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Stage 4 NHL in remission. Palliative care concerns you should talk with your doctor about.
Everybody is different in their diagnosis and treatment. My NHL spread to my spine, where I had a spinal fusion from a significant burst fracture in 2019. I was diagnosed stage 4 NHL February 2023. The oncologist sent palliative care. This was great while receiving treatment. But, after remission, palliative care…
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What if radiotherapy fails
Just about everything I've been reading indicates modern radiation treatments properly administered are statistically superior to Radical Prostatectomys concerning quality of life issues. Sounds like they're equally effective. I've now been advised by two different radiologists that 5 weeks IMRT is a good first course of…
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Apl
Hi I dont see anyone that have apl in 2023 I hope you are well I am from Albania and 3 months ago I was diagnosed with apl I stayed in the hospital for 2 months with chemotherapy and I use atra 7 grains a day I am very scared, but with faith in God here the hospitals don't have them and I have to buy them myself with the…
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Signet ring cell cancer - timely treatment
A couple of weeks ago, my mom was diagnosed with stomach cancer. After a series of follow-up scans and a laparoscopy (which felt like a rollercoaster ride with torturous waits!!), the doctor diagnosed her with T2N0 - still relatively early stage. However, her endoscopy results were already suspicious of cancer back in July…
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50 yo sister diagnosed with cancer of stomach cardia
She had no symptoms except for swollen lymph nodes above the left collarbone and left armpit. Biopsy of lymph tissue showed cancer. Intenstive tests (CAT scan, PET scan, endoscopy, ultrasound, colonoscopy, MRI) did not show any cancer other than the lymph nodes. However, a biopsy of some stomach tissue came back positive…
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Vulva Cancer survivor
I am looking for other woman that have been through what I have been through. Let me begin from the beginning. When I was 38 my periods just stopped. I just figured I was going through early menopause. Well.in December of 2021 when I was 39 I found a lump. I was freaked out a little but kind of put it out of my mind. It…
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superstar gynecologic oncologist in Orange County or Los Angeles or San Diego
Hi Everyone, I am new to the forum. My MRI and ultrasound showed serios 2cm ovarian cyst that is suspicions for cancer. I am looking now for the a good gynecologic oncologist who can assist with further with diagnosis and probably the surgery. If you can help, I will be so grateful. Thank you.
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Hello
Hi all. Just popping in to say hello. 12 years NED. I never adapted to the new format so I don't come on much. It used to he user friendly. It's really hard to follow on my phone. I have a lot of post cancer issues, deal with a lot of pain from the botched surgery but I bet a lot of us can sat that. I just keep on trucking…
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Pads and chaffing
Three months post op. About a month ago I switched from the full Depends briefs to the Depends Pads. I am using 2-3 pads a day which aren’t completely saturated when I change them. However, in the last couple days I’ve noticed the pads seem to be chaffing both sides of my straddle/groin. Anyone else had this problem and…
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Concerned about a 2 cm kidney mass
Hello everyone, I came across this site searching for information on the web (as Im sure everyone does) regarding the topic of Kidney cancer and I am quite impressed with the posts! I'm 48 and recently had an ultrasound done with respect to some abdominal pain. Although the abdominal pain is gone and all was fine, there…
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Ketogenic diet
Has anyone tried the ketogenic diet to help reduce/stop cancer growth during chemo treatments. I have read a few stories where women went into remission and credit part of it to their ketogenic diet. I think it might be worth a try but need to find a Doctor who believes in it to monitor my diet and health during chemo.
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Ivermectin
Hi I'm in Northern Ireland and trying to find dosage for Ivermectin and Fenbendazole. Can anyone please point me in the right direction?
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Mohs surgery for squamous cell in ear - extremely dry skin afterwards.
I’ve had several (4) squamous cell skin cancers removed over the past +/-20 years. The most recent was in my left ear so it required Mohs and subsequent small skin graft. Surgery went well, margins clear on the first pass. Stitches for donor site and bolster were removed in one week. Roughly 3 weeks of twice daily cleaning…
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I’m Terrified
I recently had a Pap smear which came back normal but there were endometrial cells present. I am 49 years old, no symptoms, perimenopausal, obese (31 bmi). My doctor wants to do an endometrial biopsy. Now I am scared to death that I have cancer. Any advice on how to handle? I am particularly freaked out because I have ocd.…
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For men in their 50s or 60s who chose brachytherapy or external beam
I'm 56 but one of my lesions is near a nerve and I don't think surgery is going to both preserve sexual function and get all the cancer, so I am leaning towards radiation. Yes yes, I know I might die sooner. For those in their 50s and 60s who chose radiation, did you choose brachytherapy or external beam, and why? How…
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CA-125 test came back at 672, anyone out there with similar or higher number?
