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Just found out yesterday
Hello everyone - just found yesterday that I have uterine serous carcinoma. Don’t know the stage or much else at this time. I just found this site and have learned so much! I am 73 years old and have had some symptoms for several months. This is how it started: I’m really active physically and noticed during personal…
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Newly diagnosed, question regarding scans prior to surgery
Hi, I was on the prostate cancer board previously for my husband, now 2 yrs later I am here on csn for myself...This has all happened so quickly, one moment I was feeling normal and the next not at all :( I am 48 yrs old (have regular periods, no abnormal bleeding) and at the end of August developed extreme pelvic pain…
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Elevated CA125 and Scans
Sorry all but I I edited this post as I was not comfortable with it showing up in a Google search and I just had a couple of hours left to do so. I truly appreciate all your responses.
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Endometrial biopsy out of the blue....very scared
Hi......I am waiting for my biopsy results and am feeling petrified. I went for my yearly check up last week and the gynecologist found my endometrium to be 8.9mm thick..I'm 61 and and have been post menopausal for 6 years....I have no symptoms, no bleeding and so was so shocked. I had the biopsy done then and there…
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My cancer journey So far.
Hello I actually posted once on here before, back in early 2021. I figured I give an update on my journey and the confusing things I dealt with. My backstory I was officially diagnosed with stage one endometriosis cancer stage one after having a long continuous bleeding issue. The symptoms started July 2020 (I know right?)…
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Rant of the day
Got up at 4:30 this morning for the drive to my Cancer Center. Long drive, icy roads. Lab work, visit with my oncologist, infusion room crowded and a long wait for the pharmacy to get my Keytruda ready. Back hurts because of my SI joint. So. I am already tired and a liitle grumpy. The phone rings and it is a women from the…
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Link to article fund raised for gynecological cancer
I was just happy to read this article. I wanted to share it https://ca.news.yahoo.com/cape-breton-woman-recovered-cancer-090000175.html
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5/3/22 Update to My Possible EC Thread
I just wanted to give an update to my previous thread and thank you all for your words of encouragement! I had to step away from this forum as it was very overwhelming to me. My ECC on 4/8 came back clear so we moved forward with surgery. I am now 6 days post robotic-assisted hysterectomy with bilateral salpingectomy.…
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Possible EC
Hello, Ladies! My name is Ryan. My mother named me after "Ryan's Hope", the 70s soap opera. I just turned 43 this past Monday. I have one biological child, an amazing 15-year-old daughter. I live in Baton Rouge. I have been married for almost 18 years. A little backstory to my current situation: In June 2002, I had my…
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Stage 3 (IIIIC) Undifferentiated Endometrial Carcinoma
My mom got diagnosed around February 2019 with endometrial cancer, stage 3 grade c (late/advanced). Within a month or so, they did a total hysterectomy and then she continued with a pretty aggressive chemo and radiation plan, with discussions on immunotherapy as well (but those haven't begun yet). She completed her chemo…
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Will sex ever feel good again? Questions after hysterectomy
I got the go -ahead from my doctor at my 6 week post-op check up for having sex again but she said to wait one more week since I had some old brown discharge left in there. So I waited until a couple nights ago to have sex. Yesterday was week 8 of recovery. I was nervous because I didn't know if I would still have…
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Recently diagnosed with endometrial adenocarcinoma and possible endocervical primary
Biopsy taken from hysterectomy procedure results confirmed cancer diagnosis. I am being referred to oncologist. I was told by gynecologist that wait times may be long for first apt. And thereafter for a hysterectomy (back log from staffing shortages due to Jan. And Feb. 2022 covid). After receiving the diagnosis the idea…
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Getting back to my former self & disappointing malaise
Good morning, Friends! I’ve thought about this a lot and have finally decided to ask what y’all think. Please keep in mind that I’m not complaining because in the grand scheme of things:1) I’m still here & 2) I feel I’m doing the right thing to prevent a recurrence (immunotherapy). It’s been 14mths since my last chemo…
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A Story for You (yes, my cancer is mentioned sideways, lol)
This is a friend link so you can read free. This story was chosen for further distribution, which is kind of a "big deal" with the site.
