-
Newly Diagnosed Stage 3C1 endometrial cancer grade 1... what to expect?
Hi There, Well just a short 3 1/2 yrs ago I was my husband's caregiver for his colon cancer which he did pass away early 1021. Now I find myself in the same situation dealing with cancer but now I am living alone. One would think cancer would jump over me since I already had to deal with it so long prior . Started spotting…
-
Dizziness after bone marrow transplant multiple myeloma
I had my bone marrow transplant 2 weeks ago and am home starting the long recovery now. My blood numbers are slowly going up which is great but the biggest issue now aside from the fatigue and the terrible metallic sour taste in my mouth due to the intense chemo is dizziness. Sometimes it is just background and other times…
-
Testicular Cancer
Help!!! I was just diagnosed with testicular cancer and am having surgery on August 22 to have the testicle removed. If anyone has any info or has been thru this please contact me. I really need advice from someone that has been thru this..
-
Proton Therapy Study Results for Localized Cancer
Since I plan to pursue radiotherapy if & when I have to step off of the AS track, I keep up with the research on efficacy of different methods. Here's the results of a recent randomized study comparing Proton Beam Therapy (PBT) and Intensity Modulated Ration Therapy (IMRT) which uses photons, for localized cancer.…
-
Husband diagnosed as intermediary unfavorable
We are looking at treatment options and leaning toward surgery. He is just now 65 and fairly active and healthy. We are in Texas and have access to MD Anderson, which is great and Medicare…. Just. We have read/heard alot about ivermectin. Has anyone done any natural treatments or do you have advice. I want to move forward…
-
Xifaxan experience
Hello again everyone! Quick background... 10cm stage 3 found two years ago. 8 rounds of chemo, 25 sessions of radiation, surgery (with bag) and then reversal surgery. I'm a year past the last surgery and was NED (yay!) at my last oncology appointment I had been complaining to my oncologist about my bowel functioning for…
-
Life after TME surgery?
Hi, I am 58. I was diagnosed with rectal cancer. A colonoscopy removed a small polyp using electric cauterization, but was not thought to be worrisome until the lab came back. Lab came back as cancerous to the edge. Originally, due to a follow up sigmoidoscopy, where ink was used to identify the spot, but caused swelling…
-
APR and recovery
I am moving into the next phase of treatment for reoccurrence which is APR surgery. I am interested in hearing about recovery times and side effects and the quality of life after recovery. My surgery will be around March 1, 2025. I will have a permanent c-bag afterwards. I am/was a very active and healthy 67 yo (more like…
-
Anxious
I have recently been diagnosed with stage 1 non small cell lung cancer and am heading into surgery in 12 days. I am so fearful and am experiencing a terrible sense of doom. Has anyone else had this type of surgery? I am also breast cancer survivor and have been a caregiver for my sister for the past 9 years during her…
-
Blood Test Markers
I did an endoscopy last week and the dr told me there was a cancerous mass on the upper inside lining of my stomach. He also ordered a blood draw which I did the following day. I know I can wait for the dr to go over the results with me but the 4 tests - carcinoembryonic antigen, CA 125, prothrombin time,…
-
Latest on IRE Nanoknife Focal experience
Thought I'd start a new post and update my Pca journey. Condensed history: First diagnosed November 2023 with 4+3=7 tumor within gland. Confirmed by 2 biopsies, bone scan, and PSMA PET scan. No metastasis. After local urologist suggested surgery or radiation I got a second opinion from Fox Chase Cancer Center in…
-
Any 'older' neuroblastoma survivors out there?
Hi all-- I'm a 51 year old survivor from neuroblastoma, discovered when I was 8 weeks old in 1958. Is there anyone else out there who has survived a neuroblastoma from the '50s or 60's? I'm wondering if anyone has had problem with ganglioneuromas? Anyway, I'd be interested in talking with others who have survived this…
-
Recently Diagnosed With Stomach Cancer
Good Evening! About two weeks ago I was diagnosed with stomach cancer. I've had acid reflux since the late 1990's and have been on Omeprazole since. As long as I took it no problems. My father and grandfather both died of colon cancer. My father preached me to look everytime I went to the bathroom looking for blood. Which…
-
Long term childhood survivors
I'm a nearly 40 year childhood cancerous brain tumor survivor. I'm hoping to find someone in a nearly similar situation.
