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Just Curious
was just wondering why some are given chemo for a year after they are in remission and others are not, anyone know
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Time period between detection and biopsy
I had an MRI hips which showed a tumor on my left ovary. I was given the info by phone by the receptionist and faxed a few doctors to see and an order for a pelvic us. The first gyne/oncologist I saw immediately decided I needed robotic surgery. I am seventy. We planned it in two weeks. In the meantime I began wondering…
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still waiting for chemo essay results
or is it assay? I can never keep all my terminology right. I had surgery on the 31st, and it went way better than I ever dreamed. I breezed through, was out of the hospital in 8 days and hardly have any pain 15 days out. My mom and I flew back to Seattle today, when we found out the chemo assay is not due out until next…
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Latest Attempt to Get The Word Out About Ovarian Cancer! Augghh!
I'm with you poopergirl and all of us sisters out there to get the word out about this deadly cancer. I was sooo relieved when I view Dr. Oz's program dedicated to this insidious cancer. I thought he gave it excellent coverage and showed the impact it has on everyones' lives. With Dr. Oz's influence and many other highly…
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OMG....I have completely lost my mind and "killed" off Libby P
I am sooooooooo sorry for upsetting all you ladies. I thought Kelly was Libby's daughter, and I knew that Kelly's mom died in August. Then I got an email from Lisa (13Q) and she mentioned "Libby passed" as well - obviously not "our" Libby. I will fix the video ASAP. I am sooooo sorry for the misunderstanding and apologize…
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Wiggin out
Ok, I am hispanic. I got a freebie wig from ACS. It was in good shape and close to the color my hair orginally was. Though I look so washed out. I look sickly. I took the look good feel good class, so I have and can do the make up but the wig still makes me look ugh. I am considering going a lighter color but am having…
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alternative therapies; esp for Tethys41
As indicated before, I am very interested in doing some of things you (Tethys41) are doing/have done re: naturopathic alternatives and Mexico. My plan of action is to find a local naturopathic doctor to help boost my whole body health, then perhaps go to Mexico to see what they have to offer. I just finished chemo and…
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Biopsy 3 weeks ago and still don't have a chemo plan
I had a biopsy 3 weeks ago that confirmed recurrent disease and as of today, still no chemo plan. My doctor won't be having a tumor board meeting until next wednesday and probably treatment won't begin until the following week, at a minimum. So that will be 5 weeks after the discovery of the recurrence. Seems like a long…
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Real Hope....But
Today's Science section in the NY Times has a story about the most hopeful treatment I've read yet. Titled "An Immune System Trained to Kill Cancer," it tells of an experiment with just 3 participants, all near death from advanced chronic lymphocytic leukemia, and two of whom are now in total remission for a year. The…
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The other shoe may have dropped--or not
I've been sitting around with "inactive cancer" for several months now since I went on a chemo break in the spring of this year. I've also been following the "anti-cancer" program as outlined by Dr. Servan-Schreiber and hoping I could keep the malignant cells dormant as long as possible. Had my CA-125 checked earlier this…
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Short Remission Part 2
It seems there is alot of discussion about recurrences. I am amazed and inspired by how strong all the women on this board are. I was only in remission for 2 months. Recently I ended up in the hospital with a bowel obstruction, caused by the new growth. Fortunately, the obstruction cleared on its own after 5 days of having…
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Red in the face
OK I know after surgery we go through menapose and will have hot flashes I started having hot flashes at fourty I am now fourty five. Since I started chemo I am having this strange thing happening I was wondering if it was the chemo. I can feel the heat start at my neck and move up my face I get very hot just in the face…
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CA 125 OMG
Let me set the stage for you. on June 4th my CA 125 was at 2,000 On june 21st I had my sugery. On August 18 I got my first copy of the blood work completed on the tuseday before the 18th and my CA 125 was at 67, I was over joyed to say the least. Today I got the results of the CA 125 that was taken last tuesday I was…
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Am back after a rest
I am back now. I just needed a break for awhile. I am still doing well, my Ca 125 is still at 9 and I am almost back to my old self again. I missed you all. Hugs lynda
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I posted Nancy's memorial on her FB page
If you belong to Teal Warriors, you can also access it from there. It was such a bittersweet undertaking. I hope to take lots of photos on Saturday - the quilt, the memorial wall, etc. Carlene
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I met Rookerbird!!!
