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Newbie stage 4 looking for support and guidance
Hi all - My name is Jill and this is my first post. I was just told I have stage 4 uterine CA (serous) with mets to the omentum and peritoneum. The biopsy of a retro abdominal mass came back came back as “poorly differentiated adenocarcinoma of muellerian origin”. Doc says surgery is not an option because the mets in my…
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My 65 year old male neighbor has a positive "cologuard"
My 65 year old neighbor said he has had colonscopy every five years since age 50. On a website he read his insurance will pay for a cologuard test, but he doesn't know anyone who has had it done. A cousin who is a physician ordered it for him, and he sent away for a kit with has a tub abd brush and liquid and he sent his…
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Ovarian cancer after breast cancer
Have any of you developed ovarian cancer after you already had breast cancer. And if so did it happen during chemo, after, long after? Thank u and God bless
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Active Surveillance or Surgery?
Hi, I'm 53 years old and was diagnosed with Stage 1 prostate cancer a few weeks ago. My Gleason score is 6 (3+3) in 3 cores from the left lobe with no perineural invasion seen. My PSA was 3.58 on finasteride. My Urologist recommend Active Surveillance at this point, opposed to surgery or radiation. I'm having a hard time…
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Looking for help
My daughter and 4-year-old grandson are in Utah's Children's Hospital and I am trying to find some help for her. My 4-year-old grandson named Zane has Pinoblastoma. (sorry if I spelled it wrong.) He has just gone for his 3 surgery already. He was supposed to come home to Reno, NV. But needed another surgery. I am grandma…
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How Long Do Chemotherapy Side Effects Last? All You Need to Know
I think this video is noteworthy enough to post. Although it is from a breast cancer presenter I believe it applies generally to chemotherapy effects which are much the same as H&N people get. It is well presented. How Long Do Chemotherapy Side Effects Last? Take Care, God Bless Russ
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42yr old sister diagnosed with Glioma
My sister was diagnosed with a glioma a few weeks ago. She had brain surgery within 2 days and all was removed. Her prognosis, as you know, is 12-18 months. I am up and I am down. Life is more precious than it even was before. I can’t fix this for her. I am so sad I burst out crying without even knowing I was going to…. I…
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Getting harder every day
I can barely continue to watch my husband suffer. He is in constant pain, doesn't eat and rarely sleeps. I am sleep deprived because he doesn't sleep. I've been doing this every day for about 5 months with no support. I feel guilty for complaining. I feel like I'm being very selfish. Do any care givers on this forum feel…
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Pancreatic Cancer
I am 85 years old, have inoperable pancreatic cancer that has spread to other areas, and I just started my first chemo treatment of Fluorouracil (5-FU) on September 25th. It has been eight days and I have had absolutely no significant side effects. My second round of chemo will be on October 9th with the addition of…
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Ureter Stent Kidney To Bladder -anyone else?
So my story began last year about this time. I was diagnosed with uterine/endometrial cancer which was in my cervix so at first they weren't sure if it was cervical or what. I had external beam radiation and six rounds of low dose carbo. I switched to Sloan Kettering and it was the best decision I could have made. I had…
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port and chemo questions -starting thursday
I had my port put in on thursday. It is quite uncomfortable and I am hoping it is because it needs to heal. Its on my left side and I slept on it so I am in pain this morning. I thought the port would be smaller and I thought there was little or no recovery time involved. How long til it feels ok? Dr said some start chemo…
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Recommendations for Dentists with Head & Neck Cancer experience
Hi, I’m looking for a good Dentist with Head & Neck Cancer experience in the Houston, TX area. I was diagnosed with Squamous Cell Carcinoma of the oral tongue in 2012. I received a left partial glossectomy and bilateral neck dissections with left forearm free flap reconstruction and Radiation therapy. I was doing well…
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Reconstructive surgery after partial nephrectomy
I am currently 9 months post-op from an open partial nephrectomy. I began having really bad pain and swelling approximately 6 months after the procedure. After multiple emergency room visits, and absolutely no answers from my urologist/surgeon , I finally got a second opinion with a new urologist. He referred me to a…
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Colon Cancer with Lung Mets
I have stage IV with Mets in lungs (7 small nodules in the right lung in Dec 2023). I’m only on 2nd round of FolFox with Avastin and will have CT in April to see what’s going on and will meet with a thoracic surgeon to discuss options. new to all this, I wonder how fast Mets progress in the lungs, symptoms of Mets growing,…
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rhabdomyosarcoma
I NEED SOME HELP HAS ANY ONE HAD A CHILD THAT HAD RHABDOMYOSARCOMA IN THE PELVIS. MY SON HAD CHEMO, RADIATION AND SURGERY. HE HAS EXPIERNCE MANY LONG TERM SIDE EFFECTS. IS THERE ANY ONE THAT HAS HAD THIS SAME PROBLEM AND HOW DUE THEY FIGURE IT OUT
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Creatine while on Lupron to help with muscle loss?
