Vulvar Cancer 2024

MSJahde
MSJahde CSN Member Posts: 1 *
edited July 2024 in Gynecological Cancers (other than ovarian and uterine) #1

my mother who I care for underwent reconstructive surgery for this type of cancer and would like to know if anyone can relate and we can connect and my mother can connect with someone who has suffered the same change she has please reach out [Edited by CSN Support Team]

Comments

  • angelenaawbrey77
    angelenaawbrey77 CSN Member Posts: 10 Member
    edited July 2024 #2
    https://csn.cancer.org/discussion/327983/vulvar-cancer-2024

    Yes I can relate. I had a labiaplasty reconstruction for my first vulvectomy. That was 14 years ago, but I know exactly how alone your mother feels. I don't know how old your mother is. I'm lot younger than most women who go through this. I was 32 with a new born the first time. Just had my 3rd vulvectomy in January at 46. I would be thrilled to speak with another woman with a similar experience. There are not many resources to help us so it's really hard. [Content removed by CSN Support Team.]. email me and I will send you my phone number

  • angelenaawbrey77
    angelenaawbrey77 CSN Member Posts: 10 Member
    #3
    https://csn.cancer.org/discussion/comment/1716731#Comment_1716731

    I tried but they deleted my email and intercepted my private message

  • danalollywiegel
    danalollywiegel CSN Member Posts: 1 Member
    #4

    I have been dealing with vulva cancer for the past two years. Cancer is not present right now but my vulva area is so painful. I also suffer from lichen sclerosis so my healing is not going well. I just had my 5th surgery last week and am in pain. I had 6 weeks chemo and radiation. Dealing with the constant pain is very rolling on me mentally but I try every day to stay as positive as I can. It is very frustrating to have to keep having surgery and nothing seems to really help

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