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New here with some questions
I’m posting with regard to my husband’s situation. His PSA level came in at 5.5. He doesn’t remember if he ever had a test before, so not sure how long it’s been high. Our PCP referred him to a urologist who recommended an MRI. The results showed PI-RADS level four. Doctor said he could wait six months and have PSA levels…
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Have you been ghosted?
I feel like I have lost so many people since I told them about my cancer diagnosis. Friends and family both. I wish I could go back in time and not even tell them. It’s so painful to process that they haven’t even texted me a “how are you doing”. Cancer without any support is really horrible. Thanks for reading.
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Needed Support
I Was dignosed in 2023. I have been doing Immotheraphy since September. But now They say I need a byospy on the left side of my neck where it all started. They found a small spot on the left side of my neck. They say it is bigger then it was last year. I'm scared and don't know what to expect. Does anyone know what they…
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Recurrent esophageal cancer
Hello to you all. My husband was initially dx w/stage IV EC in April 2018, at age 55. After 2-1/2 years of aggressive chemo, he's been in remission since mid-2020. He was declared NED and we were elated!! Other than neuropathy in his feet which is quite bad, no swallowing problems or other symptoms. He had a routine…
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Waiting
Waiting is the worst!!! I had a CT last Thursday, and my appointment is this Wednesday. I have a pea sized lump, like right on the front of my trachea, slightly right - I know the rules, don't say cancer until you are told it's cancer. But I've been around a while, and not being able to swallow, or serious choking when I…
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Frustrated
These forums only succeed in making me angry, because there is no help for vulvar cancer in my area except surgery then no support after... not even reliable surveillance for recurrence. One surgery was left incomplete resulting in a new tumor which was misdiagnosed as a genital wart and lichen simplex was misdiagnosed as…
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Stage 4 Rectal Cancer w/Liver Metastasize
I've spent 2 months getting colonoscopy and liver biopsy. Next week I get surgery for colostomy and CIC implant. I'm seeking others who have experience similar based on your experience for good and or poor feedback. Thanks!
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Essential Items For Head And Neck Cancer Patients. These are things we've needed and that have help
This was an idea and thread started by adventurebob a couple of years ago. These are all items we compiled as things we found we really needed to help us get through treatment. Obviously, no one needs everything, but I know I used a lot of stuff off this list. So perhaps if you are just starting treatment, or know some one…
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Dental implants post recovery
It's pretty surprising there are no threads on dental implants in this group. Well, here's my situation. Brief backstory - My cancer treatment, radiation and chemo, was a decade ago and successfully treated the cancer with very few long term side effects. Two teeth were extracted as a precaution prior to treatments with no…
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Help! Proton Beam Therapy vs Surgery?
Hello! I am new to this group and new to the family of brothers with a prostate cancer diagnosis. I have read through many of your questions and answers and appreciate the support you have given each other. I can really use some help with deciding on surgery or radiation treatment for my prostate cancer. I am 55 years old…
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Brachytherapy tomorrow
I have the HDR Brachytherapy tomorrow. I am a little nervous for at least the surgery part of this. I am not sure what side effects I should be expecting with the radiation. They prescribed me a couple a bunch of urinary type meds. I am expecting to come home tomorrow evening. Thus definitely doesn't sound like fun
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Eligard (How Long)
Hello this is my first time using this forum. I was diagnosed with agressive prostate cancer two years ago. Gleason 9-10. PSA was 9.0 . After surgery to remove prostate, my PSA was down to 0.65 (scans showed a bit of cancer spread to surgical area lymph nodes) I started on Eligard, did radiation therapy and my hospital…
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HPV Related Tonsil Cancer - Surgery Only
Hi All, I am a 37 year old female that was recently diagnosed with HPV related tonsil cancer. I had a radical tonsillectomy and neck dissection on the right side of my neck where they removed 40 lymph nodes. My primary tumor in my tonsil measured 1.5mm and cancer was detected in 1 lymph node measuring at 3mm. The cancer…
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Newly diagnosed
I am glad I found this site. I was diagnosed 3/23/24. My first oncology appointment is 4/1. From the pathology and scans it looks like I am stage 3 - scary but survivable. Reading some of the posts I have been able to develop a list of questions for that first visit. I have a number of health issues, including MS and…
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long term side effects/Anyone know if my teeth problems could be related to the chemo treatment?
