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3-month Update
Today is three months since I and my prostate decided to go our separate ways, and coincidentally, my first post-op PSA check. Incontinence is still an issue, but I’ve seen some improvement, mostly overnight. I can sleep around 3-1/2 hours before first getting woken up with the feeling of a full bladder, and I’m getting up…
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Miracles Happen
Hi to All. So sorry to see this going away. I'm 5-1/2 years out, stage 4 lung cancer with a side of tumor on the brain - removed 1 year ago. Very early on in a support group far away a participant offered that he wrote poems and it got his brain occupied on something 'other than' his cancer. I thought I might try that too.…
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Losing my stomach changed my life in ways I didn’t expect
Hi everyone, I wanted to share a bit of my experience. Around two years ago, I went through a major health situation that completely changed my life. Losing my stomach wasn’t just a physical change — it affected how I saw myself, my energy, and my daily life. For a long time, I felt lost and disconnected from who I used to…
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⭐️⭐️⭐️ A forum option for those making the journey
Regrettably but understandably, this forum is being discontinued. This is an unfortunate trend as social media takes over. However, forums are more confidential and pose far less risk as compared with social media, since we disclose only that which we want the world to know. There is an option left for those along the…
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Thank you CSN
I don't know the CSN team in person but what you did by keeping this site active all these years was wonderful. It gave hope and strength to people during their dark times. Heartfelt thanks and gratitude from a stage 3 crc survivor. The same goes for users who have helped others. Thank you all! 🙏
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Long awaited news
My journey started this time last year. A nuisance cough I couldn't get rid of. X-rays, CT's, PET scans with contrast, 2 surgeries, over 30 biopsies and they couldn't figure it out. The cancer surgeon gave me some pills for histoplasmosis and told me to contact the CDC if I didn't feel better. Fast forward to this point. I…
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Cramps (?) on the right side of my neck 4 1/2 years post radiation for BOT Cancer
I’ve been having cramps (not sure if cramps is the right word) on the right side of my neck. If I turn my head a little down or up, it feels like a muscle cramping or locking up. I can move my head back and forth to relieve it but it’ll often ache for awhile afterwards. Sometimes while I’m at a doctor’s office it isn’t…
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HRT for bilateral oophorectomy?
I hope you don't mind that I am crashing your board from CRC, but there aren't as many people over there dealing with surgical menopause… I'd just like to talk to people about their experience with long-term HRT on modern regimens and side effects. I also notice a definite difference towards the end of my week-long patch.…
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Cns Non Hodgkin's Lymphoma
My journey with CNS Non-Hodgkin’s Lymphoma has been one of the hardest battles of my life. The treatment has been intense, and recovery has been long, physically, mentally, and emotionally. Some days are harder than others, but through it all, I’m still here, still healing, and still fighting.
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2 time cancer survivor!
HELLO EVERYONE!!! I’m so happy I found this site and am excited to share my story and get others opinions! so this all started about 10 years ago, my OB/GYN felt my neck and discovered numerous lumps on my thyroid after scans and biopsies. I was found to have papillary thyroid carcinoma. When they remove my thyroid, they…
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Tim6003
Joined the Head & Neck Cancer Club in 2011. 15 years on, still kicking. Had a feeding tube placed in 2017, doing pretty much anything I want Just stopping in for nostalgia and to encourage all who are in this club to keep advocating for yourself, don't be shy to push for your care and what you need... and to remember,…
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Such a loss. ...
I am so grateful for all the support and education I received from this site. The last change to the site seemed to discourage a lot of interaction, and now this. I will miss all of you so much. I hope they leave the site as an archive, there is so much information here.
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TORS, radiation, and chemo—choices
TORS+ vs Radiation/Chemo I’ve been diagnosed with p16 (HPV)-positive oropharynx cancer, stage one (cT2N1M0 p16). I have one positive lymph node infected, a likely second positive node, and a questionable third node—all on the same side as my tumor which is at the base of my tongue. One option is the TORS route. I would…
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Good bye CSN
Hello guys, After I got the mail today, I thought it was time to say goodbye to this page. Now we have enough time to say goodbye. I also realized how many fighters lost their battle since my dads diagnosis and dad. Still glad that some fighters won and are still here for others. Prayers to the current fighters. about me:…
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Our dear CSN member, Danker, has passed away.
For those of you who have been here many years, I wanted to let you know that dear, sweet friend, Danker, passed away in January. AND, he passed away at a grand age, and not from Cancer. I have kept in touch with him, all these years, and when his recent birthday card was returned, I knew that he had gone to be with his…
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For all the old timers, sad news.
