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A Cheerful Diversion from the 2
I told you I'd been accepted as a writer for "Crow's Feet," a publication for older adults (mostly). Here is my first published article!
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Sex after radiation
For those that have had external beam radiation and brachytherapy how long afterwards did it take before you were able to have sex? I'm concerned about vaginal stenosis. After those radiation treatments is a relatively normal sex life possible? I'm currently going through radiation treatments now and I'm concerned about…
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Normal wound healing??
Yesterday I removed the steri strips since today marks 3 weeks since surgery and last week when I talked to the after-hours nurse he told me if they hadn't started coming off by this week to let them know. Well 2 out of 5 look awesome, can't even hardly tell they did anything there. I have just a small bump under the skin.…
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Beginning Keytruda and Lenvima
Hello! I had 4 Taxol/Carboplatin sessions and had mixed results. After 3rd, the doctor ordered another CT because my CA125 was stabilizing in the low 200's. The results were mixed. Some grew, couple shrunk, and no new tumors. The doctor decided to move to Keytruda and Lenvima. I did have one more session of chemo. I go…
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Undergoing second hysteroscopy w D&C
Hi all, I am curious if anyone has had this happen and whether there is anything more I should know or advocate for myself. I am undergoing my second Hysteroscopy w d/c for suspected polyp removal. I am 53 peri menopausal w recent irregular bleeding (spotting for 2 weeks right after period x2, and one or more bleeding…
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Updated NCCN Guidelines
NCCN has updated both its clinical and patient guidelines. You do need to setup a free account with NCCN in order to access and download the clinical guidelines, although the patient guidelines don't require an account. One major change is that separate pathways were created for the following high-risk endometrial…
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Questions about CA-125 test
I will be starting radiation soon. I was diagnosed with endometrial adenocarcinoma. I asked my doctor yesterday if I had a CA-125 test before or after my hysterectomy. I only asked because I see that test mentioned so frequently in everyone's posts. The doctor told me that test was for ovarian cancer and that I haven't had…
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Just given the diagnosis of MMMT
Uugh. I just received the diagnosis of MMMT / carcinisarcoma. From what I have read, the prognosis isn't very good. I know I need to keep my head up but it's tough. I am fairly young, 49, so I hope that is in my favor. Anybody have succes beating this beast? ~Melissa
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March Birthdays?
Today is March 1st and I am going to blazenly say, It is My Birthday! I am so happy to celebrate this day feeling good! I walked an extended walk this beautiful morning just to prove I could. As always, I think today how fortunate I am and of all the ladies here with first dx and starting various treatments...particulatly…
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Immunotherapy Fail-dostarlimab
I knew this time would come but I didn’t know how fast. For the past month I’ve had some severe pain in my right hip at the top of the bone. I never thought it was “cancer related”. Last Friday a week ago I sent a note to my team detailing how bad I felt and got an acute care appointment at the cancer center. Even with…
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Just Feeling a Bit Emotional Tonight
I want to be positive. I want to help other women. I want to know the good, the bad, the ugly. If you get really ill, I won't leave. I just want to say that I know most of you are the same. I'm not afraid of getting too close to people. If I like you, I like you. Same with love. Because cancer is such a nasty little…
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Did anyone else receive a private message from Silverfox2022?
Hi, Ladies I was just curious…it freaked me out a little…like, where did he come from? and now he seems to have vanished. We are very close here, and are pretty adept at sniffing a “fox in the henhouse.” Pun intended! I don’t think a more apropos pun exists! 😂 So this guy, Silverfox2022…Had some “red flags”…1) he’s a…
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POSSIBLE UTERINE POLYP MY MOTHER DIED AT 49 IN 4 MONTHS FROM ENDOMETRIAL CANCER!
Hi, Below is a post I made on the HysterSisters site. I have not been going through this since 2008 at all, as I said in July 2008 I had a regular Pap test that found some endometrial cells on it and so I went to a new gynecologist who gave me the TruTest biopsy which uses a Tao brush which some say is more accurate and…
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Newly diagnosed with a recurrent Endometrioid Adenocarcinoma
First, thank you all for contributing, listening, and encouraging. I had a total laporoscopic hysterectomy in 2019 as a postmenopausal woman, after lots of bleeding, pain, and misery -eventually several biopsies found the cancer. It was stage 1a and my doctor did no other treatments after the surgery. I had been going for…
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Back home from surgery!
