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Vulvar cancer

andwho
andwho CSN Member Posts: 7 Member
edited December 2023 in Gynecological Cancers (other than ovarian and uterine) #1

I have just been diagnosed with vulvar cancer. Going for pet scan this week for more info. I am in pain and very difficult to sit. I’m sure surgery will be done & wondering if this pain or the pain after surgery will be worse. Urinating is torture right now. Lidocaine not much help, I use a squirt bottle and that is painful also . Help! Any advise?

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Comments

  • countrygirl1
    countrygirl1 CSN Member Posts: 1 Member
    #2

    Hey Andho, how are you doing on your journey?

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  • jm7
    jm7 CSN Member Posts: 2 Member
    #3

    I had virtually no pain after surgery from surgery site...before surgery was unbearable. The hardest part of surgery for me was going home with catheter for a week and a drain for two weeks. The drain was very hard for me. After all was out, good to go👍

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  • andwho
    andwho CSN Member Posts: 7 Member
    #4
    https://csn.cancer.org/discussion/comment/1708437#Comment_1708437

    Finished 33 weeks of external radiation and 3 rounds of chemo 4 months ago. My radiologist told me skin heals quickly but I still have irritation & itchiness. Mostly at night. Sometimes so bad I become raw. No more pain urinating. Thank god. Will I have to live with constant skin irritation as a late side effect? I use aquaphor not much help! Is this a common late side effect? Thanks for any advise!

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