Maxillary Sinus Cancer

shanee555
shanee555 Member Posts: 2
in Head and Neck Cancer #1
I'm looking for someone who has or had maxillary sinus cancer. I work at a hospital and a patient of mine is looking for someone who he can share his experience with. We have had difficulty finding someone that has been through what he is going through right now. He could really use the emotional support and the feeling that he is not alone. Thank you

Comments

  • palmyrafan
    palmyrafan Member Posts: 396
    #2
    Maxillary Sinus
    I have brain cancer that has invaded my sinuses; it has been, at various times, in all 4 major sinus cavities.

    What I can tell you is that I am monitered by a Neurosurgeon and an ENT specialist (specifically, one who only handles the sinuses).

    If you are interested in more information, please feel free to email me at cantcyou@aol.com

    Teresa
  • SIRENAF42
    SIRENAF42 Member Posts: 202
    #3
    Been there
    I was diagnosed on 2008 with Esthesionueroblastoma that was in my Ethmoid sinus, Nasopharnyx. I had radiation to all my sinus and my neck. You can read my profile to get more of my story. If hed like to chat, he can email me at sirenaf44@yahoo.com.

    Sirena
  • tesa
    tesa Member Posts: 123
    #4
    SIRENAF42 said:

    Been there
    I was diagnosed on 2008 with Esthesionueroblastoma that was in my Ethmoid sinus, Nasopharnyx. I had radiation to all my sinus and my neck. You can read my profile to get more of my story. If hed like to chat, he can email me at sirenaf44@yahoo.com.

    Sirena

    My mother has maxillary
    My mother has maxillary sinus cancer. She was diagnosed in June of 2010. I would love to talk to him because I have not found anyone on here with that specific kind of cancer. My email is gcooper242@yahoo.com.

    Teresa, can you give me the names of your doctors?
  • TaraRedden
    TaraRedden Member Posts: 2
    #5
    tesa said:

    My mother has maxillary
    My mother has maxillary sinus cancer. She was diagnosed in June of 2010. I would love to talk to him because I have not found anyone on here with that specific kind of cancer. My email is gcooper242@yahoo.com.

    Teresa, can you give me the names of your doctors?

    My Dad

    I just found this Web site and I'm sorry about your mom. My dad died in 2009 because of Maxillary Sinus Cancer. When we first found out he had it the doctor told us that only men get this cancer and its very sneaky and works very fast and is very painful. 3 months after telling us he had it he died. It was very hard for all of us to watch him suffer the way he did. They told us there was nothing they could do for him because there was no cure.

  • Danabird
    Danabird Member Posts: 3 Member
    #6
    https://csn.cancer.org/discussion/226875/maxillary-sinus-cancer

    I have Maxillary Sinus Cancer due to a tumor that invaded my right sinus cavity and my right upper jaw bone, jaw teeth, and orbital bone. Part of my right arm was removed to replace my upper palate because it had to be removed. It has been a long bumpy road. I have had 6 weeks of radiation therapy and my Ear, Nose, and Throat Specialists along with my Radiation Oncologist have been champs. I will be monitored with rotating MRI's and CT scans every 3 months for the next 5 years. This cancer has attacked the bone and nerves in my face. I no longer have sinus cavity on the right sided. I still have lockjaw from my February 5th surgery in 2024. I see that you comment was from 2011. I hope that this reaches you and your patient. It has been a bumpy road, but I SURVIVED.

    Prayers for your patient,

    Danabird

  • wbcgaruss
    wbcgaruss Member Posts: 2,471 Member
    #7

    Danabird Welcome to the CSN Head and Neck discussion forum.

    My Oh My you certainly went through a terrific event in your life with this major cancer event and operation with follow-up radiation.

    I have been through some heavy-duty stuff but I can't IMAGINE WHAT YOU WENT THROUGH.

    But here you are standing tall and your demeanor sounds well and you are here trying to help others, Bravo to you.

    The person you are trying to reach that you say the last post on this was in 2011 may be able to be reached depending on their status and email.

    If you click on their picture or name and click view profile it will take you to their personal page and you can see there when they were last active.

    From there you can click message upper right, and send them a private message which will be sent to their current email. You may be able to reach them this way even though they may not actively read CSN.

    Also, just for info purposes, I will post below how to Private Message someone

    Messages

    Registered CSN members may send and receive private messages from other users through the CSN internal messaging system. The system allows members to contact each other directly while protecting their actual email address. Messages can be accessed by clicking on the envelope icon in the upper right corner of each page.

    There are two ways to send a new message:

    • Log into your CSN account. Click the envelope icon in the upper right corner of the page.
    • A pop-up box will appear with any new messages. Click on the pencil icon in the upper right corner of the pop-up box.
    • This will direct you to the New Message page. Type the username of the member you wish to contact in the Recipient field. You can add multiple usernames if you are sending a message to multiple people. This will create a group conversation that all recipients can participate in. 
    • Type the content of your message. Once you are done, click ‘Post Message’.
    • The second way to send a message is to go to the member’s profile page. Then click Message.

    To read and respond to messages:

    • Log into your CSN account. If you have new messages, there will be a red dot with number on the envelope icon in the upper right corner of the page. Click on the envelope.
    • A pop-up box will appear with your messages. New messages will have a black dot to the right of the sender’s name.
    • Click on the message to open it. You can also click on ‘All messages’ at the bottom of the pop-up box to go to your inbox.
    • To respond, enter your message in the box under ‘Add a Message’. Once you’re done writing your message, click ‘Send Message’.
    • If you want to delete the entire message chain, select ‘Leave Conversation.’

    To be notified of messages waiting for you:

    • You can choose to be notified by email or on the website when you receive a new message. To do this, click on your avatar and select ‘Edit Profile’.
    • Then select, ‘Notification Preference’. Once you have selected your preferences, click ‘Save General Preferences’.

    I highly recommend you check out the "Superthread" at the top of the Head and Neck page as it is loaded with links and info to help you.

    My best to you Danabird may God continue to Bless you and help you recover further on whatever you need.

    Our motto on here is (NEGU) Never Ever Give Up

    Wishing You The Very Best

    Take Care, God Bless,

    Russ

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