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neuroblastoma
Hi everyone I am new here. I am 23 years old and a survivor of neuroblastoma. I don't know very much about the type of cancer I had except that is a rare childhood type of cancer. I will appricate anyone's reply to this message and I offer my support as well. Aquagirl18
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whipple
i am 10 days out of surgery and this is no fun. any advice out there?
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goblet carcinoid or signet ring cell of the appendix or colon???
The confusion is overwhelming. I was originally diagnosed with Stage IV Poorly differentiated signet ring cell adenocarcinoma. surgery removed my a tumor, appendix, part of my colon,small intestine the omentum (which had tumors in it) and several lymph nodes of which one had a tumor. A month later they changed the…
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Vulvar Melanoma
I am hoping to connect with others who have been there done that. Preferably those with vulvar melanoma in particular and not vulvar cancer. I was diagnosed in January, Stage 3 with a large primary. I have been doing my homework and talking with my oncologist and I know the prognosis is not wonderful... or even good. I…
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Neuroendocrine cancer ovarian origin
Hi, in February of this year I was diagnosed with stage 3 Neuroendocrine cancer ( small cell ) poorly diffenrentiated high-grade tumor (23cm) of ovarian origin. I find it very difficult to find information on this type of cancer. I had three cycles of chemo ( 3 days each cycle of cysplatin and etoposide)then surgery, then…
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omentum cancer
Hi everyone, before I ask anything I would just like to say thankyou in advance and also wish everyone on the site the best with what they are going through or have survived. I am looking to speak to anyone male who has had omentum cancer as a metastasis from the bowel or other area as i have been led to believe its very…
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Chroidal melanoma (Eye Cancer)
Does anyone have this? I need some one to talk with about the anxiety/fear that I am going through, in dealing with this...Is anxiety/fear common?
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Neuroendocrine Carcinoma
Hello- just checking to see if anyone else has been living through this diagnosis. Would love to share experiences. Chris Neuroendocrine Carcinoma, Cervical l-2B
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My Mother has Soft Tissue Leiomyosarcoma in Thigh 35+cm tumor
Hi, I really don't know what to say so I'll just start at the beginning. My siblings and I all have a strained relationship with our mother for different reasons, and we've all had to distance ourselves, not only for ourselves but for our children's mental well being. Im only mentioning this because by the time she called…
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Stage 4 Bile Duct Cancer
Hi, my dad was recently diagnosed with stage 4 bile duct cancer in July of this year. The cancer started in his bile duct in the liver and spread to his liver, lungs and pelvis bone. He has had two cycles (4 treatements) of chemo. My dad seems to be getting worse and I am very consider, it's blood work isn't changing, but…
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Circulating Tumor DNA in Carcinoma of Unknown Primary
This recent publication showed a very effective and noninvasive way to determine genetic alterations in cancer with unknown primary. In 99.7% of the patients, the authors found that genomics profiling of tumor DNA circulating in plasma revealed driver mutations that are targetable by drugs. Cancer Res. 2017 Aug…
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Gallbladder Cancer - 2013 (Any Stage)
Hello Everyone! Happy New Year! 2013 will be a year of many blessings for all of us. As usual (4th year in a row) here is a new thread for our rare GBC diagnosis. I’m thankful to say I’m still here (7 years- no recurrence) with all of you, even if last year I wasn’t on top of all the discussions. But there are many others…
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Signet Ring Cell Adenocarcinoma of Rectum
I opened a new forum topic on this type of cancer in the Colorectal Cancer Discussion group.
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ureter cancer
Wonder if any of you survivors have had ureter cancer? Just got through a bout with breast cancer and happy to say they got cancer now facing this. Surgury Feb. 11, 2013. They will remove my kidney and part of my bladder. As for as they know from CT scan has not spread but is highgrade. Anybody had this or g family member?…
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adenocarcinoma of the ethomid sinus
Hello, out there I have just been diagnosed with adencarcinoma of the ethomid sinus? My mind is just running out of control; Is there anybody that can talk with me about this type of cancer.
