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Having difficulty with caretaking
Hi. My mom was diagnosed with stage 1b pancreatic cancer in December and underwent chemotherapy almost immediately after and had a total pancreatectomy in April. She has bounced around from care facilities to hospitals and is now home. She is unable to walk on her own, use the restroom alone, and constantly needs someone…
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Anyone have surgery after 6 rounds of chemo/immunotherapies?
Hi everyone. I was diagnosed with stage 4 uterine with spread to omentum and peritoneal carcinomatosis in late Feb 2024. Not a candidate for immediate surgery. I did 3 rounds of carbo/taxol and Jemperli (immunotherapy) then a CT scan that was essentially unchanged but stable. I completed 3 more rounds followed by another…
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Unveiling the Mystery of Cancer Staging
In this video, we delve into the often confusing world of cancer staging and reveal the secrets behind how it is determined. Understanding cancer staging is crucial for making informed treatment decisions and assessing prognosis. Join us as we simplify this complex topic and shed light on the key factors that influence the…
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Sister Has Pancreatic Cancer
Hi. My sister has pancreatic cancer. She lives in Western Canada and I live on the East Coast of the U.S. I went to visit her in October for a week to help her while she was getting chemo. The challenge I’m facing is that I don’t really know what is happening. She is being very optimistic about “kicking cancer to the…
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Labor Day Celebrating America's Workers & Summer's Last Hurrah
Hello to everyone here on CSN H&N group, all members and visitors alike. I would just briefly like to wish everyone a wonderful Labor Day holiday no matter where you are may you have a wonderful day. My Oh My it's hard to believe we are near summers end already the time goes so fast and we need to cherish the moments. I am…
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Recent breast cancer diagnosis
Hi, I am new here. I was diagnosed in May with IDC, and I just had a lumpectomy 2 weeks ago. Before surgery, I also had a breast MRI and it showed that I only had the single tumor (~1.5 cm) with no other suspicious areas or lymph nodes. Since the surgery, my tissue pathology came back and fortunately I have clear margins…
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Parp Inhibitor
Any ovarian cancer ladies here on a Parp inhibitor? I thought I was finished with treatment and had the medicine for 3-5 years bomb dropped on me. I was so shocked I didn’t even write anything down. I was bummed the first week. Now I need knowledge! Me: ovarian cancer, 2a, hysterectomy & 6 rounds of chemotherapy…
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Mid-chemo CT scan question
Hi everyone. I’ve completed 3 out of 6 chemo cycles and my CA125 continues to trend downward but my CT scan is unchanged. How is that possible? I was so certain I’d see at least SOME tumor shrinkage so I’m feeling very disappointed and concerned…has anyone gone through this? Quick background: Dx: uterine adenocarcinoma…
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CT Scan of Vaginal Cuff
I had a hysterectomy in 2016 do to Complex Atypical Hyperplasia. While experiencing ovarian torsion I had a CT Scan and an ultrasound done. The CT Scan showed thickening and enhancement of the vaginal cuff. My doctor says it looks okay so it’s fine. Should I get a second opinion or is it okay?
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Proton vs Photon therapy
Results of my biopsy show out of 12 location I have two with 4+3 Gleason and I with 3+4. I am 76 years old and in good shape otherwise. Have talked with Proton Therapy center in Knoxville and would prefer this treatment but my Humana Advantage plan will probably not cover the cost. Now setting up an appt with Photon…
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Avastin for Maintenance
i am wanting to talk with other survivors that have been on avastin for maintenance. I am having terrible muscle and joint pain. Has anyone had that issue?
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Cryoblation anyone have experience with this?
