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Gynecological Cancers (other than ovarian and uterine)

Clitoridectomy advice please.
Hi guys. I'm new here. I have just come out of having surgery to remove tumors from my clitoral wall. Vulva cancer entered my life in october 2016.Have had a partial clitoridectomy and removal of lymph nodes in either side of groin. Habe spent 7 days in hospital and my amazing gynecological oncologist Dr Peter Grant has…
VIN - THE ITCH!
Ladies, I think I might be on the verge of losing my mind. I've had VIN 3 for five years now, I've tried creams and laser surgeries to no avail. My situation is complicated because I've had two transplants, so my immune system must be kept low (hence why my body can't keep the hpv virus in check). I've recently switched to…
Worried I may have cervical or uterine cancer
I went into my doctor after months of pelvic pain and my periods being so messed up my bleeding is out of control some months I bleed for 13 days very heavy and then the next month I don't have a period or I'm just bleeding all the time. And the pain is unbearable and it's in the middle not on the sides on my abdomen. I…
My uterine cancer has metastasized
I was diagnosed with endometrial cancer, surgically removed all--Jan 2, 2002. It was a mixed type of cancer, carcinosarcoma. Because of this although there was nothing in lymph nodes, nor in abdominal wash, I had 33 external radiation treatments followed by 3 internal. My followup care showed no signs of anything in June…
Question re vaginal surgery
Hi. While I'm not a member of this board, I have a question that might best be answered here. I have metastic mucinous adenocarcinoma of appendiceal origin. Surgery and initial treatment was in 2007, 2008, and included a TAH/BSO. But now the bugger is back on my vaginal cuff. Surgery in 3 weeks that will remove the vaginal…
Cervical Cancer Survivors Needed!!
Hello! I have a dear friend that is battling stage 4 cervical cancer for the third time and it has just spread. She is young and vibrant and an all around amazing human being. She hasn't left the hospital in over a month and is feeling down and losing hope. Are there any Survivors on here in the Los Angeles area that would…
stage 3 cervical cancer
I was diagnosed with cervical cancer in 2000. I went through the radiation and chemo. now i have been cancer free for about 1 1/2 years. I have alot of problems with my legs hurting. is there anyone out there who has this problem too? also, how do you ever get over being scared of the cancer coming back?
VIN and Laser issue
Hello all! Thank you for for sharing your stories. I have VIN. Diagnosed 4 months ago. I've had lichen sclerosis for 10 years. I've never been diagnosed or had hpv symptoms so it may be lichen related. I just had laser ablation 3 days ago. I was told to take sits baths, keep clean, and water squirt bottle the area after…
Vulvar Cancer Diagnosis & Treatment
Hi I was recently diagnosed with a vulvar sarcoma. I had surgery on 10/15 to remove a large mass which turned out to be larger and went deeper than the surgeon anticipated so the surgery lasted 3 extra hours. I spent 2 nights in the hospital but have been home and I have used Motrin for pain management. According to the…
Hi, new to this board with cervical cancer
Hi everyone, I was diagnosed with endometrial cancer last week but have since been told that it is not uterine cancer but cervical cancer so I thought it best to check in here to see what information I can learn from you all. (The ladies on the uterine board are just lovely and have been so supportive!) My stats: Stage 1B1…
New Diagnosis Question
Hi everyone, I was recently diagnosed with adenocarcinoma in situ of the endocervical glands after having a colposcopy / biopsy done. My doctor performed a LEEP procedure to determine whether the cancer is non-invasive or invasive, and I am awaiting the results. I was told that they would be performing a hysterectomy next…
advice please
Hi, I went for my annual pap 2 weeks ago and had a follow up ultrasound for an ovarian cyst i had a year ago. When they did the ultrasound they said they saw a 1cm lesion on the os of the cervix which was suspicious for malignancy...of course i totally freaked out. I went to a gyn oncologist who said the pap smear was…
5 years!!
Last Friday was 5 years since I was dx with vaginal cancer (stage 4a). Looking back, I couldn't see myself out this far. I guess passing the 5 year mark I am considered 'cancer free'. i was so blessed to have great Drs & surgeons. God is great!! Dana
Cervical Cancer after a hysterectomy
Wow where to begin: 1997 lung carcinoid-resected, 2001 thyroid carcinoma-resected, 2007 hysterectomy but not for malignant reasons, then in 2010 I started to notice bleeding after intercourse, long story short I was diagnosed with cervical cancer, resected in Nov 2010, and was told all 33 lymph nodes were negative, so they…
