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struggling with survivorship
Diagnosed fall 2024. Had sucessful surgery. Started what was supposed to be 12 rounds of cleanup chemo in November 2024. Unfortunately two adverse reactions and a very conservative oncologist =treatment halt. Struggling with the emotional side of survivorship ever since. In therapy.
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"Surgery & Radiation Now" versus "Mammograms every 6 Months"
Happy New Year!! I have DCIS Stage 0 in rt breast, with markers inserted. I am 68 years old. I have lumpectomy surgery scheduled on Jan. 7, 2026 (in 6 days). I made an appointment with my surgeon to discuss everything on Jan. 5, 2026. I would like to ask what people have done in my situation or what people think are the…
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Why is pancreatic cancer considered one of the deadliest and most insidious cancers?
Pancreatic cancer is particularly lethal due to two key factors: Its "stealth" nature & aggressive spread. 1. Silent Progression: In its early stages, pancreatic cancer typically causes no noticeable symptoms, such as pain or discomfort. This silent progression allows the disease to grow undetected for a long time. 2.…
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Alternative and out of country treatments for stage IV NSCLC ALK+ve
In the fall of 2019 my 25 year old daughter stumbled into a Vancouver hospital so short of breath she could barely walk. A week earlier she had been diagnosed with pneumonia and placed on antibiotics and puffers based on low oxygen readings and an xray that the doctor said was "the most unusual xray he had ever seen." I…
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The aftermath of husband's cancer and remission
My husband was diagnosed with cancer last year and is in remission. We are in our 30s and have school-aged children. He is on chemo indefinitely to help prevent a relapse, so our life has changed a lot. Our relationship doesn't feel the same anymore. He is a great person, but I can't seem to connect this cancer patient to…
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Another lymphoma diagnosis
Well the other day I got a biopsy result from a lump on my neck that indicates Large B-cell lymphoma, germinal center type. Don't know much else yet. Scheduling an appointment with an oncologist ASAP to hopefully learn more soon. Also have a full body scan scheduled for next week. Originally went to a ENT doc for the lump…
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Pluvicto (lutetium 177 vipivotide tetraxetan)
Is anyone here been on or is on this radiopharmaceutical treatment for advanced metastatic prostate cancer? Starting this treatment at UCSD Hillcrest on 1/9. Looking for some insight as to what I'm looking at. Thanks Mtop.
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Sore throat still
I know there is no "normal" when it comes to cancer...but...does it seem right, to still have a sore throat after 3 months out of treatment? I do have an appt. for my first MRI on Feb.4. I am anxious, nervous, scared and all the rest:) It's not sore all of the time, and there is no rhyme or reason for when it is sore. Is…
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Myelofibrosis and CML 190
My husband Joe has both of these rare blood marrow cancers. Anyone know about Leukemia 190? I can't find much about it. My husband is on Gleevec and it decreased the size of the spleen, but now it is back to its original size. Any comments about bone marrow transplants? They have suggested this at some point in time. So…
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Diagnosed with AML at 35
Hello, new to CSN. Wanting to connect with others who may have similar experiences. I was diagnosed with AML 6/17/25. I am 35 yrs old, married with two toddlers. I went through 4 rounds of chemotheraphy (cytarabine). I have had 5 biopsies. Currently waiting for results from my last biopsy.. The one before that was “weakly…
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PROSTATE CANCER AND LOW HEMATOCRIT
12-24-2025 I’m the new guy here after accidentally finding this site and I would like to share my experience with prostate cancer( PC ) . I am 79 in very good physical condition (I still play a mean racketball game for 1 hr ) and without problems with blood pressure ,chole- sterol , diabetes . However , I was diagnosed…
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Pads
Do pads get definitely noticeably wet in the beginning or could you be unsure if you are leaking much?
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Sharing Hope: 11 Years After Kidney Cancer
Hi everyone, I wanted to share my experience in hopes of bringing some encouragement. It’s been 11 years since I was treated for kidney cancer. My cancer was in my right kidney, and I had a radical nephrectomy, including removal of my kidney and adrenal gland. The tumor was 10 cm in size, confined to the kidney, stage 2,…
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Loss my wife to uterine cancer. (carcinoma sarcoma)
my wife was a 48 year old school teacher in the Orlando Florida area as she passed away after only a 6 month battle that took her from her family and I. We were torn on treatment options but her family and friends convinced her to do the traditional chemo and radiation that only forced the cancer to spread and metastasis.…
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Recovering from treatments
I was diagnosed with Stage 4 lung cancer with the EGFR mutation in July of 2025, the same month I turned 57. I had mets to my back, liver, lymph nodes, and brain. I take Tagrisso daily. I had four rounds of chemo with Alimta and Carboplatin, then another two with just Alimta. I had 10 radiation sessions on my back and,…
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Anal bleeding
i am almost 2 years out from anal cancer. How does everyone keep the stool soft and keep from bleeding? All my scans are clear from cancer. Its so aggravating when I go to the bathroom.
