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Prostate Cancer

Starting the journey at 51
I had a physical in October and my PSA reading was 25 and was referred to a urologist. I had another PSA reading 2 months later and it was up to 27, so the Urologist ordered an MRI. The MRI came back with a lesion on each side grade 3 and 4. This prompted a Biopsy & Cysto which I had on Monday. I get the results on this…
Recently diagnosed Gleason 7 (4+3), psa 16, evaluating IMRT / IGRT vs surgery
I have all my cancer supposedly confined to my left side of my prostate; 5/12 biopsy reads were cancerous. I am getting a Prostate Specific Membrane Antogen PET Scan to confirm (hopefully) there has been no spread. I am very concerned about sexual side effects. Would like to hear from those who have had this type of…
AUS 800 is installed will try to keep a diary kinda
Well I got the 800 on tuesday afternoon and my lousy luck continues! The doctor decided to put in a dual cuff because of my excess leakage (14 + pads a day). The problem now is i shut down completely. by Tuesday night they had to put in a foley cath. as i was in major pain and no way to pass liquid. Doctor is afraid the…
My AUS Procedure
I have read a few posts that describe a different procedure than what I experienced. I had mine in November 2010, so a lot may have changed since the other posts were written. The ones I have read describe an incision from the anus to the base of the penis. Mine was actually a 2 inch horizontal incision at the base of the…
Rising PSA after 7 years
October 2013 64yo after routine physical tested 10.2 PSA. 3 weeks later had a biopsy in office, first mistake. Came back with a G8 and T3b in November. Put off surgery till after the 1st of the year. Did not want to deal with this over Thanksgiving and Christmas. February had RP, catheter for 8 days, after removal dry…
3+4 Time for my 6 month...anxiety
Hey everyone. New here. But I am getting my 6 month PSA checked Tuesday and my anxiety is a little high. I had a robotic prostatectomy 1.5 years ago at 46. Final pathology was 3+4 fully contained and 15% pattern 4. All tests have been <.04 undetectable. I realize with those stats I'm in a very good position. But no matter…
Abiraterone acetate from Cost Plus Pharmacy
Is anyone using Mark Cuban’s Cost Plus pharmacy to get Abiraterone (Zytiga generic)? I s it reliable? I’ve been thinking about it. Abiraterone is listed on their site but next to 250mg, the standard dosage, it says “(Back order)”…
cost of drugs with Wellcare/Medicare
I just signed up for Medicare and Wellcare drug plan. I'm on Lynparza for stage 4 metastatic cancer. Just was told that my percription co pay would be $3000. because of the donut- hole BS. averaged out over a year is $1050. How do people pay these rip off prices? Curren
Deciding on treatment
I was diagnosed with prostate cancer in May of 2016 but apparently I have had elevated PSA results for at least 7 years prior to that (army clinic failed to inform me that my PSA was higher than expected in 2008 only to tell me in 2016). My original PSA was 11 but I was checked immediately after the results and it was 5.7…
Pain In Penis 5 weeks post surgery
I am having pain inside my penis 5 weeks after surgery. Worse pain is near base of penis. No pain urinating, flow ok. It is worse at night and keeps me awake. Asked my doctor and he said it is probably due to the nerves being extra sensitive after surgery. Very disconcerting. Anyone with similar problem. Thanks
Kaiser Walnut Creek - Dr. Rosenbaum
Hello! Has anyone had experience with Dr. Raymond S. Rosenbaum at Kaiser in Walnut Creek? He is the most experienced with the robotic surgery at that facility. He went to Harvard for undergrad and Albert Einstein School of Medicine for his MD. He must be a pretty smart guy! That's reassuring but it would be good to know if…
Artificial Urinary Sphincter Implant (AMS 800) -- help!!!
Seeking Others to Discuss Their Experience w/ AUS Implant (AMS 800): I am inquiring for my father-in-law (fil) who has limited internet access. He is 63, prostate removed 13 months ago, now suffering from incontinence. Received 2nd opinion yesterday from Mayo and was told he had 2 options: 1) status-quo -- it won't get…
PSA and testosterone increase
My PSA test 1/23/2023 showed .253 vs past quarterly's of <.064, <.01, <.064, <.064,.064. Testosterone was 45 vs past quarterly's of 24, <5,<10,22, 39 , 50.Blood was drawn while I had a bacterial infection as evidenced by Immature granlocytes at 1.2 vs 0.5% limit. I have been on ADT for 16 months. Any comments are…
My Hormone Vacation Begins
After 2 years on Lupron/Zytiga/Prednisone, there are currently no visible signs of PCa, so my Oncologist has granted me a hormone vacation. I recognize that it will probably be 6 to 9 months before I feel 'normal' again, but I am very much looking forward to it. Time to celebrate! My Related History and Data: Post-Robotic…
Should I Be Concerned
hello, good people. HAPPY NEW YEAR!! yesterday, i had my PSA blood draw and it went up quite a bit. my PSA yesterday was 1.31, up from .76 in late september 2022. i'm not feeling too good about those results. here's a list of my PSA 12.17.2019 | 11.45 = BEFORE HDR BRACHYTHERAPY ============== 01.21.2021 | 4.04 = 1ST. PSA…
