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6 months post salvage surgery
most of you know my story for those of you that don’t was first diagnosed at age 57 glarson score 7 PSA 8.1 decided to do radiation not a good thing. The cancer was of Cribiform and apparently Cribform is radiation resistant don’t let anybody tell you different, .. 1 year ago PSA creeping up three straight test to 1.7 from…
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Kidney Cancer - possible nodules in lungs.
Hello All, My father had kidney removed due to a renal mass of size 11cm × 8.2cm, and waiting for biopsy report. Also found multiple lung nodules with small one being 3mm and bigger one to be 7mm. We have a query metastasis, but worrying about the report outcome. As if now doctor have prescribed for immunosuprresant, and…
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Referral to Oncology based on this PET…..
Hello! Sorry for the long post. I would just like some help sorting through this report. ( I am an RN- but don’t routinely have much clinical day to day experience in this area) I understand no-one here is able to give medical advice :) Just looking for some real life input to help our swirling thoughts right now. Quick…
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Stage 3 Rectal cancer Recurrence
Hi I am male with 37 years old I was diagnosed with stage 3 rectum cancer Aug 2023 about 6 cm tumor in my rectum and 8 cm distance to anal verge .I did first CT for checking metastas and it was clear. My oncologist decided 6 rounds of chemotherapy with folfox. After it was ended, I did my second CT and shows that tumor…
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Rise in PSA
Pushing 79. Have been getting semi-annual PSA's. Until the last 18 months, PSA was "virtually undetectable". Then .04, .06 and this week .07, (sans the <). Not worried, but wondered if there was a formula or something that could predict where my PSA might be in two or three years.
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Did you have warning signs before being diagnosed or was it found incidentally?
I am a post-menopausal 52 y/o and a mass on my ovary was found incidentally when I was sent for a CT scan after a visit to urgent care for stomach pain. The pain ended up being diverticulitis, but a fibroid and mass showed up on the scan. They couldn't be sure it was a mass so went for an ultrasound and they still weren't…
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Husband just diagnosed with prostate cancer
Good afternoon, we just received the results from the biopsy, and I'm concerned for my husband. Gleason Score 7 (4+3) grade group 3, cores with cancer 8 (out of 12), prostate biopsies Adenocarcinoma, perineural invasion seen. PIRAD 5, PSA 9.5. Prostate measures 4.0 x 4.9 x 4.0 cm with volume of 41 cc. Large right…
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Peritoneal carcinomatosis
Hi, I have a dear friend who has just been diagnosed with Stage IV peritoneal carcinomatosis. The original cancer was ovarian but is now in the stomach lining. She has started chemo, consisting of a combo of carboplatin and Doxorubicin. Unfortunately the Doxo caused an instant allergic reaction, so they continued on with…
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Welcome long-term survivors!
Some of you who have been living with cancer for a number of years (in or out of treatment) have asked for a board dedicated to the discussion of long-term survivorship issues. I hope it is helpful. Best to all, Greta (Your CSN staff)
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sky high psa
New diagnosis of PC. 72yo and worried. Had Biopsy 4 areas 3+3, 2 areas 3+4 but psa >30. Not much info on patients with psa > 30. difficult to stage with that number. PET scan scheduled Really nervous . Any thoughts?
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Irinotecan and diarrhea - Any advice?
I previously had irinotecan treatment but it caused a lot of damage with diarrhea and then colitis. We took 2 moths to recover. Lower dose irinotecan was thought to be still benenificial and we had a second opinion on that from Mass General Brigham. I'm on lomotil but I'm still having regular diarrhea. Any advice on what…
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Anastrazole
looking for people’s thoughts on anastrozole. Also thoughts on ivermectin/fenbendazole and is ivermectin/fenbendazole used only if you have cancer or can it be used for preventative purposes as well? Thoughts on soursop?thanks very Much.
