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Second Opinion
I am 70 years old and recently diagnosed with prostate cancer. I am a member of Kaiser HMO and while care has been good so far it is difficult to find a completely objective opinion on treatment since everyone specializes, even in different forms of radiation treatment. Does anyone have a good source for a second opinion…
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Very Anxious and looking for support
The distilled version of my current situation: Age 72 -physical exam past June 2022 with PSA at 6.3 [usually runs 3.2-3.8 since age 40] DRE negative -ASYMPTOMATIC other than getting up 2-3X in PM to void. -repeat PSA August [6 weeks later] PSA and Free PSA / tPSA at 9.6 and fPSA 23.3 -Urology consult August - DRE Neg after…
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SpaceOAR gel
Has anyone had a bad experience with SpaceOAR gel? I had the procedure on Thursday and the pain is still there today.
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Urination Issues
Hello all, this topic may have been discussed in the past, but not sure how to search for it so I'll ask again. I'm a year and half post prostate radiation treatment. My issue is over the past 6 months (it been constant for the last month) at night when I go to bed I wake up about ever hour (sometimes more often) with the…
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Relapse of cancer cells after prostectomy
Healthy 80 yr. old clear with <.1 for four years+ after prostectomy. In June of 2022 psa of .5. Two months later psa came back at .7 Any comments please
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Scheduled for transperineal template biopsy - experiences?
I am scheduled for a transperineal template biopsy in a month, 20-30 cores. My PSA history is complicated and I had 2 negative TRUS biopsies 9 years ago (12 core 14 core). 4 MRIs. PSA has has always been volatile and elevated since first biopsies. Current MRI is PIRADS 2. Very frustrating. The biopsy is being done at a…
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New, prostate cancer wife
Sorry new to this site. My husband had been diagnosed with prostate cancer and elected to have it removed 5 years ago now. Thank god he has had clear test’s since. ED has been the issue for years for him, but recently Cialis has had worked pretty well. It took many years for it to start working, but now it does. Problem is…
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Not having fun yet.
I’m 50 and had a radical prostatectomy with nerve spare on 8/1. PSA was 10.6. Gleeson score was 4+3 on the biopsies, but downgraded to 3+4 after surgery. I am really struggling with the incontinence and ED. Could really use some tips here.
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Questions on treatment timeline and Biopsy
Hi, I've been on this journey since April, when my PSA test showed 6.9 (it was 3.9 in 2020). I was first diagnosed with Prostatitis and given 6 weeks of Cipro. PSA was still high at 6.4 after Cipro, scheduled a fusion MRI (which took 4 weeks). Results were PI-RAD 5 lesion found on August 06. I now have a fusion biopsy…
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To Treat or Not To Treat??.. Update..
Well, I finally got my Decipher genomic test results yesterday and they were terrible... I have a high risk of having aggressive cancer ... So my urologist stated that A/S would not be recommended.. I'm not sure how much credence to give to the test, but that along with the data from the biopsy puts me in the treatment…
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Prostate cancer and no follow up
I was diagnosed with prostate cancer and told not to worry, it is no big deal . People die with prostate cancer and never know they had it . I suppose die from something else. I was sent home with an appointment 6 months from now . No medicine, no screening orders . Just a smile and a handshake . Meanwhile I suffer from…
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AMS 800 AUS Surgeons
It looks like an AUS is in my future after LARP in June 2009 and IMRT in 2010. Does anyone know if there are any surgeons in the Northeast who are regarded as leaders and very experienced with the AMS 800 AUS surgery?
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Concerning Bone Scan Results
Hello Everyone. First, a little background.... I have a family history of prostate cancer: my father, two of his brothers and my (younger) brother all have or had prostate cancer before me. They each chose different methods of treatment, including prostatectomy, external radiation, and cryotherapy. I've had diagnosed BPH…
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Abiraterone and dizziness/light-headedness
I've been on Abiraterone for about six months. I'm experience dizziness and seeing spots. It seems to be getting worse as time goes by. I was wondering if anyone else has experience this, and if so, have you found anything that helps?
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Is it possible for a certain type of prostate cancer to generate a reactive lymphocytosis?
Of course I know that this is probably outside of the scope of this forum. I am not a doctor first of all. Maybe its just a coincidence. Anyway here I go. I have never had before high lymphocytes numbers in my life....always their absolute numbers in the 1700, 2500 etc ..high neutrophils, yes, I also have Crohns. Early…
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is it common to have tenesmus/proctitis after RALP??
