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PSA after Salvage Radiation
Recognize some of you from 2 years ago when I first posted news of my husbands pc. That's a good thing. Since Nov/05, with PSA of 26 and gleason 8, he has had a RP. PSA initialy went to 0, didn't quite make a yr before psa rose to .07, then .11, began salvage radiation in Jun 07. 6 weeks after radiation psa was at .19…
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Started Xtandi - here's hoping
Started Xtandi 8-18-21. 160 mg once a day right before bed. My PCa has been manageable using ADT treatments up until now. Here's hoping Xtandi works just as well. I have PSA/testosterone/CBC/Comprehensive metabolic panel blood tests to be done at the end of September. We'll find out then. Not the complete picture, but…
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Prostate Removed
74yrs old. January 2021 showed PSA >6.0, but digital prostate exam nml. Dr ordered MRI, which showed AREA OF CONCERN on anterior (front) side of gland (digital exam doesn't palpate this area). Biopsy showed very small areas of adenocarcinoma (cancer) in three of the eighteen biopsy specimens. Those specimens were sent to a…
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After Prostate Biopsy.
I had my first transrectal biopsy almost a week ago. No results yet. I had some blood in my stool for a few days as well as a little blood in my urine. I was told I could have some blood in my seman also. When that event happened about 6 days later it was quite shocking. I was expecting a tinge of blood but what came out…
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PIRADS 5 MRI - Urologist said almost certainly Prostate Cancer
Hi All, I'm sure many if not most of you have been in my position, whereby I am currently trying to digest and process a conversation with my urologist a few hours ago. Understandably, I'm shocked scared, apprehensive as to what comes next. I'm not sure why I'm posting here? I guess it may be part of my processing. I'd be…
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Post-RALP PSA 2.6
Pre-op PSA 15.8 Gleason 4+3=7 GG3 RALP 5/24/21 - Johns Hopkins Eleven (11) lymph nodes and associated fibroadipose tissue, negative for tumor. Pathology report of surgical margins. Dismissed by my surgeon as no concern - "It's nothing, pathologists are always over-aggressive in finding positive margins" Margins Summary…
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Proton Beam....what's up??
Ok, so we are really running down the treatment lists, have sent out for books/lit/etc.....we are really impressed with HIFU and proton beam..i've read all the HIFU posts, and it seems availabilty, cost, and long term studies are the real problems....but, what about the proton beam??? I have been looking at the studies and…
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Prostatectomy + RT + ADT
I have created this new topic to document my case which I believe may be interesting to members . I was diagnosed shortly after my 55th birthday with a PSA of around 130 and no other symptoms, nothing, nada, everything worked absolutely normally; I had a small prostate with about 40% of it filled with a Gleason 7 tumour.…
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PSA Test Result after 5 years of RP
Hi all this is my first post to this group. I am 55 years old and have had RP 5 years ago. My PSA results have always been <0.04 and that was considered by my Urologist undetectable. My Gleeson score was 7 and PSA prior to surgury was 3.2. My local GP did a general blood test a few weeks ago and included a PSA test from…
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Psa
my name is John I am 66 on january 4 I had robotic prostate removed with a Gleason 6 over past for half years my psa numbers have been 0.06 0.01. 0.08 0.01. 0.08up down no higher so far then 0.08 done at va hospital my dr of last 5 years retired who never was concerned with numbers but my new person is nurse practitioner…
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From University of Utah / Huntsman Institute to Local Standard of Care
I have changed the title of this thread as I am now going to be getting treated locally in my hometown and no clinical trials at Huntsman are slated for me in the near future. If / when I start a new trial, I will post it under a new thread. For now, I will be getting local "Standard of Care" treatment in my hometown. My…
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Newly diagnosed prostate cancer
I was just recently diagnosed with prostate cancer. My biopsy revealled 1 4+4 =8 with 10% involved, 2 4+3=7 with 5-10% involved, 4 3+4= 7 with 20-50% involved, 1 3+3=6 with 5% involved and 4 BPH 0 cancer. My uroligist has me graded at a gleason score of 8 with PSA at 11.9. I am scheduled for bone scan this week and pelvic…
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Osteoporosis after hormone therapy
Has any one experienced osteoporosis as a result of hormone therapy after radiation treatment? My Dr. has suggested osteoporosis drugs, but I an not comfortable with the side effects of them. I don't think the Drs would have checked for it if I had not had a bone density test at a free Health Fair.
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Use Testosterone as a drug or Bipolar Androgen Therapy
Has anyone experienced this? Although there are not many reports, I do find it quite interesting. Basically, if things go sideway, there is nothing to lose, right. More promising results and experiences by a medical doctor in the below YouTube video and an online publication. With BAT in every 6-8 week cycle, patients have…
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Cancer went to lungs
We just found out (this week) my husbands's cancer has gone to his lungs. He went off ADT for only 6 months, and this happened. The dr started him back on ADT today (originally he was going to do it earlier, but he said my husband could wait until after vacation and do a CT scan once we returned to see how everything…
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PSA test came back as 11. Oh boy here we go!
