Endometrial Stromal Sarcoma

mwetter1954
mwetter1954 Member Posts: 7
edited March 2014 in Rare and Other Cancers #1
I was diagnosed with endometrial stromal sarcoma in 2000. The sarcoma started in a fibroid tumor in the uterus and spread from the depths of the endometrial lining out to the uterus, blood vessels, soft tissue and lymph nodes. This is a cancer that makes up less than 1% of all gynecological cancers. It is a slow mover, which meant that they wouldn't treat it with chemo or radiation. I took the drug, Megace, 3 times a day for 5 years. In 2005, I was declared cancer free and as of my last ct scan on July 28,2009, still remain cancer free!

Comments

  • Mbarker0715
    Mbarker0715 Member Posts: 1
    edited August 2019 #2
    Endometrial stromal sarcoma

    I am a 41 year old mother or 2 boys. I was diagnosed with endometrial stromal sarcoma on July 24,2019 and on August 15,2019 the oncologist did a radical hysterectomy. I went home the next day and am still scared of the future. How did you deal with the news of the cancer knowing it's a rare form of cancer?

  • cmb
    cmb Member Posts: 1,001 Member
    #3
    Mbarker0715 said:

    Endometrial stromal sarcoma

    I am a 41 year old mother or 2 boys. I was diagnosed with endometrial stromal sarcoma on July 24,2019 and on August 15,2019 the oncologist did a radical hysterectomy. I went home the next day and am still scared of the future. How did you deal with the news of the cancer knowing it's a rare form of cancer?

    I'm very sorry that you had

    I'm very sorry that you had to find this site as a result of your recent cancer diagnosis. I normally post on the Uterine board, but I wanted to respond to your question since this particular discussion board covers such a wide range of cancers that individual types may not receive many comments. Also, mwetter1954 hasn't been online since 2009.

    I also have a rare type of uterine cancer: uterine carcinosarcoma or MMMT. Hearing that you have cancer is always shocking, and learning that it's a rare type adds an extra level of anxiety. You'll know more about what next steps will be once the pathology report from your hysterectomy is completed.

    I personally found my anxiety easier to deal with once I knew what the treatment plan would be and I began treatment.

    While I hope that others with your particular type of cancer will join you here, I'd also like to suggest that you read some of the posts on the Uterine board. While I'm not aware of anyone with your particular type of cancer actively posting there right now, you'll find many of the women there also have other rare forms of uterine cancer and some current members are similar to you in age. Topics such as pre-treatment anxiety are common to everyone and has been discussed quite a lot recently on that board.

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