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Cancer of the Intestine/Small Bowel-Just Diagnosed
Hello! My husband just was diagonosed with stage III cancer of the small intestine (aka small bowel cancer--there seems to be no agreement on a name for this rare cancer.) I am stunned at how little information there is out there on this. Even worse, my husband has an ileostomy and that is where the adenocarcinoma was…
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Hilar cholangiocarcinoma
Hi, Last week, my dad (75 years) diagnosed with Hilar cholangiocarcinoma with preferential extension into the left ductal system. Doctor placed a stent in the bile duct to allow the bile to drain into the small intestine. Yesterday's PET scan revealed that his cancer has spread to lungs and Colon. Doctor not advised for…
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Carcinoid Syndrome with no diagnosis of Tumors
Hi from South Africa. I've been experiencing a the symptoms of Carcinoid Syndrome for some time now. I've been treated for everyone of those symptoms seperately over the past few years. I've had Chronic diarrhea for so long, Shortness of breath that suddenly appeared this time last year, heart palpatations, now flushing…
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Hilar cholangiocarcinoma age 70
My Father (age 70) was diagnosed with Hiler cholangiocarcinoma. I just started doing some research on this. He is currently in South INDIA. He showed symptoms of jaundice initially. Doctors cut the damaged bile duct piece and placed a metal stent. Hopefully jaundice will go away in few days. Doctor is not hopeful of any…
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Adenocarcinoma of the Duodenum survivors
My brother in law was recently diagnosed with this after 2 1/2 years of going to doctors through the VA trying to figure out what was wrong with him. Sadly he is now stage IV with spread to the lungs & has been given 8-24 months. I am hoping to find some people with stories of them beating the odds of this rare cancer.…
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cholangiocarcinoma/Bile duct cancer Chemo options
Hello. My name is Danbee and my Dad was diagnosed with Stage III cholangiocarcinoma July 2017. They told him the tumor is too "long" to be completely removed so doctors planned to go through 3 months of chemo to hopefully "shrink" the tumor and go through 5 cycles of radiation/chemo together and then surgically remove it.…
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germ cell cancer
my nephew has just been diagnoised with germ cell cancer but it is not in his testicals he is one of the 5% that has it somewhere else does anyone have any information about this type of cancer. The doctors say that it is the fast growing like lance armstrong had but it is the 5 percent that get it somewhere else. My…
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Mediastinal yolk sac tumour with meningal metastasis - is it even curable?
I apologize in advance for the grammatic errors, english is my secobd language. My father (age 55) was diagnosed with mediastinal yolk sac tumor about half a year ago. He underwent the 'classical' treatment: 4 rounds of chemo which should be followed by operation. After chemo ended (a month after) he was feeling more or…
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Lymphomatoid Granulamatosis
I have recently been diagnosed with grade III lymphomatoid granulamatosis (LYG), it is in both lungs. Pathology report also indicated diffuse large B cell lymphoma. I am a rare case. I am starting 6 rounds of chemo (R-CHOP) tomorrow. I am reaching out as there is not a lot of information online regarding LYG and I see the…
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Merkel Cell Carcinoma
Looking for anyone diagnosed with Merkel Cell Carcinoma, who can discuss their stage of cancer and experiences.
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Signet cell carcinoma found
Hi everyone! This is my first post because I didn't know where else to turn to. I had an appendectomy and the pathology report show grade 3 signet ring cell carcinom. I still have some tests to complete but wondering if anyone knows about this? Could it have started in my appendix and remain encapsulated since my appendix…
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Adenocarcinoma ex goblet cell carcinoid - signet type
Hi everyone - My mom was recently diagnosed with Stg III adenocarcinoma ex goblet cell carcinoid w/ signet type. Very rare and even more confusing. Mom had hemicolectomy and had 2/16 lymph nodes. The surgeon is recommending 6 months chemo. Any appendix cancer specialists in the PA/DC/MD area? Not sure what to expect with…
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Bile Duct Cancer
I had surgery last October (2001) to remove half of my liver and create new bile ducts using the Kasai procedure (attaches intestine to remaining bile duct). I am cancer free and mostly feeling great, but still having a real hard time with nausea. Has anyone had similar surgery or similar experience? I'd really appreciate…
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Sacrum cancer
Hi! MY name is Mike. My daughter have a cancer of sacrum area. Doctors suggest resection of infected area (left side). After surgery will be faced different level of unfortunate consequences. Bowel and rectum can become out of control, might be walking problems, possibly paralysing and rest life in wheelchair, - etc. At…
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Any survivor of duodenal/cholangiocarcinoma?
