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Newly Diagnosed at 56 years old, PSA 5.9, PSA Free 9.1% and PIRAD 5 lession
New to the site Little on me, 3 weeks ago I had a 6.5 PSA at my family doctor. Since i have no family history of prostate, this was my first physical in many years (mainly due to covid). Was mainly going to check my cholesterol. Went to Urologist 2 weeks later and my PSA dropped to 5.9. I was on hard core vitamins,…
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Looking for a top notch salvage surgeon
I’ll be proactive here. I’m only 62 cancer is back after almost 5 years after radiation. The PSMA scan came back stating that the tumor is still in the prostrate.psa 1.7 I think I may be a candidate for salvage surgery. I know it’s not done a lot and I know it’s risky, but what do I do breakytherapy therapy again didn’t…
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waiting on admission
I'm going to preface this with I do not have confirmed diagnoses. I'm not looking for advice. just venting to people who will get it.🤢 The scans I have had so far show very severally atrophied pancreas, 11 mm bile duct dilatation (I've had both my spleen and gallbladder already removed). I live very remote. Angel Flights…
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Fever from Oxaliplatin
My husband's second Folfirinox treatment was Wednesday, 9/27. A few hours later, he had a fever of 101.2 with intense pain throughout his body. The on call nurse instructed him to take 2 Tylenol and he still had a fever in the morning, so he had to go to MSK for a fever workup. They did a whole bunch of tests, including a…
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Adriamycin?
I have recently been diagnosed with atrial fibrillation (afib). I don't have any of the usual causes: high blood pressure, high cholesterol levels, diabetes or high blood sugar, sleep apnea, obesity, and smoking. There is a genetic dispensation and my mother had afib but not until she was 90 and she had been treated for…
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Complex Renal Cyst
HI, Any information you can share will be gratefully appreciated. 45yr old Female. I'm a Registered Nurse so I know enough to be concerned. Aug 5th I was having abdominal pain thought possibly appendicitis, went to ER and they completed a CT with contrast. I did not have appendicitis and they did not find the cause of my…
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Glioblastoma with changing behavior
Hi all. My mother in law was diagnosed with glioblastoma back in November 2022. A few months back she started getting really confused and would call myself if her son anywhere between 30-70 times in a 8-hour period, as if she just couldn’t remember calling and speaking with us. Every week thereafter things were only…
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Would like to donate GI food.
My brother passed away from thyroid cancer. I have about 9 cases of GI food, I would like to donate. Nestle diabetisource AC -250 ml, expires June 1 2024
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*Abbreviations* for all our Newbies
AC - one of the five most common types of chemo given to women with BC. Iit's probably the MOST common drug combination given to women with node-negative (hasn't spread to your lymph nodes) cancer. AC includes two drugs: doxorubicin (Adriamycin), and cyclophosphamide (Cytoxan). AI - aromatase inhibitors ADH - A benign…
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How does everyone cope with scope appts ?
Hi all, Just had my 4th, 3month follow up anoscope appointment yesterday, good news is all still looks clear. I finished my treatments in Sept 2022. So I am one year out and have at least another year of scopes every 3 months. And then we'll see about adjusting the time line? I am not a wimp, in fact I'm pretty damn tough…
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5 year anniversary
Just wanted to post an update on my health. September 20th was 5 years since I finished my treatment for HPV 16 tonsil cancer. I was stage 1 on the revised staging system. Was considered stage 4 the year b4 my treatment. The staging was changed for HPV 16 cases only. Anyway, I have not been on the site much since they…
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Sole caregiver. RCC and parapelgia
I don't even know where to start. I just signed up and put this in my bio. Long story short, I am completely and utterly heartbroken and overwhelmed. Our lives feel like a **** nightmare we can't wake up from for the past two months since we got the news that my husband has stage 4 RCC and due to a tumor in his spine, is…
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Throat cancer survivors
I could use some positive help to reduce stress regarding a recurrence.
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Church-Based Cancer Support Ministries
Because of my cancer journey, I am motivated to start a Christian cancer support ministry at my church. I would like to hear from anyone who has had experience with a cancer support ministry at their church and get thoughts and reactions about the idea. Thanks for your input!
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PORT & pleural effusions
Can a PORT still be placed if there is large right and moderate left pleural effusions? Husband is getting the Port put in tomorrow morning.
