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18 months post RP
Just got PSA < .1 So far, so good.
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Uterine Serous Carcinoma
Hello- I am new to your board. I am stage 3C2 and 61 years old. I was diagnosed in October. I had open abdominal surgery Nov. 7 to remove my uterus, cervix, etc... and 4 enlarged cancerous lymph nodes. Next Wednesday (29th), I start chemo ...6 cycles once every 3 weeks. I want to try icing/cold therapy on my hands and…
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De-intensification Clinical Trial
Hello everyone! Thank you all for posting your journey lessons, insights, experiences, etc. I feel like I've read them all since I joined you as a cancer patient. I begin treatment after surgery in a couple of days as part of a clinical study. Your posts have been so meaningful to us that I hope that by doing the same I…
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USPC and breast cancer
I have gone through 2 bouts with BC, one in 2002, the next in 2010 (new primary in lateral breast, NOT recurrence.) In Oct 2011, less than a year after my last chemo for BC I was dx with USPC grade 2, stage 1a. Now here is what I want to share..... My onc said uterine CA has been associated with BC but because many women…
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Endometrial biopsy
I am just curious if anyone's endometrial biopsy missed cancer. If so, how did you find out about the cancer?
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Rapid rise in PSA, recently diagnosed
I have recently been diagnosed with prostate cancer following a biopsy in early January (gleason 6, 6 cores positive, 5%-50%, PI). At my follow up appointment my urologist recommended active surveillance with an MRI in 3-4 months. At that point, he said the cancer was "far from scary". They told me to get another PSA last…
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Survivorship Today What It’s Like to Live with Cancer
Hello, everyone, I came across a related video that led me to this site which I am posting a link to. The website is Bristol Myers Squibb Survivorship Today... There is a section on there called "Survivorship Today What it's Like To Live With Cancer" and there are many videos on there in this section of people giving…
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Elevated PSA
My PSA rises quickly recently. Table below is my PSA history Date Value Free PSA % of Free PSA 2/15/24 5.43 0.96 17.7% 1/9/24 4.2 0.9 21.41 11/21/23 4.20 0.8 19.04 11/14/23 4.80 N/A 2/27/23 2.15 N/A 7/2/20 2.00 N/A My MRI PIRADS = 2 (12/15/2023) Prostate size MRI result (12/15/2023) 4.7 x 5 x 4.1 cm (length x width x…
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Alternative treatment and cholangiocarcinoma is working
Hi All, My wife was diagnosed with cholangiocarcinoma, bile duct cancer, last fall. She was operated on but the cancer was non-resectable. The doctors and oncologists I spoke to were giving poor prognoses about her chances. The oncologists and other info I was able to find basically said that chemo and radiation wouldn't…
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Apl
Hi I dont see anyone that have apl in 2023 I hope you are well I am from Albania and 3 months ago I was diagnosed with apl I stayed in the hospital for 2 months with chemotherapy and I use atra 7 grains a day I am very scared, but with faith in God here the hospitals don't have them and I have to buy them myself with the…
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Salvage surgery it is
Everybody knows my story been going on for about eight months I’m really really tired of the scrap PSA scan then another scan and MRI then a biopsy then meet with a radiologist meet with a cryotherapy doctor meet with two different surgeons radiations out of the question that guy screwed me. I asked a point blank about…
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caregiver living a sober life
Hi. I am new here. My husband and I are both sober. He has stage 4 metastatic cancer, and has been getting chemo for the last year. It was worse than either of us had imagined, but we got through clean and sober. My twin daughters were seniors in high school, and I was managing being there for their fun stuff: senior…
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Didn't think it was important..
I still have imposter syndrome, I was diagnosed with colon cancer back in 2021 Dec, had it removed Jan 25th 2022. It was stage three, but I have a 12 percent chance to get it again, so low risk. I didn't go through chemo or anything like that. So for me I figured it wasn't that bad, but when I look back at the photos, I…
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I was just diagnosed today, I think I've had symptoms for a long time, anyone else?
