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MPNST?
I am hoping to find anyone with Malignant Peripheral Nerve Sheath Tumor and find out about their treatment and diagnosis and any alternative diet or supplements they are using. I was born with a genetic disorder called Neurofibromatosis type 1 that sometimes turns malignant. I had 3 large tumors removed from my neck about…
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Ewing sarcoma old portacath
I am having trouble geting my doctor to find my portacath. I was wonder if the reason is a dear hit me in the chest and imbeded it in my muscle. Now only a pillow is on top of the muscle. Or maybe my doctor is incompetent. Funny is if it is a medical mistake is that my blood sample will now cause strokes in ther patients…
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Lacrimal System Carcinoma anyone?
Hello All, Anyone else out there with head and neck cancer involving the lacrimal area? My husband just recently had surgery to remove his entire lacrimal system (tear duct) and then had radiation treatment with chemo (cisplatain) that he completed 4 weeks ago. It's been a brutal 3 months to say the least. The side effects…
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Ampullary cancer survivors?
I had a tumor of the Ampullar of Vader removed in February, 2003. The full whipple procedure was done at Memorial Sloan Kettering on February 17, 2003. Because 5 lymph nodes were involved, chemo therapy and radiation were prescribed. Two years later, I have been said to be clear of all cancer, and am now on 6 month scans.…
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Thymic Cancer
My spouse has been diagnosed with Thymic Cancer -- between rounds 4 and 5 of triple chemo -- oncologist thinks next step is surgery. Anyone out there have suggestions on where to go for surgery? Also has anyone had pericardial and pleural effusions and/or hoarse voice with this Cancer? Thanks in advance!
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polycythaemia vera blood cancer
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sister with pancreatic cancer
my sister is 45 yrs. old and was diagnosed with pancreatic cancer in november. she had the wipple procedure, 6 wks of radiation and chemo and 4 mos.of gemcitibine. This has been the most frightening time of my life. I DESPERATELY need some POSITIVE RENFORCEMENT. She has one more infusion and the active treatment will be…
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Aggressive Papillary digital eccrine Adenocarcinoma, is the type of Cancer I have does anyone have a
It was initially found in my "finger", three weeks later it was amputated. Lymph node Biopsy at the same time. In my R axillary found ONE positive and Seven negative nodes. I just had a "power-port" placed - two days ago. And I start Chemotherapy on Monday "5FU". 3-15-10. So far no one has had enough dealing with this type…
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Neuroendocrine carcinoma
After singular liver resection 6 months ago and diagnosed as Neuroendocrine carcinoma with unknown origin, I did PET/CT 3 days ago and it was suspected that there is recurrence in liver plus new lobules in lungs. I went to the Memerial sloane Kettering affiliate in Hong Kong and they said doing some tests may help diagose…
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Endometrial Stromal Sarcoma
I was diagnosed with endometrial stromal sarcoma in 2000. The sarcoma started in a fibroid tumor in the uterus and spread from the depths of the endometrial lining out to the uterus, blood vessels, soft tissue and lymph nodes. This is a cancer that makes up less than 1% of all gynecological cancers. It is a slow mover,…
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Merkel Cell Carcinoma
I am looking for anyone else out there who may have a Merkel Cell Carcinoma. I am 26 and will be starting treatment shortly. It would be nice to know that I'm not the only one out there with this... :) Heather
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Gallbladder Cancer Info
Here is some info from an email response I just received in regards to a question I submitted to the Nagourney Cancer Institute regarding their current research and treatment for gallbladder cancer. This may be redundant for some but thought I'd share it anyway in case it is helpful for others: Cholangiocarcinoma is quite…
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oral (tongue)
My dad has had half (November 2018)of his tongue removed and replaced with the upper part of his arm. For the most part he is doin well. However any insite on how long the healing process will take and when and what we can do to help him move forward to solid food. Would be great he is always in Good spirits, he try’s…
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VIN lll
I would like to speak to someone about VIN lll. I would like to speak to you about your experience and what was your treatment
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Urethral Cancer?
