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Adenoid Cystic Carcinoma

MemphisTn
MemphisTn CSN Member Posts: 41
in Rare and Other Cancers #1

Just wanted to poke my head into this forum, I participate in the head and neck forum since thats where my cancer was found. But, it is a rare cancer, so, just wanted to put a post here for anyone that may pass through looking for something on adenoid cystic.

 

Much Love,

-PC

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Comments

  • Kettin
    Kettin CSN Member Posts: 1
    #2
    2nd round

    My first occurence of Adenoid Cystic Carcinoma was in my left cheek. I have recently found that I have a new diagnosis same cancer just in my lungs. Has anyone found anything that might be a good treatment? Because it is in my lungs, in multiple locations, I was told radiation and surgery are not really great ideas. I have been tested for multiple markers and mutations and have come up with nothing. Since this type is uncommon no one seems to know of anything to give one hope.

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  • Lucky933
    Lucky933 CSN Member Posts: 6
    edited May 2017 #3
    I had Adenoid Cystic

    I had Adenoid Cystic Carcinoma and underwent surgery and 30 doses of radiation treatment. I am a year out after the treament had been done. I have been having this facial pain about 2-3 months after the radiation treament had finished. Now the doctors suspect that it could be the tumor recourring on the nerver. They will watch it closely and maybe I have to go through a Gamma Knife radiosurgery if necessary.

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  • kimdcarlton
    kimdcarlton CSN Member Posts: 2
    #4
    Newly Diagnosed

    Hello All,

    I was recently diagnosed with Adenoid Cystic Carcinoma in my submandibular gland.  I am meeting with the radiation oncolgist on Friday and just looking for information on types of radiation that have been beneficial to others with this diagnosis.  Thanks so much!

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