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Mesothelioma
I thought I would start a new thread for mesothelioma, since most of the posts appeared pretty old. My Dad was recently diagnosed with mesothelioma. Our extended family has quite a few cancer survivors. I can't seem to find anyone that has had mesothelioma. It is a very isolating feeling. He is going to well known hospital…
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mucinosis adenocarcinoma
Want to hear of anyone diagnosed and treated with this originating from the appendeix.
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Vulvar Cancer
I was first diagnosed with VINIII in Nov. 2016 and I've had surgery every year since. I'm a 73 year old widow amd first found it 6 months after my husband died. It continues to come back but my oncologist watches me closely. Only in 2019 did it come back Stage 1. That year I was there in Feb and when I had surgery in June…
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Diffuse intrinsic pontine glioma
Any other adults with this type of brain cancer ?
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Rare form of skin cancer inner ear
I was diagnosed and recently treated for this rare form of cancer. I had my ear drum removed and lost hearing. I have been having a lot of weird symptoms since then including extreme nausea, no appetite, weight loss, weird taste in mouth along left side of tongue. Also increased gag reflex. Was wondering if there is anyone…
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Ovarian mass/appendix originated?
I am 32 years old.. always been pretty healthy.. starting in dec 2016, I began to have some right lower quadrant discomfort... but I had been having bouts of constipation/diarrhea so I didn't think much of it.. in January i started my menses and just never stopped.. I had always been consistent. 3 days done.. so I…
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Looking for anyone in the 20-40 age range with metastatic cancer of unknown primary?
I am 32 with Adenocarcinoma of Unknown Primary. My first line of treatment was chemo with Carboplatin and Taxol. I had 10 rounds and the cancer was mainly stable with some spreading to the bone. Tomorrow is my 3rd round with my second line of treatment, chemo with Alimta. I am very blessed and am in good condition (well I…
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squamous cell maxillary sinus cancer--anyone???
Is there anyone out there that is dealing with squamous cell maxillary sinus cancer? I have been searching this site and others trying to find someone to exchange information and/or encouragement with...to no avail. I was diagnosed in Feb or this year (2009), and in March, had surgery where about half of the roof of my…
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Vaginal Cancer
I have been diagnosed with vaginal cancer which my oncologist is telling me is rare. On the 29th I am scheduled for a (hopefully) robotic surgery...I have had many surgeries and have big time problems with adhesions....so I'm hopin they won't have to open me up. They are going to do lymph node dissections. He told me I…
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vulvar cancer/melanoma
I am a 49 yr olf mother of 4 grown chilldren and 24 grandkids, I am not ready to die!! Aprox 7-8 years ago I had a small 1mm bump on my vulva, went to the doctor to be told it was a clogged pore (no biggy)so they removed it with something that reminded me of a apple correr, boy that hurt! The doctor wasnt empressed with my…
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Mantle Cell Lymphoma
Hi everybody, In 2008 I was diagnosed with NHL and did the chemo treatment, I relapsed shortly after chemo treatment. More test was done and I was diagnosed with stage IV Mantle Cell Lymphoma. March of 2009 I got intense chemo followed by a allogeneic stem cell transplant. March of 2010 my big test (CT Scan and Bone…
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PLEASE READ & HELP US!! malignant Eccrine Porocarcinoma (tumor form)
On June 21st 2013,My 31 year old husband was recently diagnosed with a very rare, most aggressive form of cancer..Malignant Eccrine Porocarcinoma. Apparently it started in his sweat glands. There have been less than 300 cases ever reported in the world and unfortunately they don't know a lot about it. He went from having 1…
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Is it possible to have weight loss as the only symptom of cancer, or the only symptom of advanced ca
Other than weight loss, there aren't any observable symptoms. This person has an appetite and good amount of energy. Capable of doing daily chores and walking through large grocery super centers.
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hidradenocarcinoma (cancer of underarm sweat gland)
i am looking for any information or anyone that has this rare cancer or anyone that has first hand knowledge of it. i have found it almost impossible to obtain information and i have information on my treatment which may be helpful.
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Appendix
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post whipple stabbing feeling????
