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Biggest incision swells
hi all, Had a partial nephrectomy 10/23, RCC clear stage 2, feeling pretty good at almost 3 weeks post op, my concern in that my largest incision, one right below my left ribcage swells when I eat. I realize it’s right where my stomach and transverse colon is, could that be why? Should I be concerned? Anyone else have…
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Translocation RCC
Hi all, My younger brother ( 33 yo) was recently diagnosed with a 20cm left kidney mass after having a cough for two months and then suddenly night sweats and weight loss in Sept 2024, underwent left open radical nephrectomy. The pathology report showed mixed cell types and spread to nearby lymph nodes. After 4 weeks…
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My experience with Akeega
Akeega is the only FDA-approved treatment with BRAC+ metatstatic castration-resistant prostate cancer. In other words, if you are one of the 1% of men with the BRAC gene the chemical castration drugs will not work against your Prostate cancer. Check with your doctor to find out if you have the BRAC gene. Don't assume that…
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Parent of newly diagnosed son with cancer
my daughter n law and son do not want me at the hospital for his surgery, which is 2 hours away. If complications I cannot get there quickly.know my son is going through a lot but being there for him helps me too. We have always been close until he married. Thought I was gaining a daughter, but actually lost my so.. now…
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4th Recurrence
Hello, I'm Marchu from Buenos Aires. I have cervix cancer since 2017, when I had an histerectomy, then I had recurrences in 2018 and 2020 in which I received radio and chemotherapy. Then in 2023 I had a 3rd recurrence, and I received chemo and inmunotherapy which at first worked, but now that I'm receiving only…
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LMS- AGGRESSIVE RECURRENCE
Hi, brave and wonderful people! So happy to hear there are people who have managed to survive this extremely aggressive type of cancer. I want to send a big hug and thank you to you all, for your optimist and strength and may you stay strong and positive in order to win this battle. Reading your lines, i felt enouraged to…
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Tumor is back
They found tumors on my left kidney in 2016 and performed a partial left nephrectomy. They’re back. Now they’re removing the entire kidney. My doctor hates me. They scheduled the procedure for March. I called once to ask if I could get an earlier date. I was worried it would spread. I went in to talk to my doctor in…
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URETHRA
I'm not sure if this is a new question, but I had my operation 2 years ago and I still do not feel anything in my urethra when I urinate. Has this happen to anyone else? Thank you
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Stage 4 RCC that has metastasized
My 82yr old Mom was diagnosed with Stage 4 Kidney Cancer that has metastasized in her ribs, liver and spine. Prior to finding out she was living a normal lifestyle at her age and this has been quite a shock. By the time we were figured out what DR’s we need to see and all the tests we are now almost 4mo’s into this and so…
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Cabometyx side effects
hi I’m new here. My husband has been living with RCC for seven years. He had kidney removed and at the time they found spots in his lungs. Spots were slow growing so for most of that time he has been symptom free. But over the last year cancer has spread to other areas and tumors in lungs are larger. He was put on Cabo…
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My Story Consolidated
I have started several threads but thought I'd do a new one as a summation and then just keep this one to update going forward. A brief review: I'm 52 and diagnosed with prostate cancer last month. Family history is bad: father and maternal grandfather died of prostate cancer; mother and her sister died of breast cancer;…
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Decipher testing
Is this considered standard of care when a biopsy is taken?
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Low Grade MEC on hard palate
Hi there! I wanted to share my story and ask if someone had similar issue (I read a lot of comments from ekdennie here, I think your case is similar to mine and it would be great if you reply here 😊). I had a lump on my hard palate for about 1.5-2 years. It did not hurt, and it was as smooth as my hard palate, so I thought…
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Needing answers regarding 9 year's after port was removed
After surviving B.C. for 9 years, in the area where my port "used to be" is giving me "sharp" pains when I do any exertion like walking, sometimes pain goes down my left arm, laying down or bending over, etc. It has been going on now for about a year. EKG doesn't show anything. This sharp pain is scaring me with my age of…
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Mental Health Help and General support.
