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No insurance,no medicare, no medicaid, and bladder cancer
My dad was just diagnosed with an advanced bladder tumor. Resources are dwindling fast. Where to go? What to do?
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So, so many questions and worries.
First time visitor, first time posting… A bit about my story first. I was diagnosed on 9/28/23 when I was 48 years old. Gleason 9, CHEK2 mutation. Had the prostectomy in November of '23. Prior to the surgery I was having lots of low back and lower body pains and fatigue. Post surgery those pains and fatigue were absent…
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In home (CNA/other?) support while going thru chemo
Last Fri wife was diagnosed with non-hodgkin lymphoma. ,, large B-Cell … something… Had one appt in top school cancer program in the area to confirm biopsy… in couple days she is going for pet scan…. and likely for chemo after that. Wife is in middle 50s and so am I. I still need to work. Right now I am working remotely…
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Question for my cousin diagnosed with inoperable tumor
I hope someone can help us understand what is happening to our dear Maria. She was told she has only months to live because she has brain cancer. We are beside ourselves. My aunt doesn't even know how to say the type of tumor she has! What type of tumor makes it hard to walk, hard to talk and makes a patient lose their…
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How to find a support group for mother who lives in another state
My mother has had a double mastectomy and lymp nodes removed and is now having a biopsy on her lung. She is tired of dealing with cancer and angry. I need to find a support group near her and I don't live in the same state as her. How can I find a support network for her?
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Less than 24 hours post Surgery
Wheeled down to operating room at 7:30am yesterday for a Single Port, Nerve Sparring and ligament sparring (non cutting of ligament connected to bladder) Robotic Laparoscopic Prostatectomy. Completed at 1:30pm and sent to recovery and discharged home at 5:00pm. Doctor talked to wife afterwards and she recalled him…
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Pain in finger joints - Side effect of Orgovyx
Has anyone had this side effect. And does anyone know how to make it better? I've read that it could be caused by interactions with vitamins and supplements.
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Upcoming Appointment - Nervous
So this is my first time posting. Since the first call from my doctor on July 9th telling me I had an elevated 5.02 PSA I have been worried. I finally have my appointment with the urologist tomorrow and I am thinking I'll be having a DRE and may be referred for a biopsy based on my numbers and what I've read online (I know…
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Need some support
My daughter was diagnosed with stage 3 breast cancer (BRCA 2) at age 27 and underwent double mastectomy, oophorectomy, chemo, etc. Is doing well now and has a 5 year old and 3 year old. My wife and other two daughters also tested positive for BRCA 2. It tore me apart to see my daughter go through what she did and also that…
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Living Alone during Chemo
Will I be able to manage my chemo treatments living alone? I’m 65 and live in a RV at a beautiful RV resort on the lake. I’m starting 3 rounds 3 weeks apart - surgery- then 3 more chemo treatments. I have a neighbor who works part time so it mainly is me on my own. Anyone else manage? I do have family 2000 miles away and a…
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Spotting
I am 13 months past my hysterectomy. Two weeks ago I had some blood in my underwear. Is this common this long after surgery?
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Article about new treatment protocol
It's always nice to see a new article about endometrial cancer.
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Enhertu for MBC Mets to Brain
Anyone out there with MBC to liver, bones, and brain that took Enhertu or currently taking it for HER 2 positive? How are you doing?
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No Symptoms to STAGE 4 CANCER! - Michael | Head and Neck Cancer | The Patient Story
A friend has recently made me aware of this video knowing of my situation with H&N cancer and thought it would be of interest to me. Well, I think it is a very good video and the fellow speaks from experience and from the heart and is very detailed and open about his whole cancer process and recovery speaking about the…
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Passing gas after surgery
Still trying to pass gas. Usually it was not an issue before surgery in the morning on my side very easily. Can you lay on your side after surgery I heard you needed to stay on back. Just out of surgery day and half.
