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A mom with breast cancer for the second time.
My momma was diagnosed with breast cancer for the second time after being rushed to hospital because she couldn’t breathe. She’s on a type of steroids that make her very emotional, and angry, and make her cry a lot and it’s really difficult to deal with sometimes because she gets so upset. The first time she had cancer was…
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Pancreatic cancer and symptoms that lead to a diagnosis
Can some please give me some advice, I have had stomach problems for the past year, and pain in my back. What was your symptoms before being diagnosed with cancer? What city was your diagnosis and did you need insurance? Can someone please help?
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Letrozole
Hi Everyone:) I have been taking Letrozole for a year now and I literally can barely walk, hold a glass, and my bones and muscles ache so bad. I am suppose to take it for 20 years and I cannot imagine it is worth taking that long and being this miserable. I am 46 years old and was VERY ACTIVE and now cant do any kind of…
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Rise in CA125 in 6 months after last chemo
Has anyone experience a rise in CA-125 in 6 months after the last chemo. Mine jumped from 9 to 40 and I’m alarmed. I’m having CT scan of the chest, abdomen, and pelvis next Friday, 9/23/22. I felt some pressure in my lower abdomen that is going away now . I was off from zejula for about a month because of the side effects…
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Kidney Cancer
I was in Vietnam 1968-69. Exposed to agent orange at that time. I have had prostate cancer,bladder cancer and kidney cancer. Had to have my left kidney removed due to cancer. I can’t believe the VA has not added kidney cancer to presumptive list yet.
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Feeding tube discharge
My husband had a cap come off the Lopez Vale today, which happens from time to time, usually the discharge is the color of formula but today was brown. He hadn't had his breakfast yet, was taking meds with a red bull. I'm just concerned because I haven't noticed brown contents from the tube before. He has a low grade…
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21st Century Cures Act
Thanks to this law, by Oct 3rd, results have to be available immediately, when ready, to patients. Maybe it is the 6th. I am sooooooooo happy that now I won't have to wait 6 days for results after a scan. Even when you feel like everything is okay, for some reason, at least for me, I get a sense of overwhelming dread and…
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Help me help
My mother in law had her biopsy yesterday, though her Dr is sure it's cancer. Her pet scan 2 weeks ago found it in so many places, with the main mass in her right lung being 3.5 inches diameter. She is an amazing woman, my husband and her are extremely close, and I absolutely adore her and my father in law. I'm having a…
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mucoepidermoid carcinoma
I am looking for surviors of mucoepidermoid carcinoma of the salivary gland(low grade)
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Four years after mixed serous/clear cell uterine cancer, and no evidence of recurrence.
When I was first diagnosed, I found hope here in the postings by long-term survivors of this highly aggressive cancer, in addition to the amazing companionship and support from the women on here who were so generous in sharing their time and their experience and their advice. I'm now four years out from diagnosis, probably…
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Urination Issues
Hello all, this topic may have been discussed in the past, but not sure how to search for it so I'll ask again. I'm a year and half post prostate radiation treatment. My issue is over the past 6 months (it been constant for the last month) at night when I go to bed I wake up about ever hour (sometimes more often) with the…
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Relapse of cancer cells after prostectomy
Healthy 80 yr. old clear with <.1 for four years+ after prostectomy. In June of 2022 psa of .5. Two months later psa came back at .7 Any comments please
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R- Bendeka treatment
Hello all, trying to get some feedback on the treatment plan listed. I went through the 1st cycle and it’s need rough. Hospital twice and now I very apprehensive about cycle 2. Very anxious and borderline PTSD. Any advice you can offer would be so appreciated. Svence24
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Ammonium Tetrathiomolybdate (TM) Anyone?
I have been taking ammonium tetrathiomolybdate (TM) for approximately 6 months in an effort to fight my metastatic colon cancer in my lungs and liver. This is experimental treatment that attempts to lower your copper levels to approx. 15% of normal to slow the cancer growth, since the cancer needs copper to grow. I have…
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SCC, HPV 16+, right lymph node, primary source unknown
Hi all- Wanted to give a quick update on my husband’s dx. Unfortunately, they have not been able to find the primary source. ENT is recommending putting my husband under and looking for spots to biopsy in his mouth + right side tonsillectomy if she can’t find any other potential source. Obviously, I understand the benefit…
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Wilm's Tumor
Hi! I'm new here and new to this idea of reaching out to other cancer survivors, so I was hoping to connect with someone who had Wilm's Tumor as a child. I was diagnosed at 9 years old and am now 27. I went through intense treatment and am lucky to be alive (as we all are, I'm sure!). I just wanted to connect with others…
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Scheduled for transperineal template biopsy - experiences?
