Neuroendocrine tumors/cancer
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JMS1989
CSN Member Posts: 1 *
Hello all! I am curious as to if there is anyone else here fighting neuroendocrine tumors/cancer? I'm 36 years old & was diagnosed at 34 with my primary tumor site being in my small intestine and my appendix with mets to my liver. I'm currently being treated at Henry Ford Hospital in Detroit, Michigan and am receiving PRRT (Lutathera) every 8 weeks and Lanreotide injections every 28 days. I've had 3 debulking surgeries already and am also on the liver transplant list at Henry Ford as well. Please reach out to me if you're fighting this awful disease, I'm looking for support as it's very lonely being a young cancer fighter. Thank you in advance!
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