70 y.o. Gleason 3+4 most likely need to make treatment decision shortly. Hopkins urologist advances cryoblation based on cancer being fairly contained. Thoughts? Experience? How does this measure up compared to other treatments including total removal? Thanks for your comments in advance
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Post Surgery Concerns
I am new to the forum and am 3 weeks post robotic prostatectomy. I am having "issues" that I am trying to determine if they are normal or if I should seek some additional help. Specifically, I dribble a few (5-6) drops of blood nearly every time I start to urinate. My urine appears clear after the initial few drops, but it…
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possible soft tissue sarcoma
hi guys, i hope it is appropriate for me to post here not having been diagnosed yet. i visited my primary care doctor on tuesday, we discussed my symptoms and she reviewed my ultrasound of my abdominal tumor i had done at hospital and she is referring me to a surgeon to remove the tumor and send it to pathology. i am just…
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Looking for some guidance
Here is my situation: PSA 24.5, up from 15 1 month ago (but a different lab), 2 lesions on MRI (1.9 cm PRAD 4 at right periphery and (0.7) PRAD 5 near left transitional zone. I am due to get a biopsy next week and PSMA scan sometime after that. The MRI showed no extension beyond the prostate, but given the PSA level and…
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Anal Cancer
I am currently in recurrence of anal cancer. Originally diagnosed as Stage 2 T3, I underwent chemo and radiation to resolution, with recurrence diagnosed less than 1 year after completion of treatment. Currently, I run a message board for public awareness of HPV and HPV related cancers at www.hpvinfoweb@yahoogroups.com.…
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Low testosterone
Hi, I just started to take androgel for a very low testosterone count. I was wondering if anyone else has taken or is taken testosterone hormone therapy. How long did it take to see or feel results? Any side effects from the medication? Thanks for the help Matt
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Enzyme levels are raised
My dad who is in his early 80s recently had his blood tests done and had one abnormal reading - his CA Antigen 19-9 level was just over 50. Normal range is around 27. I've heard that high levels of CA 19-9 tends to be associated with cancer of the pancreas, bowel, gallbladder, bile duct, lung. Is this true? He has had no…
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Ultrasound shows one thing, CT scan does not.
I had a ultrasound that showed a 2 CM mass on my left kidney suspicious of neoplasm. My doctor called and told me it looked highly suspicious for kidney cancer and she would refer me to a surgeon, but first I needed a CT. I had a CT with contrast and is showed no mass on my left kidney. Which is great news, but is a CT…
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Newly diagnosed
I’m newly diagnosed with a brain tumor. I don’t know what to expect and the idea of surgery is terrifying to me. How do I get the neurosurgeon on my case to slow down and walk me through it? Why is my doctor so impatient with my questions? How do I ask about decision making…if/when it comes time to make those calls? I’m an…
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Narcissistic sister with terminal cancer
My sister who has this past year been given a terminal cancer diagnosis with no specific time frame as the consultants say they have not seen a cancer like hers before. Since her diagnosis she has been ruthless with family tearing us apart. She has a 7 year old daughter and l have a 7 year old son. Initially l was asked to…
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Name that cancer
I was reading another post and someone had "named" their cancer. At first I was a little taken aback, but then I thought that's kind of funny. They said "Harvey is gone and he's not coming back." I have Non-Hodgkin Lymphoma which I will be living with for a very long time, so I thought if I have to share my body with…
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Atypical ductal hyperplasia
My wife was diagnosed with ADH on core biopsy. Informed this is a precancerous condition and it could either be monitored or a surgical excision could be done. She has opted for surgery. Although everything based on test results points to this as a benign condition I am still scared it is cancer. Need advice.
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For new viewers considering Surgery
This post is currently for all the viewers on the site recently diagnosed and considering Surgery as an option but have not yet had one or two consultation’s with Surgeons. Here is what I gave learned are some important factors to consider in choosing your Surgeon during consultation’s. This being said the technologies and…
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Asymmetrical soft tissue on vaginally cuff
My CT scan shows an asymmetrical soft tissue mass on the right vaginally cuff. Now, my doctor has ordered an ultrasound of the area. Could this be indicative of cancer?
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Seeking Long-term Survivors of Esophageal Cancer
Hello everyone, My name is Anna, and I am reaching out to this community for support and information. My husband has been diagnosed with stage 2 adenocarcinoma of the esophagus. After undergoing chemotherapy and radiation therapy, he is now scheduled to have an esophagectomy. I am very anxious about the surgery and what…
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Uterine Carcinosarcoma
Are there any uterine carcinosarcoma survivors here?
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Maxillary Sinus Cancer
I'm looking for someone who has or had maxillary sinus cancer. I work at a hospital and a patient of mine is looking for someone who he can share his experience with. We have had difficulty finding someone that has been through what he is going through right now. He could really use the emotional support and the feeling…
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Received Post Prostatectomy Pathology
just received my post Surgery Pathology report. Lowered my Gleason 8 to unfavorable Gleason 7 (4+3). Also lowered my grade group 4 to grade group 3. At least I feel better I can call myself a 7, but there are caveat’s . The cancer had left prostate capsule. No distinct mass was identified. His initial cuts to Prostate bed…
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So much for thinking I was going to keep my eybrows/lashes
Funny story...So yesterday morning I woke up and what was left of my eyelashes were in my eyes, and I have maybe 10 eyebrow hairs left (done with A/C and on #5 of 12 taxol). So I'm about crying laying in bed and my husband says "it's ok honey, your a tree that has lost it's leaves, you'll grow new ones in the spring" I had…