-
What follow-up tests are done after chemo?
Hi OC Sisters: I finished 6 rounds of Carboplatin/Paclitaxol for ovarian endometriod carcinoma stage 2 a few weeks ago, and I am wondering what tests/scans are usually done to monitor recurrences. I am on a 3-month follow-up schedule for 2 years, then 6 months if I remain NED. What sort of follow-up have you had (PET, CT,…
-
Six weeks post chemo: Hair report
Just a hair report for future chemo grads ;) Ok..I have about 1/4 of inch of fuzz all over my head. It's white and soft, but I can feel stubble that is also growing in that I think is darker. It appears to growing in at a consistent length, so I guess that's good. Although, I have noticed about a dozen hairs that are…
-
Early Bladder Cancer Diagnosis & Feel Great
My 84 year old dad had not been feeling well, sickies, weak, coughing. Then, went to the hospital with lots of bleeding/clots and terrible pain almost two month ago. Had a cyso and TURBT in hospital and stayed about a week and a half to recover. Diagnosis of bladder cancer, high grade T2N1. Two urologists have explained as…
-
Father starting chemo soon, any advice?
My father is 67 and recently diagnosed with colon cancer after finding a partial obstruction due to a tumor. He already had the resection but 4 lymph nodes showed some cancer so now he will be getting a port next week and starting folfox soon every other week for 6 months. Any advice on what to do to keep side effects to a…
-
Heart Rate Increase
Hi I’m 25 years old and was diagnosed with High Grade B-Cell Non-Hodgkins Lymphoma stage 2. I recently completed cycle 4 and have 2 more to go. My PET scan showed no active cancer. I’ve experienced fatigue but mostly increased heart rate. I can be walking to the bathroom and my heart rate will reach 120s-160s. Was…
-
67 years old Gleason score (3+4) next
-
Signs of Life
Nearly 16 weeks since RARP and last night out of nowhere there was “a sign of life” as far as the ED is concerned. How or why I don’t know but suddenly had the closest thing to an erection since before surgery and there was pretty good sensation with it. Taking this as a good sign. Incontinence is greatly improving and…
-
Proton vs IMRT
I know many of you have seen the results of the Partiqol study comparing IMRT to Proton. Generally the take away is that the treatments are equivalent. I agree with that assessment . I was reviewing some of the details in that study and the thing that really struck me was how good both treatments were. I personally think…
-
Hair loss ten years after chemo
Hi - I am posting this a bit greedy and needy as in I've just found this place and now I'd really like to gather some info I had breast cancer when I was 36. It has been a horrible 10 years but you get there. I don't think anyone really gets that. But anyhow, I can kind of cope with all the depression, anxiety, all that…
-
Radiation Proctitis Argon Plasma Coagulation treatment
I had radiotion treatments that ended in may of 2017, Started seeing blood clots in my stool. Turned out to be Radiation Proctitis..During Sigmoid oscopy they were able to see the bleading and there was a lot of damage and the Dr he basically lasered the whole area. I saw the photos... Has any one had any side effect from…
-
EMPD Extramammary Vulvar Paget’s Disease
Is there anyone out there with EMPD??
-
Fighting Cancer Essentials
Hello! My mom was "diagnosed" with cancer this past week. Biopsy still to come. However, there is great confidence it is cancer as the PET scan showed hypermetabolic activity. My mom is going to fight! I am looking for a list of supplies every cancer patient should have. Food, items, essential oils, etc.; you name it! She…
-
KEYNOTE 522
Is there anyone on the KEYNOTE 522 Regimen, or has been on it? I am searching everywhere to find someone to communicate with on this. I am recently diagnosed with TNBC and the KEYNOTE is now apparently the Standard of Care. Please answer if you can. Thank you. (Jan. 2025)
-
Urinary Retention from Radiation Therapy
I'll be heading for 5 weeks of Radiation Therapy soon. Having had a bout of acute urinary retention (not being able to pee at all) after my IRE ablation procedure, I'm paranoid that it may happen again with the RT treatment. My doctor thinks it unlikely. He claims the radiation is much less likely to cause the kind of…
-
First Transrectal Biopsy
I'm scheduled for my first prostate transrectal biopsy on Monday morning. I made the appointment months ago, but it’s been on my mind ever since. As an older man, I feel pretty anxious about everything, from the prep to the procedure and the results. Any tips for easing my nerves?
