Diagnosed with Stage 3 Rectal Cancer – Beginning TNT

sgj
sgj CSN Member Posts: 1 *

Hi Everyone,

My wife was recently diagnosed with Stage 3 rectal cancer at 10 cm. The surgeon has recommended TNT and a “watch and wait” approach. We are very worried and want to get started with TNT as soon as possible. We have appointments with the medical oncologist and radiation oncologist this coming Tuesday.

As we prepare for TNT, we have several questions and would appreciate any advice or insights:

  • What should we be aware of as we start TNT?
  • What should we have on hand to help with side effects (e.g., bidet, baby wipes, etc.)?
  • What kind of diet is recommended, especially for vegetarians?
  • Are there any supplements (like vitamin D) that are helpful or necessary?
  • What should we avoid during treatment?
  • What are the chances of achieving complete healing with TNT?
  • Any other advice or tips for this journey?

Thank you so much for your support and input.

Comments

  • Arx001
    Arx001 CSN Member Posts: 55 Member

    Hi - writing a bit late but I hope you shall see it.

    Please allow me to respond with an advice that I find more critical.

    TNT is often offered when a surgery is likely to result in permanent stoma. Your surgeon is most likely trying to save the sphincter muscle. I guess it is better for younger patients, I’m middle aged myself and still had it. Your wife can get insufficient, near perfect or perfect response to TNT.

    My advice is, the moment the tumor is eliminated or shrunk such that a permanent stoma is off the table (after the TNT treatment), go for the TME (Total Mesorectal Excision) surgery and get a temporary ileostomy. Even in the case of a "perfect response" I would advise doing so. Imaging and CT DNA are important but surgery is still the main route.

    It’s tough surgery and you may feel uneasy when you first read about it but TME can be a lifesaver.

    I’m here if you have any further questions.

    Wishing her (and you) well…