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AUS 800
I am in my 13th year dealling with incontinence after prostate surgery. The last 2 years has been much worse (6-8 pads per day). I have considered the AMS 800 since the onset of incontence and recently had the procedure 5 days ago and am very concerned with the outcome. first I noticed a weak stream and trouble empting my…
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Just diagnosed - Endometrial Adenocarcinoma Endometrioid - FIGO grade 1
Hi everyone, I was just diagnosed with Endometrial Adenocarcinoma - Endometrioid type - FIGO grade 1 P16 and P53 wild type stains) on 2/28. Have appointment with Oncologist on March 10th. Seems like years away after cancer diagnosis. I have had very heavy period since November 29th. Nobody should have to have a period this…
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Mastastic Melanoma stage IIC
HI, i was diagnosed on the 6th of June 2023. Had the "mole" removed, then they extended the margins for which they had cut it out. Now I have a 7 inch scar across my left shoulder blade. I've done all the tests, I think, PET scan came back with something in a lymph node. Have had the sentinel lymph node biopsy done the…
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RCHOP side affects with ileostomy
This week, I completed my 1st RCHOP treatment of 6. I have an ileostomy and catheter to divert stool and urine. Going into treatment, I had good ostomy output (volume & consistency). Since treatment, ostomy output is high@ >2000ml and loose. All my eating tricks don’t seem to work. I take 4x 2mg loperamide. Has anyone else…
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Abdominal cramps after chemo
my husband gets chemo and immunotherapy every three weeks. The days after his treatment he has constipation and cramps. I give him preparation h with lidocaine for the external but can anyone please recommend something to help with the pain from the cramping. It occurs quite often
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Extremely Scared - Husband Diagnosed with Throat Cancer
My husband was just diagnosed with squamous cell carcinoma in his throat at the base of his tongue. His ENT sent him for a CT with contrast this morning and the results are a spot 1.5cm in the largest section, no additional areas involved such as bone or muscles around and one lymph node on the same side. No midline…
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post radical nephrectomy developed a flank bulge
My husband had a radical nephrectomy from Stage 1 kidney cancer this past August. He almost immediately started developing a huge bulge - NOT a hernia. After a CT scan in October it was determined he has a denervation, flank bulge due to the nerves not regenerating from the flank incision. The muscle wall has thinned out…
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Biopsy without any bleeding
I'm not complaining, just curious. Had transrectal targeted biopsy (5 sites) with no blood in urine or semen. After all I've read about blood lasting for weeks, has anyone not experienced much bleeding? A pre-cancerous HG_PIN neoplasia was found. So cancer free for now!
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Depressed
I've went through chemo and radiation for breast cancer, and doing fine. It has been 7 months since the last treatment, which I'm so glad, but now I just so down and thats reaaly not at all me. I ended up with lymphodema and have gotten cellulitis in my arm twice. I wear a sleeve and do what they tell me, but does not seem…
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Nerve pain
I had segmendectomy 3 weeks ago. I started to have side pain on my right side that I had the surgery. The surgeon said this is due to intercostal nerve being affected. He said to give it another month and if it persists he would start me on gabapentin, which I don’t want to start. Anyone out there have a similar situation…
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Does anyone have Interstitial Cystitis?
Hi, I'm a 49 yo male and I have been over at the Kidney cancer board. I'm about to begin my fight with kidney cancer. However, I have had Interstitial Cystitis for over 22 years and I've heard that very chronic inflammation of the bladder can cause cancer. Of course pretty much every symptom of bladder cancer is the same…
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Ejaculate color after Prostate biopsy
Does anyone have intermittent red/rust/pink color in their ejaculate, aka (****)? My urologist says it is OK. Sometimes mine is white and sometimes red/rust/pink in color. I am 3 years out from my biopsy. What do you and other men with a previous prostate biopsy think? Does this "color" ever happen to you? Thanks!
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SRT after RALP - Centering CTscan execution
Good morning, I just had a centering CT scan because I have to undergo SRT (I had a robotic radical prostatectomy in 2019, and the PSA slowly rose to values around 0.200-0.250). The preparation for the centering CT scan included a full bladder and an empty rectum. Everything was OK for the rectum, but, probably having…
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MOHS Surgery Shock
I am hoping to hear from anyone having had MOHS surgery and is willing to share your recovery and healing process, including products and/or procedures used. I had MOHS surgery two days ago to remove a cancerous spot in the area between my upper lip and my nose. The spot is about the size of a pencil eraser…but I ended up…
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Recurrence
Hi, Well wishes to all of you. I started chemo yesterday for a recurrence of gastroespohogeal cancer (at and near GE Junction) . First time was caught very early (stage 1) while checking for a minor swallowing probem and was treated with chemo, radiation and immunotherapy (not a candidate for surgery because of other…
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Changes from testicular cancer
I am still attracted to women, but it is different now. It is only a mental attraction. There is no physical urge. I’m a survivor of testicular cancer for six years. I’ve had my testosterone checked and my level is fine but I don’t physically attracted. Is this normal?