They’ve stopped making Lupron?
I’ve been on 3 month Lupron for 5 years. I’ve just run across an article from December of last year that they’re no longer making Lupron. Anyone know anything about this. (I’m in the U.S.)
Multitude of new onset health issues
Hello! I’m here for my father. He avoided doctors all his life, but recently started having some shortness of breath and cough. He’s a lifelong smoker and I encouraged him to finally get a primary care doctor for labs and a CT chest to rule out lung CA. Test came back with minor nodules in lung, opacity in pleural space,…
10 years later...
Greetings, 10 years ago I went through a RP and a month later had 36 treatments of RT. The last 9 of those years after, my PSA was always 0.01 but now seems to be on the incline again, low but different at 0.07 then 0.05. The 0.02 drop 6 months later confused me, is that normal? Thanks in advance.
How do I read the PSA Levels after Prostatectomy & External Beam Radiation?
My PSA TEST Level read 0.1ng, 6 months post my last External Beam Radiation. My doctor says it should be <0.1ng or less. Is there somewhere I can get a guideline chart to better understand these results? In my case I understand that we are all looking for Undetected PSA. So where is the guideline with all of the different…
chemo and blood thinner
Im new here 78 year old newly diagnosed with prostate cancer. stage 4+ Gleason 9 5-4. Im starting radiation tomorrow for 9 weeks then chemo. Im currently on blood thinner for blood clots in both legs DVT and have heard chemo will cause blood clots. Has anyone else heard this? I haven't seen any posts addressing this.…
Need encouragement from Chemical Castration
Age 63 January 2021 prostrate removed sex 4-5 times per week prior. Got erections and orgasms within a week. Good news. bad news, it spread to lymph nodes July 2021 started radiation and Hormone Deprivation (chemically castrated) 6 month shot December 2021 and with 10-20 mg of Tadalafil, occasionally can get a marginally…
Pain n prostate 20 months after radiation treatments
Hello, I'm 58, had a 3+4=7 Gleason score 12.4 PSA, .50 inch tumor in prostate. Had the 30 radiation treatments, my PSA only went down to 1.24 at 12 months, then 4 months later 1.44 then 4 months later 1.64 and now 1.85. They did a CT scan, found nothing "definite" am going to have PSMA scan in a month. I'm having sharp and…
Definition of biochemical recurrence
Hello all, first post. Brief history: Diagnosed in 2015 and underwent RP that year. Surgical report stated "Gleason 3+4, Stage T3a, negative resection margin." The last part indicated to me that surgery was successful. Unfortunately, my first PSA test 3 months after surgery was 0.53 and a follow-up 3 months later was 0.75.…
Over-concerned wife or Not?
I hope someone can help me clarify my concerns. Husband is 54yrs old with high blood pressure (medicated) & on testosterone for (Low T.). He is not a smoker, but drinks alcohol nightly. Because of his testosterone injections, he regularly has bloodwork done. 12 days ago he had a bloody ejaculation and it has been bloody…
Hormone treatment
I am 80 and diagnosed with advanced prostate cancer. I am being treated at the Bay Pines VA. Radiation and removal have been ruled out. I have had three Firmagon injections (2 initially then a follow up). This past week I had my first 90-day injection of Eligard. I have the symptoms I read about...hot flashes, night sweats…
Questions to Ask for Radiation vs Surgery?
Hey everyone, I’m a new member. I’m 63 years old in NYC. My November PSA showed a sharp increase to 8.3, so I had an MRI, which showed RADS 5 and a legion in the left region. No seminal vesical or lymph node invasion. But it did state there was “overlying extraprostatic extension.” A subsequent Bone Scan showed nothing…
Prostrate cancer
My husband just has his prostrate removed 3 months ago, we just had a PET scan and it shows a 4 centimeter growth on a lymph node, also he has fluid build up beneath his bladder we are not getting any information from our urologist on what to do just a call from her nurse stating what was found and she cannot tell us…
ADT Treatment Hormone Therapy
Hi I have committed to a programme of IMRT. This started with me receiving Zoladex but I did not receive Flutamide or Bicalutamide. Some cancer veteran mates told me that I should have been on one of these prior to the Zoladex injection to counteract flare. I welcome any advice or comment from fellow prostate cancer…
New patient
I am 71 years old living in Houston Texas and It's been 3 years since I was diagnosed. I feel good and in great health. I have been on active surveillance. It started with my PSA level going above 4.0 since 2018 to 6.5 currently. My doctor recommended a urologist and he recommended a biopsy--which we did in December 2019.…
lymph nodes negative for metastatic carcinoma but positive for leukemia after prostate surgery
Just got word that lymph nodes positive for leukemia after prostrate removal. Waiting to hear more on next steps. Has anyone else experienced this? thanks

Prostate Cancer

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