-
Small Bowel Cancer
I'm recovering from small bowel cancer. I have found very little information online. I'd like to hear from anyone who has or had small bowel cancer, or has links to any information. Good luck to all of you. 2ndtimer
-
DFSP Dermatofibrosarcoma Protuberans
Have you been diagnosed with this rare sarcoma? I have started a Facebook page (DFSP - Dermatofibrosarcoma Protuberans) to help everyone share information. I am a new diagnosed person. The information is scarce. I am waiting to find out what are my next steps but it's been 12 weeks since my Dermatologist has known which…
-
Pancreatic Cancer/Whipple procedure
My mother was diagnosed last month with pancreatic ca, and underwent the Whipple procedure to remove the tumor. All of the duodenum was removed, 2/3 of the stomach and 1/3 of the pancreas. The tumor was growing in such a way as to occlude the common bile duct causing jaundice. The tumor did not show on any CT scans, and…
-
Gallbladder Cancer - 2015
Hello All, I am sorry to start this post with the sad news that my own mother has passed of this disease on January 20, 2015. What you should know is that this was a 5+ year battle and there is hope for those of you newly diagnosed. I feel like this board has become stale and it is so important to connect with others…
-
Financial Assistance
My wife was diagnosed with Olfactory neuroblastoma back in March. It is located in her nasal cavity, brain, two lymph nodes in her neck, and behind her throat. She had extreme chemo treatments every 21 days with great results. They started to do the surgery but backed off after cancer cells were detected in an area thay…
-
Memorial Sloan Kettering offering free genomic testing for rare cancers
From our experience (stage 4 gallbladder cancer, but it applies to others also), it is so important to ask to get your tumor tissue genomically tested as soon as possible, to see if you are a candidate for immunotherapy or targeted therapy. Please ask for them to test for immunotherapy indicators like PD-1/PD-L1 as well…
-
Vaginal Cancer
Dear Sir/Madam: I have vaginal cancer for which I have had surgery and radiation treatment. Since this appears to be an unusual form of cancer, there is very little information that I can find on the internet. Oncologists and gynolcologists have not been very helpful in this regard. I am 69 years old and have gone beyond…
-
Adenoid Cystic Carcinoma
Just wanted to poke my head into this forum, I participate in the head and neck forum since thats where my cancer was found. But, it is a rare cancer, so, just wanted to put a post here for anyone that may pass through looking for something on adenoid cystic. Much Love, -PC
-
GIST and Gleevec
Does anyone have or had Gastrointestinal Stromal Tumors?
-
Need help! Olfactory neuroblastoma
my Mom found out not to long ago that she has olfactory neuroblastoma it started by loosing her sense of smell and taste slightly, they then found pollups in her nose wich they did surgery on and got out but they also found the tumor at base of the skull. So she went in for surgery last Wednesday 6 days ago (valentines…
-
Whipple procedure recovery
My Friend had the Whipple procedure several weeks ago. She has pancreatic cancer. The surgery was successful but the recovery is very difficult. Can people share their experiences with recovering from the Whipple and what helped them get through?
-
Pancreatic cancer
Why isn't there a listing for pancreatic cancer? It's one of the most deadly. How do I get to those discussions? Thank you in advance
-
Appendiceal Cancer
I am 51 and after going to the ER for Appendicitis I found out I had a 10cm mass on rt ovary, and shadow or lesions on my liver. I had surgery with a gyn/oncologist at Duke yesterday who quickly found out it was a mucinous appendiceal cancer that had encapsulated my ovary. They removed both ovaries, tubes and appendix…
-
Biopsy of thymus
I am 56 and have an enlared thymus. My surgeon said that he wants to remove the thymus because the procedure would be the same for the biopsy meaning cutting the breast bone. Please I am so scared is there anyone out there who has had this surgery done? I have had a cat of my chest and thats how they found the enlargment.…
-
HELP!!!! Thymic Carcinoma
My mother was diagnosed with Thymic Carcinoma. She has completed an aggressive chemo treatment, but the doctors said it is still inoperable because of the location. We were told the radiation treatment will be very intense, but would only add a few months of life. I would appreciate any input on different treatments and…
-
Peritoneal Mesothelioma
I’ve just been diagnosed, and I know almost nothnight. Does anyone out there have the same kind of mesothelioma?