Hi All: Well my surgery went well. Unfortunately they were unable to do it laparoscopically due to how much scar tissue I had so they had to do an incision. It is higher up that my previous ones. They removed scar tissue and also removed a piece of my small bowel which seemed to have been stuck which may have been causing…
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DAK <3 Our Deb 1
Dear Deb 1, I know you're very busy taking care of yourself, and I was afraid that it would be hard for you to find a note from me, and perhaps from all of us. I know others who love you may add a note below. I just want you to know I am so grateful for all the love and encouragement I've gotten from you in this last year.…
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another NED
Sorry I haven't been able to post an update before now. It has just been a crazy busy week. However, I really wanted to share with my fellow "cancer warriors" the good news. I had my baseline CT scan on Monday, and the results were: "No evidence of metastatic disease." Hallelujah! I also had post-chemo labs done that day…
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Cancer Care Package
Hello ladies, My friend has just recently been diagnosed with uterine cancer and is currently in week 3 of 7 1/2 weeks of treatment. She is receiving external radiation 5 times a week for 7 1/2 weeks and internal radiation once a week for 5 weeks. She is also receiving chemo (Cisplatin) but I am not sure how many times a…
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Ten Things I Learned...
I published a story today and would love to share it with you. Here's a "friend link." Hope you like it! After you read it in the site, you can "click" the applause button at the bottom of the article up to 50 times, which helps bump me up the food chain as a writer. If you like it, thanks. If not, that's okay too. Love to…
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Will a tooth extraction put my chemo on hold my
Had a tooth ache, the dentist said I have an abscess in my tooth with the root canal and recommends an extraction. He said my immune system is being comparmised so I was voluable to the tooth abscess, he will call my oncologist Monday to discusses the plan, has anyone been in this situation, being on antibiotics and…
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Newly Diagnosed with stage 4b MMMT
I just recently had a radical hysterectomy and the pathology report came in as Edometrial Carcinosarcoma Maligment Mixed Mulleran Tumor Carinoma componet high grade serous type Stage 4B. I have it in lymphodes, one ovary (removed), the Doc said it was also hanging off the colon, rectum, and bladder and its in my Omentum...…
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My hysterectomy
I had my hysterectomy Tuesday morning. They got me in prep by 6:00. I was given Tylenol and tramadol during prep and after they got me groggy they did a nerve block in my back and put in a second IV. I very vaguely remember being put in recovery. Someone told me I got to keep my ovaries and it went great. I was so out of…
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Avastin
After surgery, chemo. radiation, keutruda, I am now on avastin. Anyone else on this path?
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Diagnosed with stage IVB Endometrial cancer
I'm 42 years old. I'm overweight but otherwise have been in good health till now About maybe 10 weeks ago I noted my belly was getting more solid, but I am overweight and was purposly losing weight. Then I had a super heavy period for 2 weeks that left me weak for a few days but I assumed it was blood loss and took iron…
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Im 34!!! Please any advice On thickened endometrium 15.90mm
Hi everyone I’m new here, I am finding comfort in the warmness of the forum. I wanted to share what I’m going through and see if anyone has any advice for me. I’m 34, was diagnosed with PCOS at 16. Over the years I have had months of missing periods, regular periods that come like clock work, or some that come like every…
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Plateaued CA125
In Oct I was diagnosed with recurrent Uterine Cancer. Numerous tumors in my abdominal cavity. My ca125 was 135 at time of diagnosis. 8 weeks later it was 439 (before treatment). Next draw was 244 (2 days before first treatment). After my first treatment it was 214 and then 222 after 2nd. Had my 3rd cycle last week so don't…
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Worried- thickened endometrium with bleeding
Hello, Hope everyone is well and staying safe. I'm writing here to see if I can hear any experience or opinions that are similar to my mom's thickened endometrium and postmenopausal bleeding. A little background: She's about 65 y/o. In october 2019 she had some spotting so we did an ultrasound which showed thin endometrium…
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Abnormally thick endometrium
Good morning, I am a 44 year old premenapausal woman. I have been having pelvic pain for months. I had elevated CA-125 levels and finally got my pelvic ultrasound and they found a probable corpus luteum cyst, 2 probable uterine fibroids and Abnormally thickened and unusually heterogeneous endometrium with internal…
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Looking for mentor
Uterine stage IV leiomyosarcoma. Uterus, lungs, brain lesions. Six rounds five days in patient chemo. Soon 4-5 radiation therapy sessions on brain lesions January 2022. Female, 37 at diagnosis. Looking for similar YA cancer survivor with my stage and metastasis and how they survived. Also what did they do in the mean time…
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4 years since Stage 4B diagnosis, 3.5 years NED
Hello, everyone - I don't stop in often anymore but wanted to share good news I received recently. I was diagnosed in January 2018, initially as Stage II, then 3 months later after a scan, Stage IVB with nodules having spread to my lungs via LVSI. Life looked like it would be quite abbreviated. Yet here I am, 59 now, and…