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MCL Facebook Groups
I have read that there are some very active MCL Facebook groups. I do not have a Facebook account. In your opinion, are the Facebook groups helpful enough to justify creating a Facebook account? Thanks
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Ct of liver
Hello I had to have a liver ct today due to the finding of a lesion on my liver. My dr called and said that all looks good repeat scan in six months. I have had no blood work done at all. I just want to make sure nothing is being overlooked. My husband is concerned the lesion could be cancer due to family history and…
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Right at the Beginning Line - Testing and Suspicious Results
Hello all, guidance is very much appreciated. Had a 3.2 PSA a year and a half ago. Unfortunately I did not follow through with a visit to the Urologist. Now I have 5.1 and a free/total of 10%. Monday I have an appointment with Urologist for a DRE. No additional symptoms other than frequent urination and a weaker flow.…
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Starting the journey at 51
I had a physical in October and my PSA reading was 25 and was referred to a urologist. I had another PSA reading 2 months later and it was up to 27, so the Urologist ordered an MRI. The MRI came back with a lesion on each side grade 3 and 4. This prompted a Biopsy & Cysto which I had on Monday. I get the results on this…
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Recently diagnosed Gleason 7 (4+3), psa 16, evaluating IMRT / IGRT vs surgery
I have all my cancer supposedly confined to my left side of my prostate; 5/12 biopsy reads were cancerous. I am getting a Prostate Specific Membrane Antogen PET Scan to confirm (hopefully) there has been no spread. I am very concerned about sexual side effects. Would like to hear from those who have had this type of…
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CT & PET in Washington State
I am wondering which privately accessible Radiology clinic has the best and most up to date equipment for cancer detection in Washington State? I am hoping to get a scan done but would like to go to the one that has the most current equipment thanks!
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Adenocarcinoma in a branchial cleft cyst
Age 57 Male. Recently had branchial cleft cyst removed. Pathologist found minute trace of adenocarcinoma in interior lining. No sign of abnormal cells in lymph nodes, exterior of cyst or the stump of the cyst. Has anyone had or heard of a similar situation?
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Struggling with a parent’s diagnosis
Hello everyone! Never in a million years did I think I’d find myself here. My mom was recently diagnosed with NHL. Chemo is getting ready to begin. My mom lives alone and I’m out of state. She has my sibling and friends local. I am about a 6 hour drive from my mom. I have a home, a husband, pets, and a job. Unfortunately…
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Blood Draw Results
To those who are new to the maintenance after chemo, here are some tips to watch out for that I have experienced: Subscribe to your lab website so you can monitor and compare your lab results from time to time and see how your trending, are the markers improving, needs close monitoring? Or heading towards a catastrophe? My…
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Anxious
Hi, I’m new to this discussion board. I’m 72 years old and started having vaginal bleeding a week ago. I had a trans Vaginal ultrasound this week and referred to gynecologist/oncologist and saw her yesterday. Have a large mass in uterus with thick endometrial lining and enlarged cervix. Also have large mass on right ovary…
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scared..two small hypodense liver lesions waiting for MRI results
Does anyone have any experience with this? I had surgery and radiation 7 years ago for stage 1 IDC in my right breast, no lymph node involvement found at all, ER/Pr+, intermediate grade, low risk for stage 4 according to the oncotype test and I've been on tamoxifan and the anastrolzole for basically 6 1/2 years with no…
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Pain in Opposite arm
Had left lumpectomy 2/21/2023. My right arm hurts the most. At times it feels like someone punched me and I can’t sleep. Anyone else with same experience?
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BAM Bile Acid Malabsorption from Revlimid (lenalidomide)
Aloha.... I was in the Accent clinical trial for multiple myeloma, which was a four cocktail (DKRD) or Daratumamab (Darzalex); Carfilzomib (Krypolis), Lenalidomide (Revlimid), and Dexamethasone (steroid). This was 24 month clinical trial and about 8 months in I started having #2 (bowel movement) issues. I developed Bile…
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BAM Bile Acid Malabsorption from Revlimid (lenalidomide)
Aloha.... I was in the Accent clinical trial for multiple myeloma, which was a four cocktail (DKRD) or Daratumamab (Darzalex); Carfilzomib (Krypolis), Lenalidomide (Revlimid), and Dexamethasone (steroid). This was 24 month clinical trial and about 8 months in I started having #2 (bowel movement) issues. I developed Bile…
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Mantle Cell Lymphoma
Looking for Mantle Cell survivors to talk too
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Do side effects of Hormone therapy get better in time?