I had my RALP more than a month ago. At the beginning I felt all the typical stuff in the perineal area etc etc. But what is bothering me really bad now is the feeling of incomplete evacuation after a bowel movement, like cramps, pain, sensation of fullness, etc. I don't think that's very common after RALP, although the…
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Post RALRP incontenance
New member here - I am a young and very active 73 year old. I had my RALRP in Rochester NY on 12/14/2021. That year 5 of my friends were diagnosed with PC. I did my research and didn't wait. I went ahead with the surgery. Seminal Vesicles were removed with no margins involved. I will spare you the lack of information about…
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Surgey vs Cyberknife
Hi Everyone, Recently diagnosed with prostate cancer, Gleason score of 7. So far seems like its localized in the prostate. Consulted with a surgeon and radiation oncologist (cyberknife) at Memorial Sloan Kettering in NYC. Having a real hard time deciding which treatment to use. My wife and I are raising my grandson and my…
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Signs adt is not working as well?
Hi, It's been a long time since I was on here. My husband is still undetectable and on Lupron/Zytiga combo since end of July 2021, prior he had 6 months hormone holiday after a full year of ADT (December 2019 to January 2021) but that turned out to be a bad move as it spread to his lungs. He had a CT scan about 6 months…
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Just starting my journey
Greetings, My PSA went from 3.4 in 2019 to 6.9 in 2022. Went to my urologist and was diagnosed with prostatitis, 6 weeks of antibiotics, and PSA was still high (6.4), Free PSA% 14. Recommended an MRI with contrast. Results are 1 PIRAD 5 lesion left side peripheral zone 1.8 x 1.3 cm. no other exceptions..etc Headed towards…
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Decision time. ADT holiday or add Secondary Agent? Please advise!
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3. Subsequent PSA was non-detectable as tested every three months. Five years after surgery I felt confident…
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Pelvic MRI with contrast... 2nd opinions
Are there any Radiologists in Colorado, USA that will read my MRI from Nov 2021 and compare it to my 2017 MRI? I believe this is called getting a second opinion. Imaging company#1 said no, because their radiologists do not want to "Step on anyone's toes" Company number 2 said they just cannot do that sort of thing... I…
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Best drug for hormone treatment/IMRT/SBRT for Prostate cancer
Husband will be receiving hormone treatment prior to 25 rounds of radiation and then 3 of Cyberknife. Really concerned about side effects of HT. Would appreciate perspectives and options. Thank you!
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Newly diagnosed. What doctor should we see next
Hello everyone. My husband was just diagnosed with prostate cancer. He is 76 years old and overall very healthy. He had an abnormal DRE during his yearly check up and a PSA score of 2.8 which doubled from the year before.He had a biopsy five days ago and the results came in with a Gleason score of 8. Our urologist…
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Burning from stomach to throat.
I have numerous diseased lymph nodes around abdominal area, did prostate biopsy. Originally defined as Squamous Cell carcinoma. Left leg swollen 5” bigger at the thigh than the right thigh, as well as my foot. Had my first Chemo/immunotherapy treatment Monday the 29th. Can’t swallow the tiniest bite or allow liquid to move…
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HIFU is being offered to me
I was diagnosed in a 16 core Trus biopsy with 2 cores positive for G 7 (4+3) G7 (3+4) in the left mid peripheral zone Psa 2.9 free psa. 7 4kscore 20 Multiparametric MRi no Pirad lessions In the cores 5 mm cores 1 mm was cancer free 4 mm cancer I assume cancer is touching/adjacent to prostate capsule. Is HIFU adequate for…
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Initial Diagnosis of Gleason 9 in 100% of biopsy cores
My 66 year old husband was diagnosed with Gleason 9 (4+5) in 100% of the 14 cores taken in January 2022. Cribiform pattern, intraductal carcinoma, periprostatic fat invasion, seminal vesicle invasion, perineural invasion and lymph-vascular invasion were all present. His thorax CT showed enlarged left superclavicular, right…
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Systemic Treatment – my experience and update
Though the title of the thread doesn’t instigate reading for many of the attendants, the term systemic surely will strike the curiosity of some as it did to me back in 2001 when I was diagnosed with recurrence after prostatectomy. It has just passed seven months since RP and I was again hearing about cancer. I felt…
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Just Got Diagnosed
Hello everyone, I am 70, in generally good health according to blood tests. Had a Prostate MRI, now scheduled for a Biopsy. My PSA went from about 4.5 a year ago to 6.5 this year (2022) then jumped to 7.3 in a matter of a few months. Here is MRI radiology report summary: "IMPRESSION: Overall PI-RADS 4: Clinically…
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PSA Increase?
PSA virtually undetectable for years. Should it metastasize to the bone would the first indication be an appearance of PSA or Dx by some other means? Thanks.