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Chemo induced Laryngitis
I have a doctor appointment with a Throat doctor to evaluate my condition. I have have chronic hoarseness or possibly laryngitis which I attribute to the Chemo drugs. My onocologist and the various nurses I have spoken with have claimed no knowledge of such a side-effect. How about all my fellow cancer fighters? Any…
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Radiation cause trismus
Hi all I am a 68 year old lady who had surgery this time last year, my ENT surgeon had to stop though as tumor that they think started on my left tonsil cT4 N1 HPV was big and wrapped around my carotid artery. So then underwent 7 weeks of radiation treatments 70 gy and 7 weeks of chemo Cisplatin. So far my scans have shown…
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Hurthle Cell Carcinoma
Need help in information for hurthle cell carcinoma. So much different info online, scary, confusing, etc. Do I need a Dr/sugeon that specializes Hurthle Cell Carcinoma?
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Myelofibrosis, post-ET, lab results?
What's kinda standard or common to see in a cbc/differential lab in someone with Myelofibrosis? Are nRBCs super common? Thanks.
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Side Effects switching from Tamoxifen to Anastrozole
I have been on tamoxifen for 4 years and it is now time to switch to an AI. If you have switched from tamoxifen to an aromatase inhibitor (specifically anastrozole), what was your experience? Did you gain weight? Pain? I've tolerated Tamoxifen pretty well, with the worst side effect being weight gain that will NOT come…
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How common is it to have cancer three times?
A friend of mine has survived leukemia twice. She's been in remission for nearly 10 years. She was just told that they've found masses on her liver, lungs and uterus and has to have a biopsy done. Is it possible that this could be something other than cancer? Are there long-term effects of treatment that could cause this?…
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Need treatment advice - especially regarding HIFU
Hi, Everyone. I'm 51 years old and was diagnosed with prostate cancer a couple weeks ago after an elevated PSA was found in my yearly checkup. This was the first time my PSA was ever tested. First test: 9.5, second time 9.7 with a 2.96 predicted value. Biopsy results came back with two positive results: one at 3+4 in right…
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Breast Cancer
I was diagnosed 1/18 /2021 of breast cancer I was in stage 3 A on 3/16 2021 I had a mastomey of my left breast started chemo 4 /2021 completed that 9/23/2021 started radiation in 10/2021 finished it 12/2021 everything moved so fast with all the rest of my treatment's and rest I was so scared over whelmed didn't know from…
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Boom Boom Radiation Therapy
What a dumb name and I refuse to use it from now on, but has anyone here had this type of low-dose radiation treatment (4Gy/2), presumably for some form of indolent NHL?
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Second Opinion on Needle Biopsy
Hi Everyone: My husband is scheduled for a targeted needle biopsy of the prostate next week (based on MRI results), we are in Calgary, Canada. Based on You-tube videos from the Prostate Cancer Research Institute in California, they recommend getting a second opinion for pathology and Gleason scoring on the samples. I don't…
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Lung cancer and plural effusion
I was diagnosed with lung cancer in 2021 treated with chemo and radiation. Now there is fluids in the lung with catheter to drain since August 2022. It is being drained three times a week and it has not stopped. Has anyone had the experience and how did you and your Dr handle or treat it. Bob777
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Encouragement and checking in
Hi everyone I often read and rarely post, but I wanted to update and hopefully have some words of encouragement. I have stage 4 metastatic cancer KRAS mutated G12C, TMB Low, MSS. My cancer was caught early at stage 2 and two years later returned in my liver, I was NED for a few months and then returned in my right lung.…
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My cytology says: Suspicious for high grade urothelial carcinoma
What does my cytology results mean by : Suspicious for high grade urothelial carcinoma?? I had a TCC in right kidney pelvis. The kidney was removed in Nov 2022. I am on Plavix so my urol doctor does not want to do a bladder scope yet. I am sheduled for a CT next month. All info is helpful. Thanks
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Cancer with a transplant organ
I'm searching out to see of anyone knows or is a transplant recipient with cancer. My husband (56 years old) had a kidney transplant in 2019 and was diagnosed with stage 3 kidney cancer 4 months later and then in 2020 was diagnosed with stage 4 as it progressed to his lungs. As of Feb 2023 it has progressed to his…
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Single mom in Dallas with Stage 4 Looking for Support & Friends
Hi All, My name is Shannon. I have stage 4 colon cancer metastasized to my liver. I'm a single mom of an amazing six-year-old boy. I had emergency colon tumor obstruction surgery at the end of December. Just completed chemo #12 with two more to go before I get another CT scan for liver surgery consideration. I look forward…
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Support Group
I have been trying to find an in-person survivor support group near me I live in Fort Scott Kansas and I having real trouble finding this would anyone know of anything place I could go or where I would even look for one? The discussion boards are great but I fill I need to connect with other people around me that have gone…
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T cell LGL leukemia
Hello everyone, so I’ve been trying to get to the bottom of my neutropenia. They picked it up in my routine blood work when I was pregnant. It’s been 3 yrs of limbo of not knowing what’s going on. My WBC and RBC are always low and my neutrophils are 150-400. I’ve had one bone marrow biopsy that showed the tcell gene…
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t-cell LGL leukemia... or not?
