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Should an Endocrinologist be part of our team?
The Endocrine system is incredibly complex. ADT affects one, but that cascades to other hormone levels. If one's adrenaline or insulin were too high, we'd address it right away. And yet those hormone levels ARE affected by ADT and are responsible for many of our side effects. I'm not criticizing ADT. It has saved many…
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New Member
Hello! I am a New Member and a spouse to my husband who was recently diagnosed with lung cancer. I am here to connect with other caregivers and to hear ways to make his life better as we move forward in this journey. Thanks for taking the time to read this.
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update ... RU newly diagnosed and confused
Just finished my SBRX MSK Precise (5 doses of radiation) yesterday. Been on orgovyx since Nov 1st, so far no side effects. Blood test for PSA, testosterone, etc done also, awaiting results. Next schedule visit and PSA test is May (three months after ADT is finished). A quick note … for anyone undergoing radiation and is…
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Massive cramping in the incision area
Hello, Last Feb 2023, I had a nephrectomy (right kidney), cholecystectomy, and a colectomy, all in one go... right after the operation, it was excruciating to put weight on my right foot. I thought it was normal since the nephrectomy incision was on the right side. So many months after, I get camps (muscle knotting) on the…
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Stage 4 melanoma
My boyfriend of the past three years has just been diagnosed with ecstatic melanoma. They haven't done the test to see if it has spread but by the depth of the tumor the pathologist is fairly certain. Up until this point he had sorta been in denial. i was hoping he would stay that way. Lately he is getting more and more…
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Question
Will a povidone iodine suppository used a hour or so before a transrectal biopsy, along with the antibiotics they require already, help with mitigating the risk of infection? Would it affect the tests? The radiation center doing the biopsy doesn't mention this option. I read about it somewhere. My GP thought it made sense.
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Tinnitus due to chemotherapy (cisplatin) and radiation to cure NPC
I had radiation and chemotherapy (Drug:cisplatin) in 2021 to treat my nasopharyngeal carcinoma. My treatment ended in Aug 2021. I had side effects that came with the treatment and had handle them well. However, recently (early Aug 2022), one year after the treatment, i suddenly develop tinnitus and it’s effecting me very…
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New and kind of wondering how worried I should be
Sat here trying to figure out how to start this. Figured I would just throw it all out there. It will probably be too long, I tend to give more details than necessary, just like this sentence. I am 58. Have my health care through the VA. Moved this past summer, out away from any large city, so now have a clinic for primary…
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New to site
I am 30 years old and I just got dignaose with Endometrial Cancer. I have lot of questions and a lot of things I do not understand. I will be going to see a specialist on Oct 1st. To say I am scared is an understament. I found out on Wed since then I have hardley slept and have spent most of the time crying. Family and…
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Been awhile
I was diagnose with stage 3 in 2020 here in a couple of months I’ve been clear for five years th only bad news I got and it’s not so bad is I got to have scans for ten years but I’ve been lucky it’s have never come back I kinda just went on with my life didn’t change much but became closer to god he’s watch over me
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Hypoechoic Kidney Lesion
Hi everyone, A little background info about myself, I’m 31 years old. I started having upper and mid right abdominal pain last October so I’ve been seeing a gastro fairly regularly to find a cause to my pain. A month ago, I went for ovary pain and my gyno requested an ultrasound. Lo and behold they found this lesion on my…
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Post-Radical Prostatectomy Pathology Results
I'm 4 weeks out from a radical prostatectomy and just received my post-surgery pathology report and it's indicating that cancer's a bit more advanced than pre-op biopsy/pathology/scans/etc. indicated. What I'm wondering is if anyone has experienced a similar situation and if further treatment was required. I'm having to…
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Thyroid cancer - advice for recurrence and medications
Hi all, I have a couple of questions I'd love some insight on from the community. First, some background, I was diagnosed with papillary thyroid cancer in July 2023 at 43 years old. The main tumor was on the right side and it was 2.5cm, there was spread to the left side, but no apparent spread to the lymph nodes. I had a…
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Late recurrence in ovary?
Hi all, My mom (68, in excellent health) had a distal pancreatectomy/splenectomy in August 2020 for pancreas adenocarcinoma thought to have originated in a mucinous cyst. Had 12 rounds of FOLFIRINOX. Clear scans every 3 months/6 months up until last month when a new 7cm left ovarian cystic lesion showed up. She had surgery…
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Cialis?