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Throat Cancer Survivor (Radiation and Chemo Treatment)
Am available as a resource for emotional and/or mental health support for cancer patients and families in general and specifically for throat cancer patients and survivors. We are not alone.
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Memory Problems
My husband has stage IV kidney cancer and has horrible memory problems. He's gone through the removal of his tumor and kidney, other biopsies, IL-2, an experimental drug, Sutent, and is now on Nexevar. I think it's definitely due to the chemo. Has anyone else had their loved one experience memory loss? Mostly short term…
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Looking for (non) hormonal treatment experiences
My 67 year old partner was diagnosed with prostate cancer (Gleason score 4+3). We chose radiation as a therapy method, however are very sceptical about the 6 month hormonal treatment, which the docters recommend. Can anybody share their experiences choosing hormonal or no hormonal therapy after radiation? many thanks in…
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Punch biopsy for suspected melanoma for spouse
I am a retired RN, and despite working in medical field for 51 years, I simply cant get a decent appt for spouse. Frankly to me it looks like melanoma but of course may not be. But it does have the characteristics ( the most notable being new growth of dark area with irregular borders, unable to measure diameter due to…
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Parotid Cancer
I was diagnosed in 1998 with acinic cell carcinoma in my left parotid gland. I have heard that this is very rare, especially in children. I was 15 at the time, and judging from the size of it, it could have gotten there as early as when I was 11-12, maybe even 10. I was wondering if anyone else knew anything about this or…
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Start of a New Journey
I had just undergone a Radical Prostatectomy on February 7th. Right at a month in, this is frustrating, but yet I am alive with a long road ahead.
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New Diagnosis Preliminary T3N2Mx
61 year old female. Endoscopy yesterday with a preliminary finding of T3N2Mx. Completely stressed out, as my father died from esophageal cancer in 1999. This was not really on radar as I have never smoked, seldom drink, and I am pretty healthy overall (My father had a smoking history although he had given it up many years…
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Ovarian Cancer
I have to do a project on ovarian cancer for Bryan School Of Nursing and present it to my class. I first need to find someone who has experienced ovarian cancer and interview them. This is really important because i want to be able to give them as much information on this silent cancer so they understand why people may get…
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NavDX Test-Can Be Misleading-Readings Can Be Opposite Condition-Giving False Hope Or Doom
Hello folks, I came across this on another forum of a fella who was getting Good NavDX Test readings and in fact, excellent NavDX Test readings but suddenly a recurrence showed up in his life again. I am reposting it here for informational purposes and discussion. vpf143 says on Oct 3, 2023 • 3:22 PM NAVDX - can be…
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Head & Neck (cancer in tonsil's) Stage 4A, 12 years ago & now another Cancer
Has anyone experienced another type of cancer after beating their first Head & Neck cancer? Hubby had cancer of tonsil's and cancer free for 12 years. Now he has an aggressive fast growing type of T Cell Lymphoma.
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Worried about 17yr old son
Hello, for the past few months my son has been dealing with horrible night sweats. He said they happen about 3-4 times a week and are severe. He sleeps in his underwear but his sheets are completely drenched through. I don’t know if I’d say he has other symptoms that are new. He’s always tired but he’s a teen and has…
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Taxol schedule
Hey all, I'm currently going through dose dense AC - 4 sessions over 8 weeks. I'll follow this up with Paclitaxole. I have the option of doing dose dense Taxol every other week, 4 sessions over 8 weeks, or doing Taxol weekly for 12 weeks. What have you guys done? From what I understand weekly Taxol gets rid of the highs…
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Anyone with blood cancer has related to this
Yesterday I had pain in my ribs and back like I got kicked then it felt like I was on one of those rides that spins so fast you stick to it. After I slept for 14 hours. I've had bad days but nothing like this has anyone been through this?
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Looking for Direction
My spouse has recurrent prostate cancer after prostatectomy in 2014. The scan revealed that the prostate bed and two lymph nodes “lit up.” He is a heavy smoker but otherwise very active and strong. I am terrified he has metastatic cancer. We have an appointment with the radiation oncologist 10/24. Just looking for some…
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hydroxyurea
Is anyone on this medication and can you tell me your experience please?