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First Bite Syndrome
I am curious if anybody else has experienced this or knows anything about it. Ever since my Extended Radical Neck Dissection surgery in December, I have been experiencing First Bite Syndrome. It involves the first one or two bites of food at every meal, which triggers an intense, almost painful, sensation in the lower back…
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Hematomas after a double mastectomy
I had a double mastectomy two weeks ago, They put the prevena plus wound vac on me and when they took it off 6 days later I had developed hematomas! I got instructions to wash with soap and put silvedene cream on them twice a day. Can anyone give me any suggestions????? If this happened to you!
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Question About New Neck Lymph Node After Radiation/Chemo in 9/2023
Hi Russ and All, Only because I tend to be a little more pragmatic and intuitive instead of initially panicking, here I am again. My husband was diagnosed with Stage 1 base of tongue cancer (HPV+) in July 2023 (so a little over a year ago). He had 7 weeks of radiation to his left base of tongue and left 2 affected lymph…
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Still confused about Creatinine and GFR
This is a quote from the National Kidney Foundation website in answer to a question from somebody whose creatinine level was 1.58: "A creatinine level of 1.58 may be normal after removal of one kidney, especially if you are over 50 years of age. Removing one kidney always results in a decrease in total kidney function and…
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Catheter and Cystoscope
I need some advice. After spending a week with a catheter due to blood clots in my urine, it was removed and followed with a cystoscopy. Before the catheter was placed (after three attempts), I was able to urinate. However, now I’m having difficulty urinating—I feel a frequent urge but can only produce a trickle. I also…
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Ned 7 th year!
An update about our journey. Its been seven years since surgery. Did CT scan and results came clear. Ned since 7 years.Thank you all for positive vibes here.
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Results back from 4th U/S in almost a year and cyst still hasn't changed. Still unsure what to do.
I'll start by saying I'm 53 an have been in menopause for at least 1 1/2 years. Not sure exactly because I continued to take bc pills and my doctor told me stop to see if I was indeed in menopause. Took a blood test as well and it showed me very much in menopause, so I could have been for years. And my U/S results didn't…
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Caregiver
I am trying to find out how to be my little sisters caregiver she was diagnosed with stage four melanoma brain cancer metastatic a week after her 48 bday in November 2024 and since then she can’t work drive or be alone so I have had to quit my job and she now lives with me in my camper, and I have been told be several…
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Chemotherapy before or after surgery
Hi, I am new here. My father was recently diagnosed with NSCLC. It’s at least stage 2b. We have seen two oncologists in Northern Virginia. One suggested to have surgery now and do systemic treatment after. The other oncologist suggested chemo and immunotherapy before the surgery. Given my dad is 80 and qualify of life is…
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Newly Diagnosed Stage 3C1 endometrial cancer grade 1... what to expect?
Hi There, Well just a short 3 1/2 yrs ago I was my husband's caregiver for his colon cancer which he did pass away early 1021. Now I find myself in the same situation dealing with cancer but now I am living alone. One would think cancer would jump over me since I already had to deal with it so long prior . Started spotting…
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Dizziness after bone marrow transplant multiple myeloma
I had my bone marrow transplant 2 weeks ago and am home starting the long recovery now. My blood numbers are slowly going up which is great but the biggest issue now aside from the fatigue and the terrible metallic sour taste in my mouth due to the intense chemo is dizziness. Sometimes it is just background and other times…
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Testicular Cancer
Help!!! I was just diagnosed with testicular cancer and am having surgery on August 22 to have the testicle removed. If anyone has any info or has been thru this please contact me. I really need advice from someone that has been thru this..
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Proton Therapy Study Results for Localized Cancer
Since I plan to pursue radiotherapy if & when I have to step off of the AS track, I keep up with the research on efficacy of different methods. Here's the results of a recent randomized study comparing Proton Beam Therapy (PBT) and Intensity Modulated Ration Therapy (IMRT) which uses photons, for localized cancer.…
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Husband diagnosed as intermediary unfavorable
We are looking at treatment options and leaning toward surgery. He is just now 65 and fairly active and healthy. We are in Texas and have access to MD Anderson, which is great and Medicare…. Just. We have read/heard alot about ivermectin. Has anyone done any natural treatments or do you have advice. I want to move forward…
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Xifaxan experience
Hello again everyone! Quick background... 10cm stage 3 found two years ago. 8 rounds of chemo, 25 sessions of radiation, surgery (with bag) and then reversal surgery. I'm a year past the last surgery and was NED (yay!) at my last oncology appointment I had been complaining to my oncologist about my bowel functioning for…
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Life after TME surgery?
