Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Kidney Cancer

Diet confusion
I am having my kidney and adrenal gland-removed Dec. 5th because of 9cm cancerous mass. My estimated GFR is 37 Dr said not great but ok. But could go up after the one kidney is removed. My good kidney is smaller. My question is: what is the best reference for a diet. The internet is all over the spectrum I don’t trust it.…
please interpret my ct scan results
hello all, i'm a 50-year-old male and would appreciate it if someone could help interpret my ct scan results. thanks so much for your time and help. Impression 1. Indeterminate complex exophytic lesion in the lower pole of the right kidney. Recommend renal protocol MRI for further characterization. 2. Punctate calculus in…
Biggest incision swells
hi all, Had a partial nephrectomy 10/23, RCC clear stage 2, feeling pretty good at almost 3 weeks post op, my concern in that my largest incision, one right below my left ribcage swells when I eat. I realize it’s right where my stomach and transverse colon is, could that be why? Should I be concerned? Anyone else have…
Translocation RCC
Hi all, My younger brother ( 33 yo) was recently diagnosed with a 20cm left kidney mass after having a cough for two months and then suddenly night sweats and weight loss in Sept 2024, underwent left open radical nephrectomy. The pathology report showed mixed cell types and spread to nearby lymph nodes. After 4 weeks…
Tumor is back
They found tumors on my left kidney in 2016 and performed a partial left nephrectomy. They’re back. Now they’re removing the entire kidney. My doctor hates me. They scheduled the procedure for March. I called once to ask if I could get an earlier date. I was worried it would spread. I went in to talk to my doctor in…
Stage 4 RCC that has metastasized
My 82yr old Mom was diagnosed with Stage 4 Kidney Cancer that has metastasized in her ribs, liver and spine. Prior to finding out she was living a normal lifestyle at her age and this has been quite a shock. By the time we were figured out what DR’s we need to see and all the tests we are now almost 4mo’s into this and so…
Cabometyx side effects
hi I’m new here. My husband has been living with RCC for seven years. He had kidney removed and at the time they found spots in his lungs. Spots were slow growing so for most of that time he has been symptom free. But over the last year cancer has spread to other areas and tumors in lungs are larger. He was put on Cabo…
Almost 6years RCC free, but my Dad has level 12 PSA BPH
Ok... I had CC RCC and open partial nephrectomy back In Jan of 2018. Found out I have MITF gene mutation which causes melanoma and RCC. I was dx at 32 yrs with 3.2 cm CC RCC on my Right kidney lower pole. Anyway, melanoma runs in my family along with lung, esophageal, pancreatic, ovarian, and other skin cancers. My Dad is…
Pt1b ccRCC in Nov 23 & (pre-existing) Thyroid nodule
My father underwent a partial nephrectomy last November. The pathology report showed a pT1b Fuhrmangrade II tumor, measuring 4.2 cm. Right after surgery, another CT scan of the abdomen and thorax was done (also before surgery; everything clear with just a small 4 mm lung nodule), and the radiologist noted a 15 mm hypodense…
Hello
In January of 2024 I was in an automobile accident. I had a broken back, and my tumor was an incidental find while they did an MRI on my right kidney, and was 1.25 CM. I had to heal from my broken back before beginning this journey. In my surgical evaluation in My, the tumor had grown to 4 CM. The plan was for a partial…
Strong in Faith yet still falling apart...
Falling apart but faith is strong. Having a hard time accepting the "5 year" survival rate diagnosis of my dear loved one, He was diagnosed with Kidney cancer and after removal of kidney tehy found at his next scan it has spread to his lungs (was found quickly) but already on both lungs. So far he just finished is 3rd…
Keytruda, ChRCC, pT3a, pNO(0/8), LO, V1, RO, two doctors, two opposing recommendations
Hi everyone, I need help making a decision. The tumourboards recommendation: one year Keytruda on account of my young age, size of tumour, a lack of studies showing no/negative impact of Keytruda on ChRCC and Keytruda being the only available adjuvant treatment. The oncologists recommendation: no therapy with Keytruda on…
Kidney confusion
So will they just do another scan in 6 months do you think? Thank you
Keytruda immunotherapy
Has anyone had experience with Keytruda infusions? My first infusion is this Friday. Any tips on what to bring/expect? My regimen is planned for every 3 weeks for a year currently.
Advice On Home Medical Equipment Required For Recovery
Hello all you courageous and fierce cancer fighters. My elderly father is going in for a radical nephrectomy and I’m taking time off to care for him after he is released from the hospital. My question is what home medical equipment would you recommend I purchase to make the recovery slightly more comfortable? Things I’m…
"Translocation" RCC
