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Perineural Spread?
Hi all, I am wondering if anyone has had experience with perineural spread? My fiance had two good scans January and April of this year following surgery, radiation, and chemo for SCC base of tongue. Post-surgery and in the radiation planning process there still appeared to be spread along V3 nerve. January MRI and PET/CT…
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Anyone had Artificial Sphincter/Penile Implant at same time?
Over a year later still struggling with incontinence and ED. Saw my Urologist a couple weeks ago for an unrelated issue but brought it up during the visit and he said to give it til February and we’d talk then about one or both procedures. I’ve read it’s beneficial to do both at once since it’s one surgery and one…
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liver canser metastasized from colorectal canser
My sister has stage 4 colon cancer that has metastasized to her liver and has been undergoing chemotherapy for about 8 sessions. After 3 sessions, the masses in her liver shrank, but later, according to the CT scan results, the volume of the masses in her liver has not decreased any more, and the chemotherapy has caused…
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Testosterone
Ladies - I posted asking about HRT after this cancer in uterus is gone - I read it is safe because everything is removed - but I’ve been reading it’s not true - what about testosterone ?
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Awake Trach Procedure - Quite An Experience - Experiencing A New Phase Of H&N
I am writing to give you an update on my health situation. I have been having difficulty breathing on and off now for several months or more. I was usually better as the day went on, and in the evening till I went to bed, I was breathing fine. But in the morning, when I woke up, breathing was difficult. Finally on Monday…
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Total Gastrectomy - Excess Bile Pain Issues and solutions
I would like to share my experience and see if anyone has advice regarding, post stomach cancer Total Gastrectomy w/ Roux-In-Y reconnection, excess bile acid/salts release into the duodenum (gut). I have been living with the somewhat random triggering of excess bile and the acid burning pain, now for almost 12 years ago.…
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AMS 800™ Artificial Urinary Sphincter
has anybody had this done. I’ve heard good things about it. It seems pretty simple but then when I dig deeper, you know it takes six weeks to heal a lot of swelling and needs to be replaced every 7 to 10 need some time and adjustment to get used to but I like to hear it from the horses mouth I mean, I go through a pad or…
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Dental -update
Oncologist gave us a dental surgeon's name to get teeth extrated since they are crumbling. Called insurtance company and said the cover 100 percent and to file under medical. Insurance person at dental surgeon's office said they do not file medical, only dental. I called a regular dentist listed on the insurance network.…
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Abdominal CT Scan without Oral Contrast
Good morning . After being in remission since 2019 , 2 yrs ago some mesentery nodes showed up on my CT scan. Every CT scan I have had since first being diagnosed in 2016 (NH Follicular stage 3B) I have had oral contrast for abdomen and IV contrast for chest. Both at the same time. We have been watching these nodes for…
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CEA level
Has anyone had experience with CEA levels rising exponentially but CT Scans showed no evidence of disease. My oncologist has ordered a PET Scan. What happens if the PET Scan is negative? What are next steps should one take?
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Our friend, NewHere, has passed away.
Anyone who has followed NewHere, these many years, will know that his fight was long and hard, but he gave it his all and then some. What a blessing it was to be a part of his world, albeit online. He was a strength and motivation for me, as I continue to survive. I survive to honour NewHere, and all who have gone the way…
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Stage 3 B/C Colon Cancer
Has anyone here been diagnosed with Stage 3 colon cancer (T4aN1M0 or T4aN2M0) and had a positive outcome? I’d love to hear some success stories or words of hope.
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Side effects of Mitomycin
On 1/8/24, I start treatment for Stage 2 Anal Cancer, & I will have 1 dose of Mitomycin along with 5FU for 96 hrs. At beginning of treatment & 96 hrs. At the end of treatment. Also, 30 rounds of Radiation. I have RA & concerned about the potential side effects of this drug. I appreciate everything that I’ve learned on this…
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Feeling overwhelmed, can't stop crying.
hello, I was recently hospitalized and had to push my treatment back. Since this happened I cannot stop crying and feeling like a failure. I wanted my treatment to go by as quickly as possible and now I don't know when it will start again. My doctor also told me I should take off work until treatment is finished and now I…
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Pneumonectomy remorse
InFebruary of this year, a large (approximately 6.5 cm) tumor was discovered in my left upper chest. A biopsy performed by Hospital A showed it to be Squamous cell cancer (NSCLC). The surgeon at Hospital A described it as operable, a difficult operation but one he could do. To make surgery easier, it was recommended I…
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pain in hips after radiation
five year cancer surviver!!!! But i believe radiation in my hip area has caused me to have pain in my hips ,i cant hardly put on my socks or sit indian style i get charlie horses in that area when in my exersize class.doctors say they dont think it was radiation that caused that but i disagree has anyone else had this…
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Complex kidney cyst in a child?