Has anyone here had urethral cancer? I can't seem to find anyone who has or has had it. I am a survivor of stage 4 urethral cancer, and have had all kinds of problems after treatment. Even though I am in remission from the cancer, the treatment has left me with another serious problem.....stage 4 kidney disease, after…
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Adrenal gland cancer
My mom was diagnosed in October with cancer of the adrenal gland (adrenalcortical carcinoma). I've searched the internet for personal experiences regarding the cancer, but have had very little luck. The doctors have not mentioned a "stage" yet, but from everything I have been able to read it seems like she's already at…
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Biopsy on buccal mucosa
Hello. New here unfortunatey. Yesterday I had a biopsy performed on my buccal mucosa. (Inner cheek) I was referred to the oral surgeon after my dentist found some white, rough patches on both sides of my inner cheeks in the back. I had felt them about a month before but honestly didn't think anything of it since there was…
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Gallbladder Cancer Diagnosis
Hi - I was 'officially' diagnosed with gallbladder cancer on April 17th of this year. This was following a laparoscopic gallbladder surgery in which a mass detected previously by ultrasound and CT scan seemed suspicious. It was diagnosed as a stage 2 tumor. After meeting with an oncologist, a surgeon and doing some…
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malignant paraganglioma
Looking for treatment options for my husband who has metastatic paraganglioma(abdominal). He was diagnosed only after it had spread to both lungs. Major surgeries removed all tumors and he was cancer free for over a year. The tumors are now back in both lungs and surgery is not an option. He is also not a candidate for…
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Choroidal Melanoma Survivors
I was diagnosed with a large choroidal melanoma on January 23, 2009. It was discovered during an eye exam. I had visual disturbance which prompted my dr visit. It felt like something was in my line of vision but no matter how many times I wiped my eye or blinked it never moved or disappeared. I had 3 different eye drs look…
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mmmt of ovary stage 3c any survivors ?
My mother 51 years of age diagnosed with mmmt of ovary stage 3c very rare cancer. Got optimally debulked 3 weeks back. We will b meeting an oncologist tomorrow and we are hell scared any survivors? Please help we are looking for hope
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Alveolar Rhabdomyosarcoma
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know anything about undifferentiated/Endometrioid level 3C cancer?
My daughter had surgery on July 8th and they found out that her cancer is Undifferentiated/Endometrioid. Does anyone know anything about this cancer?
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leukoplakia on vocal cords
Hi there I have been diagnosed with both Leukoplaia on vocal cords which i have had 10 surgeries on vocal cords..it continues to return immediately post surgery. Secondly I have Lichen Sclersus and I am so in need of suggstions advice and support. Thank you for your time...
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More surgery for my appendix cancer...
I just spent 3 days in NYC for appointments at Memorial Sloan Kettering. The conclusion is that now is the right time for surgery; we shouldn't wait. I don’t have the detailed reports yet, although my surgeon has them. My metastatic appendix tumor has grown, but still appears to be confined in scar tissue. However, it is…
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Leiomyosarcoma
I'm one in a million. That's the incidence of my sarcoma. Needless to say, I don't have anyone to share my cancer experience. There are 650 of us in the USA this year. How to make contact? At least people in this chat know what its like to have a rare cancer! Hello!
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Mixed Maligant Mullerian Tumour
Hi, This is Fazil from india. My Mom (age 53) has tumour in uterus. 10 days before surgery done and uterus removed. after that uterus given to lab for test. test report says....that is Mixed Maligant Mullerian Tumour (carcinosarcoma) with heterologous elements (obseoid), pathalogical stage pT3a. Please explain about this.
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Olfactory Neuroblastoma
Hello, Our son has been diagnosed with an Olfactory Neuroblastoma. He's currently living in New York and plans to be treated at Mount Sinai. Anyone possibly have any information on treatment of this type of cancer at Mount Sinai? I see from other forums that UVA, Pittsburg and Johns Hopkins seem to be the 3 recommended…
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Small Bowel Cancer
I'm recovering from small bowel cancer. I have found very little information online. I'd like to hear from anyone who has or had small bowel cancer, or has links to any information. Good luck to all of you. 2ndtimer
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DFSP Dermatofibrosarcoma Protuberans
Have you been diagnosed with this rare sarcoma? I have started a Facebook page (DFSP - Dermatofibrosarcoma Protuberans) to help everyone share information. I am a new diagnosed person. The information is scarce. I am waiting to find out what are my next steps but it's been 12 weeks since my Dermatologist has known which…