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Financial assistance
hello my daughter’s boyfriend is a survivor of this type of brain cancer. I am trying to help them find financial assistance to help pay the bills. Are there help out there he could apply for?
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Well Differentiated Liposarcoma of Left Thigh
I was diagnosed with a Well Differentiated Liposarcoma that measured 18 X 10 X 4.5 cm. In September 2011, I noticed a strange lump in my left thigh and went to a doctor, I was told I had a pulled muscle. My leg didn't hurt, it just had this bulge was squishy and moved around in my thigh. Since I was told that the lump was…
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Have to get a molar pulled
I am a thirteen-year survivor of nasopharyngeal cancer. Through the years, I have spent thousands on my teeth. I had a molar that had a crown on it. It decided to come loose and fall off. Now I need to have the root pulled out. My dentist has put me on two meds. Pentoxifylline and vitamin E to ward off osteoradionecrosis.…
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Webinar: Head and Neck Cancer Survivors - Managing Function and Quality of Life
The National Coalition for Cancer Survivorship (NCCS) hosted a Cancer Policy and Advocacy Team (CPAT) webinar discussing quality of life for head and neck cancer survivors. The treatment of head and neck cancer (HNC) often involves surgery, radiation, and chemotherapy. This treatment is critical for controlling or curing…
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Mohs surgery shock and support
So glad to see this site. Support is so helpful for healing plus tips and advice. Yes I was in shock after seeing the stitches from Mohs on my nose and closure with a plastic surgeon. In my opinion it seems like it may be helpful if a Mohs Dr.’s have actual before and after pictures so that you can be prepared for any…
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Overwhelmed with my proposed treatment plan
Hi everyone, I had an appointment yesterday with a radiation oncologist to go over the treatment plan for my prostate cancer. I’m very grateful my spouse was with me—it was a lot to take in. I have a Gleason 9 diagnosis, and while the cancer is still contained within the prostate, the recommended treatment is androgen…
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4 YEARS OF LIFE!!
Hello all you Rockin' Semi-Colons pals!! August 6 is my four year anniversary!!! I AM ALIVE!! I love those words. As much as I love NED. I have a houseful right now and more coming this weekend so I just wanted to sneak in here really quickly and share this with you. Tomorrow I will be off to the berry patch picking fresh…
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Q: Cancers in senior citizens from thymus radiation as babies?
It's well known that those of us who misguidedly had their thymus glands irradiated as babies developed thyroid cancer in early adulthood. Now that I'm 69, I'd like to consider how many of us have developed other cancers in the area of the neck, chest, mouth, etc., as senior citizens. I've seen a few people, in this forum,…
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Rib pain
hi, anyone has any home remedies for rib pain? My mom has breast cancer with bone and liver mets, and she has been feeling pain in her right rib. If you guys could give me some home remedies or treatments for rib pain other than radiation that would be good! Thanks
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Overactive bladder from ADT and IMRT
Just finished the last of 40 IMRT sessions last week and have been on Orgovyx and Zytiga for about 3 months. Feeling OK with the exception of an overactive bladder including urinary urgency and frequency. I need to pee about every 1-1/2 hours. Very annoying especially during the night. Not getting adequate sleep. I…
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Thanks all
I want to thank those who tried to help me. I gave my best effort to try to deal with the side effects of treatment from this disease but learned today that ADT damaged my testicles and they are no longer working so I will never recover testosterone. I also learned ADT gave me osteoporosis and heart problems. This is not…
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Breast Cancer and TNF blockers
I am a two time breast cancer survivor (2003 and 2010) facing a difficult decision. In 2008 I was diagnosed with a rare and particularly aggressive form of rheumatoid arthritis, Palindromic Rheumatism that persists today. Unlike regular RA, this one does not cause joint damage but the attacks are more frequent and more…
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Asymmetrical fullness of the right lingual tonsil with effacement of the right vallecula
I am sorry in advance for being a pain I am just worried. CT scan showed Asymmetrical fullness of the right lingual tonsil with effacement of the right vallecula. PCP sent me to ENT. ENT says TMJ and reflux. I have had ear, throat and neck pain and swelling on the left side for over 3 months. Occasionally my lymph nodes…
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Needing support and advice
Hello, I survived stage 4 cervical cancer after 4 surgerys chemo and radiation later I finally made it the outcome of surviving is having to wear a colostomy and urostomy bags the rest of my life and I'm 32 years old. I'm in a depression because I feel like I'm never going to find love again. When I got the cancer and…
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Diep flap reconstruction
how long did anyone who had a physical job (I work in a kitchen) return to work after diep flap reconstructive breast surgery? I’m coming up on my 6 week follow this week at Dr and I’m nervous and having some issues about returning too early. About not being able work due to being on my feet all day plus it’s physical…
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Thick Lining
Almost 52 over 2 years post menopausal and have been bleeding very infrequently until about 5 months ago. It comes and goes . Sometimes clear discharge, brown, red, etc and usually light. sometimes when i urinate i do have some discharge (assuming some lining). The last 4-6 weeks i had period type cramps in lower…
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Anyone told they have a endochondroma and it was chondrasarcoma in femur??