I received a phone call from my Drs office this week stating thet were performing more tests and stains on the mass they removed from my kidney. Originally I was told it was clear cell now they are saying it may be "translocation." type. This has me very worried based on what I've read about this type of cancer. Anyone…
Ultrasound shows one thing, CT scan does not.
I had a ultrasound that showed a 2 CM mass on my left kidney suspicious of neoplasm. My doctor called and told me it looked highly suspicious for kidney cancer and she would refer me to a surgeon, but first I needed a CT. I had a CT with contrast and is showed no mass on my left kidney. Which is great news, but is a CT…
How to overcome fear of losing your spouse?
Hi, kidney cancer family. My wife's story is a unique one. She found out about her kidney cancer in May of this year and by July she had a full nephrectomy of her right kidney. After analyzing the stage 3 tumor, the surgeon said there is no evidence of spread and that they were able to completely remove the cancer. He…
New Here - what comes next...
Hi, I have been reading and just wanted to say hello. 5 years ago the urologist found "something" on my kidney. The oncologist reviewed and said its quite small, no interference with kidney function lets monitor. Fast forward to March 2024 my MRI came back with 3cm Clear Cell Renal Carcinoma. Of course this stopped me on a…
cryoablation for RCC kidney cancer
Does anyone know or had Cryoablation for RCC Kidney cancer on tumors smaller than 4 cm, in Texas. This is my second one in 3 years they removed the first one open type surgery. but my health isnt as good now as it was then. I understand that this is a better option for me. I would appreciate other views on this.
Just looking for support. Anxiety level = 1000
I'm a 44 year old male. I was in Argentina (my home country) on vacation and the last day I had a horrible pain on my lower back. I went to the ER d after an all day stay and lots of meds, they told me they found kidney stones. The ER doctor seriously recommended seeing an Urologist when I return to the US because there…
3 years NED
Haven't checked in for a bit, but I wanted to update everyone. Just had my 3 yr check up and NED. I am not expecting it to come back as it was stage 1a and grade 1, but it still feels good to hear him say what we were expecting. The doc has kicked me out to yearly visits instead of 6mo and life continues. I just want to…
I am a 35 year wilms tumor survivor
Hello Folks, I am a 35 year wilms tumor survivor. I had my left kidney taken out when I was 2 1/2 years old. On Tuesday of I will be 38 years old. I am doing great. Would like to know if there are any other wilms tumor survivor here. Thankyou
New to group
I’m Nancy from Chicago. A 2cm solid mass was found on my kidney by CT scan, incidentally. During the past 6 months my creatine has increased to 1.3 and my GFR to 47 with trace protein in my urine. We were keeping an eye on it. I have a history of Hurtle Cell Carcinoma of the thyroid 5 years ago with my thyroid being…
Lung Nodules after RCC
Hello - i had a 10 CM tumor removed in 2008 that was clear cell renal carcinoma, pathology put as grade 1. In 2021 i had a recurrence in my right solitary kidney of 2 tumors that were noted as grade 3. I have been doing my followup scans with NED but a recent CT for a pain i was having now shows a 6.5mm nodule in my lung…
Just diagnosed
Hello all, TI have just been diagnosed with kidney cancer. My chest CT is on Friday. The following is the MRI results. My doctor said that it is clear cell cancer. KIDNEYS: There is a partially exophytic mass arising from the medial aspect of the upper pole of the left kidney and is well-circumscribed. It measures 4.3 x…
recently diagnosed with RCC
I am a 75 year old woman, very active and always thought healthy and have been diagnosed with RCC. It has metastasized to my lungs. I am trying to find a support group to give support and to receive it.
Newly Diagnosed with Metastasis--HELP
I need some words of wisdom and hope ... my husband's MRI, CT scan, and ultrasound show a 14x14x10 cm presumable renal cell carcinoma, extensive metastatic disease in right and left liver lobes, metastasis in T11 and T12 spine, metastasis in 4+ nodules in the lungs, and suspicious tumor thrombus in inferior vena cava. He…
71 year old discovered renal cell carcinoma incidentally
Hi, this is my first post, but I’ve been reading everyone’s experiences. My cancer was found by accident(thank God). I’m told my 5.3x 4.3 mass at the lateral aspect of the upper pole is at stage 1. I am scheduled for surgery at Moffitt Cancer Center in Tampa Florida on the 27th of the month. It will be a total removal of…
Kidney Cancer Survivor since 2021 - My Post- Cancer life
Hello, I also wanted to share my story and hope it gives others hope. I was sick for almost a year of waking up and dry heaving for no reason. Being nausious 24 hrs a day. Everything I did didn't help. I was in good shape, overweight, but not obese in any way. I also had a hernia that was getting bigger on my lower left…

Kidney Cancer

Discussion List

Discussion Boards