I'm 67 and recently had a PSA test done during a routine physical and it was 11. The last time I had a PSA test was 5 years ago by another doctor and it was 4. I actually found out about that one right after my last test because my new doctor wanted my past medical records. That first doctor never said anything about it…
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Newly diagnosed and don't know which path to take
Hi all, first post. I was recently diagnosed with prostate cancer. I'm 45 years old. My primary care doctor first gave me a PSA test about 3 years that showed an elevated PSA (4.9). I didn't think much of it and for a few years, I did regular PSA testing, all of which was remarkably consistent. Then last fall, my PSA went…
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Prostate Cancer- After RP, Gleason 9 from 6 and PSA relapse
I have searched and studied a few publications and some literature. This is my first time posting on this very useful forum, so hoping to help others and/or get some inputs. I am now 49 years old and have been healthy and very athletic in sports. I had an RP in Sep. 2020 when PSA was 32, and the surgeon thought that I…
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Is Calypso the same as SBRT?
I am considering a doctor who uses the Calypso machine to treat my PCa. He will use high dose radiation over 5 sessions in 2 1/2 weeks. Up until now, I assumed that this is the same thing as SBRT. Now, however, I am reading things that imply that just because it is done over 5 sessions it doesn't necessarily imply that it…
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Reoccurance of Prostate Cancer after Brachytherapy
I am 53 years old and had brachytherapy in 2/2010. My PSA rose to 4.5 and had new biopsy completed a couple of weeks ago, which showed risidual cancer with a gleason of 6. I am now researching my options for treatment. I would be interested in hearing from others who have been in my situation and learning what treatment…
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Checkup Status - Post-Radiation / Existing Hormone - 8/5/2021
Hi Folks, I just received my PSA test result, and I wanted to share it with you. The timing of this test is approximately 36 months after my 2nd and last Lupron shot (two 3-month dosages), and also approximately 36 months after my last radiation treatment (38 visits, 68 Greys). The result for PSA was 0.05, the first…
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gleason score 9 with hormone therapy in one week
Just received the news from my nurologist that I have a gleason score of 9 with bone metastatic bone lesions. I guess what I would like to get from this site is some indication of how long do I have to live. I'm 64, and want to hear from all of you, just how long can a person live with this cancer. Of course using all the…
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Do I need to be concerned for prostate cancer?
PIRADS 5 lesion 4.1 x 3.1 cm, one side of prostate only. PSA 0.9. Age 40. Several suspicious rectal lymph nodes lit up on the MRI. Leg has pitted edema on the side with the lesion. In very poor health, breathless and tired all the time. Having urinary and prostate symptoms. Family history of early onset cancer in both…
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Conflicting PI-RAD and Prolaris results
I have been diagosed with Gleason 3+4=7 PCa with a PSA of 5.9 and a normal DRE (T1c). I am 71 years old. My PI-RAD score was a 5 with a small, localized tumor found. My MRI-guided biopsy showed 34% positive cores. Since this put me in a favorable intermediate classification my doctor ordered a Prolaris genomic test. It…
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Incontinence and other stuff
hello all i had Da Vinci robotic prostate surgery in November 2015. By a year later I was completely dry continence-wise. No pad, no accidents. In late 2019 my PSA began to register again. 0.1 for two months then 0.2 for two months. My surgeon referred my to a radiologist who prescribed 7 weeks (35 treatments) of external…
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New to this and a little confused
I've been reading a lot of posts here and find myself getting more confused. I'm 55 and was diagnosed with cancer on July 6. My dad had his prostate removed in 2013 at age 72 and that was followed up with radiation about 6-7 months later. My 54 yo brother was diagnosed with 3+3 cancer last year and is on active…
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Ativan for Anxiety Helps
Couple of rough nights lately due to anxiety over my upcoming urologist visit (7-22) and stress over COVID, among other things. The anxiety got bad enough that I required an ER visit. I was checked out, blood panels okay. Got an Ativan injection and an Atarax prescription. The Ativan calmed me down for the ride home. Had a…
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I need to better deal with stress:
I need to better deal with stress: I have had a very hard time dealing with stress lately and it crossed my mind to look into common meds, such as Ativan (I see some good info on various CSN discussion boards about Ativan). I had a very hard time sleeping last night. Stress troubling me. Having to pee every so often didn’t…
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Firmagon + Lupron 3 month + Radiation Success Stories?
I'm 54 and got hit with a Gleason 7 at a point in my life where I am in pretty good shape. I just finished my month of Firmagon and got my 3 month injection of Lupron today. Next week I start radiation. I'm happy I found this community, but I'm also surprised at how many cases of prostate cancer have recurre--even after…
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Erectile Dysfunction Success Stories
Everyone who posts on this, and other, forums seems pretty disappointed by the recovery of erectile function. I am five weeks post RRP and the surgeon (Patel) said useable erections would return in time. I am 43 and had good nerve sparing and he said they have gotten pretty good at predicting ED outcomes. I asked if that…