Kathy (Rookerbird) brought some wigs and scarves and hats by yesterday that she wants me to donate to my local support group. Such a sweet lady! And her son, who was visiting from Houston, is a delightful young man. Since Kathy is on some pain meds, her son has been her chauffeur during his visit. He joked that it was…
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I am trying to spread the word
about ovarian cancer.I receive several womans magazines in the the and they never ever metion ovca,,only breast cancer. I wrote them a letter on facebook to please do a story on this as it's symptoms are so vague. I hope they will listen, I went for my yrarly mammogram last week and my radiologist tech said her mom died…
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Memorial Wall
My NOCC local chapter will have their 5K next Saturday and will feature a memorial wall, where we can post names, photos, etc of people we have lost to ovarian cancer. I am working on sheets for all our CSN teal angels. Putting faces to the disease is important. I want people to SEE that this is not something that happens…
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New picture
I have a new display picture from the winner's walk of hope. Our small city raised 33,000 and the walk nation wide raised 2.6 million. It's a start, let's hope next year it is 3 million. I am the one wearing the shirt with the teal ribbon that says Mom and her passing date. My husband made it for me. It was a great day and…
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Thrush
Well that awful sore throat that's still here is thrush! I know this can be a side effect of chemo, but I'm 2 months POST chemo. Has anyone else had this happen? Are there natural ways of curing it or preventing it from coming back.
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Port problem (cellulitis)
Has anyone ever has cellulitis in the area around their port? I went for chemo yesterday and the nurse noticed there was some redness above the port where my incision was originally made and the area felt warm. I was able to get chemo thru my vein. After much going back and forth between nurses, I finally saw the dr. The…
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Recurrence symptoms?
I would like to ask the ladies who have had a recurrence if they had any symptoms? Did you feel the cancer coming back at all? How long where you in remission if you did have a recurrence? It has only been less than 3 months and I feel like my cancer is coming back. I go to the gyn/onc tomorrow for a follow up and I am…
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what color am I going to be
I just found out I have to have a biopsy of left breast.. 3 areas..probable malignant. I am not sure how to cope with this. Having one cancer is bad enough,,but two. Yikes/ I am praying for negative results of course but I have this inner intuition that I do have 2 cancers now, I looked up breast core biopsy on google and…
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side effects after round 4
Ok had round four of taxol/carbo and advastin and the bone pain is a lot worst but I am also having problems with the upset stomach and heart burn. I do understand that it will get worst as I get more treatments but I sure do hate this. I never want to have anyone I know go through this again or ever. I know it sounds like…
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Radiation Fatigue
I am getting radiation to my clavicle for a recurrence in the nodes. I've had 3 treatments out of 5 so far, and today I felt super fatigued. Is this a common side effect of treatment? Doc said I probably wouldn't have any side effects, but boy I feel wiped out.
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Constipated.....
Sorry for the gross topic but I need help. I had a cat scan done a few days back because I have had vague pain in my right side and abdomen since surgery at the end of June. The scan showed excessive stool in my colon (doctor's words). He said to use a laxative every day. I have noticed I am never regular since surgery. I…
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Distended abdomen
The stage of my cancer at the moment is cause un-comfortable and at times painful abdominal bloating. I am finding I can only eat small meals as my stomach feels like it might explode otherwise. Has anyone else experienced this? If so how did you cope? Did you take anything to help relief the discomfort? I start chemo on…
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has anyone's ca 125 lowered or remained stable with high dose iv vitamin c?
sisters, just finished chemo for first recurrence of upsc, and am going to start high dose iv vitamin c and wondered if anyone's ca 125 lowered after having this, or remained stable. thanx, and sisterhood, maggie
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OVCA quilt
This makes no sense to me, but below is the email I received today. Hi Carlene. The NOCC has decided that they are not pre selling tickets and you have to be present to win. So......just between me and you.......if your friends want to by tickets they can send the money to me (or you if you are going to be at the walk) and…
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Can the grade/type of cancer change over several years?
My oncologist is having my cancer slides from 2006 (my first recurrence) compared to my biopsy from last week to see if they are the same/different. Can the cancer grade or type change after 5 years? I originally had a high grade cancer. This seems strange to me that it could be different now, but perhaps cancer morphs.