my diagnosis is Endometrioid adenocarcinoma, FIGO 1. and my doctor says the outlook is good because it's not something that's been going on for years and years but now that I think about it, I have had symptoms for years and years, I have had difficulty in urination and I guess that's a symptom, now I am super worried
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MRI fusion Prostate Biopsy next Monday. I am doing a lot of research, and have many questions
This is a great forum. I just scratched the surface and I have so much more to research on this. For now, this is what I have. I am 68. I live in Southern California. I have Medicare and medigap insurance. In early 2022, my PSA was 3.9. By November 2023 it went up to 5.3. My PCP gave me referral for a urologist who asked…
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Valentine’s Dinner - Big Increase in Taste
Hi All, Tonight my husband and I went out for dinner to celebrate Valentine’s Day at our favorite steakhouse. We have not been there since May 2023 prior to his diagnosis of SCC BOT HPV +16 last July followed by 33 rad and 7 weekly Cisplatin finished 10/24/23. He had been at around 60% taste bud return up until recently…
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2 weeks remaining. So far, so good. Well, more good than not…
First I want to thank everyone here for sharing their stories and experiences with treatment. It was extremely helpful helping me to prepare the best I could for my husbands newest adventure (Squamous Cell Carcinoma with lymph node involvement). He has his final cisplatin chemotherapy treatment this next week and 10 days…
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Newcomer lung cancer
Hi,68 yrs,right lung adenocarcinoma, just met with oncologist,being evaluated to see if I would make good surgical candidate,scheduling PET,MRI,lots of bloodwork,meeting with thoracic surgeon. I started out with bad cold,x ray showed lots of congestion upper lobe.PNEUMONIA, Had broncoscopy, found adenocarcinoma. Pnuemonia…
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SEEKING KNOWLEDGE - pememtrexed
Hi friends and fighters, So my mother is currently on maintenance therapy for her stage 4 lung cancer. She has been in a remission period since November and seeming to have responded to the radiation and success with the pememtrexed and keytruda. I was reading over the notes on her last visit and noticed that it stated the…
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HOW TO STAY STABLE
As you all know, my stepfather has the fibrosis disease. I am really here this morning to vent. Honestly. I think that no one will get it.... but I also see the purpose. My mom's chemo has been reduced by twenty percent and that has not even had enough time for me to digest. It freaks me the heck out and I have been…
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First PET/CT After Husband's BOT/Lymph Node SCC HPV+ 16 Journey
Hi All, I've written before about my husband's cancer journey, diagnosed with Stage I, base of tongue (left side) and 2 left lymph nodes as SCC HPV+ 16 in late July 2023. You can search my screen name Swoosh13 as I detailed my husband's journey through treatment, which started September 5 and ended on October 24, 2023. He…
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i am 34 gay male who is curently fighting stage 3 intestinal cancer
My name is Manuel [content removed by CSN Support Team] I am writing to you in a time of urgent need. I am currently facing a critical situation as I have been battling cancer for the past three years. Unfortunately, my journey to recovery is hindered by the lack of stable housing.I have diligently applied for all…
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Should I listen to the doctor or my fear
I saw all the oncologists today.. He said to relax Surgeries in 3 weeks.. But it is nodular melanoma.. At least 1 mm.. He would take me on the 10th but I'm gonna wait till the 24th because I need a cardiologist To sign off on surgery.. But. If I can get a cardiologist They'll take me on the temp.. Going from local to…
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CT showing doubling of size of complex adnexal cyst, additional adnexal; need to get past call cente
The doubling is since 9/23. Radiologist suggests MRI with contrast. Size is 4.2 and 4.0, one with high density. I simply cannot get local upstate NY doc to respond to even get order. If needed I can travel albeit with hardship to Sloan Kettering. After reading prior posts, I believe, if need be, I’d be in better hands. At…
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Bladder Cancer T1G3. (TURBT+Chemo) or (Cystectomy)?
I am 51 year old male and was recently diagnosed with Bladder Cancer. After TURBT, pathologyindicates Superficially invasive urothelial carcinoma with extensive background high-grade papillaryurothelial carcinoma. Tumor superficially invades lamina propria. Muscularis propria is present without tumor involvement in sampled…
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Family member diagnosed with MM. What to expect
Hello everyone, I was just told my 47y/o sister was diagnosed with MM. I know nothing about the disease and doing web searches is confusing. On average it says that life expectancy is five years. This is distressing. Do I really only have five more years with my sister? As only a family member, is there anything I can do…
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Starting the journey
Ultrasound revealed two large modules with a rating score of 7. My doctor is on vacation. Had to fight to get ultrasound and also the biopsies next week from his covering PA. So I don t know yet what type of thyroid cancer I have. My question is how to find the best treatment facility. Looking at Moffit and Mayo. Thank…
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Possible Thyroid Cancer - Any Information Would be Helpful
I had an ultrasound on my thyroid nodule which came back as TI RAD 5. The size of the nodule is .61 cm. Was told to wait a year and have another u/s. I had and still have other symptoms, which is why I went to see my doctor in the first place. Swollen and, at times, painful neck, difficultly swallowing, hoarseness in…
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Considering where to get treatment for my prostate cancer
I recently had a biopsy done and was diagnosed with prostate cancer, and so I'm doing research to determine where to get treatment. I did some more research and found that MD Anderson in Houston is rated very high. I live in San Antonio, and while we have a pretty good medical center here in town (I believe Mays Cancer…
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Just a note to say thanks to this group
Hubby has 2 more Rad treatments this week, and finished his 6th and final chemo last week...being able to read what others have experienced and what has helped them through this has been very insightful. I hope to be able to contribute in some fashion as well down the road as we get through these next recovery weeks. Have…