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And so my Journey Begins . . .
My journey is about to begin so I figured I'd set it down and tell it as it goes. As it goes I will update and try to answer any questions. Symptoms: In June 2022 I had my yearly physical and my blood work came back as good so no indications of anything. Felt great. Started August with a sore throat and a full left sinus.…
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Concerned about a 2 cm kidney mass
Hello everyone, I came across this site searching for information on the web (as Im sure everyone does) regarding the topic of Kidney cancer and I am quite impressed with the posts! I'm 48 and recently had an ultrasound done with respect to some abdominal pain. Although the abdominal pain is gone and all was fine, there…
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Ketogenic diet
Has anyone tried the ketogenic diet to help reduce/stop cancer growth during chemo treatments. I have read a few stories where women went into remission and credit part of it to their ketogenic diet. I think it might be worth a try but need to find a Doctor who believes in it to monitor my diet and health during chemo.
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Ivermectin
Hi I'm in Northern Ireland and trying to find dosage for Ivermectin and Fenbendazole. Can anyone please point me in the right direction?
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Mohs surgery for squamous cell in ear - extremely dry skin afterwards.
I’ve had several (4) squamous cell skin cancers removed over the past +/-20 years. The most recent was in my left ear so it required Mohs and subsequent small skin graft. Surgery went well, margins clear on the first pass. Stitches for donor site and bolster were removed in one week. Roughly 3 weeks of twice daily cleaning…
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I’m Terrified
I recently had a Pap smear which came back normal but there were endometrial cells present. I am 49 years old, no symptoms, perimenopausal, obese (31 bmi). My doctor wants to do an endometrial biopsy. Now I am scared to death that I have cancer. Any advice on how to handle? I am particularly freaked out because I have ocd.…
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For men in their 50s or 60s who chose brachytherapy or external beam
I'm 56 but one of my lesions is near a nerve and I don't think surgery is going to both preserve sexual function and get all the cancer, so I am leaning towards radiation. Yes yes, I know I might die sooner. For those in their 50s and 60s who chose radiation, did you choose brachytherapy or external beam, and why? How…
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CA-125 test came back at 672, anyone out there with similar or higher number?
On Dec 27, I went to the ER by ambulance because I thought I was having a heart attack. Severe pain in left arm. CT scan showed a large (13.3 cm) mass on my right ovary and smaller mass on the left one. Right side is complex (solid and fibrous), left was described as “cyst-like”. MRI confirmed same and said masses were…
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85 Year old with metastatic prostate cancer... chemo or hospice...
Hey i had been on here awhile back about our 85 year old dad who has prostate cancer that metasticized and was also in the bone... Since then it has spread to the liver and lungs... He still drives, plays the guitar, cooks, cleans and is very full of life... The doctor has now told us that the only choice left is Chemo...…
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Pain and swelling after cryoablation on left kidney
I had a cryoablation on my left kidney on March 24, 2023. A day or two after the procedure I developed a swollen bulge on my left side which was very painful to touch. I also had numbness in that area. The doctor gave me some pain medicine and ordered a CT scan. CT didn't show any bleeding or anything that would be causing…
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BMT unsuccessful
I was diagnosed with AML in May 2024 just before my 26th birthday. After 3 rounds of chemo and a bone marrow transplant in October, we were notified 2 days before Christmas that I had relapsed. I currently am being treated for gvhd as well and if they are able to get that under control I may need to go to MD Anderson in…
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BAM Bile Acid Malabsorption from Revlimid (lenalidomide)
Aloha.... I was in the Accent clinical trial for multiple myeloma, which was a four cocktail (DKRD) or Daratumamab (Darzalex); Carfilzomib (Krypolis), Lenalidomide (Revlimid), and Dexamethasone (steroid). This was 24 month clinical trial and about 8 months in I started having #2 (bowel movement) issues. I developed Bile…
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Just Diagnosed Advanced Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL)
Hello, I am really happy I found this site. After being sick for 3 1/2 years, I had a myph biopsy and was diagnosed with SUSPICIOUS for Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL). The doctor says he contacted the pathologist and Stanford Medical to confirm. He says I most likely have had it a long time…
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Mohs on nose horrific
I had a very small spot on the tip of my nose that kept bleeding, so I had it tested and it was squamous. (This is my third, the others were on my wrist and hand.) I just had mohs yesterday and I left in shock. What I thought would be a small removal turned into 12 stitches from the tip of my nose up to the bridge in a…
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FOLFOX -- Symptoms seem to get worse
Hello! I hope everyone is doing wonderful today. My Dad is having a really difficult time with his chemo treatments. As time goes on, it seems that each treatment effects him worse than the one before. Luckily, he only has four more to go. What has your experience been? Any encouragement is appreciated. Hugs and Prayers to…
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ovarian 3c 17 yrs. NED
This is my first post. I just want anyone who needs it to know that I was first diagnosed 3c in June 2007, had 13 hours surgery followed by 5 rounds interperitoneal (couldn't take the sixth) & 6 rounds IV, carbo, cis, & taxol. I was 54. Recurred in 2008, surgery again, then 6 rounds gemcitabene. Recurred in 2011, surgery…
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Thank you all
Thanks tom all of the men on here who went through some type of treatment and who are always here to share their views and to share their opinions. Recently, my older brother is having an issue unfortunately with his pancreas he’s going in for a biopsy on February 11. I posted, asking dor some advice in the pancreatic…
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Has anybody took Zejula Chemo pills for maintenance.