On Dec 27, I went to the ER by ambulance because I thought I was having a heart attack. Severe pain in left arm. CT scan showed a large (13.3 cm) mass on my right ovary and smaller mass on the left one. Right side is complex (solid and fibrous), left was described as “cyst-like”. MRI confirmed same and said masses were…
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85 Year old with metastatic prostate cancer... chemo or hospice...
Hey i had been on here awhile back about our 85 year old dad who has prostate cancer that metasticized and was also in the bone... Since then it has spread to the liver and lungs... He still drives, plays the guitar, cooks, cleans and is very full of life... The doctor has now told us that the only choice left is Chemo...…
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Pain and swelling after cryoablation on left kidney
I had a cryoablation on my left kidney on March 24, 2023. A day or two after the procedure I developed a swollen bulge on my left side which was very painful to touch. I also had numbness in that area. The doctor gave me some pain medicine and ordered a CT scan. CT didn't show any bleeding or anything that would be causing…
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BMT unsuccessful
I was diagnosed with AML in May 2024 just before my 26th birthday. After 3 rounds of chemo and a bone marrow transplant in October, we were notified 2 days before Christmas that I had relapsed. I currently am being treated for gvhd as well and if they are able to get that under control I may need to go to MD Anderson in…
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BAM Bile Acid Malabsorption from Revlimid (lenalidomide)
Aloha.... I was in the Accent clinical trial for multiple myeloma, which was a four cocktail (DKRD) or Daratumamab (Darzalex); Carfilzomib (Krypolis), Lenalidomide (Revlimid), and Dexamethasone (steroid). This was 24 month clinical trial and about 8 months in I started having #2 (bowel movement) issues. I developed Bile…
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Just Diagnosed Advanced Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL)
Hello, I am really happy I found this site. After being sick for 3 1/2 years, I had a myph biopsy and was diagnosed with SUSPICIOUS for Nodular lymphocyte predominant Hodgkin's lymphoma (NLPHL). The doctor says he contacted the pathologist and Stanford Medical to confirm. He says I most likely have had it a long time…
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Mohs on nose horrific
I had a very small spot on the tip of my nose that kept bleeding, so I had it tested and it was squamous. (This is my third, the others were on my wrist and hand.) I just had mohs yesterday and I left in shock. What I thought would be a small removal turned into 12 stitches from the tip of my nose up to the bridge in a…
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FOLFOX -- Symptoms seem to get worse
Hello! I hope everyone is doing wonderful today. My Dad is having a really difficult time with his chemo treatments. As time goes on, it seems that each treatment effects him worse than the one before. Luckily, he only has four more to go. What has your experience been? Any encouragement is appreciated. Hugs and Prayers to…
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ovarian 3c 17 yrs. NED
This is my first post. I just want anyone who needs it to know that I was first diagnosed 3c in June 2007, had 13 hours surgery followed by 5 rounds interperitoneal (couldn't take the sixth) & 6 rounds IV, carbo, cis, & taxol. I was 54. Recurred in 2008, surgery again, then 6 rounds gemcitabene. Recurred in 2011, surgery…
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Thank you all
Thanks tom all of the men on here who went through some type of treatment and who are always here to share their views and to share their opinions. Recently, my older brother is having an issue unfortunately with his pancreas he’s going in for a biopsy on February 11. I posted, asking dor some advice in the pancreatic…
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Has anybody took Zejula Chemo pills for maintenance.
Has any one taken this for maintenance from recurrence of Ovarian Cancer? If so can you tell me about your side effects? I am having back pain, joint pain in my hip and knee, and nausea. Just wondering is this anything to be concerned about...my doctor says that unfortunately that is the side effects and that’s way he gave…
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NEED GUIDANCE AND SUPPORT
I am reaching out to you because I am a recent patient of P16. My radiologist stated my condition is worse than most. He expressed the average level of lymph nodes with P16 cancer infected if 5 to 8. I had 22 lymph nodes with cancer. This means my radiation treatment was 3x (according to them) more inserted = more precise…
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Perneal pain pre-erection, post orgasm
Diagnosed with prostate CA in November 2024. PSA over the past 2 years were 4.49, 5.12, 5.8. Diagnosed with stage 1 after biopsy. Will complete rad therapy next week. Mild symptoms thus far…urinary retention, burning with urination. My primary concern is severe pain 6/10 after ejaculation. Ibuprofen 800 mg helps with…
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HELP
i came here seeking help, but i feel like i'm not getting it. i've seen other people share their test results and get great feedback, yet when i tried to do the same, i was denied help. then, i tried explaining my situation and asking for guidance, but i still didn't get the support i needed. it feels unfair, man!
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Dry sinesus
The latest symptom from chemo is dry nasal passages. Not sure if it the change in weather or the heater that kicks up at night. This is new for me as I have never had this problem before. Has anyone ever had this happen? If so, what did you do for the problem. Any suggestions would be appreciated. Thank you, in advance,…