Hi all, I hope it is ok to post here, but I found this site when searching for info about complex renal cysts. My child has an approximately 1cm complex cyst on his kidney with one or two "areas of septation." It is thin septation but report doesn't say how thin (ie paper thin). The urologist said they don't use Bosniak…
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Boyfriend of 3 years diagnosed last week
my boyfriend was diagnosed last week with esophageal cancer. It’s been a wild ride for all 7 days- Diagnosis, feeding tube, port. This morning he got angry at me for doing too much and that I had my feelings hurt when he didn’t want help. He packed his stuff - driving even though he shouldn’t this coming week. I am…
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Caregiver for husband who is a totally different person now.
My husband has Myelodysplastic syndrome. He has been given 1-3 years. He talks to me so mean now. He never smiles or laughs. He sits in his recliner with the heated blanket and sleeps or stares at the blankly at the tv. I have tried to hold it together and ignore the mean and hateful thinks he says to me but it is really…
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Rectal Nodule
Recently had an endoscopy. A single adenomatous polyp was removed, it was pre-cancerous. Part of a rectal nodule was removed but the biopsy did not get deep enough tissue to rule out a carcinoid lesion. The gastro wants to have a EUS done. I'm leaning towards "No" after reading about chances of finding cancer there after a…
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Nutrition after tooth extraction, several years post radiation for BOT Cancer.
I need to have a tooth pulled and a root canal on another tooth (RC shouldn’t matter). Since my radiation, which was four years ago, my main nutrition comes from 2 large smoothies, 4 total servings daily. Now I’m reading that after extraction I should avoid using straws, and avoid seeds. One of my smoothies has blueberries…
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Managing Bone Health Post-Cancer Treatment: Looking for Tips
Hello all, I'm wondering if anyone here has had bone health problems after cancer treatment. I was diagnosed with cancer a few years back, and my treatment went well, but recently I have been experiencing some pain in my bones and joints, particularly in my legs and lower back. I know that chemotherapy and radiation…
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Cured of Edwing Sarcoma 9 years clean scans
Cured of edwing sarcoma, surgery on january 2016 in Moffitt cancer center Tampa FL. Hundred of metastasis on my lungs surgeon toke 14 tumor so I could breathe send home with a prescription for hospice, toke Protocell for one year, no kimo no radiation scans clear for the last nine years. praise God.
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Wishing A Happy And Blessed 2025 Thanksgiving To Everyone
For each new morning with its light, For rest and shelter of the night, For health and food, for love and friends, For everything Thy goodness sends. ~Ralph Waldo Emerson Wishing Everyone A Happy Thanksgiving 2024 Hello everyone on the CSN H&N discussion board. Wishing everyone a Happy Thanksgiving. Inviting everyone to…
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severe mood/endocrine/mental health effects from steroids?
New here- my husband was dx fall 2023 with stage 4 oligometastatic CRC (mets to liver). He is (thank God!) NED as of a couple months ago, after 4 months of CAPOX, LAR/hai pump install, HAI pump chemo + systemic irinotecan, ablation, 4 more months of irinotecan, liver resection, HAI pump replacement. He is now on cleanup…
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Prostate cancer treatment following colon cancer surgery
I am interested to hear from list members who may have experienced prostate cancer treatments on the heals of colon cancer surgery. Ihad a routine PSA test in May 2025, which came back with 13. A urologist sent me for MRI in August 2025, which gave a pirads of 4. The clinic's only biopsy probe was broken, so my biopsy was…
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PSA 4.5 after IRE
i am shocked that my psa is 4.5 three months after IRE procedure. I did have the blood drawn the same day I had sex- not knowing ejaculation could alter the results. But 4.5 is very high…not sure what is next.
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Hi All!
It's been a long time since I've visited, and I find myself very nostalgic and missing you ladies who kept me company on this journey. I'd love to hear from my beautiful "old-timers" who are still here on the boards, and hear news about those who aren't. I also want to encourage y'all that miracles really do happen. I…
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Recovery time for bilateral mastectomy?
I'm starting to get a little scared because next week I'm having a bilateral mastectomy with no reconstruction. I just finished chemo (4 rounds of A/C and 4 rounds of Taxotere). I'm wondering if anyone out here has gone through this and could tell me what to expect after the surgery?I'm scheduled to be in the hospital for…
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Dental problems after radiation, 2nd time
I had hodgkin disease 22 years ago, and again one year later, then in 2008 I was diagnosed with a malignant tonsil. Radiation again. My teeth were fixed several times through all this, but the radiation has destroyed them this time. They are brittle, breaking, decaying and just falling apart. I have had 5 pulled so far. I…