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update on chemo
Hi to all, my husband Ian had his 2nd round of iv chemo on thurs, and this time he is coping much better, no reaction! he has started to eat and has gained weight, the ascites has not returned, so all in all not too bad. He has 2 more rounds of chemo, ( he also takes tabs at home xeloda ) to do then a scan, we both wonder…
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Sense of urgency?
My brother was just diagnosed via CT scan on 12/12 With colon cancer with extensive liver Mets and possible lung. He plans to go to Mayo in Rochester, MN for care but they won’t schedule appointment until they receive pathology report. Local hospital rescheduled CT guided liver biopsy from 12/26 to 1/15. That would mean a…
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Tougne ulcer
Hi all. Sorry for starting a new post but when I post this I'm my original topic it doesn't show up as posted. I'm not healing that great from having 12 healthy teeth removed. After 2 weeks the pain got worse. I went to the surgeon Thursday and it's hard for him to see if the gums or whatever are infected because of the…
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Help regarding tube feeding
Hello all, The peg tube ligation was completed today and shortly before we were discharged from the hospital. Tomorrow I have an appointment with the nutritionist.But I ask you about the products that you used and got good results from.I ask you, should I just continue feeding with ready-made formulas, or can I make…
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Tongue Cancer - to get tongue reconstruction or not?
Hi Team, I am at 32 yr old Male and was diagnosed with Squamous Cell Carcinoma, Well Differentiated in the tongue. We think we caught it early -- I went to an ENT in September right after it got suspicious, she said everything looked ok. In November decided what the hell let's get a second opinion and biopsy this thing -…
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Remission Blues?
My husband was diagnosed with Stage 3B colon cancer in May. He’s 47 years old and father of two kids under 5. It had spread to two lymphnodes. He had successful surgery and three months of chemo (Capox). In September once chemo ended, first scans were clear. We just had second round of three month scans and they were also…
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Hip replacement
David had chemo this morning and will continue on a Monday schedule. We saw the orthopedic surgeon today. He has spoken with our hematology oncologist and they have decided David needs a hip replacement. So we go on March 7 for a hip replacement at UK and will stay a few days and then David will do intensive therapy at…
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Newbie here. So glad to have found this!
It’s all just happening right now. Saw my doctor for inverted nipple/misshapen breast/twinges of pain in late October. One appointment with Breast doctor mid November, MAMMO followed by ultrasound same day. Dr went from - oh likely just cysts to scheduling core biopsy because looks like cancer. I get the core biopsy this…
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Anastrozole Joint Pain
I was diagnosed with stage 2 invasive ductal cell carcinoma in June 2022. I received 4 cycles of chemo, last cycle was in December 2022. I have been on Anastrozole for about a year and have recently started to experience fairly severe joint pain, primarily in my knees. I have also been experiencing carpal tunnel symptoms.…
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30gy radiation and 2 cycles of chemo
Dear all, I am part of a clinical trial for 30gy radiation and 2 cycles of chemo cisplatin. Anyone participated such trials? If so how long ago, what was the outcome, acute and long term side effects and how long did the side effects take to clear out. Appreciate if anyone can provide insights. Thanks and god bless!
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Using Zinc for Return of Taste?
Hi All Again, I forgot to add in my last post of several days ago that at some point near the end of my husband’s base of tongue SCC treatment (ended 10/24/23) that I was searching on this Board about taste returning. Someone mentioned they took Zinc supplements and it helped them. Scientific I don’t know but we asked his…
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Merkel Cell Carcanoma
I have Mekel Cell cancer; this was found in the lymph nodes last November. I have found four other Viet Nam Vets with the same cancer. How many other Viet Nam Vets exposed to agent orange are out there have this cancer? The VA is saying it is not on thier list so no compensation is allowed. Merkel cell is a rare cancer and…
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Questions for first meeting with oncologist
For all you fighters out there. I am new to this network and to this board and I have my initial meeting on Dec 20th with my oncologist and urologist together. I have plenty of my own questions and have been working hard to educate myself but my question for all of you is looking back, what are the 3 best questions to ask…
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Space oar
Any experience on space oar i have an option to get it or not before radiation treatments start
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After 5 year relapse post external beam radiation i decided
To do cryotherapy…i am very upset though..here me out … as you all may know in 2018 i diagnosed with stage two prostate cancer confined to the prostrate Gleason 3+4. I went and saw a lot of doctors. A lot of test werevdone was confused about treatments and I was told by the surgeon and the radiologist that I have a 80%…
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Radiologist report says bone marrow uptake and metastasis.