-
Cea rise and covid just last week
CEA now 5.9 normal has been 3.5 to 4.0. My wife just tested positive for covid 2 days ago and yesterday all ok . Also had some stomach issues . Do we have update that recent covid infection cause a uptick in CEA Levels …Thanks for anyones update knowledge
-
What do you wish you'd asked? + ED after more than 3 years
Hi all, I'm 56. Was diagnosed last year Gleason 3+3 and chose active surveillance. That has progressed this year to Gleason 3+4 in 2 cores with some cribriform patterning. Decipher is 46 with intermediate risk. I have to choose a treatment and hate all options. I find that doctors don't give you the whole picture and I am…
-
Tram Flap and Complications
TRAM FLAP RECONSTRUCTION AND ABDOMINAL BULGE/PAIN I had the Bilateral Pedicle Tram Flap in 2012. Less than 3 months later, my abdomen began to grow larger and, very painful. After chemotherapy finished, I began to investigate...being an RN, it’s in my nature to look at online journals. I knew something was wrong, but what?…
-
Pathology Report Question
Good afternoon, My father had robotic surgery to remove the prostate following a PIRAD 5 Prostate MRI (No lymph involvement) and a postitive biopsy showing Gleason 3+3 and Gleason 3+4. Surgery on 9/23/24, deceived the unfortunate news last week that there were positive margins. Conversation with the surgeon was a 2 minute…
-
ER+ HER2+ breast cancee
hello all, I was diagnosed with ER+, HER2+ breast cancer this past September. 1A, grade 2. No lymph node involvement. Lumpectomy. I qualified for a trial that my oncologist recommended. No chemo, 20 rounds of radiation, Phesco shots every 3 weeks for approx a year, and Letrozole estrogen blocker for 5 years. I’ve completed…
-
**** Vitale Cancer-Free After 4th Bout With The Disease In Just Over 3 Years
Head & Neck Cancer Defeated Again https://x.com/DickieV/status/1877012081594990846 **** Vitale said he’s cancer-free after his fourth bout with the disease in just over three years. The 85-year-old ESPN college basketball analyst announced Thursday on social media that he got the news after a morning scan. “SANTA CLAUS…
-
A new battle
We all know what going thru H&N tx is like- a 2-month battle that drags on as long afterwards. A thought occurred to me with where I'm at now, almost 13-1/2 years since my last Rad session: first there was the battle of going thru treatment, and now there's the battle of dealing with the long term side-effects of C…
-
finished radiation
i had prostate surgery in may of last year and then radiation and finished that in novermber just had a psa score taken and it came back at 0.25 do i need any further treatment
-
Mental Health for Breast Cancer
What types of mental health therapy(ies) have helped you?
-
Financial resources for help with my cancer
I have stage 4 adenocarcinoma where I have a lung tumor, brain tumor, and metastisized to the lymphatic system. This was my diagnosis 2 yrs ago. With me the drug Ketruda is what I have to maintain the rest of what life I have left. The insurance companys quit paying saying they only would pay for 2 years. My heart broke…
-
Looking for guidance on a 7.5cm lung mass found in my mom's lung.
Hello, yesterday my mom went to stat-care to treat a cough she has had since November. The Dr. ordered an X-ray, and the results showed her having a 7.5cm lung mass in her right lung with well-defined margins. The stat-care Dr. said it was probably cancer, given the size. A pulmonologist contacted her, and she has an…
-
First Bite Syndrome
I am curious if anybody else has experienced this or knows anything about it. Ever since my Extended Radical Neck Dissection surgery in December, I have been experiencing First Bite Syndrome. It involves the first one or two bites of food at every meal, which triggers an intense, almost painful, sensation in the lower back…
-
Hematomas after a double mastectomy
I had a double mastectomy two weeks ago, They put the prevena plus wound vac on me and when they took it off 6 days later I had developed hematomas! I got instructions to wash with soap and put silvedene cream on them twice a day. Can anyone give me any suggestions????? If this happened to you!
-
Question About New Neck Lymph Node After Radiation/Chemo in 9/2023
Hi Russ and All, Only because I tend to be a little more pragmatic and intuitive instead of initially panicking, here I am again. My husband was diagnosed with Stage 1 base of tongue cancer (HPV+) in July 2023 (so a little over a year ago). He had 7 weeks of radiation to his left base of tongue and left 2 affected lymph…
-
Still confused about Creatinine and GFR
This is a quote from the National Kidney Foundation website in answer to a question from somebody whose creatinine level was 1.58: "A creatinine level of 1.58 may be normal after removal of one kidney, especially if you are over 50 years of age. Removing one kidney always results in a decrease in total kidney function and…