Penguin Cold Caps and Hair Loss

Monica1623
Monica1623 Member Posts: 2 Member
in Gynecological Cancers (other than ovarian and uterine) #1
Anyone here about the Penguin Cold Caps? I was diagnosed with Cervical Cancer in April 2012 and had a partial hysterectomy. I underwent 6 weeks of radiation and 6 sessions of chemo. In August 2012 I found a lump on one of my scars and turns out I had to have surgery 2 weeks ago. The cancer was there again. I know have to undergo chemo again... Cisplatin and Topotecan. I did not loose my hair with the first round of chemo, however, my doctor has told me that this time the drug does cause hairloss. I know this is not the biggest concern, the concern is to get me healthy, but there is an option to keep your hair.

I discovered the Penguin Cold Caps that freeze your hair folicles during and after chemo. This will keep the chemo from entereing into your hari folicles and therefore, you will keep your hair. If anyone has ever done this I would love to chat about it. I start on September 24, 2012.

And I would love to chat to someone that has had Cervical Cancer and beat it... I need some inspirational stories.

Comments

  • therapunzelproject
    therapunzelproject Member Posts: 1
    #2
    cold caps can save your hair
    Hi Monica,
    Penguin cold caps work about 90% of the time with all chemo drugs. You can visit our website (we are a non-profit trying to make people aware they can save their hair)to learn more at www.rapunzelproject.org. Also you can call the company directly - they can give you past user references and doctor references. Contact Geralyn Pewarchie at 810-359-5257 or Frank Fronda at 714-982-8846. They can ship the caps as fast as overnight and you can save your hair. All the best to you. Nancy and Shirley
  • mandamishell
    mandamishell Member Posts: 1 Member
    #3

    Hi Monica,

    I have breast cancer and used the penguin cold caps during my 4 month chemo treatment , I still have about 30% of my hair left and I just finished my last chemo treatment last week. I had very strong treatments, taxol, carboplatin, adrimycin, cytoxan and keytruda. It does work, my hair is just thinner but everyone tells me that if they didn’t know me (I had a ton of hair before) they would just think I have thin hair. I hope this helps you:)

  • Forherself
    Forherself CSN Member Posts: 1,039
    #4
    https://csn.cancer.org/discussion/comment/1708860#Comment_1708860

    Hi there, this post is from 2012. I hope all goes well for you.

  • AnneN
    AnneN CSN Member Posts: 24
    #5

    I am mid-way through carboplatin/paxlidol for ovarian endometrioid carcinoma and have been using a cold cap. It has worked well so far for me, but everyone is different. My hair has thinned and my hairline has receded about an inch. I had thick, curly hair, which helps mask the thinning. Really, no one would know that there is any change. The cap was painfully cold for the first 45 minutes or so, first chemo session, but not bad after that. It does add about 3+ hours to a chemo day. Good luck with whatever you decide!

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