So the radiologist report for my wife's Pet/ct scan says the following: "Mild focal FDG uptake within the proximal left humerus SUV 2.0 Differential includes physiologic marrow uptake and metastasis." Our doctor says don't worry about that. He says it's nothing. We'll we are worried! Should we be? Can anyone give us some…
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Lumakras (sotorasib)
Has anyone used this drug yet? I know the FDA approval is fairly new but wondering about the side effects and efficacy?
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I want to share with you my emotions
Hello everyone! I want to share with you my story from getting diagnosed to living with liver cancer. My name is Jill Garcia I'm 38 yo. Mom of a boy and we are from Nevada. I am diagnosed with liver cancer in the beginning of 2022. It’s very hard to describe my emotions and loved ones when I was diagnosed… Of course we…
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psa
Hi i had radiation for a Gleason 7 cancer in 2013 , my psa nadir was .02 it has gone to 0. 3 and .0.4 and back down to .3 as i age , is this normal? Also i just recently had a PSA and it was 0.48 when 7 mos ago it was 0.3 ,i just remembered i had a cortisone shot in my hip 3 days before the PSA test, and i worked out 2…
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Cancer screening /biopsy process inquiry
Hi, My father suffered from heart issues whereby he was rushed to er/hospital and was diagnosed w AFIB. During his stay at ER , the hospital ordered a CT Scan (without contrast as he has kidney issue ) The ct scan revealed 1.4 cm subpleural pulmonary nodule in his right lung and 5.3 cm mass formation on his elect adrenal…
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And just like that...I am different person.
I am, 55. My diagnosis for PC, was on November 28, 2022. PSA, a 7..My MRI, was a Pirad 5, My Gleason a 7. The Urologist recommend surgery, He said, because of my age. I had surgery on March 6, 2023..Three days after my Birthday. The leaks began after the catheter removal on March 13, 2023. I recently discovered My C, was…
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Radiology second opinion
What is the process to initiate a second opinion on radiology. Want to get a second interpretation on the psma pet scan.
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Stage 1 with some risky attributes
Hi gang after experiencing symptoms and having a colonoscopy at 51 , I discovered that I had one polyp in the sigmoid colon which was too large for the GI doc to remove. After an amazingly easy resection a month ago, I recently saw an oncologist. She indicated that even though I am stage one, I have at least one risky…
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Ann Barshinger Cancer Center Patient Support Groups Night & Proton Machine Tour
It was recently the cancer center near where I live had an evening event combining all the support groups into a get-together evening of survivorship and fellowship. Penn Medicine, Ann B. Barshinger Cancer Institute. Pizza of many varieties was provided with a variety of drinks and people mingled, ate, and drank their…
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Papillary carcinoma in left breast
It’s very rare and from what I read I found it early and will have a lumpectomy and radiation soon and a pretty good prognosis. I’m 62 and I’ve never had any problems with my breasts before. Has anyone else gotten this? Did it spread to another form of cancer in a year or 2? I read that happened to someone. Thank you!
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Lymph nodes with micro metastasis
Hi there, I’m new to the group and am excited to chat with others in the same boat I am in. I’ve been diagnosed with ER/PR positive, HER2 negative invasive lobular breast ca with micro metastasis to 2/3 lymph nodes which is freaking me out. I’ve had a bilateral mastectomy. My provider says radiation or chemotherapy is not…
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Scared of lung surgery🥺
Hey guy I’m 22 years old and have been battling cancer from 2 years now.It was at my back but now it moved to my lungs.I recently just finished 6 rounds of chemo and unfortunately the biggest tumor increased in size so I have to undergo surgery.The doctors have assured me that everything will be fine and the my lungs will…
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hello! I'm new to your forum
best friend diagnosed with lung cancer 4 weeks ago got pet scan results back a couple days ago and stated that there was nothing they could do for her other than possibly radiation to the 10 cm Mass on her upper right lung. cancer has gone to her own in her arm, spleen, L5 vertebrae, and various nodes throughout her chest.…
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Blood in urine after biopsy
Urine after tranpernial biopsy is color of red wine even after a few days. Anyone with similar experience.How long does this last? Concerned about blood loss over time.
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Thank you Laz & Helen
Not too long ago one of you started a thread or two about living with a colostomy bag. It was both funny and informative, and wonderful to be able to talk about the issues. Laz mentioned that he cleans himself out so he only has to deal with things every 4 days. That got me thinking since I was heading out for two weeks of…