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Chemotherapy/ Immunotherapy Question
What to expect? This will be my first day. Any pointers on getting through it? I heard it makes you sick.
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Palliative Care Explained And Compared Along With Hospice-Things To Consider
This subject is not always easy to consider or talk about and many of us may never use it or Hospice for that matter. But it is good to have knowledge of options available should a major serious illness present itself in your life or a loved one. Also, the ability to have the knowledge and be able to have the most basic…
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My kidney cancer
In my profile I put my first scan as Apr 7th, but it was Mar 30th. I can't edit it for some reason. I was lucky, while I had soreness on the right side, I just thought it was due to stones. I went to the urologist because I hadn't been to one in a long time and I had a couple of things I wanted to get addressed. The NP…
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Best way to cure colonal cancer
My father is waiting for biopsy results, this is a first encounter of me and my family with such a disease. I am exploring different treatments online, also consulting to different doctors. Allopathy which includes chemo, radiation and other methods, There is immunotherapy, which includes Dostarlimab drug. There is…
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Dendritic cells therapy
How efficient this therapy is in case of colon cancer ?
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Going into the unknown with father
Hi everyone, Back in Nov my father started to have abdominal pain. After a few days he could not go to the bathroom at all. Went to the ER was admitted and rushed into surgery. Ended up discovering a stage 3 cancer tumor on his colon. Took out the tumor, part of his colon and his spleen. Now equipped with a colostomy bag.…
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Single Mom - how much help will i need?
Hi, I'm in my mid-30s and have an 8 year old and a 2 year old. I've been diagnosed with anal cancer and will be getting 28-30 radiation treatments. i'll do 2 IV treatments of mitomycin (Day 1 and Day 28/30) and will take capecitabine chemo pills everyday during radiation. I'm trying to plan out support for my kids (and cat…
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Hospitalized again, colorectal cancer IV met bones ( sacro and femur)
I am a caregiver looking for guidance, Adenocarcinoma was diagnosed late January this year, my husband was in extreme pain and found out about cancer when he got some hemorrhoids removed. Since then, it has been struggle after struggle, he got some chemo sessions and then stopped because he got covid and while at the…
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5 down, 5 to go
I had my 5-year follow-up on Monday and I am as unremarkable as ever. Quite boring, actually. Nothing to report other than I will now visit once a year for he next 5 years. Ongoing side effects are pretty much limited to a little dry mouth/throat, and some neuropathy in the hands and feet. Both of which are easily…
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Anyone With Velcade (bortezomib) Experience
I'm 41 and just diagnosed in stage III with Multiple Myeloma. My doctor is starting me in a clinical trial with Velcade next week. I'll be going twice a week for IV treatment, two weeks on and one week off for 12 weeks. Has anyone had any experience with this treatment which they could share? What dosage level did you…
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Burning Feet from Multiple Myloma
Hi everyone. I had a tumor removed from my spine and ever since my legs are very impaired. Walking is very difficult even w a walker. My feet lately have been tingling and on fire. Any suggestions? Thank you
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OVERWHELMED BUT DRIVEN
Hello everyone! I’m Jason [Content removed by CSN Support Team] nice to share my story with you. So I’ve been reaching out more as a means to hopefully be over this episode that has drastically changed most of my life. I’m 48, never or rarely sick, never even been to a hospital until this. Perfect health most my life until…
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Article on Brachytherapy
I hope this link works an interesting article. https://www.medscape.com/viewarticle/991987?ecd=WNL_mdpls_230530_mscpedit_nurs_etid5478199&uac=389007SR&spon=24&impID=5478199
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hospitalized for COVID with stage 3 colorectal cancer
shortness of breath, pain, fever..... he is at the hospital in isolation, no one can enter, I am devastated. my first question have anyone with cancer here survived covid? I am terrified. he is stage 3 colorectal cancer, just completed 1 stage of chemo and going through radiation . I just want to know if there is hope for…
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Most common side effects of Erbitux and Radiation Therapy - NEWLY Diagnosed -
Hello I have recently been diagnosed with squamous cell cancer of base of tongue HPV positive stage 4 b. I'll be seeing my oncologist for the 2nd time on Monday. He has told me he'll treat me with Erbitux and 30 sessions of radiation therapy (6 continuous weeks, Mon thru Fri). I read about side effects of erbitux and…
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Fourth cancer
