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Still Too Soon?
I think it was someone at Sally Jobe who officially delivered the news. The biopsy had come back positive (not in a good way), and I was headed to a surgeon and a couple other folks to get things under way. As I’ve mentioned, J and I joke about everything. It’s something we learned from our parents. We warned each other…
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My dad has been sleeping a lot more recently.
Hi! I just found this website pretty late. I’m feeling a lot of things and I don’t usually post about it, but this seemed to be the right place for it despite the shutdown soon. I’m 17 and the oldest kid in my family (having a younger sister and my mother). Recently I’ve had a cold and ever since I got it, my father (stage…
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Gemzar lungs/breathing side effect question
Hello, I'm Lisa and I'm normally on the colorectal board (stage IV colorectal cancer w/ mets to liver and lungs, dx'd 8/07). I'm posting on the breast cancer board since I am on Gemzar and it is normally prescribed for some forms of breast cancer (and I think pancreatic and kidney). I live in north San Diego county, CA.…
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Hi All!
It's been a long time since I've visited, and I find myself very nostalgic and missing you ladies who kept me company on this journey. I'd love to hear from my beautiful "old-timers" who are still here on the boards, and hear news about those who aren't. I also want to encourage y'all that miracles really do happen. I…
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Visiting the dentist
How much information about cancer treatment do you have to give your dentist/hygienist? I suppose I have to tell them I had chemo because of the mouth sores. But more details?? I hope not! what have your experiences been going to the dentist or other non-cancer medical folks like eye doctors, physical therapists (not for…
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LONG TERM SARCOMA SURVIVORS WANTED
I'd like to hear the stories of some long term survivors. Please tell me your story. I'd like to be able to see that this isn't only a dismal disease. Thanks.
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SURVIVOR....UTERINE CARCINOMA. STAGE 4-2b
Are we all a survivor of a very small percentage of people??? How long does a person stay in remission with a metastatic cancer??
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any dentist for after care?
Hello - I am looking for some guidance / direction / help ! My wife had throat cancer and the radiation has taken a toll on her teeth, lots of breaking etc- who do i need to know that can help assist in after cancer dental procedures - she is going to need the full mouth - possible veneers and caps and extractions any help…
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Chromophobe RCC
This is my first post, although I have gained a lot of useful info from everyone else's posts over the past few months. I have my 2nd scan (6 months post-op) scheduled for next Monday. My first scan was clear, and for that I am very thankful. I pray the same will be true with the next one. My question is this - does anyone…
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UPDATE to "Surgery & Radiation Now" versus "Mammograms every 6 Months"
A month ago I was trying to decide whether to proceed with the recommended lumpectomy and radiation treatment or let it ride and see what the status was after six months. Thank you for your responses and suggestions. I did do the surgery. In the end, I thought that if I waited there was a good possibility that the cancer…
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Peritoneal Mesothelioma
I am here for looking for support. My sister was diagnosed with Peritoneal Mesothelioma. The surgeon removed her gallbladder, spleen, half of colon, piece of liver, and piece of stomach. Followed by HIPEC.
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Best to You All in the Future
I just heard the news and it was kind of sad hearing that this site is closing down, however I hardly ever visited anymore after the format change. I remember the long nights staying up because of the steroids and always finding someone on. This site helped me immensely going through a journey I knew nothing about. Being…
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Cancer came back in the ear
My ENT did a biopsy in my ear because of granulations near ear drum. The result came back positive. Seems like NPC from last year has extended to ear area. I have to go see the oncologist again. Don't feel like going through another radiation and chemo which most probably will be suggested by the onco. Don't know what to…
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How high can cea levels go?
Can anyone tell me how high the cea levels can go. I have seen where some posts say they are in the 6000 range is that possible? just trying to understand the ranges ant find it on the net. Thanks, Patti
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Why is pancreatic cancer considered one of the deadliest and most insidious cancers?
Pancreatic cancer is particularly lethal due to two key factors: Its "stealth" nature & aggressive spread. 1. Silent Progression: In its early stages, pancreatic cancer typically causes no noticeable symptoms, such as pain or discomfort. This silent progression allows the disease to grow undetected for a long time. 2.…
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Another great forum to go to when this site shuts down
I have been on the Mayo Clinic site for a while and it offers similar benefits as this ACS site. So sorry to see this site shut down. You may want to consider https://connect.mayoclinic.org/?utm_source=connect.mayoclinic.org&utm_medium=email&utm_campaign=digest&utm_content=homepage Thanks to all on this forum!