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Serous Endometrial Carcinoma ("high-grade"), now metastasized to lungs
Hello - Introducing myself here. The topic title summarizes it. I was diagnosed in December 2022 and January 2023, had to wait 6 weeks for a 'radical' hysterectomy while in pain and bleeding profusely (because of health insurance!), then spent 2023 in chemotherapy and radiation, and recovering from their side effects. Last…
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Chat GPT
Many will have heard the name, but know little about this great learning resource. I was diagnosed with a stage 1b adenocarcenoma over 2 years ago and declined the default treatment of esophagectomy, opting instead for 3 then 6 month follow up endoscopy visits. I was declared cancer free at one point but then another…
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OFSET Study
New here. Anyone decided to do the OFSET Study? Diagnosed 1/14/2025. Had DMX. Found lymph involvement, I of 2. Oncotype 16. Her2-. I'm simply terrified of chemo, Ac-T. My gut is to run far away from it. With that said, the Study offers possibility of another option- hormone therapy only. Anyone decided to do the Study,…
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Metformin
I've seen Metformin mentioned here as an important tool to strengthening our bodies' fight against cancer. I looked up the studies, and the research is so promising, I'm surprised we haven't heard more about it! I am on the verge of getting lung biopsies for what appears to be metastasis of serous endometrial cancer. I…
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Do I have to take steroids after doxil
S teroids
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Sinonasal Adenocarcinoma
Hey Alll, I have recently completed treatment at MSK for high grade sinonasal adenocarcinoma (non-intestinal type). Looking to connect with others who have this rare cancer, specifically women, but also all. I was 38 at the time of diagnosis, so looking to connect with young adult survivors as well. Any info would be…
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Scar tissue 6 years NED
Yes, It hurts and is scary. My colon Doctor put me on Metamuscil in the morning and Miralax in the evening. It has helped me stay soft enough to pass normal size stool then goes to shoestring size. However, the scar tissue in on my sphincter and that's where to stool passes through. It gets inflamed and hurts now and then.…
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Has anyone had colo-anal anastomosis surgery and a colostomy reversal?
I needed a colostomy for my anal cancer because of a fistula between my vagina and rectum. Now that my treatments are over and the cancer is gone, my colorectal surgeon believes she can reverse the colostomy. I will get a temporary ileostomy and she will do a colo-anal anastomosis at the same time, then after 2 months, she…
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Fever possibly delaying resumption of chemo?
My mother in law is a sixty-six-year-old woman who was diagnosed with a grade 4 glioblastoma last November. More than 95% of it was removed via surgery, the tumor is methylated, and she tolerated her initial treatment (six weeks of simultaneous radiation and temodar) well. Two weeks ago, she started her new cycle of…
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2 time cancer survivor!
HELLO EVERYONE!!! I’m so happy I found this site and am excited to share my story and get others opinions! so this all started about 10 years ago, my OB/GYN felt my neck and discovered numerous lumps on my thyroid after scans and biopsies. I was found to have papillary thyroid carcinoma. When they remove my thyroid, they…
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New here, stage 1a upsc
Hello to all of you amazing ladies, My mom at 63, was diagnosed with upsc stage 1a. She had post menopausal bleeding and with an ultrasound a polyp was found. After D&C and hysterectomy, she was surgically staged at 1a, no lymph node involvement, no myometrial involvement, just in the polyp and some in the top layer. She…
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An update and a question on treatment plan
I first posted last month when I was initially diagnosed with prostate cancer. The comments from everyone were very helpful. I finally saw the oncologist this past Friday (3/21/2025). I wanted to give an update on where I stand and ask what you all think of my oncologist's proposed treatment plan (knowing that you are not…
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Transperineal Biopsy and ED
I'm a 55 year old male scheduled for a TPB next week for MRI findings of two PIRADS 4 lesions 7 mm each on the right side, but I also have a trip scheduled the week after with a new girlfriend. Anyone have any experiences with side effects after, specifically erectile dysfunction and how long it lasts? Thanks!
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Week 5 of SRT
Greetings all Radical robotic Prostectomy 12/8/23. Subsequent PSA’s went from 0 to .42 over next 12 months. Doubling every 3 months So, I just finished week 5 of my SRT treatment. No issues first week. Lots of bathroom visits end of 2nd week at one point I was positive that my anus had blown off and I would see it floating…