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KISQALI and NAUSEA
My wife just started the Kisqali. 600mg for the three week period, then two weeks off because her white blood cell count was too low after the one week break. She just started the second session a week ago. Every morning she is nauseous. Is this common, and does it subside after a while. I don't know if we should ask the…
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"Baroreflex" Failure" A Rare Late Effect Of Radiation Treatment
I came across this article written by a Gentleman on another forum about late-term post-radiation effects which can give you a condition where your blood pressure swings wildly from high to low or low to high without notice. There is no cure but some control can be realized with meds. I just wanted to let the group know…
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My story and looking for questions in preparation for surgeon consultation
My doctor has been monitoring my PSA for several years, thankfully. The last several years PSA readings have been relatively stable 3.096, 3.166, 4.231 , 3.826, … then 5.4. The reading of 3.86 was accompanied by a free PSA % of 13. And the free PSA % was the first alert that I need further examination. So off to the…
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Taxotere and watery eyes
Anyone experience watery eyes while taking taxotere....do you have a solutions?
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It feels just like I'm going through radiation again...Help!
I was treated for cancer of the voice box almost 5 years ago and have done fine up until this fall. I've been to my ENT and Radiologist and then down to Florida for a month's vacation. My symptons have gotten worse each week, and I am so happy to be home again. I'm going for a Pet Scan and to see my Radiologist on…
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ssc, hpv in tonsils on both sides and eblarged lymph node
While the biopsy only showed ssC in 1 the right tonsil and left lymph node my dr warned me it was uncommon and cancer was probably in both, he was right. The biopsy also showed negative for HPV which the Dr also said was unlikely, he was right again. I had the tonsils and lymph nodes on both sides removed 10/10/22 and was…
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Oncology Treatment for International Patients
Hello All! Does anyone have insight on how an international cancer patient can receive treatment in the US? Thanks!
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Caregiver Chat Room
I see a lot of references to a Caregive Chat Room but cannot find the link on this website to get to it. Can anyone tell me how to find it?
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Cancer And The Regular Guy- My Top 10 Cancer Treatment Recovery Tips
In this video, he will be discussing His Top 10 Essential Tips for recovering from cancer treatment. Whether you are currently undergoing treatment or have recently completed it, these tips will help you navigate the recovery process and promote healing. From managing side effects to incorporating healthy habits into your…
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Newly Diagnosed with Mycosis Fungoides
Any have this type of cancer and if so how are you managing?
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MYCOSIS FUNGOIDES, Cutaneous T Cell Lymphoma
Hi there, has anyone been diagnosed with MYCOSIS FUNGOIDES? It's a blood cancer that effects the skin. it is the under the umbrella of Non-Hogkins lymphoma . thank you
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SBRT side effect?
I had SBRT Cybeknife treatment in late December 2023. In the 2 - 3 weeks after treatment the only side effect that I experienced was a change in bathroom routine. I felt a pressure (need) to empty my bowels when there really wasn't anything there to get rid of. When there was something to get rid of the pressure would…
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Taxol/carboplatin side effects???
Hello I am new here and I was diagnosed with IDC TNBC no mutation in July 2024. I start chemo August 26, 2024. I have 12 rounds of taxol/ carboplatin and then 4 rounds of AC with keytruda every three weeks for a year. I’m extremely scared and no one can tell me what side effects I may have. So I was wondering if anyone had…
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How to overcome fear of losing your spouse?
Hi, kidney cancer family. My wife's story is a unique one. She found out about her kidney cancer in May of this year and by July she had a full nephrectomy of her right kidney. After analyzing the stage 3 tumor, the surgeon said there is no evidence of spread and that they were able to completely remove the cancer. He…
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New Here - what comes next...
Hi, I have been reading and just wanted to say hello. 5 years ago the urologist found "something" on my kidney. The oncologist reviewed and said its quite small, no interference with kidney function lets monitor. Fast forward to March 2024 my MRI came back with 3cm Clear Cell Renal Carcinoma. Of course this stopped me on a…