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Undifferentiated Pleomorphic Sarcoma
Hello All! My name is Alyssa. I am 30 years old. I am new here, and honestly wish I had known about this website earlier. It would have been a great extra support system. I am currently struggling emotionally and physically as a recent cancer survivor of Stage III Undifferentiated Pleomorphic Sarcoma. The large tumor that…
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Asking for info / Venting a bit before tomorrow's appointment
I first posted back in December when I was getting scheduled for a biopsy. Here is my story so far. I should probably just wait for tomorrow's appt with my urologist, but want to go into that appt with some knowledge of what to expect. My wife is the worrier. I am supposed to be the rock. Need to know a few things so I can…
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T-Cell CNS lymphoma diagnosis
Male, age 58. Diagnosis is T-Cell CNS LYMPHOMA. Wondering if there is anyone else with the same diagnosis.
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what kind of doctor is this
My father, 82, had a gastrectomy last year and was too weak for preventive chemo. Now he is stronger, has put on weight and has been feeling better since May. His recent blood test was OK, but the doctor says that anyway, "as we knew" (!), the cancer had spread and suspects that something is wrong in the patient's urine…
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Small intestine cancer stage 4 (very rare)
Hello everyone! 2 1/2 years ago my husband was diagnosed with stage 3 small intestine cancer. He went through 12 rounds of chemo and has been doing great until his last CT scan in December 2024. After reviewing the CT scan the doctor requested a PET scan and a biopsy . Today we met with the oncologist who informed us the…
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Ampullary cancer with no treatment
I was diagnosed with Ampullary cancer in November 2024 and that came as a total shock since I was being treated for a pressure sore. My doctor recommends not having a Whipple. I have had MS that was first diagnosed in 1984 and it is quite advanced being paralyzed from my waist down. My left side has only gross motor…
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Conjuctival Malignant melanoma
My name is Carrie, I was diagnosed with a very rare form of eye cancer about 2 years ago called , conjuctival malignant melanoma. It makes up about 2% of all eye tumors . To find people with with this type of cancer has been very difficult , to say the least. To find a Dr. To treat it in AZ. has been near to impossible. I…
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Newbie here looking to input with my new diagnosis of PRCC Grade 3
Hello, I am newly diagnosed with PRCC grade 3 after a partial Nephrectomy. Im looking for some advice from others that have battled this fight. My main concern is the fight it took to actually get to the point on finding this cancer. My original complaint to doctors was my body was just off. I was working out twice a day…
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See a newborn baby
I am a 67-year-old male who was diagnosed with T1AHG bladder cancer last March. I have had eight sessions of Docetaxel\Gemcitabine with four tumor resections and the cancer is still there. I recently started BCG and have had 3 of the six sessions. My daughter is having my first grandchild 2-23-25 and my sixth BCG session…
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Laporoscopy results for Periotoneal/Colon/Stage 4
So.my husband (Stage 4 colon and peritoneal) had a laproscopy performed 2 weeks ago. 3 biopsies came back from peritoneoum and show NO CANCER, NO TUMOR. This is after 6 rounds of chemo. ANyone else get a positive result like this after chemo for cancer that we were told was diffuse and sprinkled throughout abdomen. We are…
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biopsy results gleason 6
just got the news. im 69yrs old 6 out of 12 positive all on left side. PSA is 5.8 but have been taking Dut for bph, Psd is .19, gleason 6, T1c, grade 1 ,Dre was normal. im trying to get a quick education in this area. My urologist spent 10 minutes with me , asked me if i was still sexually active and made an appointment to…
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Possible Malignancy Remaining Kidbey
Hi - I had a full Nephrectomy in Feb 2019. It was stage 3 RCC. Surveillance scans annually. I just had one done and there is a 2.0cm solid lesion on my remaining kidney. Radiology noted it as concerning for malignancy. I don’t have my follow up with Urology for 3 weeks yet. I’m formulating questions to ask and I think…
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External radiation and brachytherapy for reoccurrence
I was diagnosed with Stage 1 grade 1a endometrial adenocarcinoma last year and had a total hysterectomy. Last month they discovered a recurrence and had a PETCT scan. Thankfully, they found nothing more but I learned today that the protocol is 5.5 weeks of external radiation (5 days/week) followed by 3 sessions of…
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reading bone scan results
Can anyone explain what it means when the bone scan result says there is rounded moderately intense abnormal uptake involving the left posterior mid cervical spine distribution? My husband has been diagnosed with prostate cancer, and I am just trying to understand his bone scan results. Thanks
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Looking for a little little advice for my older brother
my older brother who will be 67 in a few weeks went in for an MRI on his back about a year and a half ago. They accidentally saw a cyst in his pancreas. It was very small about only 2 mm. So now 14 months later, he went for another MRI this time they’re telling him it has grown. I don’t know exactly how much but they want…
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Beards--Post Radiation--Guys Weigh In Here
My beard doesn't grow in consistently and evenly like it used to since I had radiation and I am pretty sure others on here have mentioned it so guys weigh in here and let us know did your beard change after radiation? Such as general growth, thickness, patchy growth, etc., or no changes.
