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Has anyone had care at Cancer Treatment Centers of America?
Has anyone had anything to do with these Centers? and if so I would like to know if they really are all they are cracked up to be on the commercials that you see on TV. I had a discussion on the internet with a "Patient Advocate" and saved that conversation so if anyone is interested I will send it to you. I just wonder if…
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myxopapillary ependymoma treatment options
Dear All, My 50 year old younger sister lives in a rural michigan township and is the sole caregiver for my elderly parents. Recently she was diagnosed with this rare tumor - she had been having pain, numbness and tingling from lower back all the way down to her ankle for the past month. I live in los angeles and was…
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Blog
As I mentioned last time, we were anxiously waiting for the day of the colonoscopy to make sure nothing was wrong. We were not prepared for anything too out of the ordinary and we assumed it might be a bad reaction to some food or some sort of internal cut that could easily be fixed. I was at school when the colonoscopy…
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NeuroEndocrine Tumor Syndrome (Nets) of the lungs
Wanted to give a shout out to my NETS people. I was diagnosed with NETS a few weeks ago. I had been coughing up blood for a few months and before getting sick I was an aspiring marathon runner. Now I am plagued with constant chest pain and a death cough. Will I ever run that marathon?
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Mesentery tumor
Anyone have this?
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HIgh Chromogranin A of 5727 ng/ml!
Has anyone heard of such a high CGA? I am being worked up for a carcinoid or NET. I take PPI's and hav chronic renal insufficiency which I read will make the test higher...but could it make it 5600 higher? Normal for this lab is <130. Hope someone else has had this level and has some info to share. Thank you
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Clear Cell Chondrosarcoma Bone Cancer
My daughter was diagnosed with this cancer in Dec 2020 at the age of 23. It was a few days before Christmas when we got the confirmation of this cancer which was found in her cervical spine (C2-C4). It was devastating on the whole family. In February of ‘21 she had her first surgery to remove the tumor which almost encased…
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Immature teratoma in throat
Hey there. I was diagnosed with a very rare cancer in Feb 2019. It is called an immature teratoma in my throat. Has anybody ever had to deal with this? My doctors never dealt with it before. They tried chemo but my body couldn't handle it. Thoughts would be appreciated.
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Adenocarcinoma of the appendix
I am a 58 year-old male diagnosed with adenocarcinoma of the appendix. The doctors have removed a large portion of the colon, the entire appendix, and part of my bladder as well as multiple lymph nodes. The tumor has metastasized both to the lymph nodes and to the right pelvic sidewall, and is considered to be inoperable.…
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Chemo and then keytruda
I have Endometrial adenocarcinoma-stage 4 and am on keytruda for life. Other Then usual side effects, I am noticing gaps in thinking. I jump topics, get dates wrong, and my sequencing skills are in disarray. Anyone else have this? I hate making a commitment since my timing is off!!
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Not sure of what type of cancer I have
Hi All, I had a fast growing lesion on my left upper arm that I discovered at the end of September 2021. By Mid November what had been a flat, small, slightly raised area slightly larger than a pencil eraser in diameter was a 5 x 4 cm 2 cm high lesion with a baseball sized area under the skin. The initial punch biopsy came…
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Mesothelioma
I thought I would start a new thread for mesothelioma, since most of the posts appeared pretty old. My Dad was recently diagnosed with mesothelioma. Our extended family has quite a few cancer survivors. I can't seem to find anyone that has had mesothelioma. It is a very isolating feeling. He is going to well known hospital…
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mucinosis adenocarcinoma
Want to hear of anyone diagnosed and treated with this originating from the appendeix.
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Diffuse intrinsic pontine glioma
Any other adults with this type of brain cancer ?
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Rare form of skin cancer inner ear
I was diagnosed and recently treated for this rare form of cancer. I had my ear drum removed and lost hearing. I have been having a lot of weird symptoms since then including extreme nausea, no appetite, weight loss, weird taste in mouth along left side of tongue. Also increased gag reflex. Was wondering if there is anyone…
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Ovarian mass/appendix originated?
I am 32 years old.. always been pretty healthy.. starting in dec 2016, I began to have some right lower quadrant discomfort... but I had been having bouts of constipation/diarrhea so I didn't think much of it.. in January i started my menses and just never stopped.. I had always been consistent. 3 days done.. so I…
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Looking for anyone in the 20-40 age range with metastatic cancer of unknown primary?