Hi All, First post! I was diagnosed with Pancreatic adenocarcinoma Stage 1A - Valentines day 2020, age 48 Male- so I just passed 3 years! I got lucky and had jaundice eventually, the CT scan the prior week missed my tumor. I had 6 rounds of Folforinox, & had a Whipple at AdventHealth Orlando. I have really bad PTSD,…
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Whipple Attack
I've only had 3 episodes that i think are Whipple attacks... And only recently (within the last month). I was whipped June 2, 2020 and I have been NED since Oct 2. Last month, i was asleep during the day, in my recliner, and had a sharp pain in my abdomen that awakened me & only lasted about 30 seconds. The second two…
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Clogged tear ducts
about a week after my first round of chemo, I started getting clogged tear ducts. I am wondering if anybody else has had this experience and what you did to help? I have discussed with my nurse navigator, but I don’t get quick feedback so I thought I would post here. So far, I am using a soft washcloth, soaked in warm…
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Hair not growing back after Cold Capping
I cold capped and managed to keep about half my hair, but 12+ weeks after finishing chemo, I'm not noticing any new growth. I'm worried the cold cap permanently damaged my follicles. Has anyone experienced slow growth after cold capping and/or permanent hair loss?
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First Day of Chemo
how did you prepare for your first day of chemo? Did you have breakfast, did you fast and only have fluids? What did you bring or what was priority to bring? I know to bring ice mitts and booties for my taxol/carboplatin/keytruda. Did anyone have a reaction to taxol and if so what happened? After chemo did you have nausea…
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mRNA vaccines
Much like how the COVID vaccine is based on mRNA there are VERY promising studies going on using mRNA vaccines to treat cancer. Here is just one link but there are many clinical trials going on with early promising results. This may be the next greatest discovery since immunotherapy for cancer treatment! mRNA Vaccine…
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Six years no recurrence after uterine serous/clear cell stage 1a with isolated tumor cells in node
Hi. I'm coming up on the six year anniversary of my diagnosis and treatment for uterine serous/clear cell cancer. Mine was in the upper part of the uterus, and one sentinel node had isolated tumor cells in it. I was treated with hysterectomy, 6 rounds of carboplatin, Taxol, and added in Herceptin, which was not standard at…
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Lymphedema
I had l4 lymph nodes removed (6 had cancer). I was sent to a lymphedema specialist and she gave me exercises, a massage routine, and a sleeve to wear. I'm wondering what other survivors do about the possibility of lymphedema. Somehow, dealing with preventing it is a constant reminder of the cancer.
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Nanoknife my journey
Hello everyone! I had my Nanoknife procedure performed on August 29, 2023 and I am reporting back my experience. To make it easy to follow I will use sequential numbers below. For detailed background check previous postings. On another note, using this site is not an easy task for me. Procedure time about one hour under…
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Gemzar infusion
I’m stage 4 metastatic breast cancer patient. The only treatment left for me is an infusion of Gemzar chemo of which I don’t know anything about. They want to start the infusions in about two weeks. I was told if I choose to do nothing I have about 6 months; I have no idea how long I can survive on the infusion. I want to…
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Stage 4 metastatic breast cancer
My mom (48) was diagnosed with stage III breast cancer two years ago. She finished chemo and radiation treatment 6 months ago and just got results back that it’s now in her brain, lungs, spine and esophagus. She isn’t doing well mentally and every time we talk ( I live 6 hours away) all she does is cry. I’m worried about…
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Emotional Support Recommendations for Newly Diagnosis Young Breast Cancer Patients
Hi, looking for advice and/or suggestions for in-person or virtual breast cancer support groups.
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Treatment Decision
Am 63 and have been dealing with a rising PSA that started at 5.5 over the last couple of years. In 22 I had a Biopsy done with no Cancer cells found. PSA continued to rise and hit 10.5 this year. Biopsy found Cancer cells in 20% of the right side samples. Gleason score came back as 4+4. Options are Surgery without Nerve…
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Complex Regional Pain Syndrome 8 year after head and neck cancer treatment
Hi everyone, I am 8 years after tonsil cancer. About a year ago I started having occational face pain waking me up in the middle of yhe night. Then I lost sensation in my chin and lips on the right side. Pains become part of every day life. It is in my mouth, face,and gums. Burning, pins and needles, aches and stabing all…
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Internal/external radiation for cervical cancer
I had cervical cancer in 2003 and had internal and external radiation. I used a dilator, along with sex, maybe 1-2 times weekly to no avail. Even unsung the dialators 3-4 times weekly didn't prevent me from completely closing 2 years ago. I am devastated and have tried to be grateful for life, but it saddens me to not be…
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A cautionary tale on post-treatment - thyroid
It has now been six years since I was a regular on this forum. I came because I was Stage 3 HPV16 SCC on my tonsil. I did 35 IMRT and 5 carbo. For the last +5 years I have been clear, NED, and no longer see any Oncs. Taste returned, most saliva has returned, I now have to fight to keep weight off. This summer I was doing…