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Anxiety and panic over third mammogram
I had a lumpectomy on April 27, 2022, triple negative, 22 treatments radiation. opted for no chemo. Margins clear and no lymph node involvement. Last 2 mammograms were clear. I know I am blessed. I just can't get over the anxiety and panic of my third mammogram this Thursday. Before my cancer I had some anxiety but now I…
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PSA now present first time 9 yrs after radical prostatectomy
Robotic prostatectomy in 2015; PSA 14, Gleason 4-3, no lymph or seminal vesicle involvement, clean PET scan. Serial blood tests every year no PSA detected. In 2023 PSA 0.1, this year 0.44. Haven't had urology consult yet. Looking for comments from others who had an uneventful course for years, then raising PSA. What…
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PSA after surgery interesting
From John Hopkins Study Explores AccuPSA Test During one study, Dr. Partin and his colleagues examined blood samples from 31 patients whose PSA level had been undetectable for at least five years after radical prostatectomy. All these patients had PSA levels less than 0.1 ng/ml after surgery. However, one third of them…
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Hi! Newbie here! Just wanted share, a lil'
Nice group! I joined for information and to tell my strange story. Its been 2 Yrs later I feel like I'm still in the Twilight Zone, still waiting to wake up (that isn't going to happen.) still scratching my head. OK, in 2018 I felt two lumps on the very far right side of breast, Told doctor, went for a mammogram. They did…
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Recurrence - Fistula
My mom is undergoing immunotherapy (keytruda) after radiation therapy for her brain metastasis due to recurrence of endometrial cancer last may. Today they found she have bowel fistula and samples have been sent for biopsy (doctor suspect its cancer). Have any one experienced fistula due to cancer progression? They…
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moms diagnosis process and peritoneal mets
hi there, my mom (53) is currently in the process of receiving a stage 4 crc diagnosis. its a little confusing and very scary right now but i want to share the story up until today, looking for advice. she went in for a ct scan about 3 weeks ago for abdominal pain, they located a 4.3cm mass on her colon and "extensive…
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Anastrazole
I recently just received my second Lupron shot. Had dm on 11-5. 8 lymph nodes removed all tested negative. Cancer free as per my breast surgeon. Onco score was 26. Onco recommended chemo and/or estrogen blocker shots as my cancer was er positive. I opted out of chemo. Obviously if it was in my nodes I would’ve definitely…
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My Battle with Ewing’s Sarcoma
I was diagnosed with metastatic Ewing’s Sarcoma at 18yo in 2022. The primary tumor was wrapped around my sciatic nerve in my upper left leg. It had also spread to my lungs. I had one month left of my senior year in high school and started treatment immediately. I underwent chemotherapy, proton bean radiation, surgery,…
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Great news
I went for my appointment and have some really good news to share all my scans and X-Ray came back clear. Doc said see you next year. Thank you to all those for your response and support. Best wishes to all And a very Happy Holidays
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Metastasis to Peritoneum
Has anyone had colon cancer that has metastasized to the peritoneum that can share some positive recovery experience with me? I started immunotherapy yesterday and know it can be effective but feeling a little down and could use to hear some stories of recovery.
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Scans stress me out
Do any of you get scanziety. I get very anxious for days before. To make it worse I got one recently with one small thing on it. My doc got another radiologist to read it and he came back with a few areas of concern. To of the tests came out fine for me but Monday I have a triple MRI checking for possible diffused bone…
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Granulation tissue biopsy after surgery
I was diagnosed with Endometrial Adenocarcinoma Grade 1 in March, and I had a hysterectomy with da Vinci robot on April 17 (Stage Ia). I've felt fine since then and had no problems/symptoms. Yesterday I saw my oncologist for a follow-up. He said I have what appears to be "granulation tissue" at the top of the vaginal cuff.…
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Incontinence
prostatectomy Nov 21 2024 cath removed 1 week later. Doing kegels but incontinence is significantly worse now 4 weeks after cath removal. Is there anybody who can offer positive experience regarding this type of issue?
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Blogging about Cancer
When I was battling stage 3 breast cancer, talking about it was tough, but I still wanted people to understand what I was going through. Since I’m more of a writer than a talker, I started a blog to process everything and keep others in the loop when I didn’t feel like speaking. I also found comfort in reading others'…
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Red light caps for hair regrowth
hi! Does anyone have experience with those hats/helmets/caps that use red light on the scalp to regrow hair after chemo treatments? Most of my hair did not come back after taxtotere chemo treatments (I’m six years out from treatment). If you found one that worked, please share brand! Thanks!!
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What can I expect as family caretaker
My dad is going to begin 8 weeks chemo and radiation for stage 3 non small cell lung cancer. He is 85 and also has congestive heart failure. He has been taking care of his Alzheimer's wife by himself in their own home. They are both somewhat incontinent. Until now, he's resisted all forms of help. We get along great, and…
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Is this the end for my mom
My mom has been fighting metastic lung cancer for 2 years . She did chemo and immunotherapy for 1 year . Stopped chemo kept up Ketruda . Went along 6 months pretty good- tumors starting growing again suggested chemo. One treatment and things went down hill awful. She can’t even brush her own teeth. She’s so weak 98 lbs.…
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survivors of Terminal Stage 4 lung cancer
Dear Members, Please let me know if there are ANY survivors out there with Stage 4 Lung Cancer, (Terminal)taking radiation. God Bless All Stardust