Hello, My mom was diagnosed with duodenal cancer back in 2013 Aug. Luckily it did not metastasize to other organs or lymph nodes. Through Whipple surgery, they removed her 3.2cm tumor. At the time, the oncologist said since her cancer did not spread, she doesnt NEED chemotherapy but recommended chemo just in case. However,…
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Malignant Mixed Mullerian Tumor of the Ovary
I have read alittle about this type of cancer and it did say that it is rare but when I type in Mixed Mullerian it comes back paula57. That's me! Is there anyone else that has this cancer. I recently finished my chemo and doing okay for now. I am having alot of knee and mainly hip pain. I called the Dr office and they just…
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Whipple Procedure
I am a 38 year old woman and because of a Gangliocytic Paraganglioma on my Pancreas I will have a Whipple done on Jan. 3, 2007. Any advise on how to prepare, what to expect, and how to cope afterwards? Any advise for my husband and kids?? Any help is appreciated. Thanks
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Whipple surgery
My husband (64) has had symptoms of pancreatic cancer for several months. After having 2 endoscopies with negative biopsy results, his dr has him scheduled for Whipple surgery on Tuesday. He is an experienced surgeon using the DaVinci robotic, and tells us that even though it doesn't look like pancreatic cancer now....it…
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Whipple
has anyone had this surgery
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neuroblastoma
Hi everyone I am new here. I am 23 years old and a survivor of neuroblastoma. I don't know very much about the type of cancer I had except that is a rare childhood type of cancer. I will appricate anyone's reply to this message and I offer my support as well. Aquagirl18
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whipple
i am 10 days out of surgery and this is no fun. any advice out there?
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goblet carcinoid or signet ring cell of the appendix or colon???
The confusion is overwhelming. I was originally diagnosed with Stage IV Poorly differentiated signet ring cell adenocarcinoma. surgery removed my a tumor, appendix, part of my colon,small intestine the omentum (which had tumors in it) and several lymph nodes of which one had a tumor. A month later they changed the…
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Vulvar Melanoma
I am hoping to connect with others who have been there done that. Preferably those with vulvar melanoma in particular and not vulvar cancer. I was diagnosed in January, Stage 3 with a large primary. I have been doing my homework and talking with my oncologist and I know the prognosis is not wonderful... or even good. I…
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Neuroendocrine cancer ovarian origin
Hi, in February of this year I was diagnosed with stage 3 Neuroendocrine cancer ( small cell ) poorly diffenrentiated high-grade tumor (23cm) of ovarian origin. I find it very difficult to find information on this type of cancer. I had three cycles of chemo ( 3 days each cycle of cysplatin and etoposide)then surgery, then…
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omentum cancer
Hi everyone, before I ask anything I would just like to say thankyou in advance and also wish everyone on the site the best with what they are going through or have survived. I am looking to speak to anyone male who has had omentum cancer as a metastasis from the bowel or other area as i have been led to believe its very…
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Chroidal melanoma (Eye Cancer)
Does anyone have this? I need some one to talk with about the anxiety/fear that I am going through, in dealing with this...Is anxiety/fear common?
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Neuroendocrine Carcinoma
Hello- just checking to see if anyone else has been living through this diagnosis. Would love to share experiences. Chris Neuroendocrine Carcinoma, Cervical l-2B
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My Mother has Soft Tissue Leiomyosarcoma in Thigh 35+cm tumor
Hi, I really don't know what to say so I'll just start at the beginning. My siblings and I all have a strained relationship with our mother for different reasons, and we've all had to distance ourselves, not only for ourselves but for our children's mental well being. Im only mentioning this because by the time she called…
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Stage 4 Bile Duct Cancer
Hi, my dad was recently diagnosed with stage 4 bile duct cancer in July of this year. The cancer started in his bile duct in the liver and spread to his liver, lungs and pelvis bone. He has had two cycles (4 treatements) of chemo. My dad seems to be getting worse and I am very consider, it's blood work isn't changing, but…
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Circulating Tumor DNA in Carcinoma of Unknown Primary
This recent publication showed a very effective and noninvasive way to determine genetic alterations in cancer with unknown primary. In 99.7% of the patients, the authors found that genomics profiling of tumor DNA circulating in plasma revealed driver mutations that are targetable by drugs. Cancer Res. 2017 Aug…