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Prostate Cancer

From University of Utah / Huntsman Institute to Local Standard of Care
I have changed the title of this thread as I am now going to be getting treated locally in my hometown and no clinical trials at Huntsman are slated for me in the near future. If / when I start a new trial, I will post it under a new thread. For now, I will be getting local "Standard of Care" treatment in my hometown. My…
Newly diagnosed prostate cancer
I was just recently diagnosed with prostate cancer. My biopsy revealled 1 4+4 =8 with 10% involved, 2 4+3=7 with 5-10% involved, 4 3+4= 7 with 20-50% involved, 1 3+3=6 with 5% involved and 4 BPH 0 cancer. My uroligist has me graded at a gleason score of 8 with PSA at 11.9. I am scheduled for bone scan this week and pelvic…
Osteoporosis after hormone therapy
Has any one experienced osteoporosis as a result of hormone therapy after radiation treatment? My Dr. has suggested osteoporosis drugs, but I an not comfortable with the side effects of them. I don't think the Drs would have checked for it if I had not had a bone density test at a free Health Fair.
Use Testosterone as a drug or Bipolar Androgen Therapy
Has anyone experienced this? Although there are not many reports, I do find it quite interesting. Basically, if things go sideway, there is nothing to lose, right. More promising results and experiences by a medical doctor in the below YouTube video and an online publication. With BAT in every 6-8 week cycle, patients have…
Cancer went to lungs
We just found out (this week) my husbands's cancer has gone to his lungs. He went off ADT for only 6 months, and this happened. The dr started him back on ADT today (originally he was going to do it earlier, but he said my husband could wait until after vacation and do a CT scan once we returned to see how everything…
PSA test came back as 11. Oh boy here we go!
I'm 67 and recently had a PSA test done during a routine physical and it was 11. The last time I had a PSA test was 5 years ago by another doctor and it was 4. I actually found out about that one right after my last test because my new doctor wanted my past medical records. That first doctor never said anything about it…
Newly diagnosed and don't know which path to take
Hi all, first post. I was recently diagnosed with prostate cancer. I'm 45 years old. My primary care doctor first gave me a PSA test about 3 years that showed an elevated PSA (4.9). I didn't think much of it and for a few years, I did regular PSA testing, all of which was remarkably consistent. Then last fall, my PSA went…
Prostate Cancer- After RP, Gleason 9 from 6 and PSA relapse
I have searched and studied a few publications and some literature. This is my first time posting on this very useful forum, so hoping to help others and/or get some inputs. I am now 49 years old and have been healthy and very athletic in sports. I had an RP in Sep. 2020 when PSA was 32, and the surgeon thought that I…
Is Calypso the same as SBRT?
I am considering a doctor who uses the Calypso machine to treat my PCa. He will use high dose radiation over 5 sessions in 2 1/2 weeks. Up until now, I assumed that this is the same thing as SBRT. Now, however, I am reading things that imply that just because it is done over 5 sessions it doesn't necessarily imply that it…
Reoccurance of Prostate Cancer after Brachytherapy
I am 53 years old and had brachytherapy in 2/2010. My PSA rose to 4.5 and had new biopsy completed a couple of weeks ago, which showed risidual cancer with a gleason of 6. I am now researching my options for treatment. I would be interested in hearing from others who have been in my situation and learning what treatment…
Checkup Status - Post-Radiation / Existing Hormone - 8/5/2021
Hi Folks, I just received my PSA test result, and I wanted to share it with you. The timing of this test is approximately 36 months after my 2nd and last Lupron shot (two 3-month dosages), and also approximately 36 months after my last radiation treatment (38 visits, 68 Greys). The result for PSA was 0.05, the first…
gleason score 9 with hormone therapy in one week
Just received the news from my nurologist that I have a gleason score of 9 with bone metastatic bone lesions. I guess what I would like to get from this site is some indication of how long do I have to live. I'm 64, and want to hear from all of you, just how long can a person live with this cancer. Of course using all the…
Do I need to be concerned for prostate cancer?
PIRADS 5 lesion 4.1 x 3.1 cm, one side of prostate only. PSA 0.9. Age 40. Several suspicious rectal lymph nodes lit up on the MRI. Leg has pitted edema on the side with the lesion. In very poor health, breathless and tired all the time. Having urinary and prostate symptoms. Family history of early onset cancer in both…
Conflicting PI-RAD and Prolaris results
I have been diagosed with Gleason 3+4=7 PCa with a PSA of 5.9 and a normal DRE (T1c). I am 71 years old. My PI-RAD score was a 5 with a small, localized tumor found. My MRI-guided biopsy showed 34% positive cores. Since this put me in a favorable intermediate classification my doctor ordered a Prolaris genomic test. It…