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Aggressive Digital Papillary Adenocarcinoma
I was just diagnosed with Aggressive Digital Papillary Adenocarcinoma. About three years ago,I noticed a bump on my finger. Within the last year, it got bigger and I went to the doctor to have it checked. They were unsure of what it was and had never seen anything like before. The tumor was located in my left middle finger…
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Peritoneal Carcinomatosis of Pancreatic Origin Prognosis?
First post here, because we have so many questions... Dad diagnosed with un-resectable LAPC in Sept 2016. Underwent 12 cycles of FOLFIRINOX and one of SBRT, CA 19-9 started at 452 and trended down afterwards, prior to Whipple with a vascular reconstruction here at Stanford Hospital in April 2017 (where we relocated…
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Mees line on fingers or toes
Has anyone had these? Hard to find doctor who even know that these could be caused by. cancer. Anyone who can respond would help so much. Thank you.
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Septum nasel cancer
Just wondering if anyone has been diagnosed with cancer of the septum in the nasel cavity? What were you early symptoms? How were you diagnosed? I am thinking I may have this as I have many of the symptoms. It is rare but happens. I am in contact with 2 other who have had this cancer.
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Pancreatic cancer side effects from folfirinox treatment with rittilan and or marijuana
Has anyone had experience treatin side effects with marijuana for naseua or weightloss due to lack of appitite? Has anyone had experience using rittilan for fatigue? Both appear in scientific literature.
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About GIST
I would like to hear from anyone who has the same cancer as I do. It is a form of Leiomyosarcoma. I am a survior, was diagnosed, July 27, 2000. Sure was a shock to me, needless to say. Thank you, Sharon
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Bile duct cancer
Hello, I was just digignosed with bile duct cancer and set for the whipple procedure in about a week, I am 48 and in good health and shape otherwise, but of course very nervous about this procedure, I have been told I am a great candidate for thi ssurgery and the cancer is local to the duct and has not spread, I ws just…
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Pancreatic Cancer
I was given 1 years to live in September 2016. Pancreatic mass was 2/3 of the pancreas. I have been doing chemo and was told yesterday that the mass is gone. I want to share this to give others hope. I am still on chemo. I still have some inflamation in and around the main blood vessel. I am so happy! My doctor said we now…
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chordoma
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Neuroendocrine carcinoma of the neck
My husband was diagnosed with Neuroendocrine carcinoma of the neck. Needless to say, this is extremely rare to have in the neck area. So rare, that his oncologist suspected that the pathology report was incorrect. We live in Northeast PA in a middle size city. On his suggestion, we traveled to Memorial Sloan Kettering for…
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Gallbladder Cancer - Inoperable Due to Blood Vessel Involvement
Happy New Year from England! My wife (45) has recently been diagnosed with GBC, after going jaundiced. The U.K. Approach to treatment, is to attempt surgery, before employing chemotherapy. This seems to contradict American practice? Her Attempted liver resection could not be carried out, as it was found that the cancer had…
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Olfactory Neuroblastoma
Hi, My husband just had surgery to remove a polyp in his nose/sinuses. It was a tumor originating from the Olfactory nerve cells. The biopsy could not confirm whether it was benign or cancerous. He is scheduled for an MRI this week. The doctor said there will need to be more surgery to make sure all of the tumor was…
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GastroIntestinalStromalTumor
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Adrenal cancer stage 4
Hi all friends! My husband is going through treatment for ACC stage 4 since 2015 October. First he has severe back pain and light fever than after a month the general physician found the 7cm tumor in adrenal left. It spread to liver with many spots and in back L2 bone. After six cycles of chemotherapy his liver tumors…
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Duedonal cancer, stage 4
Stage four duedonal cancer : I have stage 4 duedonal cancer, I was diagnosed in may of 2016. I am now 61 years old. A woman. It's inoperable, it metastasized, into my stomach cavity, not my stomach but between. I have had a jujetsom operation to bypass my duedomen and have my stomach emptying into a intestine. I now have a…