-
Peritoneal Mesothelioma
I’ve just been diagnosed, and I know almost nothnight. Does anyone out there have the same kind of mesothelioma?
-
re-occurring plasmacytoma in a different location
Is there anyone that has had re-occurring plasmacytoma in a different location? This is my second bout. First was in my back (2002) and now I start treatment in my hip. My doctor says it is very unique specimen to have another singular tumor in a different location. The hope is way eliminating the tumor will also eliminate…
-
Alternative cancer therapy
Hello. I'm from the Netherlands and my father has been diagnosed with liver metastases from an Adenocarcinoma of Unknown Primary. Due to his condition he's unable to receive any conventional cancer therapy. The doctors think his liver is too weak to withstand chemo or radiation and the doctors say immunotherapy won't work…
-
Fallopian Tube Cancer
My mom was diagnosed with this after having a radical hysterectomy to treat a stage 2 adenocarcinoma cervical cancer tumor. They discovered she also had adenocarcinoma of the left fallopian tube and precancerous cells in the right. Because it was found after the surgery and not staged properly, the drs decided to treat it…
-
Appendix Cancer
Dear Friends, I have always gladly made myself available to help others with appendix cancer. However, for the next few weeks at least, I won't be answering emails and such, as I have to take care of myself. I've had a recurrence after 9 years of NED, and am headed to Sloan Kettering for more surgery in a few days. My…
-
Sacrum cancer
My husband 57 just diagnosed thru MRI, biopsy tomorrow , I can't find much info. So scared theythink melanoma sacral No cancer anywhere else in body we know of Please if someone knows any positive,possible survival let me know I'm terrifief
-
gallbladder cancer stage 4
I just signed up to this discussion board hoping to find more recent posts. Many are really old! I was diagnosed May 8 with stage 4 gallbladder cancer and have been undergoing chemotherapy with gemcitabine and cisplatin which seem to be reducing the tumor although it is still really early. I too have been told that because…
-
Scared Malignant Sacrococcygeal Germ Cell Cancer Surviver
A little background: during my infancy for a year (back in 1989) I was hospitalized at Schneider’s Children’s Hospital (Now known at Cohens Children’s Hospital) in Long Island, N.Y. I was treated for malignant sacrococcygeal germ cell tumor. I had undergone multiple transfusions, chemotherapy rounds, bone marrow…
-
Asparagus and Cancer
I have recently received an email from a family member. I lost my mother to breast cancer in 1993 and was in shock at the time and God has opened my eyes recently and has shown me areas in my life I need to change. Has anyone received this information on asparagus and cancer and is there proof to this? If so I want to…
-
Medications and Trials
Small Intestine Cancer
-
myxopapillary Ependymoma
Hello everyone, Im happily married with 3 beautiful boys and i just found out i have a cancer called myxopapillary ependymoma(tumor in spine). I start radiation tuesday, but i was just wondering if anyone has had this or knows someone who has. Im pretty scared to be goin through this, im young and just wanna get better,…
-
squamous cell carcinoma of right inguinal lymph with unknown primary
Has anyone experienced this type of cancer? What kind of treatment have you had? One radiation oncologist recommended 6 1/2 weeks of radiation to both groins, the vulva and anus and chemo weeks one and five (treating as anal cancer although all tests are negative); a well-known clinic said to do that or just "observe". Two…
-
Treatment for pancreatic cancer spead to liver
my husband had a wipple procedure and he was getting ready for radiation and chemo when they did the ct scan they found a spot on his liver. They want him to go in a study for a new drug it is called alimta plus gemzar has anyone had this treatment? They also told him that the operation was a success and everything was…
-
Radiation + Capecitabine: Others with this Combo?
Hello and best wishes to all. This is my first post. In Sept. 2017, I was diagnosed with pancreatic cancer and then went through 6 grueling months of chemotherapy. My tumor shrank and did not spread. But, due to blood clots in nearby veins, I was not a candidate for surgery. Today I am starting a new treatment -- radiation…