Pathology report states squamous cell carcinoma. Not a blood cancer, but posted here as fellow blood cancer patients are my second family. Apparently confined to the skin. So an excision and topical chemo (my 21st!) for 2 weeks then watch and wait. At least I'm tapering off. 🙄
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‘Just never give up’: message from a cancer survivor "(NEGU) Never Ever Give Up"
Hello, everyone. The following video shows the reason we always say on here-------- "(NEGU) Never Ever Give Up" I would like to share with you a short video of an amazing story of this woman who conquered cancer and beating the odds even though she was given only a 5 percent chance of living 5 years. This is why she says…
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ROLL CALL 2022 - First Posting January 1, 2022
CivilMatt note to members: Now that I have 2 weeks+ under my belt in dealing with the bringing together the New Roll Call and the new CSN format. I would have to say, “the appearance of the Roll Call after uploading for the members, caught me off guard.” The format I saw on my document, at home was worlds apart from what I…
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23 Yr Old Vet with Papillary Thyroid Carcinoma
I returned from a deployment overseas Dec. 2021. October 2022, I started feeling very tired and unwell. My physical medicine and rehab doctor (from injuries obtained while deployed) finally convinced my PCP to take a look at my thyroid after my PCP kept saying it was my mental state and i was just anxious. They found a…
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Recurrence of papillary thyroid carcinoma
Hey! I was 21 when I was diagnosed with papillary thyroid carcinoma and underwent a total thyroidectomy followed by RAI. Now after 2 years cancer reoccurred and I had to undergo another surgery. Just wanted to know if anyone is out there experiencing the same thing so I find someone to talk to about how to deal with it.
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Dad-Liver Cancer
May 2015 my dad was diagnosed with a tumor the size of a gulf ball and a small mass on his lung. He is wine alcoholic as well and was also diagnosed with cirrhosis of the liver. In June 2015 he was recommended by the tumor board to ablate the tumor (burn) on his liver and keep an eye on his lung. In Sept 2015 4th MRI/CT…
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Treating squamous cell carcinoma on face
Has anyone used fluoruracil cream for squamous cell carcinoma on the face( forehead)? How was your experience as far as pain, side effects and was there anything you used, did to help with side effects....creams, ice pack,etc. ?
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(CAPEOX) capecitabine-pill vs. 5FU IV
Looking for anyone that has input on treatment with CAPEOX in pill form vs. 5FU over two day period via a take home pump. The Med Star Georgetown University Hospital treats with the CAPEOX pill due to the studies that have shown it to be more effective that 5FU and they only treat 3 months vs. 6. My husband would much…
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CEA explained, please!
Can someone please give me a very simplistic explanation of CEA levels. My husband had an emergency colonectomy in January and was diagnosed with Stage IV colon cancer. CEA was 6.7. He started Xelox (1 3-week cycle and not tolerated), and it was 6.6. Then switched to Folfox. After 1 round, CEA was 5.8. Now, just before his…
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Diagnosed with Thyroid Cancer.
I having left side vocal cord palsy since Feb 2023. Then, I was diagnosed with Thyroid Cancer last two week and had Thyroid removed entirely 3 days ago. Doctor looked at the physical form of tumor using ultrasound and it should be malignant. After surgery, doctor describe the tumor was hard to removed, "hard solid". I will…
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Pet scan not clean
I just received my pet scan on line. It should my lymphoma in my lymph nodes gone. Nbut it shows activity in my sternum w hi hi I haven’t heard before. I had breast cancer 10 years ago and had a bilateral mastectomy and lots of radiation. Did it come back. I’m terrified. gio
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Checking In! Year 2 Surgery Anniversary & NED!
Sorry I have not been around for months and trying to get caught up on many posts this morning. Always difficult to see new members joining the group but gratifying to read my positive posts and more good and long NED news from members. I am coming up on 2-year surgery anniversary on June 10th and just a good 3-month…
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Newbie question
Just got biopsy results... carcino sarcoma... I am a BC survivor, and 10 years on Tamoxifen... looks like this cancer is extremely complex and aggressive. Any recommendations for treatment in Whittier, CA? I am close to City if Hope and USC Norris cancer centers. Within PIH network. Ihave been referred to a Dr. Im in…
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Sex after Mastectomy
I know the answer is going to be different for each person but I'm curious. If you're willing to share, (1) when were you told it was safe to resume sexual activity and (2) when did you actually resume sex?
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Uterine Cancer Mortality on the Rise, but Research Remains Underfunded
I came came across this article recently and it infuriated me. Very upset to read about uterine cancer funding particularly in relation to mortality. I was not really surprised that breast cancer is the most funded but shocked at the variance.. I wish there was more we can do s a patient, survivor and consumer to lobby for…