Has any one taken this for maintenance from recurrence of Ovarian Cancer? If so can you tell me about your side effects? I am having back pain, joint pain in my hip and knee, and nausea. Just wondering is this anything to be concerned about...my doctor says that unfortunately that is the side effects and that’s way he gave…
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NEED GUIDANCE AND SUPPORT
I am reaching out to you because I am a recent patient of P16. My radiologist stated my condition is worse than most. He expressed the average level of lymph nodes with P16 cancer infected if 5 to 8. I had 22 lymph nodes with cancer. This means my radiation treatment was 3x (according to them) more inserted = more precise…
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Perneal pain pre-erection, post orgasm
Diagnosed with prostate CA in November 2024. PSA over the past 2 years were 4.49, 5.12, 5.8. Diagnosed with stage 1 after biopsy. Will complete rad therapy next week. Mild symptoms thus far…urinary retention, burning with urination. My primary concern is severe pain 6/10 after ejaculation. Ibuprofen 800 mg helps with…
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HELP
i came here seeking help, but i feel like i'm not getting it. i've seen other people share their test results and get great feedback, yet when i tried to do the same, i was denied help. then, i tried explaining my situation and asking for guidance, but i still didn't get the support i needed. it feels unfair, man!
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Dry sinesus
The latest symptom from chemo is dry nasal passages. Not sure if it the change in weather or the heater that kicks up at night. This is new for me as I have never had this problem before. Has anyone ever had this happen? If so, what did you do for the problem. Any suggestions would be appreciated. Thank you, in advance,…
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Can your ca19-9 level go up even though tumors are shrinking?
My husbands, who has metastatic pancreatic cancer (spread to his liver) latest Ct scan showed that his tumors have slightly shrunk. The tumor on the pancreas from 3.7cm to 3.0cm and the liver tumors have also shrunk some. However his CA19-9 level has gone up. He has had 4 rounds of chemo so far. Does that mean his…
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Recently diagnosed. What treatment?
Nodule happened to show on an MRI doctor ordered. CT scan, PT scan, interventional radiology biopsy done = upper right lobe cancer. Not metastatic, 1.a - 1.b. I've seen oncologist, radiation oncologist, thoracic surgeon. Luckily I live near a big hospital complex which includes a cancer center. 'Bout time for me to decide…
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Penis Rehab after Prostatectomy
The most recent posts I could find on this topic are ten-plus years old, so I thought I’d start a new thread. I am 6 weeks post-surgery. Fortunately, incontinence has been minimal. “Penis Rehabilitation “ (I know, I thought it was a hilarious term, too, but it’s quite serious) was recommended for sexual health. A penis…
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Recently diagnosed of bladder cancer
Hello everyone. I am 46 and was recently diagnosed of bladder cancer of low grade when I found a voided cauliflower looking tissue in my urine and submitted it for histological appraisal. Following TURBT the second histology shows non-invasive high grade but could provide staging due to absence of muscle tissue in the…
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Long-time Ned since recurrence
hello everyone! I was diagnosed almost 6 years ago at 16yo with retroperitonial liposarcoma. Since then I have had surgeries , radiation and chemos for my recurrences. Luckily I have been responding to chemo from the start and I have been Ned for one year and then for another two. This disease seems chronic and creates…
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Information needed on Multiple Myeloma
My friend's Mother was Diagnosed with Mutiple Myeloma two months back, with 40% plasma cells & Mband was present in Serum protein electrophoresis report. Recently we have got the test done again & this time M Band was absent. Does this means that, Multiple myeloma is cured or should we go for Bone Marrow Biopsy test again?…
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COMFORT KIT FOR RADIATION AND CHEMO PILL
Hello Everyone. Was hoping to receive some responses to my 'Radiation for Brain Cancer' post. But I understand there are a multitude of questions and difficult to help everyone. In the meantime, can anyone suggest some things for a care package for my sister-in-law? I'm a cancer survivor myself, and I'm familiar with some…
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New here and scared
Hello, my name is Kim and I was very recently diagnosed with stage 4 kidney cancer. I have a 12cm mass on my right kidney. I donated my left kidney to my sister back in 2003 (she’s still doing great!). They also found nodules on both lungs but they didn’t light up on the PET scan. I will be going for an educational class…