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Has anybody took Zejula Chemo pills for maintenance.
Has any one taken this for maintenance from recurrence of Ovarian Cancer? If so can you tell me about your side effects? I am having back pain, joint pain in my hip and knee, and nausea. Just wondering is this anything to be concerned about...my doctor says that unfortunately that is the side effects and that’s way he gave…
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Ned 7 th year!
An update about our journey. Its been seven years since surgery. Did CT scan and results came clear. Ned since 7 years.Thank you all for positive vibes here.
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Symptoms after radical nephrectomy
Hi All, I'm new here, so still learning the ropes. I am 36 years old and had my left kidney and adrenal gland removed in October. The margins were clear and I understand that I am very fortunate in that regard. I have had follow up appointments with the urologist, and my first follow up CT is in two weeks, but I was not…
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2 time cancer survivor!
HELLO EVERYONE!!! I’m so happy I found this site and am excited to share my story and get others opinions! so this all started about 10 years ago, my OB/GYN felt my neck and discovered numerous lumps on my thyroid after scans and biopsies. I was found to have papillary thyroid carcinoma. When they remove my thyroid, they…
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Proton Therapy for Breast Cancer
Anyone know of any proton therapy for early stage breast cancer?
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Perneal pain pre-erection, post orgasm
Diagnosed with prostate CA in November 2024. PSA over the past 2 years were 4.49, 5.12, 5.8. Diagnosed with stage 1 after biopsy. Will complete rad therapy next week. Mild symptoms thus far…urinary retention, burning with urination. My primary concern is severe pain 6/10 after ejaculation. Ibuprofen 800 mg helps with…
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UPSC - Any survivors greater than 5years?
Hello Fellow UPSC sisters.. I would like to start a discussion on looking at recurrance rates and survival from the USPC group. This may sound depressing, but I think it would be positive to put light on this "Rare Agressive Cancer". I had surgery (TAH + BSO and pelvic node clearance Aug 2010). Surgical staging IIIC. (Node…
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HELP
i came here seeking help, but i feel like i'm not getting it. i've seen other people share their test results and get great feedback, yet when i tried to do the same, i was denied help. then, i tried explaining my situation and asking for guidance, but i still didn't get the support i needed. it feels unfair, man!
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EMPD Extramammary Vulvar Paget’s Disease
Is there anyone out there with EMPD??
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New-IDC with Triple Negative
I recently got diagnosed with IDC with triple negative. Trying to wrap my head around all this. Waiting for genetics results too. I have less than 2 cm lump in my right breast. I am doing a lumpectomy early Nov. What is the triple negative? I understand it means the tumor does not grow from estrogen, but what are the other…
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Port removal
the doctor surprised me at my last visit. In April of last year I had a tumor removed from my colon and a met just on the outside of the same area. 12 treatments later including 5fu pump Two positive lymph nodes after surgery of removing both I have not had a positive test. Two CT scans and tumor markers have all been…
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Dry sinesus
The latest symptom from chemo is dry nasal passages. Not sure if it the change in weather or the heater that kicks up at night. This is new for me as I have never had this problem before. Has anyone ever had this happen? If so, what did you do for the problem. Any suggestions would be appreciated. Thank you, in advance,…
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Can your ca19-9 level go up even though tumors are shrinking?
My husbands, who has metastatic pancreatic cancer (spread to his liver) latest Ct scan showed that his tumors have slightly shrunk. The tumor on the pancreas from 3.7cm to 3.0cm and the liver tumors have also shrunk some. However his CA19-9 level has gone up. He has had 4 rounds of chemo so far. Does that mean his…
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Looking for a little little advice for my older brother
my older brother who will be 67 in a few weeks went in for an MRI on his back about a year and a half ago. They accidentally saw a cyst in his pancreas. It was very small about only 2 mm. So now 14 months later, he went for another MRI this time they’re telling him it has grown. I don’t know exactly how much but they want…
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Keytruda
keytruda and renal cancer, has anyone started on kektruda after surgery and if so how are you reacting to it?
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Recently diagnosed. What treatment?