Has anyone had any attacks post whipple?? It feels like a stabbing in the upper abdomen with pain shooting around the bra line in the back and loss of voice like iv had the wind noked out of me. It lasts 5-15 min. and then in very soar for about 1-2 days. Initially after the attack i have to take 2 oxycodone to relieve the…
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What to do when you are underinsured
My wife was diagnosed with Adenoid Cystic Carcinoma. Its rare and about 2000 people in the US get a year. She went in for having trouble walking(balance) and back pain. Its Cancer of the Salavary glands However it was not in her salivary glands it moved to her spine near her trachea. They had to do a 6 hour spinal fusion…
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Olfactory neuroblastoma at age 29
Hi all, I just got diagnosed with olfactory neuroblastoma yesterday after a call from my doctor. I had visited an ENT for a sinusitis check last week and he told me he found some growth and did a biospy and ordered a CT scan. He got the biopsy radiology results today and called me to inform of the diagnosis. He has…
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Leiomyosarcoma 2021
All the LMS threads are kind of old, so I thought we could start a new one and see how everyone is doing and what you are doing. I was diagnosed with LMS in July 2018 in my left kidney which was the size of a football. Surgerically removed the kidney but the disease had started to spread and margins were positive. So I did…
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Duodenal cancer
Hi! Anyone out there with doudenal cancer? My husband was diagnosed with duodenal cancer (adenocarcinoma) in august 2018. When he was diagnosed he was already a stage IIIV, and the cancer had spread to his liver and skeleton. He recived chemo therapy, but had no effect of oxaliplatine. Last year he ha 8 rounds of FLIRI…
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gall bladder cancer
My siser, who is 44 years old, was diagnosed in November, 2001, with gall bladder cancer. They were doing surgery to remove her gall bladder due to a lot of trouble she was having. When they went in they found the cancer. They removed her gall bladder and a portion of her liver. At this point the cancer is limited to a…
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Ampullary Cancer
I had ampullary cancer and had whipple surgery. 22 lymph nodes were removed and tested. All were clear of cancer. Oncologist is recommending chemotherapy to prevent recurrenace of cancer. I'm 72, healthy and very active. I'm reluctant to have the chemotherapy. Does anyone have similar experience, decision, comments?
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Looking For Gallbladder Cancer Survivors
I was diagnosed with gallbladder cancer 2 1/2 years ago. I had my gallbladder removed, 3 sections of the liver and 16 adjacent lymph nodes. I had chemo and radiation although the surgeon and the surgeon who provided the second opinion said I didn't need chemo and radiation. Although gallbladder cancer is rare, I am sure…
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Appendix Cancer, PMP
I had PMP, Psuedomyxoma Peritonei, in 2007 and was treated at MD Andersen Cancer Center. What a fantastic place! I'm grateful for my recovery and there is a lot to know about cancer and PMP. If anyone wants to talk about it or needs resources for appendix cancer, let me know.
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chromogranin A test
Hi, I am glad to find this site, very helpful. I am currently being worked up for pheo/carcinoid/neuroendocrine... Have classic symptoms. My chromogranin A came back elevated from Quest diagnostic: Chromogranin A SERUM 26.0 (H) ng/mL 1.9-15.0 (normal range per lab) What does this mean, does not seem very high, are there…
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Duodenal cancer: recovery from whipples
Hi, My husband was diagnosed 10 wks ago with duodenal cancer which had spread to panceas. He had a whipples. He came out of the op ok but in recovery started to bleed they took him into surgery again. They couldnt stop the bleed & cam every close to lossing him. He had a third surgery the next day they stopped the bleed.…
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neuroendocrine/carcinoid
Hello, I recently was diganosed with a carcinoid tumor in my face. It went from my lung to my faced. The area where I live is totally incompetent they played with my life since Feb this year. Then I went to FoxChase Ctr in Phila they did the same thing. I just found this site and I'm tryhing to find out where I can find a…
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Blood Cancer - Polycthemia Vera
Hello, I'm a 51 y/o female just diagnosed with polycthemia vera. Was told by the doctor this is most commonly found in 60+ y/o men. But doing research I found out ANYONE can develop this. Does anyone else have this rare blood cancer who can tell me how they manage & live with this rare cancer? Any information provided…
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Malignant Glomus Tumors
Is there anyone who knows about this rare tumor interested in exchanging information?
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Sweat gland cancer?
I have been diagnosed with low grade malignant acrospiroma, a rare tumor of the sweat gland. It started out as a bump under the surface of the skin on my right middle finger, and the docs thought it was a cyst. After having it removed, it was sent off to three different pathologists nationwide to get a diagnosis. One said…