Anybody try it? My doc says he thinks it’s okay, but I’m wondering if it helps along with resistance training. Thanks.
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Breast cancer and how to explain it for kids
Hey, at the end of February my wife Alice was diagnosed with stage two breast cancer, our lives changed immediately. We trying to keep it positive for our daughters Joana and Rachel, It seems that they don't quite understand what's happening, and why mom isn't at home. We tell them that mom is sick, and it weighs heavily…
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Different Types of Prostate Biopsies
I know of the perineal versus the rectal ones but I'm confused about the length and involvement of the procedure. As I mentioned in the other thread, I'm due to have a transperineal one this coming Monday. I will be on full anesthesia and it could be several days before I'm recovered. I don't know if all require an enema…
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Lung cancer support groups
Are there any lung cancer support groups in New Hampshire?
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Hip and Knee pain 2 years after chemo
My dad is almost 2 years out from chemo (he finished on 5/25/2021) and he’s been having horrible hip and knee pain as soon as he puts any pressure on it. He still walks around but he’s in pain all the time. He was due for a follow up and so doc ordered PET and a bone scan, and I’m just a horrible mess of nerves. I know I’m…
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Food and fluid residue coming out of the nose
Hello all, Four months later, I was two years old when I had a total laryngectomy, and swallowing food during this period went through some fluctuating stages. But these days I have noticed a new condition, which is that when I swallow food (soft food with liquids), I feel it rising into the nasal cavity. For example,…
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Oral Cancer
Hello everyone. I first would like to wish all of you good luck with your treatments and such. August 31st I found out I had a tumor between my lower jaw and inner cheek. After the dentist, the oral surgeon and all my scans I found out I had stage 3 because it spread to the lymph node right under the jaw and the tumor is…
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Feeding Tubes for Head and Neck Cancer (Short Video)
Hopefully, this may help someone now or later... Christy, Jean, Bill, and Terry shares their stories with getting feeding tubes while getting treatment for head and neck cancer. They also share advice on weaning off a feeding tube. Visit https://www.cancersupportcommunity.or... for more information on feeding tubes and…
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Keytruda
Back in Aug 2023, I tried to find folks being treated with keytruda for prostate cancer. No luck at that time. Let’s try again - anyone out there on keytruda?
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Whipple procedure for 70plus
my father is facing the tough decision of weather or not to undergo the Whipple procedure this month. He has completed two rounds of chemo and the doc says that the tumor has shrunk enough to remove it surgically. He is 70 years old and in good health otherwise. He was diagnosed with stage 2 pancreatic cancer in July 2023.…
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Hello…wife needs help!
Been reading thru a lot of posts and so much info! I am new to this site and was hoping to get some feedback. My husband had the robotic RP in 2018 and has been getting PSA checks every 6 mo since. It’s pretty much all this time outside of about 3 months post surgery being 0.00, hovered in the .03, .04, .05 all these last…
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Benign biopsy. Confirm MDX test results: 21%< =G6; 15%>=G7
I had a MRI fusion transperineal biopsy. 26 cores benign. My urologist ordered a Confirm MDX test. Results show: Likelihood of prostate cancer on repeat biopsy: 36% 21% likelihood of detecting Gleason score < = 6 cancer 15% likelihood of detecting Gleason score >=7 cancer It is recommending for a second biopsy. I guess I…
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Unknown Primary, what to do?
My mother, 72, recently had a liver biopsy because a lung xray showed a mass on her liver. The mass measures 9cm x 7cm. Her PET scan shows this to be cancer but no other cancer can be seen anywhere else. Her oncologist says the biopsy shows it it secondary cancer with unknown primary and referred her to a liver surgeon.…
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New Member
Hello, 84 yr old Mother diagnosed with Stage IV metastatic colon cancer. Has decided not to receive chemo. She is still active and determined to continue on.
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cost of anti-nausea meds vs benefit
Hi- I was just put on a new anti-nausea med called (Emend)sp? Anyway, I was SHOCKED at the price. I have really decent insurance and all my meds have only been a dollar or two. My cost was $54.00 for 2 pills! WOW..that is expensive. I hope it works. I was soooooo sick for the first week. It would be worth the money to feel…