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NCCN Basal Cell Skin Cancer Patient Webinar
I haven't paid much attention to the NCCN's patient webinars since they haven't had one on uterine cancer yet. But today I received a notice about an upcoming one on Basal Cell Skin Cancer that caught my eye due to the recent posts here on skin cancer:…
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Link to Story: Uterine Cancer, by yours truly
Here's your free link, lovies! I'm trying to help women learn about the sneakiness of this disease, be it my type (sigh, okay, garden style! obnoxious, toxic weeds though), or the more serious (pun intended) kind. So far, I've educated several women, and I'm glad about that. Deb
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Got diagnosed 1 weekago with endometrial adenocarcinoma, endometriod type, FIGO rating 1/111. What
Got diagnosed one week ago with endometrial adenocarcinoma, endometrioid type FIGO rating 1/111. Will see oncologist in one week. Can anybody please tell me what does FIGO 1/111 mean?
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Newly diagnosed-Endometrial Serous Carcinoma-1A
Just had surgery on 09-16-2021 at Mayo. Total Hysterectomy, Serous Carcinoma of the Endometrium Stage1A. No cancer found in ovaries, tubes, lymph nodes or omentum. Treatment plan was chemo and radiation. I had a anaphylactic reaction after 4 minutes of Taxol. Choosing to continue with just the brachytherapy radiation.…
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Question about shots to increase blood counts
Good Afternoon, Would anyone happen to know anything about Ziextenzo and Filgrastim injections? I will be starting this meds soon. I can always talk to my nurse about these meds. I just hope I don't experience any serious side effects. Lisa
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Uterine cancer symptoms
As I've posted before, my 78 year old mom was diagnosed with uterine cancer in January. Her only symptom was vaginal bleeding, similar to a period. I was wondering what other symptoms some of the other "maturer" women had. My mom had not been to a gyn in about 11-12 years and I feel a little guilty about not insisting she…
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Essential Oils
i have been wondering about essentials oils mainly to help with the pain I have in my hip and shoulder, so I ordered a small set from Amazon and asked my Oncologist about using them. He said that as long as I didnot put it in my mouth he had no problem with it. He said injesting it may not be good with my treatment.…
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Updates to the Introduction and FAQ Topics
I just updated these two topics. Both have some new links that relate to the 2021 site redesign. So, if you're still finding your way around the site, whether as a new member or a long-time member, you may find one or more of these links useful.
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Test for uterine and ovarian cancers
Hello ladies, I have been an occasional reader of this board. When my mother was going through her treatments for UPSC I found it really helpful to read about other women's thoughts and experiences and I am always cheering you on from the sidelines with gratitude. The reason that I'm finally posting is that I wanted to…
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Cancer not responding to Carbo/Taxol on initial treatment plan?
Mom had her 5th Carbo/Taxol treatment after clear CT in Oct and lowering CA125 only to find out this week that she has a recurrence in the pelvic lymph nodes (found out as she had abdominal pain and found out that a swelling lymph node was pressing on her ureter). Obviously, this treatment is not working. Has anyone had…
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New article from the Lancet on Endometrial cancer
https://www.sciencedirect.com/science/article/pii/S0140673622003233?dgcid=author Author is Dr. Emma Crosbie The report is a good overall view of current EC knowledge and research. It is not a treatment protocol like the NCCN guidelines. I especially was interested in the flow chart for "Investigating post menopausal…
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FDA Approves Pembrolizumab for Advanced MSI-H/dMMR Endometrial Cancer
The link above says: Pembrolizumab has been approved by the FDA for the use in advanced microsatellite instability–high/mismatch repair–deficient endometrial cancer following prior systemic therapy. The FDA has approved pembrolizumab (Keytruda) for advanced microsatellite instability–high (MSI-H) or mismatch…
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Anniversary of my Surgery is the 24th of March
One year ago, I had my big surgery on the 24th of March. I'd just like to say it's been one hell of an experience. Thank you all for your ongoing support and all of your help. love, Deb
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Differences in type of Uterine cancers
What are the differences between what I have MMMT uterine cancer and the other type of uterine cancers? I read all of the posts but don.t post much. Thanks
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Cold Capping
I have had 2 chemo treatments (Taxol-Carboplatin) and it feels I have had 3 treatments😄. I experienced some hair loss and now have balding spots on the top of my head. I am so glad I bought some nice wigs in advance. I know I will lose more hair and cannot wait until the treatments are over! Just wondering how others are…
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Uterine Cancer Mortality Now Neck and Neck With Ovarian Cancer
I just came across this recent article (Feb. 9, 2022), which I thought I would share: https://www.medpagetoday.com/hematologyoncology/othercancers/97107 Good news for ovarian cancer, not so much for uterine cancer, but important information to be aware of nonetheless. I also thought it might be food for thought for some of…