Newly diagnosed cervical cancer adenocarcinoma
I am newly diagnosed with cervical cancer and it is adenocarcinoma. Cone biopsy shows 6.11 mm x 11mm, therefore I think a stage IB? I am searching for IB, or similar, survivors to tell me about their treatment experience, results, side effects, etc. I am 51, so not worried about having additional children. I am looking for…
Endometrial cancer
I'm 41 years old. I was diagnosed with endometrial cancer on Tuesday. I go for a full hysterectomy on Thursday to remove it all, HOPEFULLY! can anyone give me an idea what to expect ? I wish and pray for all of you to be healed and be cancer free. God bless, Melissa
Uterine Lieomyosarcoma
Lymph Nodes, How Many Taken
Hi Everyone, If you have a few minutes for this and you are able, would you give me the following data on your cancer? I am most interested in learning about your own experience with regards to cancer type/stage and number of lymph nodes dissected. I am sending these questions to a few of the discussion boards concerning…
Vulvar Cancer
i went for my annual and Doctor saw an area of concern. He did a punch biopsy and said it was VIN and I was scheduled a partial vulvectomy. He took more off than was planned. Went back for my checkup about 5 days later and my pathology report showed no clear margins. Squamous cells and also an area of invasi squamous 2.8…
New Member Vin 2 or 3
I just found I have either Vin 2 or 3. My OB/GYN is sending a fax Ottawa so I can see another Dr to find out exactly what to do next. My Dr I just met him for the first time 6 weeks ago my last OB/GYN left town about 2 years ago and never bothered to look for one. I have Lichen Sclerosis and just keep using ointment for…
Why we never heard of this cancer
Hi, I really am so irritated about this Vulvar Cancer that I and countless others never heard of until we get it. We hear about breast cancer and ovarian, uterine,cervical...why not Vulvar!!! I heard it was rare but how come there are so many of us!!!??? Why didn't we know it exsisted? My only thought is that women have…
Side effects from radiation
I was told by other women that radiation is the gift that keeps on giving. I found out this week I have radiation colitis. No diarrhea or constipation so far and bleeding is a couple times a week or less. My oncologist wants to see me next month to discuss treatment. I have read other's stories of the side effects of…
Cervical Cancer Stage 2b2 Radical Hysterectomy
Hello all!! In October of 2014 I started to notice changes in my body. I went in for a PAP and it came back abnormal, she referred me to my original OBGYN and he did more testing which came back as severe squamous, he did a cone biopsy to retrieve it and upon testing should it was deeper than thought. In December 2014 he…
rare cervical cancer type
Hi all, I am new here, just looking at this website today. I am just looking to see if anyone else has the same type of cancer that I do. I have small cell cervical, very rare fast growing. I have been through four cycles of chemo and should be having surgery in about three weeks when my counts recover. I am actually an…
Cold Caps
Hi I'm new to this board. I was diagnosed with adenocarcinoma cervical cancer in April 2016. my surgeon elected to do a radical hysterectomy first. Since I am 59, it did not matter much to me to lose my "girlie parts." Unfortunately, they found positive lymph nodes. I have since had 6 rounds of cisplatin, 25 external…
Cold caps
has anyone had experience/success with cold caps and taxol?
terminal cervical cancer
hi my name is kristi and I am 34 years old. I was diagnosed with cervical ca.in 2000 I had 5 weeks of external radiation and 2 internal radiaation implants. Well, in 2002 the cancer came back and it was on my spine and pressing on my siatic nerve and making it hard for me to walk. So, i had 2 weeks of radiation and a whole…
Possible diagnosis coming- Vulvar Cancer
hi all- just got home from a doctors appointment. Primary care doctor. I went to her because I've had a white lesion/spot that is on the inside of my right labia, saw it back in May after having some odd pains in that area, it has spread a bit. Along with painful urination, painful intercourse, basically pain/irritating…
Bartholin Cyst
I think I have a Bartholin Cyst. I am going to the Gyn. this Wednesday. But, this morning it was pretty sore. then i started bleeding like a period for 2 hours and spotting the remainder of the day.. Is that normal.. Anyone????
Cervical cancer as 2nd cancer
Hi, Not sure if anyone can help me here but giving it a go. I am a breast cancer survivor over 7 years now. Last December my mum was diagnosed with terminal bile duct cancer. My husband and I moved her into our home so I could take care of her. She passed away on May 30th. A week to the day later I got a call saying I had…

Gynecological Cancers (other than ovarian and uterine)

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