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It's True
Journal Entry It’s a very strange thing. I am finally feeling like I might be a cancer patient. No, I have not been in denial all this time. I just could not wrap my head around being “that girl.” The girl with cancer. I have to say, the support and love that is here for me is overwhelming half the time. It just doesn’t…
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Ear cancer
my dad was having a lot of ear infections and kept taking antibiotics drops and it would go away and then come back. The doctor finally decided to go open him up and clean the infection out. The tissue he took out was sent to the lab and it came back positive for cancer cells. This is what they diagnosed him with: Final…
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Cancer Network shutting down?
Hi, Just received an email about this help message board being discontinued? Hope it was a hacked email and not true. Anyone else get the same email? Dave 3+4
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🎗️ To anyone fighting the Sarcoma battle.
If you or someone you love is dealing with Sarcoma (Soft Tissue or Bone Cancer) and you don't know where to start, who to turn to, or what's even going on — please don't sleep on reaching out to me. I've been in those shoes. I've sat in that chair, heard those words from a doctor, and felt like the whole world just dropped…
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TPN Please help
My mom has colon cancer and because of illness has not been able to tolerate anything besides a colostomy. The first colostomy 'fell apart; Now the new one is falling apart. She is really sick in the hospital critical care unit with C diff and Sepsis. She cannot eat. Therefore they are going to start her on TPN to tryand…
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Stage IV cancer. Unknown primary with extensive peritoneal implanting. Should we get TPN?
Hi everyone. I'm new to this forum. My friend was diagnosed with stage 4 cancer in July. They think the primary may be gastric according the the cell block they got from taking cells from her ascites fluid. Her ascites subsided, but she now has a very palpable stomach mass and a malignant bowel obstruction. They think…
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Experiences with palliative TPN/transfusions?
Hi everyone. I'm new to this forum. My friend (age 22) was diagnosed with stage 4 cancer in July. They think the primary may be gastric according the the cell block they got from taking cells from her ascites fluid. Her ascites subsided, but she now has a very palpable stomach mass and a malignant bowel obstruction. They…
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My husband has stage four appendix cancer. Going home on hospice, but have a question about TPN.
has anyone gone home on hospice and then successfully gotten their loved one on TPN. He has a partial small bowel obstruction. He is getting a venting G-tube and a tube to drain ascites. He has lost 40 pounds since November. Nobody mentioned TPN into us at all. basically they’re sending him home just to die
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Rare form of skin cancer inner ear
I was diagnosed and recently treated for this rare form of cancer. I had my ear drum removed and lost hearing. I have been having a lot of weird symptoms since then including extreme nausea, no appetite, weight loss, weird taste in mouth along left side of tongue. Also increased gag reflex. Was wondering if there is anyone…
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Thyroid Nodule 4 1/2 years post radiation. It never seems to stop.
I’m back! July 25, 2021 I was diagnosed with cancer at the base of my tongue. 31 radiation treatments took out the cancer. Of course I went thru all the after effects of the radiation, but things have been ok I guess though my main nutrition still come from smoothies. Been having a weird cramping sensation and some…
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PSA results
Well, I had my prostate removed 8 years ago. Today, my PSA is .014 ng/ml. I feel pretty good about that. As far as, this site shutting down in May 2026. I would like to give a cheer to all the folks who have contributed by telling about their journeys. All of you are winners. You conquered a hurdle that many in our arena…
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anal cancer
I just found out that I have cancer in my rectum. Last week, coloscopy; next week, CAT scan & surgeon meeting. I don't have family; my husband died in 2013; friends don't know much about cancer & neither do I. I'm afraid and anxious, trying not to get depressed. I'm looking for conversation to help me thru this process.
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Decision time - Treatment Plan for HPV + Squamous Cell Carcinoma.
Hi, I’m a 61 year old man in the UK with a 3 cm tumour in one of my lymph nodes on R/H side of neck. Biopsies confirm HPV+ (P16+) metastasis. Had both tonsils removed 3 weeks ago and other biopsies done during the surgery and all back clear. Surgeon said she could not see or feel anything abnormal. Also had MRI, CT and PET…
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Skiffin16 - Farewell to CSN
Not many of us around from back in the old days (years of 2009 to present). We've definitely lost a few along the way, but some of us are still kickin it, and doing well. Unfortunatley, I received an email that all of this history is going to be lost in a month or so as they're shutting down the forum. That sure is a hard…