Hi folks. First time posting, but have read several of the comments and replies over the past few weeks. July 10 I had a Robotic Laparoscopic Prostatectomy plus the removal of two lymph nodes. Surgery went as planned although my prostate was like double the normal size, so I had to wear a catheter an extra week. Upon…
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Physical Therapy after Surgery
Hi Folks. I have seen a few posts mentioning physical therapy (PT) after surgery to help with incontinence. I am 5 months post op and I still need to wear shields to help with those annoying leaks that happen from time to time (last night I had a rather aggressive sneezing attack which was not fun). I do the Kegal…
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Cervical cancer stage 4B
I was diagnos CERVICAL CANCER Stage 4B last 2021 at the age of 25 .. i been through a lot of fights, having all treatments and complications ..its been 4 yrs but im still in pain and getting worst.. cant afford having back in fort in my dr. because i cant proceed to what my oncologist advice due to lack of finances 😔 , Now…
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side affects etc.
I am a 66 year old who was treated for prostrate cancer, went through Brakey Therapy was clear for 6 years and then my PSA went up and it was discovered that my cancer metastasized in my tailbone. I went through Radiation now for the last year I am on 1000 mg of Zytiga, 10 mg of prednisone and Lupron shots every 3 months.…
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Quality of life
The last time I posted, I tried to address the topic of quality of life. I wrote about spending quality time with loved ones, friends, and others that we care about. My family helps to keep my mind active. Staying mentally alert and living in the same world as everyone else makes me feel like I am accomplishing something .…
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Has anyone had HPV+ TORS surgery without follow-up radiation?
I was diagnosed with early stage HPV+ cancer on my right tonsil. After conferring with my surgery, chemo and radiation doctors it was recommended to have TORS surgery. The surgery went well, and fortunately the lymph nodes that were removed tested negative. But now the radiation doctor is recommending 5 weeks of "clean up"…
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Follow up of stage 4a laryngeal cancer
hi! I am new to this site . I have a question regarding follow up care. My husband has stage 4A Supraglottic cancer. We had first 3 month appt with pet scan and scope yesterday and all looks good. At first the oncologist said fu care would be ct and scope every three months for a while . Then we saw ent and he said scope…
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ADT Side Effects & Different ADT Drugs
My brother-in-law has recurrent prostate cancer (he was originally diagnosed with stage 4a) and his oncologist wants him back on ADT drug he took for 2 years. Thing is the side effects were horrendous. From what I've read (NCI, ACS, etc.), side effects can vary some between the various ADT drugs. His oncologist said they…
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Cholangiocarcinoma Treatments
My husband was diagnosed with cholangiocarcinoma on June 2nd. The medical team initially thought they could perform a resection, but further scans revealed additional lesions on his liver, making the resection no longer an option. After two hospital stays for infections and stabilizing his bilirubin levels, he began…
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Decision Process re: radiation Type
Having just received a diagnosis of prostate cancer, my urologist indicated that radiation is his recommended approach and I'm scheduled to meet with radiation oncologist shortly. I'm stage 2, with evidence of Cribriform pattern 4 so active surveillance is not an option. Recognizing that everyone is different and…
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Lurker finally posting....
I've known for the last 45 days that I have prostate cancer that requires treatment (65 yo in very good health). And I am committed to whatever treatment I select. I have been reading posts here for the last 30 days and I have found those posts to be very informative. Very useful. Plenty of YouTube vids to boot. But I am…
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Stage 4 OCCC
My wife was diagnosed with well I guess stage 2 or 3 at the time cancer. (May 3rd, 2024) After seeing the oncologist the following week and them gathering a team to plan how to go about the process. We were told the masses were in the lower abdomen and the oncologist was pleased to see the spleen was in good shape. an…
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Guilt
Hello, my fiance was recently diagnosed with lung cancer. Not sure what exact stage yet but at least a T4 N3 disease, which honestly I am not even sure what that means. I will be the main person taking care of him, if he is able to leave the hospital at some point. Currently he is received radiation to hopefully shrink a…
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Help sos
I'm so lost so I was hoping I could find someone who know my position I lost my dad Easter Sunday and my uncle Eddie 6 days after my mom was diagnosed with lung cancer may 1 after her er visit for her knee was swollen April 27th the seen a tumor on her lung that's was the size of a great fruit so just that month was so…
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If anyone needs help with coping
Hi, I was diagnosed with medulloblastoma back in 2009 when I was 22 years old. With surgery, radiation, and chemo I am cancer free and I am now a 37 year old, even though I'm in a wheelchair I am a relatively healthy guy. My road as many others to recovery was not easy, but necessary. I can get out and hunt, fish, and most…
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Wilms Tumor Survivors
Hi, I am a Wilms Tumor survivor. Were any of you who survived Wilms Tumor as a child had a mother who was a smoker by chance?