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Frustrated

angelenaawbrey77
angelenaawbrey77 CSN Member Posts: 10 Member
in Gynecological Cancers (other than ovarian and uterine) #1

These forums only succeed in making me angry, because there is no help for vulvar cancer in my area except surgery then no support after... not even reliable surveillance for recurrence. One surgery was left incomplete resulting in a new tumor which was misdiagnosed as a genital wart and lichen simplex was misdiagnosed as Vin 3

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Comments

  • NoTimeForCancer
    NoTimeForCancer CSN Member Posts: 3,601 Member
    edited August 2024 #2

    oh angelenawbrey77, vulvar, along with vagina, is so rare I am sure it is VERY difficult trying to find others who have, or have gone, through all the treatment and after effects.

    After I wrote this I saw you were 'chatting' with someone. Since the public reads these posts, please don't post emails or phone numbers. To start a conversation with another member, click on their name and it will give you the option to message them. They will get notified that you messaged and you can chat in private conversations.

    Hugs dear one.

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  • angelenaawbrey77
    angelenaawbrey77 CSN Member Posts: 10 Member
    #3

    I did message her and received an email from the moderator that members didn't get the messages the moderator gets them

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  • angelenaawbrey77
    angelenaawbrey77 CSN Member Posts: 10 Member
    #4
    Screenshot_20240802_225040_Gmail.jpg

    I'm sorry. I had 2 groups confused.

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