Hi, I have breast cancer and am a high risk patient. I have severe depression and anxiety from the Antihormone meds. Already tried tamoxifen, letrozol. Now on exemestan. It always Starts after several weeks. Without them I am Ok. Antidepressants Do not work. Have already tried 16 of them die to a therapy resistent…
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Pain after partial lobectomy of upper right lung
Hello, I am 52 year old female and was diagnosed with a typical carcinoid tumor in an airway in my upper right lung this past summer. My PET scan revealed no other spots, so that was awesome. I had a partial lobectomy in late October. I had 1/3 of my right upper lobe removed. While the surgery was successful, the recovery…
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Urothelial (kidney) cancer which has metastasized to the lungs
Following cisplatin chemo which successfully arrested the disease progression, the bi-weekly Avelumab (immunotherapy) infusions which I subsequently received for almost 12 months are planned for completion. Has anyone in similar situations received Avelumab for a longer period and if so, please share your details.
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Nerve and throat pain after port surgery
I had my port surgery over a week ago. My throat inside and on my neck is sore. My upper right back is sore with shooting nerve pain down to my elbow. When I raise my hand above my shoulder then I have pain from my elbow to my wrist. Does anyone have a solution for the throat pain or nerve pain? I can't lay on my back for…
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Afraid I have esophageal cancer. I am extremely scared.
I know this forum is meant for those who have been diagnosed with the disease and I absolutely respect them and if this type of post bothers you. Feel free to not respond Getting that out of the way. I am a 28 year old male. Never smoked or drank a day in my life. I have dealt with reflux for about 7 years off and on. I…
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Help
I am not able to get into any of these groups. I don't see my post and no one has checked my . I tried getting on weeks ago. I registered here. Looking for some feedback for my current state of affairs. I have metastatic uterine in my lungs. This started in Dec of 2021 and in June 2022 I had surgery on my right lung which…
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New to this Camp
Hello ladies, I am so glad I found this site. When I originally Googled my discharge diagnosis "Endometrial/Uterine Adenocarcinoma (Hcc)", nothing promising came up. In fact, it made me have a panic attack, as I thought I had only weeks to live. My lab results will come back in approximatley a week. Aside from the above…
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2.9 cm lesion Bosniak 3
HI i was just diagnosed with a Bosniak 3 lesion on my right kidney. Saw a urologist who recommended surgery or told me i could follow it.. I am confused.. I was wondering if anyone here has followed their lesion if so for how long and did you eventually to have surgery?
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Any treatment for Chromophobe cancer?
I recently had kidney and tumor removed, with confirmation of Chromophobe cancer. The conventional medical opinion is to watch n wait to see if cancer re-appears. But is anyone's doctor treating their cancer? The literature is unclear if there is no accepted treatment because: 1) the sample size of Chromophobe patients is…
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anxiety about late effects
Hello, I was diagnosed with stage 2 Ovarian Cancer at the age of 7 and got my right ovary removed along with the tumor. They then realized that my cancer had spread to my lymph nodes and I had to do chemo therapy. I have been in remission for 12 years and for the past 2 years have been having anxiety and great fear…
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Endo Thickness of 33.4mm/Biopsy Tomorrow
Hi. I’m a late 30s, PCOS, obese female who has experienced pretty severe and heavy periods over the last year which include nice sized clots. My spotting in between periods began about two years ago which was minimal at first. I thought it was a sign that I was ovulating. 😂 However, those light spotting episodes have now…
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Lung cancer metastasis in bone
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Stage IV 2nd Opinion Question
My husband was recently diagnosed with Stage IV colon cancer with some omental implants. The primary tumor was removed but only some of the omental implants were removed for biopsy and 19 of 24 lymph nodes were positive. A followup CT showed one possible irregular nodule in his lung but can't be confirmed as mets --even…
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cdiff
I am newly diagnosed and a survivor of Cdiff. I had a fecal transplant in 2020 with no relapses since. Currently, I am diagnosed with Triple Positive Breast Cancer. The doctors are on in disagreement how to treat me concerned that the cdiff might return if they do it with one chemo over the other. The problem is that the…
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exercise on an exercise bike?
From those of you already "on the other side", in my part of the country, I can't always walk outside til maybe April? My surgery is 4/3/23. I'll be having a bilateral mastectomy. With that being said, would an exercise bike be a good way to start the process of getting back in shape? I have an active lifestyle as I have…