I am scheduled for a transperineal template biopsy in a month, 20-30 cores. My PSA history is complicated and I had 2 negative TRUS biopsies 9 years ago (12 core 14 core). 4 MRIs. PSA has has always been volatile and elevated since first biopsies. Current MRI is PIRADS 2. Very frustrating. The biopsy is being done at a…
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Chemo
Has anyone ever quit chemo because it made them to sick to do anything?
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New, prostate cancer wife
Sorry new to this site. My husband had been diagnosed with prostate cancer and elected to have it removed 5 years ago now. Thank god he has had clear test’s since. ED has been the issue for years for him, but recently Cialis has had worked pretty well. It took many years for it to start working, but now it does. Problem is…
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Merkel Cell Carcinoma
The VA found a mass in my right axilla, it was removed and the diagnosos was Merkel Cell Carcenoma in my lymph nodes. This is caused by a skin cancer that spreads like wild fire if not caught in time. This is a rare cancer and not on the VA list for agent orange. If anyone out ther has had this we need to get together and…
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A/C - about to start Taxol
I have my fourth cycle of A/C on 8/25 and then will have another ultrasound to check the tumor. The plan is to follow with 12 cycles of Taxol - but we are waiting to see U/S results before finalizing. I am seeing so many different answers regarding the treatment effects of each and really just was hoping that Taxol would…
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Does AC shrink the tumor?
I went through 9 rounds of chemo = pembro (keytruda)& carbo & abraxane (taxol relative) x 3 rounds and 6 rounds of abraxane. My tumor shrunk a few millimeters. I was disappointeed, I thought it would be more. I couldn't do the last round of all three because of GI issues. Started on AC this week for four rounds once every…
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Breast Cancer
I was just recently diagnosed with Breast Cancer in May 2022. I have had 3 treatments so far and it seems like I keep getting all the side effects there is. I feel completely overwhelmed and I fight the urge to want to scream and cry 10 times per day. Also, does anyone know how to the change the "User Name"? I went into…
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Ear pain after tongue biopsy?
Hello. I had a tongue biopsy a little over a week ago. I still have a fair amount of pain and fullness in my ear (same side as biopsy). I wake up at night with a stabbing pain in my ear. During the day, it's mostly a dull ache right next to my ear, where my jaw starts. The oral surgeon suggests I go back to a soft diet and…
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Not having fun yet.
I’m 50 and had a radical prostatectomy with nerve spare on 8/1. PSA was 10.6. Gleeson score was 4+3 on the biopsies, but downgraded to 3+4 after surgery. I am really struggling with the incontinence and ED. Could really use some tips here.
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Salty Taste after chemo
It's been four weeks since my last chemo and I still have a rotten, salty taste in my mouth. Everything I try to eat tastes salty - even the water I drink. Has anyone else experienced this? How long before it went away? Thanks. Marilynn
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How to calculate tumor size when there are three measurements
Please forgive my math skills. But I was reading some journal articles about tumor size and prognosis. How does one get one round number to determine overall size of a tumor (e.g., 7.5X6X6). I just want to confirm that you either perform a calculation or just report on largest measurement (e.g., tumor was 7.5 CM, if…
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Post Treatment side effects
As I have mentioned in the past, I was diagnosed with squamous cell anal cancer in December. I started treatment Dec. 27, flourfouracil and mitomycin with 7 weeks radiation. Post-treatment Pet and MRI show NED and two months after treatment I was feeling pretty good. But now I'm getting a whole new set of issues that may…
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Breast cancer
Hello beautiful ladies I want to ask if anyone of you is in letrozole and has breast and chest pain as side effect?
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5 YR ANAL SURVIVOR.. VAG. STENOSIS NIGHTMARE,,CRYING, CAN DIALATORS WORK AFTER ALL THIS TIME?
Hi Everyone, PLEASE I BEG...CAN YOU READ THIS FULL POST....IM IN TEARS I have made a post under PLEASE HELP ME, 5 YEAR ANAL CANCER SURVIVOR, I am just desperate now, for help, I am a 5yr anal cancer survivor, I also had breast cancer 3 yrs prior to anal cancer, neither were related. After, about 1yr and a half i started…