Our dear friend, Easyflip, has passed away. Richard fought the good fight, and won. 12 years NED - Stage IV CRC. Sadly, he was diagnosed with Stage IV Esophageal Cancer a few months ago, and again, the fight was on. He was a fighter until the end. And a man to be reckoned with. A good man! He has not been active on the…
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Medical ID/alert bracelet
Does anyone here wear one of those medical ID/alert bracelets due to prostate cancer? At first, it didn’t seem necessary, but then I thought that, depending on the specific treatment, prescription drugs, etc that it might be a good idea. I have a doctor’s appointment tomorrow, so I’m going to ask him, but I thought I’d…
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4 nodules and swollen lymph nodes
I've had a chronic cough for a couple of years, and my back always hurts (assuming from an old injury). I asked my Dr. for a chest x ray just to see if anything's going on. I've worked with asbestos 21 years. I'm not even 40 yet. When they called about my results everything started moving quicker than i'd ever imagined.…
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Prostrate cancer PSA
I am a 60 year old man that has had his prostrate removed Sept 2021. I had a PSA of 36 with a Gleason score of 6. Stage 2 because of the high PSA but also BPH I had been on active surv since 2013 PSA of 2 . In 2013 I had my first biopsy were one needle out of 12 cores showed Gleason score 6 on 5 % on the needle but spend 3…
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Need help for my mother's Cholangiocarcinoma
I am posting on behalf of my mother. She is 63 years old and was diagnosed with Cholangiocarcinoma (Bile Duct Cancer) 20 months back. When we detected it, the cancer had already spread a lot. She underwent whipples surgery, followed by 6 cycles of Gemcitabine + Capecitabine. Then another 15 rounds of radiation. We thought…
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Survivors where are you
I want to know how long everyone is surviving. I was formally diagnosed at 37, luckily with stage 1a. I had no symptoms and they found my cancer by mistake. I am now in remission for one year and I'm having these thoughts of how long will I live after this? I know there's no guarantee. But I'm curious of how long people…
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Post vaginal brachytherapy side effects
Diagnosed with stage 1a after total hysterectomy and will meet with radiologist next week. I was told it is up to me if I want to do further treatment as my pathology was very clean. I would be interested in any potential side effects that you may have experienced with this therapy. The limiting factor is my age (68);…
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Cancer of the Ear Canal
I was recently diagnosed with invasive squamous cell carcinoma of the ear canal. I had an initial surgery to remove the visible tumor and to biopsy it (which led to my diagnosis). The first pathology report was inconclusive so they sent it on to experts for their interpretation, which resulted in a diagnoses of SCC. They…
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So God Made a Mother: A Beautiful Mother's Day Poem-Happy Mothers Day Everyone!
I have come across this wonderful poem to share Mother's day with each and every one of you today. God's Blessings to you all. At the dawn of time, God needed someone He could trust to love His precious children. And so, God made a mother. God said, “Life will often be harsh, so I need someone with a gentle touch. Someone…
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Happy Mothers Day Celebration And Blessings to Everyone
I would like to wish everyone a Wonderful and Blessed Mother's Day. Enjoy this day and celebrate mothers everywhere because we all have one, everybody does. Go visit, send cards, or phone Mom and tell her how much she means to you and how much you love her. And for those of us whose mom has passed on, bask in the memories…
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Synchronous Signet Ring Cell Carcinoma
Hello all, I see there doesn't appear to be any current post regarding SRCC so I thought I would start a new thread. I was diagnosed with Synchronous Signet Ring Cell Carcinoma in January '25 stage III. At that time the MDC at University of Colorado settled on chemo and radiation. FOL FOX and radiation for the rectal…
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breast cancer
can breast cancer survivors have anything with collagen it it?
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Dilator
Being a sexually active women I worry about the effects of radiation on my sexual organs. Heard that some women need a dilator to prevent perminent damage to the vaginal area. I'm just in the first week of radiation and chemo. Would like to have some input as to the necessity for this device in the near future. Never have…
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Anorectal Squamous Cell Cancer
Hello, I am a new here, 64 yr old female diagnosed with Anorectal Squamous Cell Cancer back in February of 2026. By report, my tumor is localized to anorectal region with inguinal/rectal nodes that are being treated with radiation. No signs of metastatic disease. I am one week from completing my chemo/radiation treatment.…
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Pump
I’m looking for some feedback on using the pump I am at the 24 month point and since summer I only use it once a week and have noticed a decrease in length of about 1/2” sound right? Haven’t had an erection since before the surgery, so I guess that’s it for me. Still taking the 5mg tadafill Any thoughts?