Hello, new member here. I went through treatment 6 years ago. Had 5-fluorouracil (5-FU) and mitomycin as well as 35 radiation treatments. I'm now experiencing the long term side effects of each. I've had IBS for 4 years and now have a bad ulcer in my sigmoid colon. Also experiencing tooth decay/loss/periodontal problems…
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Post Treatment Questions
Hi everyone, My husband completed 7 weeks of Cisplatin and radiation on April 5th. As expected the first several weeks after were the worst but he has been steadily improving since. His first ENT appt went well and there was no visable signs of remaining issues and his PET scan is scheduled for the 24th. There are two…
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BPH symptoms while on ADT
Hey guys, Im 73 YO, diagnosed with PC 11/23, prostate measures a whopping 88cc, PIRAD5, Gleason 4+3, T3N1M0. 3 of 12 cores positive grades1-3 with grade 3 being 4+3 with pattern 4 @65% of tissue. Currently on ADT/ FIRMAGON for 1 month then another late January then 3 month ELIGARD injection. My question is I am expecting…
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How long should eligard shots continue
Finished radiation 10/1/2023. Radiologist on April 2024 said I was cancer free and PSA was .014. Urologist las been continuing shots every 3 months since October. Received one today and found out he's scheduled me for 4 more. Is this necessary? Side effects awful.
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What can nurses do to better help you?
I am an RN student and I would like to know what the nurses who care for you could do to better help you? I'm anxious to get your feedback! Please reply!
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Salvage radiation after surgery, when to start?
The standard salvation treatments started when PSA reached 0.2 after surgery but I have read that some cancer centers started treatments when PSA reached 0.1. There is a fear of early treatments as they may caused more harm than good as the prostate is no longer there to shielded other organs. I have recently read the…
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Constipation months after prostate surgery
Out of the blue and six months after Radical Prostatectomy, I'm having an uncomfortable/painful episode of constipation that I've not experienced before. Cannot trace it to anything. My surgeon's nurse has recommended over-the-counter laxative. I'm doing that, but a bit concerned. If anyone's had a similar experience,…
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Celebrating my 5 year cancer free anniversary this week!
Having my appointment on Tuesday with oncologist. 5 years since my cancer journey began. Not one day goes by without forgetting how grateful I'm still here. Phew! After going through that treatment makes you able to handle just about anything else. Grateful for all on this forum. I don't come here often anymore but in the…
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Joint pain
I had stage 3 colorectal cancer last year. I had radiation with oral chemo. Chemotherapy. Ileostomy for 11 months and Mass removal surgery. And now I have such SEVERE joint pain. It’s every single joint. I literally hurt 24/7. Has anyone else had this problem?
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Age 76, PSA level 86
Hi All, recently I tested PSA level 86 after I did my CECT abdomen and Pelvis done due to swelling near waist area. "Moderate right hydronephrosis is seen caused by extraluminal compression of enlarged lymph nodes at iliae vessels crossing". Any one has had similar findings before they got diagnosed with Prostate cancer?…
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My study of cancer
I do a lot of research and a healthier lifestyle can significantly reduce your risk for cancer. When you have diagnosis that means your cancer developed quite a long time. Cancer is from chronic inflammation. Certain cancers need different treatments. For example, colon cancer was from inflammation of the colon so you…
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Arm Pit Pain
I had a lymph node dissection done in 2000 with 2 nodes positive. Anyway my question is has anyone experienced pain, not constant, but when its there annoying... not enough to use pain medication ... the word I'm looking for is that it kind of radiates. Love and best wishes to everyone on this board, I don't post often but…
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Sister just diagnosed with T4b rectal cancer
My 62 yr old sister was just diagnosed with T4b rectal cancer by Mayo Clinic in MN. We will meet with her team next Wed. to discuss treatment plan, etc. It felt like the life was sucked out of us with the MRI report. We don't know what to expect, what questions to ask, or anything else. We are overwhelmed & in shock right…
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Non-Hodgkin's Burkitt's Lymphoma Survivors?
Hello, I was diagnosed when I was 15, and relapsed when I was 16. I'm now attending college and I find that I'm still dealing with some delayed responses and I have a lot of trouble focusing and remembering things. I was wondering if there was anyone else out there who can relate. :) I've been in remission nearly five…
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I need light redirect jokes for the constant how are you feeling question.
I need light redirect jokes for the constant how are you feeling question. I've been using Dave Ramsey's " better than I deserve" But it has stopped working. Does anyone have any puns or jokes to share that are clean and light and will not leave the questioner upset?
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Prostrate cancer PSA
I am a 60 year old man that has had his prostrate removed Sept 2021. I had a PSA of 36 with a Gleason score of 6. Stage 2 because of the high PSA but also BPH I had been on active surv since 2013 PSA of 2 . In 2013 I had my first biopsy were one needle out of 12 cores showed Gleason score 6 on 5 % on the needle but spend 3…