Incontinence and other stuff
hello all i had Da Vinci robotic prostate surgery in November 2015. By a year later I was completely dry continence-wise. No pad, no accidents. In late 2019 my PSA began to register again. 0.1 for two months then 0.2 for two months. My surgeon referred my to a radiologist who prescribed 7 weeks (35 treatments) of external…
New to this and a little confused
I've been reading a lot of posts here and find myself getting more confused. I'm 55 and was diagnosed with cancer on July 6. My dad had his prostate removed in 2013 at age 72 and that was followed up with radiation about 6-7 months later. My 54 yo brother was diagnosed with 3+3 cancer last year and is on active…
Ativan for Anxiety Helps
Couple of rough nights lately due to anxiety over my upcoming urologist visit (7-22) and stress over COVID, among other things. The anxiety got bad enough that I required an ER visit. I was checked out, blood panels okay. Got an Ativan injection and an Atarax prescription. The Ativan calmed me down for the ride home. Had a…
I need to better deal with stress:
I need to better deal with stress: I have had a very hard time dealing with stress lately and it crossed my mind to look into common meds, such as Ativan (I see some good info on various CSN discussion boards about Ativan). I had a very hard time sleeping last night. Stress troubling me. Having to pee every so often didn’t…
Firmagon + Lupron 3 month + Radiation Success Stories?
I'm 54 and got hit with a Gleason 7 at a point in my life where I am in pretty good shape. I just finished my month of Firmagon and got my 3 month injection of Lupron today. Next week I start radiation. I'm happy I found this community, but I'm also surprised at how many cases of prostate cancer have recurre--even after…
Erectile Dysfunction Success Stories
Everyone who posts on this, and other, forums seems pretty disappointed by the recovery of erectile function. I am five weeks post RRP and the surgeon (Patel) said useable erections would return in time. I am 43 and had good nerve sparing and he said they have gotten pretty good at predicting ED outcomes. I asked if that…
What Stage?
Hi Guys, First post and new here, This is my story....I am 50 and had a UTI which kncocked me for six and but after antibiotics it improved but i still felt something wasnt right so after a few weeks I managed to see the doctor and get a DRE which he said he felt something abnormal and with a high PSA level of 11, he told…
Incontinence
My surgery was 9,30.2019 with Dr. Patel in Orlando. My Gleason scors was 8 with a 9 after biopsy. Ninety one days later I had my Gallbladder out on New Year's eve. I wil be 78 next month. I also have peripheral nerve problems. My PSA is undetectable since surgery. Will my continence come back over time. Most of my posts…
side effects data
Where is the best place to find current side effect data on the different ADT treatments , SBRT radiation and bracytherapy? I am 84, Gleason 8 and need to decide on ADT followed by SBRT
Orgovyx vs Lupron
Tests for spread
What tests are performed to determine if cancer has left the prostate? Is it PET scan? Would that be done if Gleason is 6?
Active Surveilance update 2021
Prior discussions the new guy - a candidate 26 Oct 2016 first contact 30 Oct 2016 initial resistance 9 Nov 2016 Primary tabs 1.5T vs 3 T mp-MRI rationale 4 Dec 2016 Update (2018) 28 Aug 2018 I got an insured 3T mpMRI in 2016. It came out PIRADS 3 (original scale, version 1). I could not get a fusion biopsy. I waited for a…
my 3 options for treatment
Hi, I am new to this forum and appreciate all of the advice and wisdom of the threads I have been reading. 62 year old in good health. Latest PSA in 9/2020 is 8.3. One year previous was 7.0. Primary care physician was concerned with velocity of results over time. No other urinary symptoms of concern. Had MRI (negative) and…
ED after nerve sparing prostatectomy
https://link.broadcaster3.medpagetoday.com/click/24053431.10339/aHR0cHM6Ly93d3cubWVkcGFnZXRvZGF5LmNvbS9oZW1hdG9sb2d5b25jb2xvZ3kvcHJvc3RhdGVjYW5jZXIvOTI5MTA_eGlkPW5sX2NvdmlkdXBkYXRlXzIwMjEtMDYtMDQmZXVuPWcxMjQzMjUyZDBy/5b203761576f2c6597129e73Ba15a8322 To all new prospective RP patients, please read this report before you…
Radiation Side Effects
I'm curious to hear experiences of people who have had radiation at a younger age that are now older. How side effects of radiation may have progressed over time. I have the impression that 10 - 20 years later more complications occur.
Prostatic artery embolization
I have been on active surveilence for 4 years for Gleason 6 PCa. All tests so far, 5 biopsys, 2 3T MRIs, 2 Oncotype DX tests and numerous PSA's all indicate that there is little chance of more serious cancer. HOWEVER, I do suffer from fairly serious BPH symptoms which affect my quality of life. I started a new medication…

Prostate Cancer

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