The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

waiting on admission

EmilyEverglot
EmilyEverglot CSN Member Posts: 1 *

I'm going to preface this with I do not have confirmed diagnoses. I'm not looking for advice. just venting to people who will get it.🤢

The scans I have had so far show very severally atrophied pancreas, 11 mm bile duct dilatation (I've had both my spleen and gallbladder already removed). I live very remote. Angel Flights was generous enough to fly me here. I've been very ill over the last year but the past summer, I've felt so much worse. I can hardly do anything other than lay in bed most days. I'm at the SECU house waiting for admission because they are concerned that cancer is a strong possibility and they want me to do a direct admit but the hospital is full. I have gastroparesis and end stage pancreatitis(non-alcohol) from a genetic condition that throws a whole lot more comorbiditities on the table that my doctor is carefully working with too.

Anyway, I'm not feeling good, my pancreas is freaking hurting like hell and I needed to reach out to somebody. I'm not worried about it being cancer. I do think if it is cancer it's likely pretty early stages. I'm more worried about feeling awful all the time.

Comments

  • Fostemj
    Fostemj CSN Member Posts: 4 Member

    I understand your frustration about feeling awful all the time. I have inoperable pancreatic cancer and have experienced feeling awful especially at the beginning of my diagnosis. After chemo treatment, I have more good days than bad. Hopefully once you have a diagnosis, your doctor will be able to help you feel better.