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So many questions
I am 70 (that number still surprises me) and was diagnosed with stage 4 sclc in early November of this year. The diagnosis knocked me sideways. If it weren't for my husband and 2 daughters I would still be reeling. They kept me on track with my meds and treatments. They have gone to every meeting and treatment. But there…
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How to minimize neuropathy
Please resend this out to every chat group you can I still suffer from neuropathy after my chemo treatments were finished 3 years ago and I jus read the other day to help minimize it you should keep your hands and feet wrapped in cold packs while they are juicing you at the hospital with your chemo meds if I only knew then…
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Newbie! Tiny 1.7 mm triple negative w/amended lymph report needs help choosing right treatment plan
Hi all, My best friend recommended this site as a resource for making a huge decision in the next couple days. You guys helped her through a very rough ovarian cancer treatment. She suggested that you may help me too. This site looks great! I need to decide this weekend which treatment plan to go with as I am scheduled to…
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Wishing Everyone On CSN H&N A Happy And Wonderful 2026 New Year
Wishing everyone a Happy Happy New Year and Most Definitely a Cancer-Free Life from here on out. And my prayers are for everyone on here that you all get through any cancer situations you are in, and that this Evil Disease will never darken your door again. Feel free to comment and share greetings, stories, information,…
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5 years clear
Hello and HAPPY NEW YEAR! Wondering if anyone has had a recurrence after 5 years?. Me~total thyroidectomy and radical neck dissection and another cancerous lymph in 3 years time, but clean scans and bloodwork for 5 years now. I believe I am good to go 🤷♀️, but would like to hear from y'all how common (or uncommon) it is…
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Life after Cancer
How are some ways you guys have coped after Cancer? I don't really know how to live my life now. It's been really hard to get back into just living my life normally. I feel like I'm not the same person anymore:( I guess I never really processed any of it til now.
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Leukemia Survivor
I am an Acute Lymphoblastic Leukemia survivor! I was diagnosed at 26 years old in June of 2022 and had a Bone Marrow Transplant in May of 2023. I’m still currently battling some health issues and would love to connect with others!
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Just Diagnosed with Melanoma - I have had it for 2-3 Years at least.
I showed my general practitioner during an office visit this large black area behind my left ear. He said, "don't worry about it." This was 2-3 years ago and I had pointed it out three other times with the same response. The result of a biopsy was that it was melanoma and that I needed to have a surgery very soon, but I…
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What to do?
Had prostate removed 4/24. 1 of 20 nodes showed evidence. PSA has gradually increased from .02 to .39 over the ensuing 18 months ( .02, .05, .10, .10, .20, .39). Had PET several weeks ago and found 1 small area in prostrate bed. Recommendation was that I go the Oncology route - MRI and CT scans to set up targeting….then 25…
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Erectile dysfunction ED conditions after Prostate cancer radiation treatment
Are there many? Or a few? Is there a resource for improvement? I am dealing with so many situations and experiences. Radiation treatment related? What are yours? Thank you.
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Surgery with Gleason 6 and PSA 2.5?
First post here……I'm 50 years old and recently diagnosed. Half of the biopsy samples came back as a Gleason 6 and it's bilateral. I've had my PSA checked for the last 6-7 years and it was always around 1.5. At the last physical it jumped to 2.5. I decided to meet with a urologist and now here we are. The kicker for all of…
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Stage 3b Colon Cancer with FOLFOX Treatment 12 vs. 6
I have completed 3 FOLFOX treatments with most of the expected side effects. Mouth sores, nose sores and bleeding, rash on neck and arms, diarrhea, and overall tired and weakness. My goal at this time is to make it through 6 treatments and then discuss with doctor about quitting chemotherapy. Has anyone discussed this with…
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Carotid body tumors need help finding specialist!
My husband is 40 years old and doctors just found 2 carotid body tumors on a ct scan, one on right side of neck and one on the left. Surgeon that requested ct scan told us today to do our research and get him to a specialist in these tumors as he is not and doesn’t know anyone around here that is. We are south of Buffalo…
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Rectal Cancer, 80% chance live on Colostomy bag for life
I just got diagnosed with rectal cancer less than 2 weeks ago. I am a 59 Year old male. The cancer starts 3.2cm inside my rectum, is 3.2cm thick and 6.2cm long. That is just the live cancer itself. There is further damage the cancer has caused, and it has spread to my liver. According to my doctors it has been growing for…