Hi All, I was told about a Foot Detox process that can help give you more good days. Many types available has anybody tried this if so, does it help? Any advice about kind/type? Does this disrupt your Chemo treatment or help? Thanks D
Clinical trials my recurrence
Has anyone gone thru a clinical trial for their cancer. My doctors seem to feel this may be a good option for me since my cancer returned in the middle of my chemo cycles. But I hear there may be some unexpected costs with entering a clinical trial even though I have pretty good insurance. Has anyone experienced some…
New to board: stage 1B vulvar cancer
This has been a strange journey for me. I guess my story is more of a cautionary tale: if something doesn't look or feel quite right, get it checked out sooner rather than later. I was diagnosed with vulvar cancer in September of this year, after complaining of increasingly excruciating pain. I had felt the strange little…
How to trust cancer is gone after surgery
I am 46 years old, and had Squamous Cell Carcinoma of the vulva and mons pubis. This was very large and in the center of my vulva. In attempts to shrink the tumors I had 5 cycles of chemotherapy ( last one was postponed due to having a cold ) after 5 rounds- which caused me so many problems, the tumors had shrunk and we…
New to Discussion Board - Diagnosed with Vulva Cancer
Hi I'm Sunny and I'm from Florida. I am 55 and I found out last week I have vulva cancer. I'm still pretty dazed and am finding it scary to be heading into all this with no sense of control whatsoever and what seems to be an endless stream of questions and fear. Will be having a Pet Scan soon then all the press surgery lab…
Advice on recovery from vulvar wide local excision
I am having a wide local excision to remove vulvar squamous cell carcinoma on Tuesday. I am very nervous about the surgery and recovery and would love to hear from anyone that can advise me about what to expect for the recovery and what if anything you did to help the recovery process.
VIN III recurrence
Hi, I'm new to this site. I'm really grateful to have finally found it. I'm been searching high and low for the last week. I was diagnosed last Fall (04) with VIN III after I had other surgery to fix my prolapsed rectum. The piece that was taken out for the repair was sent to pathology and was found to have VIN III. I was…
VIN 3 wide local excision recovery
I am a little over a week post op. The burning sensation is off the chart anytime I pee. The area as much as I can see looks yellow and black. Has anyone else had this procedure and what was your recovery like ? Also of note, I still see white patches of skin , I thought the white patches were what he was suppose to be…
Fallopian tube
I just found out that my ovarian cancer actually originated in the fallopian tube cancer, and is a BRAC cancer. I'm floored. Does this change anything regarding my treatment? I have read only like 300-400 people are diagnosed a year with fallopian tube cancer. Anyone else?
Cervical Cancer
Is there anyone out there with cervical cancer? I have been stuggling to find someone out there that I can talk to about my cancer that understands what it is that I am going through. I have a great boyfriend who has had throat cancer but it just isn't the same. So if you are out there please let me know I am not alone.…
Cervical Cancer survivor/warrior
I know the title looks confusing. But I was diagnosed with stage 4 cervical cancer in February 2019. They hit me with some hard chemo & radiation followed by internal radiation. I was very lucky to not be sick. I was just really fatigued. The internal radiation gave me blisters on my booty but with iodine on it for 2 days…
VIN3 vulvar surgery
Background: age 52 first abnormal pap was in college with notice of vaginal warts then two treatments for abnormal pap in 2001 and 2008 recent diagnosis with VIN 3 dysplasia vulvar area caught in last few months caused by high risk HPV. Normal paps and checks for several years prior Partial vulvectomy Dec 6 2021 with…
Vulvar cancer surgery (Vulvectomy) and doing very well.
I am 49 years old and from Michigan. I was recently diagnosed with vulvar cancer and am now 3 weeks out from surgery. I am doing VERY well. My cancer has not spread. They removed the lesion (left side only) and did a lymph node biopsy and it was all clear. I have no further treatment. I would be very willing to share my…

Gynecological Cancers (other than ovarian and uterine)

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