I have a 10cm tumor in my femur and am scheduled to have it removed. The doc said he is going to test it while im under to look for cancer. I have Thinning of the cortex and remodeling.I also have bone damage (chipping away).My bone scan came back with a very intense uptake and cell changes. I am sick to my stomach over…
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Pluvicto
I just finished first of six Pluvicto treatments. Out of isolation and haven't noticed any real bad side effects (yet). I recently finished a clinical study with Xtandi and a part inhibitor. PSA was 115 at beginning, went down ton3.2 then trended upwards. Doctor immediately got me on Pluvicto so we'll see how it goes. I…
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Bladder cancer MIBC T2, with prior diffuse large B cell lymphoma
Hello. My Dad had the above lymphoma last year went through 6 rounds of rchop and had a clear pet scan in Fall of 2024. Feb 2025 dad was diagnosed with bladder cancer, had two turbt procedures. He has elected bladder preservation treatment which means keeping his bladder and doing immmunotherapy through his existing port.…
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My Update since HIFU treatment August 2024
Last year, I met with numerous specialists to explore all treatment options for my prostate cancer diagnosis. I consulted with experts in radical prostatectomy, radiation, TULSA, and HIFU, and I wanted to share a brief update on how I navigated these decisions and where I am today. 🧑⚕️ Consultation Highlights Dr.…
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Just found out yesterday
Of all days to get results of cancer was on April 1st! My Oral Surgeon told me that my biopsy came back with cancer. Keratinizing squamous cell carcinoma on the side of my tongue. About 2 years ago a bump appeared on my tongue and my dentist told me that he thought it might be from HPV so he removed it and biopsied it. It…
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MRI guided surgery and Endo Ablation
I have my first appt with a gynecologist oncologist today and have been researching alternatives to hysterectomy for fibroids. I am post menopausal so if the doctor is adamant about that route, I’m fine with it. However, I’m wondering if anyone has ever had MRI guided surgery that is apparently non-invasive and destroys…
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Positive Cologuard Test - Opting for Virtual Colonoscopy
Hello all. First time posting here. A few days ago, I received the dreaded positive Cologuard result. After reading a number of internet forums about Cologuard being notorious for false positives, my anxiety about the test result has all but disappeared. I'm a 45-year-old white male. No symptoms. Normal stools. No family…
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Searching for Treatment Feedback / Supplements
Hello I am age 51 (in great shape aside from this) recently diagnosed PCA and biopsy showed combination of 3+4 and 4+3 Gleason so definitely intermediate risk. PET scan on 4/19/24 showed cancer is on left side of prostate only has not spread. No symptons aside from PSA level 4.3 and get up pee 1 or twice at night. I am…
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My case high PSA post prostatectomy
Hi I’m 48 years old. Diagnosed with prostate cancer in Oct 2024. Had surgery in Dec 2024. PSA score pre surgery (radical prostatectomy) was 19. Had lymph node involvement. Gleason 3+4. 10 out of 21 nodes that were removed were positive for cancer. Odd thing was the cancer seemed to be near the wall of the prostate and so…
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Biopsy Sample Delivery
I had a biopsy of a retroperitoneal mass 8 days ago (7/18/23) in Southwest Florida. That was a Tuesday. The discharge notes stated that results are expected in 3-5 business days. This past Monday I called to check on them. That would have been 4 business days. The person I spoke with said they received the results and…
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sex after treatment for HPV P16+ cancer - for married & single ex-patients
Are there any restrictions on sex (in a committed hetero relationship) after treatment? Is there any evidence that post-Tx sexual relations can cause a reoccurrence of HPV16+? Also - for patients treated for HPV16+ who are not married & single - were they to have multiple female partners - is there a risk of reoccurrence…
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SWOLLEN FEET AND ANKLES
Quite uncomfortable. Had the robotic kidney removal and a 7.1 cm cancerous tumor last Wed. YAY! Seem to have somewhat control over urination now when I am up. Still have to roll out of bed 3 or4 times a night. That is a pain. Am on the best "good for your kidney diet" I could put together. Water is my main drink and about…
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So the Real Journey Begins Today
After 3 months of questions and testing and waiting, my husband is scheduled for a modified neck dissection this morning. We have to be at the hospital at 5:45 am; of course it is only 3:30 and I am up and dressed and ready to go. Sleep? Oh no. 😟 It’s not than I am scared, I am beyond that now, just couldn’t sleep. A song…
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Post AMS 800 recovery pain
I had the AMS 800 implanted on January 14 and it is now January 31. My perineum incision healed well but my incision across my lower stomach, though it looks good on the surface, gives me shooting pains if I do anything other than lay on my back all day long. Is this to be expected? My surgeon said I should walk but that…