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My wife is diagnosed with Peritoneal Cancer Stage III - we are scared
Hi all, My wife, age 49, was diagnosed with Peritoneal Cancer Stage III three weeks ago. She had bloating and swelled abdomen, went to family physician for checkup. Physician sends her to ER and after CT scan news was revealed to us. We have four girls and younger is 12 years old. Then she went for surgery for remove her…
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ADT/breast pain or breast enlargement
would some of the panel members please share with me their experiences with breast pain or breast englargement while taking lupron. i have talked to some men that only had a small increase of breast size while others have gone as far as surgicial reduction.
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18 months post RP
Just got PSA < .1 So far, so good.
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Question
so my question is.. there anyone that beat stage 4 colon cancer that went to the abdominal lining?
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R-EPOCH
Looking for anyone who has been through R-EPOCH chemo. My fiancé was just diagnosed. He will have six cycles of this chemo. He completed his first round a few weeks ago. Starts his second round on Friday. He will go 5 days in a row. Looking for personal experiences with this type of treatment - side effects, tips/tricks,…
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help for the hopeless?
hi, everyone, joining this five years into caring for my sick dad (first it was covid, now it’s end stage metastatic head and neck cancer), maybe just to vent, but maybe someone here knows what to do in my situation. at the beginning, dad’s cancer diagnosis was positive and he was receiving care at the preeminent cancer…
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radical prostatectomy after HOLEP - Is it possible?
I had a partial HOLEP after I was not able to urinate, and they found cancer - Gleason 3+4. An MRI showed that there was still cancer in my prostate. Everyone wants me to have radiation, but I would rather have another HOLEP operation and remove the rest of my prostate. My radiologist says that no surgeon would do this do…
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Husband survivor of HPV throat cancer
My husband underwent intense treatment for HPV Throat cancer in may 2023 and while the cancer is gone, the after effects have been brutal:unable to swallow solids without choking, swelling due to radiation necrosis and lymphedema, sleep apnea. He’s become so discouraged and it’s so hard to just watch him give up. He won’t…
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HIFU in Phoenix area
I had a partial HOLEP after I was not able to urinate, and they found cancer - Gleason 3+4. An MRI showed that there was PI-RADS category 4 suspicious mass, right posterior lateral basilar peripheral zone. I will get a biopsy in March. Everyone wants me to have radiation, but I would rather have HIFU. I would like to hear…
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Car T Cell Therapy
Hi everyone, My mom (61 years old) was recently diagnosed with DLBCL stage 4 and has undergoed 5 lines of chemo. Since it is so aggressive, she is no longer a candidate for a stem cell transplant. We are going to Dana Farber in Boston next week to talk about Car T cell therapy. Insurance is becoming a challenge and the…
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I've been fighting insurance and medical bills not cancer
In August 2024, I was diagnosed with renal cancer that had spread and attached itself to my spine. I work for myself, so I got private health insurance. They would only insure me for one year at a time. My insurance expired on November 7,2024, but that's alright because I got on my wife's company's plan. My old insurance…
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Gleason score of 7
In 3 of 12 biopsies Dr wants to remove prostate ? Should I ? Or better options ?
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newly diagnosed prostate cancer
I am 71 yo male in fairly good physical shape. Had an MRI done after an elevated PSA of 11.3 on early January 2025. The diagnosis as per UCLA was a Locally Advanced Prostate Cancer. I am scheduled for a biopsy on February 11th. I have visited with several different urologists to learn about my options. I am also looking…
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Looking for Kaiser MDs, Bay Area if possible
Hi, My husband, Jim has 4+3 Gleason score, PSA 10.4 (11/2024), PSMA PET is negative for spread, MRI showing the tumor is on the left side and "extracapsular". The treatment options presented to Jim are surgery or ADT/brachytherapy/external beam radiation. I've seen posts here from 2010 and 2014 naming some surgeons at…