Adenoid Cystic Carcinoma

MemphisTn

Just wanted to poke my head into this forum, I participate in the head and neck forum since thats where my cancer was found. But, it is a rare cancer, so, just wanted to put a post here for anyone that may pass through looking for something on adenoid cystic.

 

Much Love,

-PC

Kettin

2nd round

My first occurence of Adenoid Cystic Carcinoma was in my left cheek. I have recently found that I have a new diagnosis same cancer just in my lungs. Has anyone found anything that might be a good treatment? Because it is in my lungs, in multiple locations, I was told radiation and surgery are not really great ideas. I have been tested for multiple markers and mutations and have come up with nothing. Since this type is uncommon no one seems to know of anything to give one hope.

Lucky933

I had Adenoid Cystic

I had Adenoid Cystic Carcinoma and underwent surgery and 30 doses of radiation treatment. I am a year out after the treament had been done. I have been having this facial pain about 2-3 months after the radiation treament had finished. Now the doctors suspect that it could be the tumor recourring on the nerver. They will watch it closely and maybe I have to go through a Gamma Knife radiosurgery if necessary.

kimdcarlton

Newly Diagnosed

Hello All,

I was recently diagnosed with Adenoid Cystic Carcinoma in my submandibular gland.  I am meeting with the radiation oncolgist on Friday and just looking for information on types of radiation that have been beneficial to others with this diagnosis.  Thanks so much!