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Ringing the Bell
Today we finally got a win!! And I say WE because my husband is with me every step of the way. I don't know what the future may hold, but today I got to ring the bell after completing my last scheduled Chemo!!! I'll still be going back as I participate in the RUBY Clinical Trial with immunotherapy. But today, we reached a…
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New blood test for cancer
This sounds like really good news. It has a very high accuracy. https://www.medscape.com/viewarticle/966130?src=soc_fb_220106_mscpedt_news_mdscp_bloodtest&faf=1
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Relief from painful neuropathy in feet, legs, and hands.
I've heard some people talk about some cold therapy right before or during chemo, specifically on the feet. Any suggestions? I am in a lot of pain and I have lots more chemo treatments to get past. Once pain meds do nothing, so I had to get my big ice pack out the freezer, dig out my massager used for joint pain, and plug…
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Neulasta
I’m curious if anyone is taking the Neulasta shot. Thoughts, experience, complaint, etc. Thanks.
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Treatments with Niraparib or Kaytruda
My mom was diagnosed with Stage 3c carcinosarcoma of endometrium, underwent the surgery and now waiting for radiation and chemo. I’ve been looking for what kind of new treatments are out there and found out about these 2 medications: - Kaytruda - Niraparib Niraparib (ZEJULA) is a PARP inhibitor, I saw a video from 2017…
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6 week follow-up appointment after hysterectomy
I was very worried that my doctor would say something wasn't looking right or healing right but she checked my incisions and said the worst looking one wasn't infected, just inflamed. She removed my one little stitch from the incision above my belly button and that looks a lot better. She did a quick pelvic exam and said…
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Caught My Dress In My Panty Hose! Whee! (just for fun)
Love you all. Do make sure and give MissTaylor some love too. She's doing better, now five weeks post op! Here's a link to my latest story, ladies. Enjoy!
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Dairy of a scared women- endometrium 15.90mm age 34
Hello beauties, I’m 34 years young mommy of 4. Here is a journal of my journey through finding out answers, hopefully this helps someone later down the line with answers or with some sort of comfort in the most frightening moments of your life. I pray that your outcome is wonderful and cancer free. <3!! -ENDOMETRIUM ISSUES…
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Starting Immunotherapy and Chemo Tomorrow
Adding Immunotherapy first line since my tumor is microsatellite instability high. Chemo is carboplatin plus paclitaxel. May the force be with me!
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Selinexor (Xpovio) for advanced or recurrent endo cancer
"Researchers announce the first results of a Phase 3 clinical study of selinexor as maintenance therapy for advanced or recurrent endometrial cancer following complete or partial response to induction combination platinum/taxane chemotherapy. Compared with the placebo-controlled group, patients receiving the treatment…
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Verzenio + aromatase inhibitor for recurrent ER+ endo cancer
The results of a trial were posted recently, thought I'd share. "A combination therapy that targets cancer cells from within and without caused tumors to shrink or stabilize in 75% of patients with recurrent or persistent estrogen receptor- (ER-) positive endometrial cancer, results from a recent clinical trial show." ...…
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5 Weeks post-hysterectomy
Tomorrow marks 5 weeks since I had my surgery. Hopefully only a few more weeks or maybe sooner before all my restrictions are lifted. I see my doctor in Atlanta on the 23rd. Overall the last couple weeks I have felt pretty good. Not normal, but definitely better. I don't have much pain from what I'm guessing is my cuff,…
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Two Bits of News
Oh, my....I've got two positive pieces of news! I've been accepted as a contributing writer for "Crow's Feet," which is an online magazine that publishes on Medium, a great website I belong to with articles from thousands of writers. This is a wonderful thing, as I had routinely written and had articles published before…
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Sandwich of chemo then radiation then chemo
Any experience/info on this approach? I have uterine carcinosarcoma stage 3, so looking to help the odds. Thank you!
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Let's have a roll call!
