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is it common to have tenesmus/proctitis after RALP??
I had my RALP more than a month ago. At the beginning I felt all the typical stuff in the perineal area etc etc. But what is bothering me really bad now is the feeling of incomplete evacuation after a bowel movement, like cramps, pain, sensation of fullness, etc. I don't think that's very common after RALP, although the…
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Post RALRP incontenance
New member here - I am a young and very active 73 year old. I had my RALRP in Rochester NY on 12/14/2021. That year 5 of my friends were diagnosed with PC. I did my research and didn't wait. I went ahead with the surgery. Seminal Vesicles were removed with no margins involved. I will spare you the lack of information about…
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Surgey vs Cyberknife
Hi Everyone, Recently diagnosed with prostate cancer, Gleason score of 7. So far seems like its localized in the prostate. Consulted with a surgeon and radiation oncologist (cyberknife) at Memorial Sloan Kettering in NYC. Having a real hard time deciding which treatment to use. My wife and I are raising my grandson and my…
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Signs adt is not working as well?
Hi, It's been a long time since I was on here. My husband is still undetectable and on Lupron/Zytiga combo since end of July 2021, prior he had 6 months hormone holiday after a full year of ADT (December 2019 to January 2021) but that turned out to be a bad move as it spread to his lungs. He had a CT scan about 6 months…
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Just starting my journey
Greetings, My PSA went from 3.4 in 2019 to 6.9 in 2022. Went to my urologist and was diagnosed with prostatitis, 6 weeks of antibiotics, and PSA was still high (6.4), Free PSA% 14. Recommended an MRI with contrast. Results are 1 PIRAD 5 lesion left side peripheral zone 1.8 x 1.3 cm. no other exceptions..etc Headed towards…
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Decision time. ADT holiday or add Secondary Agent? Please advise!
In 2010 at the age of 59, I had Da Vinci surgery with a Gleason 4+5=9 and PSA of 9. Post surgical biopsy showed all margins clear with no seminal vesicle involvement and Gleason post-op score was changed to a 4+3. Subsequent PSA was non-detectable as tested every three months. Five years after surgery I felt confident…
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Pelvic MRI with contrast... 2nd opinions
Are there any Radiologists in Colorado, USA that will read my MRI from Nov 2021 and compare it to my 2017 MRI? I believe this is called getting a second opinion. Imaging company#1 said no, because their radiologists do not want to "Step on anyone's toes" Company number 2 said they just cannot do that sort of thing... I…
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Best drug for hormone treatment/IMRT/SBRT for Prostate cancer
Husband will be receiving hormone treatment prior to 25 rounds of radiation and then 3 of Cyberknife. Really concerned about side effects of HT. Would appreciate perspectives and options. Thank you!
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Newly diagnosed. What doctor should we see next
Hello everyone. My husband was just diagnosed with prostate cancer. He is 76 years old and overall very healthy. He had an abnormal DRE during his yearly check up and a PSA score of 2.8 which doubled from the year before.He had a biopsy five days ago and the results came in with a Gleason score of 8. Our urologist…
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Burning from stomach to throat.
I have numerous diseased lymph nodes around abdominal area, did prostate biopsy. Originally defined as Squamous Cell carcinoma. Left leg swollen 5” bigger at the thigh than the right thigh, as well as my foot. Had my first Chemo/immunotherapy treatment Monday the 29th. Can’t swallow the tiniest bite or allow liquid to move…
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HIFU is being offered to me
I was diagnosed in a 16 core Trus biopsy with 2 cores positive for G 7 (4+3) G7 (3+4) in the left mid peripheral zone Psa 2.9 free psa. 7 4kscore 20 Multiparametric MRi no Pirad lessions In the cores 5 mm cores 1 mm was cancer free 4 mm cancer I assume cancer is touching/adjacent to prostate capsule. Is HIFU adequate for…
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Initial Diagnosis of Gleason 9 in 100% of biopsy cores
My 66 year old husband was diagnosed with Gleason 9 (4+5) in 100% of the 14 cores taken in January 2022. Cribiform pattern, intraductal carcinoma, periprostatic fat invasion, seminal vesicle invasion, perineural invasion and lymph-vascular invasion were all present. His thorax CT showed enlarged left superclavicular, right…
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Systemic Treatment – my experience and update
Though the title of the thread doesn’t instigate reading for many of the attendants, the term systemic surely will strike the curiosity of some as it did to me back in 2001 when I was diagnosed with recurrence after prostatectomy. It has just passed seven months since RP and I was again hearing about cancer. I felt…
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Just Got Diagnosed
Hello everyone, I am 70, in generally good health according to blood tests. Had a Prostate MRI, now scheduled for a Biopsy. My PSA went from about 4.5 a year ago to 6.5 this year (2022) then jumped to 7.3 in a matter of a few months. Here is MRI radiology report summary: "IMPRESSION: Overall PI-RADS 4: Clinically…
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PSA Increase?