I'm sorry if I repeat this, I posted it 2 times as a comment on similar arguments, than I thought maybe is better to create a new topic. I'm new in the forum and I don't know how is better. Hallo, I'm a 43 y.o. male and I've been diagnosed of t-cell LGL leukemia... or maybe not! I can't still understand the mechanism of…
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Cyclophosphamide
Hello there, I have LGL Leukemia and im wondering if anyone can share their experience with oral cyclophosphamide. I’m going to start it here soon and was wondering how people handled it. I took methotrexate before and my side effects were mild, just really tired and little nausea. Cyclophosamide seems to have a longer…
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LGL T-Cell Leukemia
I am a 38 year old female just recently diagnosed with LGLL. I have a 17mo old little girl, so the statistics of 10 year life span and no cure are very upsetting to me. This is such a rare disorder. I am trying to stay positive but since this is so rare, it limits research. I would love to hear anyone elses story who may…
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Feeling Alone
I (43, female) am sole caregiver for my husband (70, male). We were married for 20 years and i moved out seven years ago because of many reasons but mostly the age difference and needing my own life. He has hd NHL for about 15 years but recently, tongue, neck and possible throat cancer. He never went to doctors. Just once…
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Runny nose
Does anyone have a constantly running nose all the time? I take clarinex (even though my oncology doctor suggested I don't) because if I don't the stuff runs down my throat and out my nose. I go through a box of Puffs in a week, I have to use the kind with lotion or my nose goes all red. I can't blow my nose because the…
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High tumor markers (CA) but clear scans.
Hello everyone, My first post. I have elevated Carcinoembryonic Antigen or CA levels of 150. However the PET and echo are clean. What does this mean? We are at a loss. I am currently doing chemo of Oxaliplatin. Many thanks for reading.
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Angiosarcoma
38yrs old diagnosed with Angiosarcoma in my breast , NEVER had any cancer, radiation exposure before , (which In Most cases is the cause) . I had a full mastectomy then week later had a re excision in chest wall … with this cancer being so rare and aggressive and doctors not having enough knowledge with treatments and all…
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Sacral tumor and Neuro/onco specialist near Chicago
Hello , I have just discovered that I have destructive sacral tumor pressing on L5 nerve and caused cortical breakthrough . I am going in for PET scan and biopsy in the next week. I am trying to find specialist near Chicago west suburban. Anyone that could provide some informations to help me going through this journey…
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Good scan results followed by pains returning
Hello. Wondering if anyone has any experience of or insights.. My Dad has stage 4 Bowel and liver mets. Received good news last week at his first scan meeting since treatment started, oncologist said there is shrinkage of 30% or more (more so in the liver) however, for the last 3 weeks my Dad has had the usual pains back…
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Frustrated and Depressed
I was diagnosed with prostate Ca in 2020. I had a radical prostatectomy, radiation and hormone therapy. I have not been able to have relations with my wife since my surgery. Mechanical and chemical agents don't work very well. I am very frustrated and depressed at not being able to achieve an erection. I am considering…
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Transglutaminases in Medical Research
Transglutaminase (TGase) is an enzyme that catalyzes the acyl transfer reaction. It uses the C-carboxamide group of the glutamine residue in the peptide bond as the acyl donor, and the E-amino group of the lysyl residue in the polypeptide chain as the acyl acceptor, forming intramolecular and intermolecular…
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Checking out options
I had a prostate biopsy last Wednesday. My PSA levels had been going up, with my most recent one reading 5.59. Results came back yesterday, and I will speak to my urologist about 'where do we go from here?' on 3/13. Re: the biopsy, 5 samples were negative. 3 were positive, each with a Gleason score of 6, with less than 5%…
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This Chef's Cancer trip
Hello all! hope the very best for everyone dealing with this. ive had to go this road alone, being my own advocate, doing my own research and most recently treating myself because there are just no services or advocates, from what ive found. i get so terribly tired, following this crazy diet, pleading w state and gov…