I am 32 with Adenocarcinoma of Unknown Primary. My first line of treatment was chemo with Carboplatin and Taxol. I had 10 rounds and the cancer was mainly stable with some spreading to the bone. Tomorrow is my 3rd round with my second line of treatment, chemo with Alimta. I am very blessed and am in good condition (well I…
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squamous cell maxillary sinus cancer--anyone???
Is there anyone out there that is dealing with squamous cell maxillary sinus cancer? I have been searching this site and others trying to find someone to exchange information and/or encouragement with...to no avail. I was diagnosed in Feb or this year (2009), and in March, had surgery where about half of the roof of my…
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Vaginal Cancer
I have been diagnosed with vaginal cancer which my oncologist is telling me is rare. On the 29th I am scheduled for a (hopefully) robotic surgery...I have had many surgeries and have big time problems with adhesions....so I'm hopin they won't have to open me up. They are going to do lymph node dissections. He told me I…
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vulvar cancer/melanoma
I am a 49 yr olf mother of 4 grown chilldren and 24 grandkids, I am not ready to die!! Aprox 7-8 years ago I had a small 1mm bump on my vulva, went to the doctor to be told it was a clogged pore (no biggy)so they removed it with something that reminded me of a apple correr, boy that hurt! The doctor wasnt empressed with my…
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Mantle Cell Lymphoma
Hi everybody, In 2008 I was diagnosed with NHL and did the chemo treatment, I relapsed shortly after chemo treatment. More test was done and I was diagnosed with stage IV Mantle Cell Lymphoma. March of 2009 I got intense chemo followed by a allogeneic stem cell transplant. March of 2010 my big test (CT Scan and Bone…
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PLEASE READ & HELP US!! malignant Eccrine Porocarcinoma (tumor form)
On June 21st 2013,My 31 year old husband was recently diagnosed with a very rare, most aggressive form of cancer..Malignant Eccrine Porocarcinoma. Apparently it started in his sweat glands. There have been less than 300 cases ever reported in the world and unfortunately they don't know a lot about it. He went from having 1…
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Is it possible to have weight loss as the only symptom of cancer, or the only symptom of advanced ca
Other than weight loss, there aren't any observable symptoms. This person has an appetite and good amount of energy. Capable of doing daily chores and walking through large grocery super centers.
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hidradenocarcinoma (cancer of underarm sweat gland)
i am looking for any information or anyone that has this rare cancer or anyone that has first hand knowledge of it. i have found it almost impossible to obtain information and i have information on my treatment which may be helpful.
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Appendix
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post whipple stabbing feeling????
Has anyone had any attacks post whipple?? It feels like a stabbing in the upper abdomen with pain shooting around the bra line in the back and loss of voice like iv had the wind noked out of me. It lasts 5-15 min. and then in very soar for about 1-2 days. Initially after the attack i have to take 2 oxycodone to relieve the…
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What to do when you are underinsured
My wife was diagnosed with Adenoid Cystic Carcinoma. Its rare and about 2000 people in the US get a year. She went in for having trouble walking(balance) and back pain. Its Cancer of the Salavary glands However it was not in her salivary glands it moved to her spine near her trachea. They had to do a 6 hour spinal fusion…
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Olfactory neuroblastoma at age 29
Hi all, I just got diagnosed with olfactory neuroblastoma yesterday after a call from my doctor. I had visited an ENT for a sinusitis check last week and he told me he found some growth and did a biospy and ordered a CT scan. He got the biopsy radiology results today and called me to inform of the diagnosis. He has…
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Leiomyosarcoma 2021
All the LMS threads are kind of old, so I thought we could start a new one and see how everyone is doing and what you are doing. I was diagnosed with LMS in July 2018 in my left kidney which was the size of a football. Surgerically removed the kidney but the disease had started to spread and margins were positive. So I did…
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Duodenal cancer
Hi! Anyone out there with doudenal cancer? My husband was diagnosed with duodenal cancer (adenocarcinoma) in august 2018. When he was diagnosed he was already a stage IIIV, and the cancer had spread to his liver and skeleton. He recived chemo therapy, but had no effect of oxaliplatine. Last year he ha 8 rounds of FLIRI…