PSA virtually undetectable for years. Should it metastasize to the bone would the first indication be an appearance of PSA or Dx by some other means? Thanks.
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Prostrate Treatment effects
I had a Brachy Therapy in 2006 performed by a team at the Sunninghill Hospital in Sandton Johannesburg. In 2006. In 2020 my prostate specific antigen reading was 18.1. My GP found this on a routine examination. Sending straight to my Urologist. He said it was necessary to have an Eligard 45 injection to stop and cells…
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PSA5.2 , gleason 7 , 3 + 4 . T1C ,
A friend diagnosis PC , PSA5.2 , T1C ,55yrs old. First biopsy test 10 cores was normal. second biopsy test(2 cores are positive out of 10 cores): one core needle biopsy gleason 3+4=7 tumor occupies appx 5% of the biopsy, no capsular penetration the other core , for a minute focus of adenocarcioma composed of a few glands…
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To Treat or Not To Treat??
I just had my consultation with my urologist.. I am borderline active surveillance and treatment based on my biopsy (24 samples) which showed one small tumor in one small area (2 core samples ..25% tissue ) graded 4+3.. Although surgery is his specialty, he ordered a genomic test (Decipher) will wait for results of that…
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Newly diagnosed with advanced prostate CA & starting treatment
63 yr old, retired dentist; no family history of cancer. In early April, went for routine physical. Only complaint was having to pee too often at night & occasional urgency. Doc didn't like way prostate felt & did PSA. 18 mo prior, it was 2.8; this time was 28.2! Sent to urologist who ordered biopsy, bone scan & CT. Biopsy…
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What is happening?
I am a woman and obviously do not have prostate cancer but my good friend does. He saw his regular doctor who did labs found his PSA to be in the 300's. He ordered more tests. Ct, mri,labs and pet scan. Next visit was a referral to an oncologist because the scan showed prostate cancer with metastasis to spine, skull,…
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SBRT 18 mo. ago and cancer is back
Greetings. I just joined the forum to help with my research to find the best therapy. I'm 73 and ~ 20 mo. ago had a rising PSA to about 9 with biopsy showing low risk (3+3) and high volume (5 of 6 cores positive, one at 80%.). So I elected for SBRT, Cyberknife and now 18 mo later my PSA went from 0.6 to 1.5. A subsequent…
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Newly diagnosed
Hi everyone. I was diagnosed 2 weeks ago. My PSA was 4.1 in August. This month it's 11.1. My urologist scheduled an MRI which will be done April 11th and a biopsy following that. I've had kidney cancer on both kidneys. 1 surgery in 2015 on left kidney in 2019 the right kidney. My doctors are awesome since I got to keep…
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#7
I went in for my annual PSA check and meeting with my urological surgeon's P.A. today. My seventh 'undetectable,' which means no residual PCa that current technology can detect. I give thanks. For the many newbies here, I was diagnosed Stage 2 in 2014, had DaVinci proctectomy in early 2015. Good luck to all, and know that…
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nucala
any one got any intel.getting first shot on 22 june 23
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Neuroendrocrine Tumors
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neuro-endocrine tumors
People tend to write you off as if you are dead. They alo want to take possesion of your body as if you caused the cancer because you were stupid. I don't understand this new idea that people cause their illness. We were there and our bodies responded in a negative way. With this tumor, I hope to live more years than I…
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Recovery time for trans perineal biopsy..
Hello guys.. I’m new to this site and after a couple PSA tests (including a 4K PSA) and a MRI, my urologist set me up for the subject procedure… I assume many of you have been thru this procedure and am curious how soon you get back to “normal”.. I ride my bike pretty much everyday as long as the weather permits… Despite…
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AUS800
Has anyone out there had their AUS800 "migrate" out of position after surgery? My surgeon had me return after 6 weeks to activate and he couldn't find it where it should be? Said I would have to undergo manual positioning to try to move it by the himself. After 15 minutes I said to stop because of the escalating pain…
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Meals plans help
There is confusion on how to plan my meals. I'm starting Radiation in 3 days. Any help would be appreciated. I have had the Markers done and the Space Ore done. ElevatorGuy
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Possible UTI after prostatectomy + increased bloody leaks
So I had a prostatectomy around April 10. Catheter out a week later. I was doing OK - managing incontinence fairly well. Things seemed hopeful. At the start of the third week I started to see an increased amount of blood in urine. Started leaking more and always there would be real blood. Doctor had a urine sample done.…