We have a lot of new people and although the board has been pretty quiet lately, let's have a roll call. 1. Type of uterine cancer - Stage & Grade 2. Treatment 3. Current status 4. Anything else you'd like to share or what you've learned from this journey, etc. If you've been following the posts but haven't posted…
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uterine serous carsinoma
Willow oaks Posts: 1 Joined: Jan 2020 Jan 22, 2020 - 5:17 am Uterine Serous Carcinoma I’ve just been learned I have Serous Carsinoma. I’m scared on too many level To think about!
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Building up WBCs
My care team has started to order me either Neulasta or Udenyca for my upcoming treatments since my WBCs are already on rhe "low" end. Anyone have any up front info for educating me on these drugs? I already have been briefed that I will most likely get BONE PAIN for days after the injection is given cause the wbcs are…
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Just a little laugh.
Just thought this might give someone a little smile. I had Neulasta after 5 of my 6 chemo infusions. I had that little thing they attach to you. They put mine on my belly, said that was less intrusive than my arm,🤷♀️. Anyway after they stick it on you, it counts down a few seconds and then you get a tiny prick. I have a…
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USPC - how to approach my specialist with questions regarding treatment?
Uterine Serous Papillary Carcinoma - 1A but with high risk mismatch repair gene protein expression proficient (p53 mutant), and specialist advising a watch and wait after surgery. It is scary that so many have the same diagnosis as myself and we seem to be around the same age (just turned 62) and had a few episodes of…
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Feeling like deja vu
Hello all, I've posted a few times in regards to my mom's battle with stage IV endometrial cancer in regards to a thread about Keytruda & Lenvima side effects but figured this might reach others as well. Quick background: in March of 2018 my mom had a total hysterectomy for what was confirmed as stage 1 endometrial cancer.…
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Cancer and a Cooper's Hawk
You'll appreciate this story! I blended my cancer experience with rescuing a fledgling hawk.
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Immunotherapy in Endometrial Cancer: Expanding Horizons Online Presentation
I just watched one of the presentations that was delivered as part of the online Survive and Thrive event that woodstock99 told us about at in her post at: https://csn.cancer.org/node/324033 The session I watched was "Immunotherapy in Endometrial Cancer: Expanding Horizons" at…
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Choose your Dr. and facility wisely.
I just feel like I have to comment on this. Especially since reading about lack of compassion and a Dr who was not a good match. After my diagnosis, I researched treatment facilities and Drs. I didn’t want to go to our nearest large town, Salem, OR. (I try to avoid Salem whenever possible. Lol) I knew I wanted a female Dr.…
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Another Story Just for Funsies :)
Here you go, ladies! Hope it's fun to read.
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First chemo session
On Friday, March 4th I went in for my first ever chemo session of Taxol and Carboplatin. I was a "fast track" on that day because my labs were done the previous week. Anyways after the team got me settled in and explained all the procedures that would be happening, then I put my sig on the forms. I just thanked God I was…
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I Ditched my Dirty Doctor (you ladies heard this story informally last year)
Well, I'm now writing again! How 'bout that! Enjoy.
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A Cheerful Diversion from the 2
I told you I'd been accepted as a writer for "Crow's Feet," a publication for older adults (mostly). Here is my first published article!
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Sex after radiation
For those that have had external beam radiation and brachytherapy how long afterwards did it take before you were able to have sex? I'm concerned about vaginal stenosis. After those radiation treatments is a relatively normal sex life possible? I'm currently going through radiation treatments now and I'm concerned about…
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Normal wound healing??
Yesterday I removed the steri strips since today marks 3 weeks since surgery and last week when I talked to the after-hours nurse he told me if they hadn't started coming off by this week to let them know. Well 2 out of 5 look awesome, can't even hardly tell they did anything there. I have just a small bump under the skin.…
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Beginning Keytruda and Lenvima
Hello! I had 4 Taxol/Carboplatin sessions and had mixed results. After 3rd, the doctor ordered another CT because my CA125 was stabilizing in the low 200's. The results were mixed. Some grew, couple shrunk, and no new tumors. The doctor decided to move to Keytruda and Lenvima. I did have one more session of chemo. I go…