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ssc, hpv in tonsils on both sides and eblarged lymph node
While the biopsy only showed ssC in 1 the right tonsil and left lymph node my dr warned me it was uncommon and cancer was probably in both, he was right. The biopsy also showed negative for HPV which the Dr also said was unlikely, he was right again. I had the tonsils and lymph nodes on both sides removed 10/10/22 and was…
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Oncology Treatment for International Patients
Hello All! Does anyone have insight on how an international cancer patient can receive treatment in the US? Thanks!
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Caregiver Chat Room
I see a lot of references to a Caregive Chat Room but cannot find the link on this website to get to it. Can anyone tell me how to find it?
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Cancer And The Regular Guy- My Top 10 Cancer Treatment Recovery Tips
In this video, he will be discussing His Top 10 Essential Tips for recovering from cancer treatment. Whether you are currently undergoing treatment or have recently completed it, these tips will help you navigate the recovery process and promote healing. From managing side effects to incorporating healthy habits into your…
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Newly Diagnosed with Mycosis Fungoides
Any have this type of cancer and if so how are you managing?
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MYCOSIS FUNGOIDES, Cutaneous T Cell Lymphoma
Hi there, has anyone been diagnosed with MYCOSIS FUNGOIDES? It's a blood cancer that effects the skin. it is the under the umbrella of Non-Hogkins lymphoma . thank you
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SBRT side effect?
I had SBRT Cybeknife treatment in late December 2023. In the 2 - 3 weeks after treatment the only side effect that I experienced was a change in bathroom routine. I felt a pressure (need) to empty my bowels when there really wasn't anything there to get rid of. When there was something to get rid of the pressure would…
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Taxol/carboplatin side effects???
Hello I am new here and I was diagnosed with IDC TNBC no mutation in July 2024. I start chemo August 26, 2024. I have 12 rounds of taxol/ carboplatin and then 4 rounds of AC with keytruda every three weeks for a year. I’m extremely scared and no one can tell me what side effects I may have. So I was wondering if anyone had…
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How to overcome fear of losing your spouse?
Hi, kidney cancer family. My wife's story is a unique one. She found out about her kidney cancer in May of this year and by July she had a full nephrectomy of her right kidney. After analyzing the stage 3 tumor, the surgeon said there is no evidence of spread and that they were able to completely remove the cancer. He…
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New Here - what comes next...
Hi, I have been reading and just wanted to say hello. 5 years ago the urologist found "something" on my kidney. The oncologist reviewed and said its quite small, no interference with kidney function lets monitor. Fast forward to March 2024 my MRI came back with 3cm Clear Cell Renal Carcinoma. Of course this stopped me on a…
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Tube feeding supplies.
I have some tube feedings (unopened) and a few supplies welcome to a good home. I have maybe 7 liters of Jevity and 9 1/2 cases of individuals Isosource 1.5 and maybe 60 large syringes.
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Lung Surgery
Hi , I had stage one lung cancer in my middle right lobe. I had robotic lung surgery done on 12-20-23. They took out the mass, + the middle lobe along with a bunch of lymph nodes. It has been five weeks, and I am still having pain, and really have no appetite. I was wondering if anyone else has had this surgery? Also how…
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The Untold Truth About Mental Health and Cancer
Welcome to our latest video where we delve into the complex and often overlooked relationship between mental health and cancer. Many individuals facing a cancer diagnosis also experience emotional and psychological challenges, which can affect their overall well-being and treatment outcomes. In this video, we explore the…
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New here, CEA panic
My dad was diagnosed with stage 2b colorectal cancer in 2022. After chemo pills, radiation and me giving him ivermectin, the tumor disappeared. Before cancer his cea was 2.78. In January it was 1.11. We had a follow up in September of 2023 and his CEA was 2.9. Not great but it didn't concern me too much. Dad is almost 82.…
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metallic taste?
anyone ever have this. I haven't had chemo in almost 2 weeks, but the last few days I have this taste that won't go away, kinda like a metallic taste I think.. Thanks Petrina
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Tumor Board reversed decision on surgical treatment
Greetings to all my fellow CRC challengers out there! I am in an odd predicament with my mother's current treatment plan and would really appreciate any insights and suggestions you may have. All thoughts and comments are welcomed! Quick background- My mother was diagnosed with stage IV colorectal cancer at the then end of…
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Lab At Hershey Medical Center Identifies A Virus That Could Kill Cancer
This is an interesting though older article recently sent to me by a friend. This seems to have real potential and seeing this article was written years ago it's not impossible for this modality of treatment to still be developed and used considering the many years of testing and clinical trials that need to be done before…
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Recommendations for wigs or hat/cap wigs?
