-
Update on my esophageal cancer
I had an esophagectomy on Oct 2 to remove a squamous cell carcinoma tumor. I was stage 2 with no metastasis. I had a complication after my surgery (an Anastomotic leak) and spent an extra month in the hospital. It was a rough time and I was pretty ill. I lost 37 pounds. I am doing better now, thankfully. I have recently…
-
Eating
I am about 8 weeks post surgery. Does eating get easier?
-
ER+, HER2+ breast cancer. New here, Nervous, have questions
was diagnosed with Stage 1, grade 2 er+, her2+ breast cancer. No lymph node involvement. Very small. Lumpectomy, 16 rounds of radiation, currently doing immunotherapy (session 9 of 18)and on Letrozole. My reason for being nervous…..although protocol called for me to do chemo, my oncologist felt I would be a good candidate…
-
biopsy results
Hi everyone...I would like to share the results of my biopsy which I did on April 14th 20025 Biopsy URONAV MRI fusion ultrasound transrectal and I have cancer. If anybody needs details how biopsy goes… you can ask me Diagnosis K Prostate (ROI 1), core biopsy: Prostatic acinar adenocarcinoma, Grade Group 2, Gleason score…
-
Looking for information regarding immunotherapy infusion : keytruda
I am looking for some information regarding immunotherapy treatments . I am inquiring for my husband. He had prostate cancer & bladder cancer. Prostrate removal & cystectomy in 2023. Now the cancer is back & the Dr would like to try immunotherapy & possible chemo. I would like to know about reactions & any other advice for…
-
Milestones Reached
ok. I’m 11 days post last treatment (#35). I’ve reached a couple of milestones 1 - zero diarrhea. BM’s are solid (making timber😎) 2 - I can stand up and pee 🎉🎉🎉. That’s because I can now trust a fart 😜🤣😜 3 - I can eat “normal” food without my wife hearing my stomach growl in the next room 🤓 4 - Haven’t had to take a nap in…
-
Radiation for refractory PMBCL: proton v photon
I have Primary Mediastinal Large B-cell Lymphoma and the chemo didn't work. Started working and then quit responding. Now I am in between Photon and Proton therapy and not sure what to do. Has anyone on here had any experience in this? The Proton would be at 60Cy and the Photon at 20cy. CAR-T as well. Anyone have any input?
-
Insurance
I got married late last year, just after hitting two years of clean scans, and lost my insurance since it was income-based. I have tried every insurance, and I just can't afford more than 100-200 a month, and the ones I did find had such a high deductible that it's the same as not having insurance. I feel defeated. I had…
-
Pre-surgery anxiety & fear
I am 69 years old and recently diagnosed with lung cancer. I don't have a surgery date yet but should find out this week. Or at least I hope so. (This process has moved much more slowly than I imagined.) But in any event, I find myself experiencing waves of intense fear and anxiety that I cannot push past on my own. I seem…
-
Impending surgury
Ok this is the story. Diagnosed in Jan. after annual physical showed psa 28.1. 58 years old first psa, not sure why I just never asked and DR never requested. Biopsy first of Feb 5/14 cores all 3+3=6 all bottom left side. % of cores, 100,98,95,90,35. Psma pet end of feb. No metastases, DR wants to do sergery and remove…
-
Looking for others with NSCL BRAF mutation
Hello, I was just wondering if anyone is on Braftovi and Mektovi and how is your experience with these medications. I have been on them for 1 month now and have had quite an improvement in my symptoms. I do have fatigue and some muscle pain in the evenings, but not enough to stop my day. Just wanted to connect with people…
-
Battling Chronic Myeloid Leukemia
I had a Brother that was a year older than I am, who passed away from Stage IV Liver Cancer in November, 2022, and I'm a 72 year old female, living with Chronic Myeloid Leukemia.. I was Diagnosed with Leukemia on: April 27th, 2023, which was 5 month's after I lost my Brother... I stayed in the Hospital for about a week,…
-
New to Reluctant Brotherhood
Thanks to this great forum as I am learning lots about things I wish I never had to learn. 65-yr old living with my wife on Cape Cod. I am recently diagnosed with 7 of 15 cores malignant, (6 cores 3+3 and one 4+3 at target lesion found on MRI, plus two cores list “High-grade PIN”), in left mid core “Perineural invasion is…
-
Looking for Honest post-surgery ED expectations / feedback
Hi members- I'm new and this is my 1st post…I had DaVinci assist radical prostatectomy…I am 14 months out and still no firm erections even though I check off all the boxes on someone who should be up and running by now (healthy, not overweight, 57 at time of surgery, doc said both nerves were spared, non-smoker, not a big…
-
Choosing not to do Hormone Therapy after Lumpectomy
Two months ago I had a lumpectomy to remove Grade 1, Stage 1 Estrogen Progesterone positive mucinous cancer. My oncologist wants me to take Aromatose as I am 74. This drug is known to cause bone loss. I am .1 point away from osteoporosis. A Mammoprint test was done and the outcome shows a possible 98% non recurrence with…
-
New Member- Any Guidance is Much Appreciated :)
Hello, I am joining to gain insight on behalf of my 59 year old mother who was diagnosed in February 2025 with Grade 4 Glioblastoma brain cancer. it metastasized to her lower spine. She had a craniotomy to remove as much of the brain tumor as possible, and the spine tumor is inoperable. She has completed radiation for both…
-
Hope for erections after prostate surgery-3yrs 2mos later!!