Hi, I am 58. I was diagnosed with rectal cancer. A colonoscopy removed a small polyp using electric cauterization, but was not thought to be worrisome until the lab came back. Lab came back as cancerous to the edge. Originally, due to a follow up sigmoidoscopy, where ink was used to identify the spot, but caused swelling…
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APR and recovery
I am moving into the next phase of treatment for reoccurrence which is APR surgery. I am interested in hearing about recovery times and side effects and the quality of life after recovery. My surgery will be around March 1, 2025. I will have a permanent c-bag afterwards. I am/was a very active and healthy 67 yo (more like…
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Anxious
I have recently been diagnosed with stage 1 non small cell lung cancer and am heading into surgery in 12 days. I am so fearful and am experiencing a terrible sense of doom. Has anyone else had this type of surgery? I am also breast cancer survivor and have been a caregiver for my sister for the past 9 years during her…
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Blood Test Markers
I did an endoscopy last week and the dr told me there was a cancerous mass on the upper inside lining of my stomach. He also ordered a blood draw which I did the following day. I know I can wait for the dr to go over the results with me but the 4 tests - carcinoembryonic antigen, CA 125, prothrombin time,…
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Latest on IRE Nanoknife Focal experience
Thought I'd start a new post and update my Pca journey. Condensed history: First diagnosed November 2023 with 4+3=7 tumor within gland. Confirmed by 2 biopsies, bone scan, and PSMA PET scan. No metastasis. After local urologist suggested surgery or radiation I got a second opinion from Fox Chase Cancer Center in…
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Any 'older' neuroblastoma survivors out there?
Hi all-- I'm a 51 year old survivor from neuroblastoma, discovered when I was 8 weeks old in 1958. Is there anyone else out there who has survived a neuroblastoma from the '50s or 60's? I'm wondering if anyone has had problem with ganglioneuromas? Anyway, I'd be interested in talking with others who have survived this…
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Recently Diagnosed With Stomach Cancer
Good Evening! About two weeks ago I was diagnosed with stomach cancer. I've had acid reflux since the late 1990's and have been on Omeprazole since. As long as I took it no problems. My father and grandfather both died of colon cancer. My father preached me to look everytime I went to the bathroom looking for blood. Which…
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Long term childhood survivors
I'm a nearly 40 year childhood cancerous brain tumor survivor. I'm hoping to find someone in a nearly similar situation.
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Symptoms after radical nephrectomy
Hi All, I'm new here, so still learning the ropes. I am 36 years old and had my left kidney and adrenal gland removed in October. The margins were clear and I understand that I am very fortunate in that regard. I have had follow up appointments with the urologist, and my first follow up CT is in two weeks, but I was not…
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A newer phase in my Systemic treatment now with metastasis in bone
To all in this forum and particularly the old members that have help me along the years in understanding facts on PCa issues based to their experiences, or suggestions to my case. It has been 18 months since I dropped a post in the forum (July 2022). I felt that I have failed those that were used in receiving my prompt…
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Treatment Options
New member: 73, living in Texas, diagnosed Thanksgiving week 2024 after significant PSA increases (2>4, 4>6) in the past two years. Biopsy showed two lesions in the prostate, Gleason 7 (3+4 and 4+3). PET scan followed, revealing three spots in the prostate and activity in right and left iliac lymph nodes. Diagnosis…
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Relugolix (Orgovyx) before Abiraterone (Zytiga)?
After a PSA doubling in three months and then an early January PSMA PET scan which first indicated metastatic Pca, my Fox Chase Surgeon immediately prescribed Bicalutimide (Casodex) and arranged a fairly quick mid January appointment with a medical oncologist. She took me off the Bicalutimide and prescribed Relugolix…
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Late Term Effects Chemo - where I am now 14 months after reading NYTimes Article
Hi Everyone, I'm new to these forums. I want to find a survivor support group or network. 14 months ago, I read the New York Times article titled "It takes a lifetime to survive childhood cancer", and it upended my life. I had a Wilms Tumor removal when I was 4 (left kidney only) followed by chemotherapy (no radiation).…
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PMB and Endometrium at 26mm
Hi Everyone, My mom, age 65, experienced PMB about 3 weeks ago. I immediately got her scheduled to see the gyno and her ultrasound came back showing her endometrium measuing 26mm! She is scheduled for a D&C in 2 weeks. She had a D&C done almost 6 years ago for PMB when they found a polyp in her uterus, removed it, and the…
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Questions for a friend recently diagnosed
I have been on this site for over three years (Lymphoma Board) and am thankful for the good and caring folks here and all the support we give each other. I am writing here for a friend who was recently diagnosed with stage 2 colon cancer. Evidently the tumor is outside the rectum near the anus and not attached to any…