-
Symptoms after radical nephrectomy
Hi All, I'm new here, so still learning the ropes. I am 36 years old and had my left kidney and adrenal gland removed in October. The margins were clear and I understand that I am very fortunate in that regard. I have had follow up appointments with the urologist, and my first follow up CT is in two weeks, but I was not…
-
A newer phase in my Systemic treatment now with metastasis in bone
To all in this forum and particularly the old members that have help me along the years in understanding facts on PCa issues based to their experiences, or suggestions to my case. It has been 18 months since I dropped a post in the forum (July 2022). I felt that I have failed those that were used in receiving my prompt…
-
Treatment Options
New member: 73, living in Texas, diagnosed Thanksgiving week 2024 after significant PSA increases (2>4, 4>6) in the past two years. Biopsy showed two lesions in the prostate, Gleason 7 (3+4 and 4+3). PET scan followed, revealing three spots in the prostate and activity in right and left iliac lymph nodes. Diagnosis…
-
Relugolix (Orgovyx) before Abiraterone (Zytiga)?
After a PSA doubling in three months and then an early January PSMA PET scan which first indicated metastatic Pca, my Fox Chase Surgeon immediately prescribed Bicalutimide (Casodex) and arranged a fairly quick mid January appointment with a medical oncologist. She took me off the Bicalutimide and prescribed Relugolix…
-
Late Term Effects Chemo - where I am now 14 months after reading NYTimes Article
Hi Everyone, I'm new to these forums. I want to find a survivor support group or network. 14 months ago, I read the New York Times article titled "It takes a lifetime to survive childhood cancer", and it upended my life. I had a Wilms Tumor removal when I was 4 (left kidney only) followed by chemotherapy (no radiation).…
-
PMB and Endometrium at 26mm
Hi Everyone, My mom, age 65, experienced PMB about 3 weeks ago. I immediately got her scheduled to see the gyno and her ultrasound came back showing her endometrium measuing 26mm! She is scheduled for a D&C in 2 weeks. She had a D&C done almost 6 years ago for PMB when they found a polyp in her uterus, removed it, and the…
-
Questions for a friend recently diagnosed
I have been on this site for over three years (Lymphoma Board) and am thankful for the good and caring folks here and all the support we give each other. I am writing here for a friend who was recently diagnosed with stage 2 colon cancer. Evidently the tumor is outside the rectum near the anus and not attached to any…
-
Stage 4 NHL in remission. Palliative care concerns you should talk with your doctor about.
Everybody is different in their diagnosis and treatment. My NHL spread to my spine, where I had a spinal fusion from a significant burst fracture in 2019. I was diagnosed stage 4 NHL February 2023. The oncologist sent palliative care. This was great while receiving treatment. But, after remission, palliative care…
-
What if radiotherapy fails
Just about everything I've been reading indicates modern radiation treatments properly administered are statistically superior to Radical Prostatectomys concerning quality of life issues. Sounds like they're equally effective. I've now been advised by two different radiologists that 5 weeks IMRT is a good first course of…
-
Apl
Hi I dont see anyone that have apl in 2023 I hope you are well I am from Albania and 3 months ago I was diagnosed with apl I stayed in the hospital for 2 months with chemotherapy and I use atra 7 grains a day I am very scared, but with faith in God here the hospitals don't have them and I have to buy them myself with the…
-
Signet ring cell cancer - timely treatment
A couple of weeks ago, my mom was diagnosed with stomach cancer. After a series of follow-up scans and a laparoscopy (which felt like a rollercoaster ride with torturous waits!!), the doctor diagnosed her with T2N0 - still relatively early stage. However, her endoscopy results were already suspicious of cancer back in July…
-
50 yo sister diagnosed with cancer of stomach cardia
She had no symptoms except for swollen lymph nodes above the left collarbone and left armpit. Biopsy of lymph tissue showed cancer. Intenstive tests (CAT scan, PET scan, endoscopy, ultrasound, colonoscopy, MRI) did not show any cancer other than the lymph nodes. However, a biopsy of some stomach tissue came back positive…
-
Vulva Cancer survivor
I am looking for other woman that have been through what I have been through. Let me begin from the beginning. When I was 38 my periods just stopped. I just figured I was going through early menopause. Well.in December of 2021 when I was 39 I found a lump. I was freaked out a little but kind of put it out of my mind. It…
-
superstar gynecologic oncologist in Orange County or Los Angeles or San Diego
Hi Everyone, I am new to the forum. My MRI and ultrasound showed serios 2cm ovarian cyst that is suspicions for cancer. I am looking now for the a good gynecologic oncologist who can assist with further with diagnosis and probably the surgery. If you can help, I will be so grateful. Thank you.
-
Hello
Hi all. Just popping in to say hello. 12 years NED. I never adapted to the new format so I don't come on much. It used to he user friendly. It's really hard to follow on my phone. I have a lot of post cancer issues, deal with a lot of pain from the botched surgery but I bet a lot of us can sat that. I just keep on trucking…
-
Pads and chaffing
Three months post op. About a month ago I switched from the full Depends briefs to the Depends Pads. I am using 2-3 pads a day which aren’t completely saturated when I change them. However, in the last couple days I’ve noticed the pads seem to be chaffing both sides of my straddle/groin. Anyone else had this problem and…