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My 12 Year Update
It's been about 6 years since I was last on and thought I'd provide an update of my progress. I was diagnosed with low grade prostate cancer in Jan 2010 (Gleason 6, PSA 4) that probably wouldn't even be treated but just subject to "active surveillenace" now. After doing some research on the available options, I was one of…
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Spindle Cell Carcinoma
My mother in law was diagnosed with stage four spindle cell carcinoma (originating in the gall bladder) after having her gall bladder removed. She has tumors all through her abdomen. Some of them are even visible on the outside. My husband says that one looks like a half fist sticking out. She has been in an intense amount…
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Doc says chemo not needed
I was diagnosed with Level 2 colon cancer. The tumor was large but was contained and had not spread outside my large colon. However, it was blocking more than 2/3 of my colon so I had a partial colectomy within two weeks. It was done via robotic laparoscopic surgery. They removed about a foot of my colon and 22 lymph…
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Biopsy Results Back - Not Good - GC5 - Gleason 9 (4+5)
Greetings, Just got my biopsy results via my medical portal. Not good. GC5 - Gleason 9 (4 +5). Looks like 7 cores are positive with a mixture of G8 and G9. I have an appointment with the PA on Friday (in 2 days). A little bit in shock as it happened all so fast but also clear-eyed. Wondering what the questions are that…
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Lymphoma (N.H.L ) T cell
Hi everyone My son have 2.5 yers old He have lymphoma non hodgkin T cell on stage4 How Can help me? What is this 😭😭😭
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Calcifications
Hi. I’m a member of the kidney cancer board, but I’m here for my wife, age 70. Her recent mammogram showed a 5mm area of breast calcifications requiring an ultrasound. That was done yesterday and the result was a need for a biopsy. Needless to say, despite the doctor saying that most are benign, she’s rather upset. I’m…
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CEA marker decrease without any therapy
My father is suspicious for lung carcinoma (nodule that grows slowly 12 years, to 30x40 mm). We are waiting for final brochoscopy results (no visual confitmation of infiltration). CEA marker was 52 two months ago. Last week was 46, so there is some decrease in this marker level, but there is no therapy my dad did. Just…
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Decision about radiation
Greetings - I reached a milestone yesterday, completing my 6th and hopefully final round of chemo (Yay for Carbo/Paxel). Tolerated it reasonably well, and have started Keytruda as continuation treatment. But I'm facing a dilemma about radiation. My gyn-onc and radiation onc, both wonderful clinicians that I trust fully,…
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Telling people you have cancer ... How do you do it?
One of the hardest things since my diagnosis two months ago has been telling everyone I have cancer. Has anyone else found this to be true? What was your experience? I am taking a leave of absence from my job and my co-workers don't know why. Only administration knows. I don't know what to say to them. Telling my children,…
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How much should breast hurt 7 weeks after lumpectomy?
Hello - I had a lumpectomy on August 4th and a pretty quck recovery - sentinal nodes and margins were clean, was up and aroud the next day. The stitches at both sites healed quickly. But my breast still has pain where the tumor was - like a ball of pain that hurts most when I don't wear a very tight sports bra (jiggling is…
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Mammogram and "gynecologic cancer" question
Hello ladies. So some of you may know I moved from the northern half of the U.S. down to the south and it has been quite a learning experience. For those of you up north I was surprised to hear that you have to water the foundation of your house down here. Never heard of it and I continue to learn what the south has to…
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Anxious about my mom
Hey everyone, First of all I wanna say thank you to all the brave women here, during the past few days I’ve been gathering so much useful information from this board. Last week my mom experienced vaginal bleeding, she is 52 and her last period was about 6 years ago. She had some tests and they showed her endometrium is 9mm…
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Endometrial cancer
Hi, I am 25 year old and I got diagnosed with endometrial cancer. Me and my husband were planning to have a baby but this is what we found out on Jan.16 2023. They did start doing test since Aug. 2022. Now, am taking Megestrol 160mg daily. Doc said they might will remove everything and you won’t able to have baby , only…
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info on fuel and cancer
Hello i need some help! I have been out of the Air Force for 5 years and 1 1/4 years ago found out i had Ovarian Cancer stage IIIc. I was 32 yo when they found it after complaining for years of pain while i was in and at the VA. I had every symptom you could think of but no one even checked till i could hardly walk. I KNOW…
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Updates
Hello all you fabulous warriors! You know with all our battles and life in general. AND chemo brain (oh yes that is real!) While we all have simular things going on, it is sometimes hard to keep up with everyone. We are still individuals and each and everyone of us are so so important. Can everyone please post where you…
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Estrogen Matters Book - ER+ HRT information
This book says this gynecological oncologist says the information is wrong and estrogen is safe for us and she’s using with her patients What do you veterans think? she’s doing a podcast now but I’m not yet allowed to post links it’s by Avrum Bluming and carol Tavris - Dr Melody Rodarte is using it with her patients
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I need clarification
Dear wonderful people, I am here once again because state health wouldn't assist me. I have taken my mum to the medical unit ever so often and all they do is a full blood count. I had to insist that a private doctor would do a blood test to check out all her organs. Everything else looked fine but her liver has some damage…
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Does The CT scan w/Contrast Differ Vastly from the MRI?