Trying to prepare for the upcoming hair loss and could use any recommendations or tips you all have. Any advice for buying a wig? I hear the hat/cap wigs are a good choice too - any particular brand recommendations? Also, any other brand recommendations for scarves, hats, etc.?
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New here. Unexpected biopsy
Hi all. Me: 55 yrs old, on hrt since menopause began, been about 4 years. started having a period. Full blown, major bleeding cramps, some urinary dysfunction (urge incontinence). I just figured this was part of menopause, made an appt for annual. After exam, doctor says “we need to do a biopsy” and blammo I was having a…
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Liver Lesions
Wondering if anyone else has been through this. Had my whipple beginning of April (2024). My first scan showed a few lesions (scan was done when I was re-admitted due to an infection the same month of the whipple). 3 month scan showed a few more lesions but they're too small for them to biopsy. I'm now waiting a month to…
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Esophagus..
Something you don't get told about much is your esophagus. All I kept being told was "practice hard swallows" well that's all well and good, but it's not always that easy Back before Christmas/Thanksgiving, I was having an awful time with GERD, or so I thought. It hurt so bad, pantoprazole, zantac, Pepto . Still pain! Off…
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Multiple primary cancers
Hello, I am waiting to hear the confirmation (or not, hopefully!) of my 4th primary cancer. In 2004 I had thyroid, 2008 breast, 2011 endometrium and now during CT scan control, a mass in the left kidney, first spotted last year, has grown. Now this... seems to be terrible luck, to say the least. I feel also very lonely,…
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Wanna chat?
Hello - I recently had surgery removing oral cancer from my upper jaw. I still have a hard time understanding “why” as I’ve never smoked or used tobacco. I had a hard time for a while coming to understand this. I just finished radiation a few weeks ago. 30 sessions on my mouth and neck. The other side the surgeon removed…
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I have m1a in the lung nodes.want to do a RP
Just diagnosed. I want to remove the prostrate!! 12 samples. 3 cancerous 3+ 4 =7. One a 9 very aggressive. Seems better than all 12 cancerous. No bone met or organ met. I am in great health, was. Feel good. Will they let me remove it? if not why not!! They already decide my fate? I do not understand this. I understand if…
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Diagnosed this year but having problems with
I have been diagnosed with Metastatic Prostate Cancer Stage 4 B. I was having no issues and one day hurt my back. They scanned my back and noticed something in my pelvis. Three months later after testing everything finally got a diagnosis. I am currently getting darolutamide and relugolix. The had started me on Chemo,…
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High CA125 does not mean cancer!
I have had an anxious month. My CA125 has been climbing all month. In May it was 12. In the beginning of August it was up to 295, then 4 days later 460. A CT scan was done and no spots of cancer were found. I was told to get another test in 2-3 weeks. I did that on September 5...my number was 2645. Needless to say I was…
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The Scary Diagnosis: How They Found My Cancer Video
A fellow recounting part of his H&N cancer experience. In this video, I talk about the scary diagnosis I received and how my doctor found my cancer. I share with you my hope for treatment and how I was hoping to beat this deadly disease.If you're feeling scared about a cancer diagnosis, this video is for you. I talk about…
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Any long term survivors of stage IIIb or stage IV NSCLC?
I would be interested in hearing from long-term survivors of stage IIIb and stage IV NSCLC. i have been diagnosed with stage IIIb squamous cell lung cancer with occult primary (the cancer in only in my thoracic lymph nodes; the primary tumor is either too small to be detected or regressed or nonexistent.) I have just been…
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Radiation treatment for Central Lung Cancer side effects
My husband is very likely to have cancer (awaiting biopsy) posterior to the right main stem bronchus, which is within the central area of the lung. Does anyone have any experience with treatment to this area. Our medical oncologist told us that he was referring us to a pulmonologist but that given the location surgery was…
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What to expect with no treatment
Hi all. I have a biopsy coming up but, unlike most, I'm not interested in finding out what kind of treatment I may qualify for (frankly, they all sound absolutely terrible) but, rather, how much time I have left. All my friends have already passed on so it's pretty much just me alone at this point so no real desire to put…