Here's some good news! After 3yrs 2 months right out of nowhere in the middle of the night I was awakened by the first ever nighttime Erection since my surgery. Now , I have been getting okay erections for the last 2 years, but I haven't had a spontaneous erection in my sleep since my surgery. It actually amazed me and I…
-
Dental implants post recovery
It's pretty surprising there are no threads on dental implants in this group. Well, here's my situation. Brief backstory - My cancer treatment, radiation and chemo, was a decade ago and successfully treated the cancer with very few long term side effects. Two teeth were extracted as a precaution prior to treatments with no…
-
Follicular Lymphoma - Rituxan and Bendamustine
Howdy - Anyone try this combination with anything close to Stage IV, Grade 2 follicular lymphoma?
-
Post Radiation Proctitis
I am hoping for some good feedback for those of you who had challenges recovering from RT. I had a very easy treatment with a Proton 28 fraction schedule. Typical improvement of limited symptoms until my second month, then I started to have some diarrhea once a week or so. Condition has not improved and maybe gotten a…
-
Post week 2
just a note for anyone in or through treatment I’m on day 3 of 2nd post week. Feeling better every day. No nap yesterday. Just worked through the fatigue. Doing same today. Disappointed that I have to wait 90 days for first PSA. But, is what it is As I said before, 20 yrs in navy so I have no boundaries. Feel free to ask…
-
Young Esophageal Cancer Patient
Hi everyone, my name is Emily, and I was diagnosed with Stage 3A Adenocarcinoma of the Esophagus at the age of 26. I wanted to share my story with those who might find it helpful, or just insightful in the journey of someone going through this cancer treatment at this age. In May of 2021, I ended up in the ER with upper…
-
Option on Stent vs J Tube
Hi All, My dad has Esophegal Cancer which he was diagnosed with in 2021, to date he has had 2 rounds of chemo and 2 rounds of radiation, as a family we decided we did not want to go the surgery route. The second time was because there were signs that the cancer had moved into a small section of the liver. He finished last…
-
Have to get a molar pulled
I am a thirteen-year survivor of nasopharyngeal cancer. Through the years, I have spent thousands on my teeth. I had a molar that had a crown on it. It decided to come loose and fall off. Now I need to have the root pulled out. My dentist has put me on two meds. Pentoxifylline and vitamin E to ward off osteoradionecrosis.…
-
anyone decline hormone therapy after surgery and radiation?
I had a lumpectomy in November for stage 1 (.8cm) ILC with sentinel node biopsy (no spread). That was followed by 21 sessions of whole breast and targeted radiation. My Onc score was a 6 so no chemo needed. My tumor was HR+, HER-. My oncologist told me my chance of recurrence with the hormone therapy is 3% and doubles to…
-
Proton Therapy for Breast Cancer
Anyone know of any proton therapy for early stage breast cancer?
-
vigina problems
after 7 months since my last cancer treatment. still having problems with sex. Hurts very much. I feel bad for my husband. I don't want to give that part of my life up. Anyone else have these problems?
-
I am pretty terrified
Since mid sept. I have been passing blood very intermittently, sharp pain as if I am passing glass/sand paper and persistent itching around the anus almost every bowel movement. I have no pain outside of BM I am 37 years old, non immune supressed, no hiv etc otherwise in healthy shape in a long term relationship. I had a…
-
Folfiri
I have stage 4 metastatic colon cancer. I did 8 rounds of Folfox and only had hair thinning. I ended Folfox back in Sept 2024. Now I am in folfiri currently finished cycle 3. When did people start loosing /thinning hair? I most likely will be on at least 12 cycles maybe more.
-
robotic partial nephrectomy in my future
ct scan says i have a 3.4 mass on right kidney probably RCC. No biopsy was done. kidney function is good. they found it by accident looking for kidney stone in the ER. That pain was stupid nasty! The dr. says it's a piece of cake to take it out. I'd love to hear from you guys what i can really expect. How long will i be in…