Nodule happened to show on an MRI doctor ordered. CT scan, PT scan, interventional radiology biopsy done = upper right lobe cancer. Not metastatic, 1.a - 1.b. I've seen oncologist, radiation oncologist, thoracic surgeon. Luckily I live near a big hospital complex which includes a cancer center. 'Bout time for me to decide…
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Leaukimia
Any one tell about lekuma how to survive from this
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Penis Rehab after Prostatectomy
The most recent posts I could find on this topic are ten-plus years old, so I thought I’d start a new thread. I am 6 weeks post-surgery. Fortunately, incontinence has been minimal. “Penis Rehabilitation “ (I know, I thought it was a hilarious term, too, but it’s quite serious) was recommended for sexual health. A penis…
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Recently diagnosed of bladder cancer
Hello everyone. I am 46 and was recently diagnosed of bladder cancer of low grade when I found a voided cauliflower looking tissue in my urine and submitted it for histological appraisal. Following TURBT the second histology shows non-invasive high grade but could provide staging due to absence of muscle tissue in the…
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Stories of Beating Stage 4 Cancer???
Hello all. I’m wondering if any of you would be able to share any documented accounts of someone beating stage 4 cancer (either no evidence of disease or long term remission) Preferably colon cancer but any cancer story would be appreciated. I would like to know what that person did to beat it and maybe I can do the same…
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Long-time Ned since recurrence
hello everyone! I was diagnosed almost 6 years ago at 16yo with retroperitonial liposarcoma. Since then I have had surgeries , radiation and chemos for my recurrences. Luckily I have been responding to chemo from the start and I have been Ned for one year and then for another two. This disease seems chronic and creates…
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Information needed on Multiple Myeloma
My friend's Mother was Diagnosed with Mutiple Myeloma two months back, with 40% plasma cells & Mband was present in Serum protein electrophoresis report. Recently we have got the test done again & this time M Band was absent. Does this means that, Multiple myeloma is cured or should we go for Bone Marrow Biopsy test again?…
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Long term Chemo induced neuropathy
Hi. I was diagnosed with 2 types of Ovarian Cancer in 2015. After chemo I became disabled with peripheral neuropathy and my entire life as I knew it changed. Fast forward, I noticed pain and neuropathy symptoms worsening about a year ago and now I have pain, burning, extreme muscle tightness and pain if I'm touched on my…
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COMFORT KIT FOR RADIATION AND CHEMO PILL
Hello Everyone. Was hoping to receive some responses to my 'Radiation for Brain Cancer' post. But I understand there are a multitude of questions and difficult to help everyone. In the meantime, can anyone suggest some things for a care package for my sister-in-law? I'm a cancer survivor myself, and I'm familiar with some…
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New here and scared
Hello, my name is Kim and I was very recently diagnosed with stage 4 kidney cancer. I have a 12cm mass on my right kidney. I donated my left kidney to my sister back in 2003 (she’s still doing great!). They also found nodules on both lungs but they didn’t light up on the PET scan. I will be going for an educational class…
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Help with medical expenses
looking for help making payments for medical bills
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support Groups
hi I live in Port Orange, Florida and I’m looking for an ovarian cancer support group. Does anyone know of any thanks ahead
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What follow-up tests are done after chemo?
Hi OC Sisters: I finished 6 rounds of Carboplatin/Paclitaxol for ovarian endometriod carcinoma stage 2 a few weeks ago, and I am wondering what tests/scans are usually done to monitor recurrences. I am on a 3-month follow-up schedule for 2 years, then 6 months if I remain NED. What sort of follow-up have you had (PET, CT,…
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Name that cancer
I was reading another post and someone had "named" their cancer. At first I was a little taken aback, but then I thought that's kind of funny. They said "Harvey is gone and he's not coming back." I have Non-Hodgkin Lymphoma which I will be living with for a very long time, so I thought if I have to share my body with…
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Mammo callback for right breast micro calcifications-scared
Hello everyone. I am a 50 something year old who just had routine mammogram and got a call back last week for right breast calcifications. I am going in for a closer look 3-D mammography and ultrasound in 10 days. I read that micro calcifications can be normal with age , but sometimes can point to cancer. I read that if…