56 year old man. Summer of 2021, while visiting my brother dying from colorectal cancer, I noticed a stream of blood after urination and stopped. Chalked it up to a possible bruise to kidney. Four months later happen again, briefly. As there was no pain, Thought I would bring it up to my GP next visit. Late 2022, I did.…
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Possible Bone Metastasis and Bone Scan Accuracy
Originally diagnosed with Stage IIA ILC with tubulolobular characteristics, had mastectomy and dose-dense chemotherapy with AC. 4 years later, rapid growing mass in uterus prompted total hysterectomy - pathology said it was 'pre-cancerous' and gynecology oncologist said chemo wasn't necessary since it was all taken out.…
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Small Cell Carcinoma
HIs anyone out there dealing with Small Cell Carcinoma, please reach out to me. I am almost 10 years survivor of Small Cell Carcinoma, it was in my liver, my Stomach and my pelvic. you can beat it, reach out to me with any questions so i can share my story with you, and be of some support along your journey. Believe and…
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One year later
I am just weeks away from one year post chemo and I am having a tough time. The first few months post treatment I had such an appreciation for life. Now I feel like I have lost all the positive lessons I had learned from my cancer experience. Moreover, although my family has had their fun times return, I feel like after…
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Spring Is Starting-Spring Is Close
Once again here in Southeastern PA spring is and has been getting started. I am sure your part of the country varies from this location as per spring happenings Things are not totally bustin' out yet but after a few really warm days things will really get started. Every spring wherever you are at all things are new and new…
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Afraid it’s back..
Been in remission from EC for about 2 1/2 years. Beat it back with just chemo and proton radiation from Mayo Clinic. But now I’ve developed a small lump I can feel in the back of my throat. Having a CT scan this week but my gut feeling is that it is back. I know I should be more positive but what else would it be ? Don’t…
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Hi. I'm new here with a new diagnosis of endometrial cancer.
To start, last August I saw my PCP for my annual exam and wanted estrogen cream for dryness in my vaginal area. I was a medical transcriptionist for 40 years and did lots of OB/GYN reports with older women needing treatment. I asked to be referred to a gyn, but he said he could prescribe the cream if needed. I love this…
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Scared of liver lesions
Well, after weeks and weeks of pressure and fear, the unknown liver lesions have been definitively diagnosed as benign cysts! The liver MRI turned up 4, not 2....but my relief is permeating every cell in my body :) There are no words. One weird and concerning part of this is that it took until NOW for my PET scan from…
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Endometrial cancer - grade 1 can I get HRT
Hello all - I’m new here diagnosed March 13 with endometrial carcinoma endometriod type FIGO 1 ER 3+ and PR3+ p53 wild and p16 patchy - I’m having the total hysterectomy around April 11 - can I go back on HRT? I’m so scared about not being able to have it as when I started with perimenopause I got on estrogen / I was on it…
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Any long term survivors with stage 4
I have survived 1 year with Stage iv esophageal cancer. It spread to my bones and liver, and immunotherapy made my body attack itself too and I nearly died from liver failure as a result. I have also gone through many rounds of chemo that did nothing but make me sick and thin, as my cancer grew. However, I have always been…
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Hair loss/re-growth
Hello! I just joined CSN for ovarian cancer. I’m preparing for a total hysterectomy in a few weeks. That hopefully will be the last big hurdle. My question is about hair loss & re-growth. I realize everyone’s different but how long did it take for your hair to really grow back? I have peach fuzz & some stronger hairs…
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Anastrozole
Any thoughts or experiences taking Anastrozole?
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First treatment this week (rCHOP) - And Scared
I thought it might be helpful to post here. I am a 35 year old male with 2 beautiful daughters (3.5 and 1.5 Years old) and a most beautiful wife. I am scared that I wont get to see them grow up. I have a really good disposition on life and I am relatively healthy. I haven't had any symptoms from my Nodular Lymphocyte…